Tonia

[Guest guest]

I really do hope all goes well for . I had my fiancee with me I

was not a normal teenager per say. My parents came up once or twice

but it was that stayed with me threw it all he is still with

me now I don't know what I would do with out him in my life :-) new

4x4 huh sweet that should be an easy ride for .

Tamara in utah

>

> Hi~ The Cleveland Clinic with DR Rice is in Cleveland Ohio.Its

about 8

> hours from where we are.Gosh, thats terrible your parents werent

there

> for you.Who did you have for support? I could not imagine at 16

going

> through that alone.How are you doing now?

>

> As far as traveling.Good point on the van situation.My husband has

a

> new 4x4 extended cab truck so we will be taking that.We took my

> Volkswagon Jetta up there but the seat is too little for to

be

> comfortable in after surgery.Its fine any other time he takes a

> pillow,blanket and crashes out no matter where we go long

trips.Hes

> like a baby when it comes to a car-he sleeps away.My husbands

truck

> will be more roomier and he can stretch out really well.Yes we

gotta

> do the pillows too.Im still very scared of this trip back

though,its

> gonna be long. Thank you for your post~ Tonia

>

[Guest guest]

Dear Pippa, I reckon you are showing us a shining example of the ethic "Passing it Forward". Fulfilling isn't it? Love from Ann XXPippa <kevin.brown150@...> wrote: I will help you all I can, Just ask all the questions you want I was in the same boat as you a couple of months ago and if it wasn't

for , Ann, and I don't know what I would have done.How old is your son and where is he having his surgery?Why is he havng open surgery and not key hole?I had eating problems for about two years and finally went to the doctors who diagnosed an ulcer and acid reflux I was put on ant acid tablets which helped but not completly and still felt the food was getting stuck and I was trying to take deep breaths to push the food downI was sent to a consultant in july who sent me for an endoscopy who diagnosed Achalasia and sent me for a barium x-ray and was told it was a Hiatus hernia was referred to a surgeon who discussed an open hernia operation but sent me for a CT scan first which came back as Achalasia.Went for a pre assesment before surgery and was told it would be done by key hole but the day before surgery the anesatist came to see me and told me that i was having open

surgery.So as you can see I have been through the mill a bit in the past few months.I must say it has been a big shock to go through open surgery if I had been given more notice I may have handled it better.I woke up with an oxygen mask, nasel tube, cathater, IV drips, epidural and a drain in my abdomen not to mention a 5-6 inch incision starting just below the navel and up to my breast bone.The hardest thing at the momnet is that the scare is very tight and I cant stand up straight which is giving me backache, and I can just about manage to hold a cup of tea or a small bowl of food. Also being so tired all the time it is now ten days since my operation and I do do feel a little better everyday but it will be a good few weeks before I feel back to normal.Any questions you want answering just fire away I will do all I can to help you you can e-mail me personnally if you don't want to share it

with the rest of the group. My e-mail address is kevin.brown150ntworldPippa XXX (northants, England)

All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine

[Guest guest]

hello : My name is Mike i live on cape cod.i had open surgery 3 years ago,it toke me almost a year to get back to normal.the procedure was done at BRIGHAMS & WOMEN'S in boston by dr.ulonda colson.they also did a key hole procedure because they had to cut my spinktor at the top and reattached it.they took some off the spinktor because it wouldn,t open enough.i had 3 ballon treatments before the operation and they stopped working.I had the j tube for 3 month,s.it is worth it all to be able to eat like a normal person again.i had a very rare case they said because i also have GERD.i feel as though i no you because your operation was discussed so much on this site.wishing you a very speedy recovery.Pippa <kevin.brown150@...> wrote: I will help you all I can, Just ask all the questions you want I was in the same boat as you a couple of months ago and if it wasn't for , Ann, and I don't know what I would have done.How old is your son and where is he having his surgery?Why is he havng open surgery and not key hole?I had eating problems for about two years and finally went to the doctors who diagnosed an ulcer and acid reflux I was put on ant acid tablets which helped but not completly and still felt the food was getting stuck and I was trying to take deep breaths to push the food downI was sent to a consultant in july who sent me for an endoscopy who diagnosed

Achalasia and sent me for a barium x-ray and was told it was a Hiatus hernia was referred to a surgeon who discussed an open hernia operation but sent me for a CT scan first which came back as Achalasia.Went for a pre assesment before surgery and was told it would be done by key hole but the day before surgery the anesatist came to see me and told me that i was having open surgery.So as you can see I have been through the mill a bit in the past few months.I must say it has been a big shock to go through open surgery if I had been given more notice I may have handled it better.I woke up with an oxygen mask, nasel tube, cathater, IV drips, epidural and a drain in my abdomen not to mention a 5-6 inch incision starting just below the navel and up to my breast bone.The hardest thing at the momnet is that the scare is very tight and I cant stand up straight which is giving me backache, and I can just

about manage to hold a cup of tea or a small bowl of food. Also being so tired all the time it is now ten days since my operation and I do do feel a little better everyday but it will be a good few weeks before I feel back to normal.Any questions you want answering just fire away I will do all I can to help you you can e-mail me personnally if you don't want to share it with the rest of the group. My e-mail address is kevin.brown150ntworldPippa XXX (northants, England)

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Tonia,

I echo Pippa in saying I'll be thinking of you and next

week! I'm hoping this surgery works for him for a LONG, LONG time!!

Please keep us posted as soon as you can on how things are going!

