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> Happy to see your websites back up!

==>Thanks !! I was so surprised this morning! I had written to my

webhost yesterday morning but I didn't expect such a fast response!

Luv, Bee

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  • 1 year later...
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Hey gang,

Just thought I'd share something I'm excited about. My 13 1/2 year old

daughter just went to her back dr., and we found out that she is going to

be able to wean herself off her brace during the next 3 months. She

measures around 10 degree curves (which is way down from the original

near 30 degree curves when we started the journey 9-10 years ago).

Our other daughter hasn't had as great of results, hers is still around

25 degrees and the dr. is thinking she might need to go into a Boston

Brace (from the Providence nighttime brace) this fall. She's only 11

years old, so we are hoping her results improve with time and diligence.

For now we are celebrating with our 13 year old, though. It's been a

long haul.

Thanks for listening!

Diane VDW

Michigan

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Hi Diane,Congratulations on your one daughter's success.   That must be such a relief and such a great thing to see results!  I didn't even know they could do anything or even diagnose so early. (You wrote that her original curve of near 30 degrees was determined when she was 3 or 4).  That is so amazing that they can catch it so early and watch and try to correct.  Your daughters are very lucky to have you and to be such an advocate for them. 

DebbieOn Fri, May 22, 2009 at 3:13 PM, <sdvdw@...> wrote:

Hey gang,

Just thought I'd share something I'm excited about. My 13 1/2 year old

daughter just went to her back dr., and we found out that she is going to

be able to wean herself off her brace during the next 3 months. She

measures around 10 degree curves (which is way down from the original

near 30 degree curves when we started the journey 9-10 years ago).

Our other daughter hasn't had as great of results, hers is still around

25 degrees and the dr. is thinking she might need to go into a Boston

Brace (from the Providence nighttime brace) this fall. She's only 11

years old, so we are hoping her results improve with time and diligence.

For now we are celebrating with our 13 year old, though. It's been a

long haul.

Thanks for listening!

Diane VDW

Michigan

__________________________________________________________

Start Email Marketing - fast, affordable, and measurable. Click here.

http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTEFePBNnbO4jNrRjcuCD9LUjBvq6dMgGFIJXBr9JFxDDmLpD5eH5W/

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Great to hear! I bet she is tickled pink about that. Fingers crossed that it won't progress. I hope younger daughter will, in time, get good results from her new agenda.

So, celebrate on! She's been through a long journey and this IS Yippee news!

G

[ ] Yippee!

Hey gang,Just thought I'd share something I'm excited about. My 13 1/2 year olddaughter just went to her back dr., and we found out that she is going tobe able to wean herself off her brace during the next 3 months. Shemeasures around 10 degree curves (which is way down from the originalnear 30 degree curves when we started the journey 9-10 years ago). Our other daughter hasn't had as great of results, hers is still around25 degrees and the dr. is thinking she might need to go into a BostonBrace (from the Providence nighttime brace) this fall. She's only 11years old, so we are hoping her results improve with time and diligence.For now we are celebrating with our 13 year old, though. It's been along haul.Thanks for listening!Diane VDWMichigan__________________________________________________________Start Email Marketing - fast, affordable, and measurable. Click here.http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTEFePBNnbO4jNrRjcuCD9LUjBvq6dMgGFIJXBr9JFxDDmLpD5eH5W/

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That is fantastic news for your 13 year old. I'm sure she will be thrilled to be able to be able to wear "normal" clothes in the near future. Best wishes to your younger daughter, I hope she catches up to her big sister!

Jeanne

[ ] Yippee!

Hey gang,Just thought I'd share something I'm excited about. My 13 1/2 year olddaughter just went to her back dr., and we found out that she is going tobe able to wean herself off her brace during the next 3 months. Shemeasures around 10 degree curves (which is way down from the originalnear 30 degree curves when we started the journey 9-10 years ago). Our other daughter hasn't had as great of results, hers is still around25 degrees and the dr. is thinking she might need to go into a BostonBrace (from the Providence nighttime brace) this fall. She's only 11years old, so we are hoping her results improve with time and diligence.For now we are celebrating with our 13 year old, though. It's been along haul.Thanks for listening!Diane VDWMichigan__________________________________________________________Start Email Marketing - fast, affordable, and measurable. Click here.http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTEFePBNnbO4jNrRjcuCD9LUjBvq6dMgGFIJXBr9JFxDDmLpD5eH5W/

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Thanks for rejoicing with me, !

It is hard to see the kids struggle. As others here have said about ourselves, though, it is also true for my kids that it builds compassion and character, I believe. Not that I'd wish it on my worst enemy.

The C-curve sounds painful. I don't think my kids had any pain until one of my girls got jumped on from behind unawares by a friend. She is much better now after physical therapy, but still finds too much bending painful. I try to do her dishwasher job now.

As for my oldest...the dr. is letting her wean off the brace in 3 months. Seeing her 3 months later to make sure it is holding. Then he said probably a year, then another 2 years if things are looking good. You know that I'll be watching her, though! I guess her bones show that the growth is getting beyond where the brace will help now. I'm sure you all could probably also detect the off hips and shoulders, and if she bends forward a slight hump, but I doubt anyone else would notice a thing. I just hope the curve holds, and that she can avoid the kind of pain I've been experiencing on and off.

Well, you all have a great holiday weekend.

Diane VDW

Michigan

Diane,

I truly get how exciting this is for you, we went through it with my daughter, not for as long as you, 9 to 14, but still I get it. Hopefully she's not released from care yet, lets hope she maintains after the brace is off. Ceili held steady and didn't progress beyond 28 degrees, and had to one, stop growing, and two, hold the curve for a year post brace, and both happened. She's been released from care for 5 years, till she's a sophmore in college. With Ceili they could get her curve down to 3 degrees in the brace, amazing, but of course that didn't hold, she steadied out at 28, from what was a 30 degree curve. She has a long" C" type curve. She has quite a bit of rotation to her curve, so she has a big twist to her core, I see it, any of you gals would see it, but no one else notices. Long C curves can be painful, so she really has to watch what she carries, weight in a back pack can bother her, and some exercises too, we accomodate, teachers give her a longer passing period so she can chuck crap in her locker instead of carrying it.

It's always harder when it's your kid, than what we went through, and I'm so sorry so many of your girls are affected. I have three kids, only Ceili got it. We are watching my Granddaughter from my unaffected daughter like a hawk, as both Ceili and I had juvenile onset, and the scoli runs hard and fast and progressive with us. Ceili thinks she wants to adopt rather than have kids and maybe pass it along, I get that. I know when I found her's at age 9, and get this, between revisions of my own, I cried for three days before I could get up the strength to take her to Kumar, all I heard ringing in my ears was what my surgeon from my Harrington Rod surgery said, that I shouldn't have children, that I'd pass along the deformity. I felt like crap. But at least she had a Mom who knows the beast, and a doc who was just amazing with her, and an excellent brace guy who got her through, tough wearing that thing 18 hours a day for a year.

So know I'm dancing here in Colorado for your family, such a good day!

Colorado Springs

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  • 2 years later...

On 11/11/2011 4:17 PM, Dacia wrote:

>I have lost 35 pounds since the middle of

September.

Congrats on the loss.

When do you start the re-feeding process? You can't stay on liquid

protein forever, especially when diabetic. That stuff is murder on

the kidneys and liver of healthy people.

Sue in NJ

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