Relating the details of your experiences can help many of us,

including myself if decided to have surgery by Dr. Rice. Wishing

you, and your family all the best!

in Michigan

P.S.: Where are you staying in Cleveland? The Guest House is closest,

but maybe not as comfy as some other hotels in the area. The

convenience can't be beat, though, because you can walk across the

street to get back to quicker!

>

> Hi Tonia Just wanted to say again I will be thinking of you and

> next Friday when he goes in for his open Heller fingers crossed this

> time that he get many years of happy eating.

>

> Please please let us know when you can of course how you and him are

> doing I know its going to be a long car ride for you all and am glad

> to hear that you have decided to stay for a couple of days after he

> comes out. It will give him a few more days to get his strength back

> before he has to face the eight hour car ride home.

>

> I though I would post this now as you said before things are going to

> be a bit manic for the next little while and I wanted you to read this

> before you don't have any time left to read the messages on the board.

>

> Take Care Tonia and

>

> Lots of love

>

> Pippa (across the water in the UK)

>

[Guest guest]

Thank you Pippa- your very kind.I am hoping to atleast post after

the surgery(maybe from the hospital somewhere)but if not the next

day when I go to hotel to shower I can get on in the lobby and post.

I too hope that will have many many years of good swallowing

too.This kid has been through it.Thanks for the post and well

wishes.Yes things are getting to the wire cause we are leaving

Tuesday after I get off work cause he has testing Wed & Thur.Trying to

get all my loose ends tied up and trying to remember all I need to

take for the next 2 weeks.

Ugh,I sooo need a month at the beach to sip on pina colodas and do

nothing but soak up some rays!!!I cant wait for summer to return.lol

Hugs to you- Hope you are doing well.How is your back and scar

feeling?Are you eating better now?

Tonia

>

> Hi Tonia Just wanted to say again I will be thinking of you and

> next Friday when he goes in for his open Heller fingers crossed

this

> time that he get many years of happy eating.

>

> Please please let us know when you can of course how you and him

are

> doing I know its going to be a long car ride for you all and am

glad

> to hear that you have decided to stay for a couple of days after

he

> comes out. It will give him a few more days to get his strength

back

> before he has to face the eight hour car ride home.

>

> I though I would post this now as you said before things are going

to

> be a bit manic for the next little while and I wanted you to read

this

> before you don't have any time left to read the messages on the

board.

>

> Take Care Tonia and

>

> Lots of love

>

> Pippa (across the water in the UK)

>

[Guest guest]

Hi Tonia

Its now three weeks and three days now since surgery and my appitite

is increasing every day still on the soft diet mash potato with

gravy, bananas and custard, chunky soups and soft breakfast cereals

but hay its going down and staying down and I HAVE PUT ON 4lb since

I came out of hospital. Whooooh!!!!!

Scar still tight and seams to be getting tigher but I suppose that

the muscles knitting together I have been signed off work till

January.

My back ache comes and goes if I sit down for too long I size up and

its harder to stand up straight and when I am in bed I still sleep

with lost of pillows and wake up most morning with backache.

give james my love won't you I know at 15 he probabaly wont

appreciate it but please let him know that many of us here on the

board are thinking of him and you and the rest of the family.

Take Care

Tonia

Lots of Love

Pippa

> >

> > Hi Tonia Just wanted to say again I will be thinking of you and

>

> > next Friday when he goes in for his open Heller fingers crossed

> this

> > time that he get many years of happy eating.

> >

> > Please please let us know when you can of course how you and him

> are

> > doing I know its going to be a long car ride for you all and am

> glad

> > to hear that you have decided to stay for a couple of days after

> he

> > comes out. It will give him a few more days to get his strength

> back

> > before he has to face the eight hour car ride home.

> >

> > I though I would post this now as you said before things are

going

> to

> > be a bit manic for the next little while and I wanted you to

read

> this

> > before you don't have any time left to read the messages on the

> board.

> >

> > Take Care Tonia and

> >

> > Lots of love

> >

> > Pippa (across the water in the UK)

> >

>

[Guest guest]

Thank you !

I am hoping to post the day of the surgery but we know how thats

going to be.I will post as soon as I get to the hotel the next day

to shower for sure.We are staying at the Cleaveland guest house but

I do not like the hotel at all.It is across the street(quick walk)

and much more affordable than the others though.We will just be

there to shower and thats it so he doesnt matter too much but when

gets out we are going to pay the big bucks to stay in the nice

one that ajoings the hospital.I want him to stay and recover a few

days in a nicer/cleaner hotel before our long ride back home.Anyway-

Thanks for the post and yes I wll post our longggg ordeal and anwser

any and all questions any one would like when we get home. Take

Care~Tonia

> >

> > Hi Tonia Just wanted to say again I will be thinking of you and

> > next Friday when he goes in for his open Heller fingers crossed

this

> > time that he get many years of happy eating.

> >

> > Please please let us know when you can of course how you and him

are

> > doing I know its going to be a long car ride for you all and am

glad

> > to hear that you have decided to stay for a couple of days after

he

> > comes out. It will give him a few more days to get his strength

back

> > before he has to face the eight hour car ride home.

> >

> > I though I would post this now as you said before things are

going to

> > be a bit manic for the next little while and I wanted you to

read this

> > before you don't have any time left to read the messages on the

board.

> >

> > Take Care Tonia and

> >

> > Lots of love

> >

> > Pippa (across the water in the UK)

> >

>

[Guest guest]

Hey Pippa- 4 pounds is great and keeping the food down and not

having trouble getting it down is priceless!!It may take time for

the scar thing to get better.Have you talked to your Dr about that

to make sure its all normal?It seems like it would be but just to be

safe ya know.

Potaoes,gravy,custard kinda stuff still huh? Boy is going to

hate that again!He doesnt even like to look at those foods any more

cause he has had to eat so much of that just a few months back,we

will just wait till his hungry and tell him and he will be ready to

eat it then.lol Poor guy.He is actually only 13,there is carolyns

son on here with A who is 15. still like his hugs and loves

even at that age.Hes a real lovable kid still despite being a

teenager now but this ordeal has really made him moody and caused

alot of aggravation and angerI have never seen till recently.Hes mad

cause of having to go through this again,the long hospital

stay,surgery,scars,healing process, and not being able to be at

school again around friends and going out with them etc..He also is

tired of not being normal.i just hope after this he will be atleast

90% better and not have to deal with this disease/disorder on a

daily basis like now.I think thats been the hardest.The struggles

every time he eats ordeal.

He still thinks of me though with all that is going on with him and

he makes me a cup of tea or coffee and brings me a blanket if he

knows I have had a ruff day at work or if I dont feel that great.Hes

a sweet kid.Hope he stays that way even when hes grown,hell make a

great hubby some day.lol

Thanks again Pippa and I hope your scar gets to feeling better-Be

sure to keep you some lotion on it Im sure that will help too.Hugs

to you xoxoxo Tonia

> > >

> > > Hi Tonia Just wanted to say again I will be thinking of you

and

> >

> > > next Friday when he goes in for his open Heller fingers

crossed

> > this

> > > time that he get many years of happy eating.

> > >

> > > Please please let us know when you can of course how you and

him

> > are

> > > doing I know its going to be a long car ride for you all and

am

> > glad

> > > to hear that you have decided to stay for a couple of days

after

> > he

> > > comes out. It will give him a few more days to get his

strength

> > back

> > > before he has to face the eight hour car ride home.

> > >

> > > I though I would post this now as you said before things are

> going

> > to

> > > be a bit manic for the next little while and I wanted you to

> read

> > this

> > > before you don't have any time left to read the messages on

the

> > board.

> > >

> > > Take Care Tonia and

> > >

> > > Lots of love

> > >

> > > Pippa (across the water in the UK)

> > >

> >

>

[Guest guest]

Tonia, Carolyn sent me a fantastic link that will take you to a diet

sheet for anyone who has had a fundo surgery check out message

number 38300 I'm sure will find a few things on there that may

keep him happy in the few weeks after surgery.

The scar thing is just normal the Doctor has checked it out and its

all healing nicely it just gonna take time.

I keep getting your and Carolyns sons mixed up (SOrRY BRAIN STILL

NOT WITH IT YET) I sent carolyn an e-mail the other day and asked

how JAMES was she e-mailed back and said the CAMERON was doing just

fine.

sounds like a very lovely lad you must be very proud of him

and rightly so. I do feel for he is going through so much at

the moment not just the surgery but I am sure all those hormones are

flying around as well (and don't I know it with a 12 and 14 year old

lads in the house) my son is a bit like he aways helps

around the house and makes sure that I am OK and that I don't need

anything when he goes upstairs to his bedroom or out with his mates

we never have any bother regarding homework he always completes it

with top marks, my other son Luke is the complete opposite!!!!

Could 's friend contact him (obviously not visit as it is too

far away) through e-mail while he is in hospital or even send him

letters and card I'm sure it would give him a great boost

Pippa x

PS just slapping on the lotion now

> > > >

> > > > Hi Tonia Just wanted to say again I will be thinking of you

> and

> > >

> > > > next Friday when he goes in for his open Heller fingers

> crossed

> > > this

> > > > time that he get many years of happy eating.

> > > >

> > > > Please please let us know when you can of course how you and

> him

> > > are

> > > > doing I know its going to be a long car ride for you all and

> am

> > > glad

> > > > to hear that you have decided to stay for a couple of days

> after

> > > he

> > > > comes out. It will give him a few more days to get his

> strength

> > > back

> > > > before he has to face the eight hour car ride home.

> > > >

> > > > I though I would post this now as you said before things are

> > going

> > > to

> > > > be a bit manic for the next little while and I wanted you to

> > read

> > > this

> > > > before you don't have any time left to read the messages on

> the

> > > board.

> > > >

> > > > Take Care Tonia and

> > > >

> > > > Lots of love

> > > >

> > > > Pippa (across the water in the UK)

> > > >

> > >

> >

>

[Guest guest]

Best Wishes to and to you, Tonia, and I'll be thinking healing thoughts for you both. with a hug, Deborah

[Guest guest]

Thanks a bunch Deborah! I appreciate all the healing thoughts and

hugs!!!Heres a big Hug back to you~Take care, Tonia &

>

> Best Wishes to and to you, Tonia, and I'll be thinking healing

thoughts for

> you both.

> with a hug, Deborah

>

[Guest guest]

Tonia,

Wish you all the best for ' surgery ..

Bimal just got admitted in hospital .

Dr.said that manometry is not necessary .

Surgery on 26th..

Good luck for ..hope everything will be okay soon..

Mukesh

Thank you everyone!!!

Well here it is, the night before we leave.I just wanted to say Thank

you all again very much for all your support and get well wishes-it

means so much to me, and my husband Jamey.You all have been a

true blessing and I dont know how I would have gotton this far with

out you all .Thank you so much!

Once again best of luck and all of the members getting your surgeries

here soon I will be praying for all of you.Heres to happy swallowing!!

I will post as soon as I can. sends his thanks for all your post

and thoughts and caring words. O ff to bed now-i still have to pack in

the morning early before we leave.Im just a last minute kinda gal I

guess.I did make hubby and do theres tonight.lol

xoxox hugs to all- well talk soon, Tonia

[Guest guest]

Wishing him all the best too! Take care and Well talk soon when all

this over for our boys.Tonia

>

> Tonia,

> Wish you all the best for ' surgery ..

> Bimal just got admitted in hospital .

> Dr.said that manometry is not necessary .

> Surgery on 26th..

> Good luck for ..hope everything will be okay soon..

>

> Mukesh

>

> Thank you everyone!!!

>

>

>

> Well here it is, the night before we leave.I just wanted to say

Thank

> you all again very much for all your support and get well wishes-

it

> means so much to me, and my husband Jamey.You all have been a

> true blessing and I dont know how I would have gotton this far

with

> out you all .Thank you so much!

>

> Once again best of luck and all of the members getting your

surgeries

> here soon I will be praying for all of you.Heres to happy

swallowing!!

>

> I will post as soon as I can. sends his thanks for all your

post

> and thoughts and caring words. O ff to bed now-i still have to

pack in

> the morning early before we leave.Im just a last minute kinda gal

I

> guess.I did make hubby and do theres tonight.lol

>

> xoxox hugs to all- well talk soon, Tonia

>

[Guest guest]

,

Bimal also had a drainage tube after laparoscopic surgery ..till the day he was

discharged..

Mukesh

Tonia

Hey Tonia

Just wanted to let you know that with my laproscopic procedure that I

did have a drainage tube. It remained in place until just before being

released. I had no idea that others with the lap procedure didn't have

a drainage tube.

Thanks for keeping in touch throughout 's stay.

Jo

[Guest guest]

Wow- I had no idea that anyone had a drainage with lapro-see,IM

STILL LEARNING EVERY DAY DAY.

No problem with staying in touch with you guys , YALL have been my

everything through out all this.I had to keep you all up to

date,Heck I have family that hasnt even called.You all are

our " family now AND THATS WHAT FAMILY DOES! Thanks forbeing

here for us.Tonia

>

> Hey Tonia

>

> Just wanted to let you know that with my laproscopic procedure

that I

> did have a drainage tube. It remained in place until just before

being

> released. I had no idea that others with the lap procedure didn't

have

> a drainage tube.

>

> Thanks for keeping in touch throughout 's stay.

>

> Jo

>

[Guest guest]

I guess didnt have one cause his 1st Dr didnt know what he was

doing.Go figure-thats too weird.

Tonia

-- In achalasia , Mukesh Shah <mukeshshah_fine@...>

wrote:

>

> ,

> Bimal also had a drainage tube after laparoscopic surgery ..till

the day he was discharged..

> Mukesh

>

> Tonia

>

> Hey Tonia

>

> Just wanted to let you know that with my laproscopic procedure

that I

> did have a drainage tube. It remained in place until just before

being

> released. I had no idea that others with the lap procedure didn't

have

> a drainage tube.

>

> Thanks for keeping in touch throughout 's stay.

>

> Jo

>

[Guest guest]

Tonia,

We are vegetarians anyway..bimal is eating soft indian breads,cooked Soft

vegetables,

Rice,soups,yogurt in lunch n dinner..

Cereals n lukewarm milk in breakfast ..

Dr. Has advised to avoid orange n sweetlime for 3 weeks..but other fruits are

okay..

Jayshree ,bimal 's mom has gone to spend a month or so with bimal ..to cook

these special foods, now semi-hard for him..

But we are still avoiding pizza, fried foods for the time being...

will be fine soon..plz avoid meats,pizza,fried foods etc for few more

days...need to go slow till 3 weeks are over...

Mukesh

Mukesh

So glad to hear he is doing so well-Thats great news!!

You had mentioned about him being back to almost normal foods. what

types of food has he attempted that has done ok that is not

jello,pudding,potatoes??lol Ya know the mushy stuff.

is getting so tired of those types foods.He has ventured out

and I gave him some manicotti with a lil sauce,he's also had some

cereal like apple jacks that sits in the milk and softens,french

fries,pumpkin pie with out crust.DR Rice said to still stay away

from breads and meats,rice stuff like that.He did say tuna casserole

and gorund beef with gravy would be fine but doesnt care for

neither-even in his days of hunger.lol

We are going to try some crab legs,and some broiled fish this week.I

also bought some crab cakes.So all thats just as mushy as tuna right.

Just want to see how everyone else is doing and what kinda food

there tolerating.I want to go slow and be careful though too

ya know?

Thanks alot-

I am really happy that Bimal is doing so well.I hope and pray that

everyone will have very long lasting results from these operations!

Tonia

[Guest guest]

Notan is right...avoid meats for 2 to 3 weeks..nothing hard..

Mukesh

Re: Mukesh

Tonia wrote:

> We are going to try some crab legs,and some broiled fish this week.I

> also bought some crab cakes.So all thats just as mushy as tuna right.

>

This is probably obvious, but be careful with any pieces of scales,

shells or exoskeletons. You don't want any sharp pieces.

notan

[Guest guest]

I can't see rushing driving so long for tests that could be done locally

-- Tonia

Wow, sorry to hear this..

Call the "colleague" back and ask if the testing can be done here at home and overnight the results to him. I dont remember where you live, but maybe he can "order" it for you?

Ask also if he has been in touch with Dr. Rice. Tell him you want to confir with him or them both.

All you can do is try.

Carolyn mom of Camerontoniasdogsandi <toniasdogsandi > wrote:

The other night informed his dad and myself that he has been having some issues with food feeling like its getting stuck or not going down well.ALSO HAS BEEN HAVING ALOT OF THE "FOAMY"STUFF AGAIN.He said he didnt tell us earlier becuase he said hes going through anything else again and didnt want us dragging him to Cleveland and being there at Christmas. I called DR Rice today and told them what was going on.Rice is out of town but his partner or whoever said he wanted up there tomorrow.I expressed to them it wasnt that easy.We have to get work situated for my husband,dog boarded,someone to watch the house,hotel reservations,bags backed and plus my husband was out of town and hadnt even got home tonight when I was told all this.He had been driving for a while and there is no way we can just jump in the car tonight and drive 8 hours no sleep.I dont think 's situation is as bad as they are making it but I am not the Dr but I am not letting anyone other than Rice touch -colleage or not anyway! They said should not be having any problems and he needed to be seen tomorrow regardless.If he was vmiting,spitting blood or something a litle more severe we would of course drop everything and go but I think someone is being a little to jumpy.Dr Rice is out of town until Tuesday so I think this other DR does not want nothing being held over his head so he wants to see to just be careful.If there was something wrong like I said no one except Rice is messing with him unless of course it was a life or death kinda ordeal but I dont see it as that.They want to do a barrium and possible scope if needed.Heres where I need your help-I know its all personal opinion and preference but what would you all do in this situation? Should I go on Friday after I have time to get these things together and we get some sleep for the ride or just waitt ill we talk to Rice on Tuesday? I JUST AM CONFUSED AS TO WHAT TO DO. is eating like a pig and everything.He does have a cold and has a cough and sniffles and such but other than that he is fine,no other problems.He had roast beef sandwiches from Arbys today and large curly fry and cocunut cake for desert with no problems.Ijust think its jumping too quickly over something not that serious.Please what do you all think???I dont want to run up ther for only a barrium and it be nothing wrong but dont want not to go and it be something but if thats the case we would wait till tuesday for Rice to get back in anayway.I kinda think its where he has bee having this cold and dealing with all the phlem and such in his esophagus.Help me please!!!!!!!!Tonia

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__________________________________________________

[Guest guest]

I talked with them and told them we are just going to wait until Dr

Rice comes into to town and if is having issues then we will

be bringing him up there.We have to go up on the 18th and 19th for

testing as well so if we did not need to go up this time then we

will be up there then.

I asked them yesterday if I could have a barrium done here and sent

up there and then if they saw concern bring him up and the DR on

call said NO.There was no specialist here that he needed brought

back up there.People here like gastro DRs Im sure can read a barrium

enough to see if there is a issue.I would not let no one do anything

else but that would be fine.Well its not that easy to jump in a car

and run 8 hours like they think it is ya know.I do know that the

people the past few days(nurses and appointment ladies) have been

extremely rude,loud.I had to finally unleash my attitude today cause

Im sick of them talking to me like crap!

Anyway-How is Cameron doing?Does Cameron ever feel like things are

not going down that well more so than other? says he thinks

its more cause of this cold and all the phlem.It does still worry me

though cause he has that foam stuff again and he hadnt had that

since surgery either.I just will be relieved when he has his test

done and all is cleared things are fine.

Thanks Carloyn-Tonia

> The other night informed his dad and myself that

he has been

> having some issues with food feeling like its getting stuck or not

> going down well.ALSO HAS BEEN HAVING ALOT OF THE " FOAMY " STUFF

AGAIN.

> He said he didnt tell us earlier becuase he said hes going through

> anything else again and didnt want us dragging him to Cleveland

and

> being there at Christmas. I called DR Rice today and told them

what

> was going on.Rice is out of town but his partner or whoever said

he

> wanted up there tomorrow.I expressed to them it wasnt that

> easy.We have to get work situated for my husband,dog

boarded,someone

> to watch the house,hotel reservations,bags backed and plus my

> husband was out of town and hadnt even got home tonight when I was

> told all this.He had been driving for a while and there is no way

we

> can just jump in the car tonight and drive 8 hours no sleep.I dont

> think 's situation is as bad as they are making it but I am

not

> the Dr but I am not letting anyone other than Rice touch -

> colleage or not anyway!

> They said should not be having any problems and he needed to

> be seen tomorrow regardless.

> If he was vmiting,spitting blood or something a litle more severe

we

> would of course drop everything and go but I think someone is

being

> a little to jumpy.Dr Rice is out of town until Tuesday so I think

> this other DR does not want nothing being held over his head so he

> wants to see to just be careful.If there was something wrong

> like I said no one except Rice is messing with him unless of

course

> it was a life or death kinda ordeal but I dont see it as that.They

> want to do a barrium and possible scope if needed.

> Heres where I need your help-I know its all personal opinion and

> preference but what would you all do in this situation? Should I

go

> on Friday after I have time to get these things together and we

get

> some sleep for the ride or just waitt ill we talk to Rice on

> Tuesday? I JUST AM CONFUSED AS TO WHAT TO DO. is eating like

a

> pig and everything.He does have a cold and has a cough and

sniffles

> and such but other than that he is fine,no other problems.He had

> roast beef sandwiches from Arbys today and large curly fry and

> cocunut cake for desert with no problems.Ijust think its jumping

too

> quickly over something not that serious.Please what do you all

> think???I dont want to run up ther for only a barrium and it be

> nothing wrong but dont want not to go and it be something but if

> thats the case we would wait till tuesday for Rice to get back in

> anayway.I kinda think its where he has bee having this cold and

> dealing with all the phlem and such in his esophagus.Help me

> please!!!!!!!!Tonia

>

>

>

>

>

>

> need ideas to promote your fundraiser or business?

> check out our new website!

> wicked cat promotional products

> www.wickedcatpromos.com

>

>

>

>

> __________________________________________________

>

[Guest guest]

I agree-

I asked them if he could have abarrium done here and electrincaly

sent for them to view and then....at that point if they saw concern

we would come up.He said no-these DrS ARE NOT SPECIALIST AND HE

NEEDED TO BE UP THERE.They are just going to have to work with me

here cause I cant jump in the car everytime there is a isuue but yet

we need to confrim with a barrium that things are ok.I am just going

to go to the gastro Dr that diagnosed and when there is a

issue have him check him out and do a barrium.If he thinks we ever

need to go to Cleveland then we will go or if Dr Rice said we needed

to come.

Gosh- I just wish we were closer!

Tonia

> The other night informed his dad and myself that he has been

> having some issues with food feeling like its getting stuck or not

> going down well.ALSO HAS BEEN HAVING ALOT OF THE " FOAMY " STUFF

AGAIN.

> He said he didnt tell us earlier becuase he said hes going through

> anything else again and didnt want us dragging him to Cleveland

and

> being there at Christmas. I called DR Rice today and told them

what

> was going on.Rice is out of town but his partner or whoever said

he

> wanted up there tomorrow.I expressed to them it wasnt that

> easy.We have to get work situated for my husband,dog

boarded,someone

> to watch the house,hotel reservations,bags backed and plus my

> husband was out of town and hadnt even got home tonight when I was

> told all this.He had been driving for a while and there is no way

we

> can just jump in the car tonight and drive 8 hours no sleep.I dont

> think 's situation is as bad as they are making it but I am

not

> the Dr but I am not letting anyone other than Rice touch -

> colleage or not anyway!

> They said should not be having any problems and he needed to

> be seen tomorrow regardless.

> If he was vmiting,spitting blood or something a litle more severe

we

> would of course drop everything and go but I think someone is

being

> a little to jumpy.Dr Rice is out of town until Tuesday so I think

> this other DR does not want nothing being held over his head so he

> wants to see to just be careful.If there was something wrong

> like I said no one except Rice is messing with him unless of

course

> it was a life or death kinda ordeal but I dont see it as that.They

> want to do a barrium and possible scope if needed.

> Heres where I need your help-I know its all personal opinion and

> preference but what would you all do in this situation? Should I

go

> on Friday after I have time to get these things together and we

get

> some sleep for the ride or just waitt ill we talk to Rice on

> Tuesday? I JUST AM CONFUSED AS TO WHAT TO DO. is eating like

a

> pig and everything.He does have a cold and has a cough and

sniffles

> and such but other than that he is fine,no other problems.He had

> roast beef sandwiches from Arbys today and large curly fry and

> cocunut cake for desert with no problems.Ijust think its jumping

too

> quickly over something not that serious.Please what do you all

> think???I dont want to run up ther for only a barrium and it be

> nothing wrong but dont want not to go and it be something but if

> thats the case we would wait till tuesday for Rice to get back in

> anayway.I kinda think its where he has bee having this cold and

> dealing with all the phlem and such in his esophagus.Help me

> please!!!!!!!!Tonia

>

>

>

>

>

>

> need ideas to promote your fundraiser or business?

> check out our new website!

> wicked cat promotional products

> www.wickedcatpromos.com

> __________________________________________________

>

[Guest guest]

Hi Tonia,

Just a reply to your post's, I too seem to get more stuckages when I

have a cold too. I know Jame's surgery was around the same time as

mine and I still have problems with food taking it's good old time

getting down. The difference post surgery is that I don't get that

build up of food that makes the chest feel tight and painful. But I

also notice that when the phlem builds up in the esophagus and when

I'm stressed, there is more dysphagia. Remember there will always

be difficulty swallowing because there is no motility and only

gravity getting the food down. If you do decide to do a barium,

make sure you get the info about the timed barium because I believe

thats only specific to TCC. But even after surgery, I definitly

have good days and bad days... just the bad days aren't as BAD as

they use to be before surgery!

All the best in the New Year!

in Michigan

P.S.

I just got engaged about 2 weeks ago!!! I'm very excitied!

> > The other night informed his dad and myself that he has

been

> > having some issues with food feeling like its getting stuck or

not

> > going down well.ALSO HAS BEEN HAVING ALOT OF THE " FOAMY " STUFF

> AGAIN.

> > He said he didnt tell us earlier becuase he said hes going

through

> > anything else again and didnt want us dragging him to Cleveland

> and

> > being there at Christmas. I called DR Rice today and told them

> what

> > was going on.Rice is out of town but his partner or whoever said

> he

> > wanted up there tomorrow.I expressed to them it wasnt that

> > easy.We have to get work situated for my husband,dog

> boarded,someone

> > to watch the house,hotel reservations,bags backed and plus my

> > husband was out of town and hadnt even got home tonight when I

was

> > told all this.He had been driving for a while and there is no

way

> we

> > can just jump in the car tonight and drive 8 hours no sleep.I

dont

> > think 's situation is as bad as they are making it but I am

> not

> > the Dr but I am not letting anyone other than Rice touch -

> > colleage or not anyway!

> > They said should not be having any problems and he needed

to

> > be seen tomorrow regardless.

> > If he was vmiting,spitting blood or something a litle more

severe

> we

> > would of course drop everything and go but I think someone is

> being

> > a little to jumpy.Dr Rice is out of town until Tuesday so I

think

> > this other DR does not want nothing being held over his head so

he

> > wants to see to just be careful.If there was something

wrong

> > like I said no one except Rice is messing with him unless of

> course

> > it was a life or death kinda ordeal but I dont see it as

that.They

> > want to do a barrium and possible scope if needed.

> > Heres where I need your help-I know its all personal opinion and

> > preference but what would you all do in this situation? Should I

> go

> > on Friday after I have time to get these things together and we

> get

> > some sleep for the ride or just waitt ill we talk to Rice on

> > Tuesday? I JUST AM CONFUSED AS TO WHAT TO DO. is eating

like

> a

> > pig and everything.He does have a cold and has a cough and

> sniffles

> > and such but other than that he is fine,no other problems.He had

> > roast beef sandwiches from Arbys today and large curly fry and

> > cocunut cake for desert with no problems.Ijust think its jumping

> too

> > quickly over something not that serious.Please what do you all

> > think???I dont want to run up ther for only a barrium and it be

> > nothing wrong but dont want not to go and it be something but if

> > thats the case we would wait till tuesday for Rice to get back

in

> > anayway.I kinda think its where he has bee having this cold and

> > dealing with all the phlem and such in his esophagus.Help me

> > please!!!!!!!!Tonia

> >

> >

> >

> >

> >

> >

> > need ideas to promote your fundraiser or business?

> > check out our new website!

> > wicked cat promotional products

> > www.wickedcatpromos.com

> > __________________________________________________

> >

[Guest guest]

CONGRATS TO YOU !! What a lucky fellow he is. I wish you all the

best! When is the big day set for?

Thank you so much for the reply.I really do think its the cold thing

too.The only thing is that he said he didnt have the foam since

surgery before now and we dont remember if he had it in the past

with colds or not cause he had it so much of it back then .I do hope

that is all it is.We will know soon I guess.

Well I hope the New Year is a good one for you and your soon to be

hubby!! Stay in touch and let me know about your big day!

Tonia

> > > The other night informed his dad and myself that he has

> been

> > > having some issues with food feeling like its getting stuck or

> not

> > > going down well.ALSO HAS BEEN HAVING ALOT OF THE " FOAMY " STUFF

> > AGAIN.

> > > He said he didnt tell us earlier becuase he said hes going

> through

> > > anything else again and didnt want us dragging him to

Cleveland

> > and

> > > being there at Christmas. I called DR Rice today and told them

> > what

> > > was going on.Rice is out of town but his partner or whoever

said

> > he

> > > wanted up there tomorrow.I expressed to them it wasnt

that

> > > easy.We have to get work situated for my husband,dog

> > boarded,someone

> > > to watch the house,hotel reservations,bags backed and plus my

> > > husband was out of town and hadnt even got home tonight when I

> was

> > > told all this.He had been driving for a while and there is no

> way

> > we

> > > can just jump in the car tonight and drive 8 hours no sleep.I

> dont

> > > think 's situation is as bad as they are making it but I

am

> > not

> > > the Dr but I am not letting anyone other than Rice touch -

> > > colleage or not anyway!

> > > They said should not be having any problems and he

needed

> to

> > > be seen tomorrow regardless.

> > > If he was vmiting,spitting blood or something a litle more

> severe

> > we

> > > would of course drop everything and go but I think someone is

> > being

> > > a little to jumpy.Dr Rice is out of town until Tuesday so I

> think

> > > this other DR does not want nothing being held over his head

so

> he

> > > wants to see to just be careful.If there was something

> wrong

> > > like I said no one except Rice is messing with him unless of

> > course

> > > it was a life or death kinda ordeal but I dont see it as

> that.They

> > > want to do a barrium and possible scope if needed.

> > > Heres where I need your help-I know its all personal opinion

and

> > > preference but what would you all do in this situation? Should

I

> > go

> > > on Friday after I have time to get these things together and

we

> > get

> > > some sleep for the ride or just waitt ill we talk to Rice on

> > > Tuesday? I JUST AM CONFUSED AS TO WHAT TO DO. is eating

> like

> > a

> > > pig and everything.He does have a cold and has a cough and

> > sniffles

> > > and such but other than that he is fine,no other problems.He

had

> > > roast beef sandwiches from Arbys today and large curly fry and

> > > cocunut cake for desert with no problems.Ijust think its

jumping

> > too

> > > quickly over something not that serious.Please what do you all

> > > think???I dont want to run up ther for only a barrium and it

be

> > > nothing wrong but dont want not to go and it be something but

if

> > > thats the case we would wait till tuesday for Rice to get back

> in

> > > anayway.I kinda think its where he has bee having this cold

and

> > > dealing with all the phlem and such in his esophagus.Help me

> > > please!!!!!!!!Tonia

> > >

> > >

> > >

> > >

> > >

> > >

> > > need ideas to promote your fundraiser or business?

> > > check out our new website!

> > > wicked cat promotional products

> > > www.wickedcatpromos.com

> > > __________________________________________________

> > >

[Guest guest]

> > > Hey Tonia. Did you get it all worked out? How is doing? Hope it is better! Cameron is doing really well. Had his 18month check up and everything is wonderful. He can eat anything... but he wets his esophagus first... then eats with waterr to keep any thing from sticking. this seems to be all he needs to do. Did you get it all resolved with ? I know for Cameron we had the video barium done and

we mailed the DVD to his surgeon to review. No questions there. Merry Christmas and Happy New Year! Carolyn > > > -- Tonia> > > > > > Wow, sorry to hear this..> > > Call the "colleague" back and ask if the testing can be done > here > > at home> > > and overnight the results to him. I dont remember where you > live, > > but maybe> > > he can "order" it for you?> > > > > > Ask also if he has been in touch with Dr. Rice. Tell him you > want > > to confir> > > with him or them both. >

> > All you can do is try. > > > Carolyn mom of Cameron> > > > > > toniasdogsandi <toniasdogsandi@> wrote:> > > The other night informed his dad and myself that he has > been > > > having some issues with food feeling like its getting stuck or > not > > > going down well.ALSO HAS BEEN HAVING ALOT OF THE "FOAMY"STUFF > > AGAIN.> > > He said he didnt tell us earlier becuase he said hes going > through > > > anything else again and didnt want us dragging him to Cleveland > > and > > > being there at Christmas. I called DR Rice today and told them > > what > > > was going on.Rice is out of town but his partner or whoever said > > he > > > wanted up there tomorrow.I expressed to them it wasnt that > > > easy.We have to get

work situated for my husband,dog > > boarded,someone > > > to watch the house,hotel reservations,bags backed and plus my > > > husband was out of town and hadnt even got home tonight when I > was > > > told all this.He had been driving for a while and there is no > way > > we > > > can just jump in the car tonight and drive 8 hours no sleep.I > dont > > > think 's situation is as bad as they are making it but I am > > not > > > the Dr but I am not letting anyone other than Rice touch -> > > colleage or not anyway! > > > They said should not be having any problems and he needed > to > > > be seen tomorrow regardless.> > > If he was vmiting,spitting blood or something a litle more > severe > > we > > > would of course drop

everything and go but I think someone is > > being > > > a little to jumpy.Dr Rice is out of town until Tuesday so I > think > > > this other DR does not want nothing being held over his head so > he > > > wants to see to just be careful.If there was something > wrong > > > like I said no one except Rice is messing with him unless of > > course > > > it was a life or death kinda ordeal but I dont see it as > that.They > > > want to do a barrium and possible scope if needed.> > > Heres where I need your help-I know its all personal opinion and > > > preference but what would you all do in this situation? Should I > > go > > > on Friday after I have time to get these things together and we > > get > > > some sleep for the ride or just waitt ill we talk to

Rice on > > > Tuesday? I JUST AM CONFUSED AS TO WHAT TO DO. is eating > like > > a > > > pig and everything.He does have a cold and has a cough and > > sniffles > > > and such but other than that he is fine,no other problems.He had > > > roast beef sandwiches from Arbys today and large curly fry and > > > cocunut cake for desert with no problems.Ijust think its jumping > > too > > > quickly over something not that serious.Please what do you all > > > think???I dont want to run up ther for only a barrium and it be > > > nothing wrong but dont want not to go and it be something but if > > > thats the case we would wait till tuesday for Rice to get back > in > > > anayway.I kinda think its where he has bee having this cold and > > > dealing with all the phlem and such

in his esophagus.Help me > > > please!!!!!!!!Tonia> > > > > > > > > > > > > > > > > > > > > . need ideas to promote your fundraiser or business? check out our new website! wicked cat promotional products www.wickedcatpromos.com __________________________________________________

[Guest guest]

Thanks Carolyn-

Glad he is doing so well,thats great! seems to be ok now.I

just believ it was this cold.I have not talked to Rice yet,I will

just wait unless has other issues cause we will see him on the

18th anyway.

Who done Camerons surgery>I thought it was Rice for some reason.

I am going to ask Rice if that can be done if a issue should

arise.This way I can know if we need to make a trip or not.

family Dr said he could do the barrium here and mail to him if

needed but this DR on call said NO! I think Rice will say the same

but thats how it is going to be.Well do a barrium and send it for

review before we jump and run up there at every issue or concern.Its

the same if we do it here and he reads it there, or if its done up

there and then he reads it.Either way he will know if its a concern

before a 8 hour trip is needed.

Anyway- I am so glad to hear Cameron is doing well.I hope he

continues to have another great year in 2007!!

HAPPY NEW YEAR TO YOU GUYS!!!!

Tonia

> > > > The other night informed his dad and myself that he

has

> > been

> > > > having some issues with food feeling like its getting stuck

or

> > not

> > > > going down well.ALSO HAS BEEN HAVING ALOT OF

THE " FOAMY " STUFF

> > > AGAIN.

> > > > He said he didnt tell us earlier becuase he said hes going

> > through

> > > > anything else again and didnt want us dragging him to

> Cleveland

> > > and

> > > > being there at Christmas. I called DR Rice today and told

them

> > > what

> > > > was going on.Rice is out of town but his partner or whoever

> said

> > > he

> > > > wanted up there tomorrow.I expressed to them it wasnt

> that

> > > > easy.We have to get work situated for my husband,dog

> > > boarded,someone

> > > > to watch the house,hotel reservations,bags backed and plus

my

> > > > husband was out of town and hadnt even got home tonight when

I

> > was

> > > > told all this.He had been driving for a while and there is

no

> > way

> > > we

> > > > can just jump in the car tonight and drive 8 hours no

sleep.I

> > dont

> > > > think 's situation is as bad as they are making it but

I

> am

> > > not

> > > > the Dr but I am not letting anyone other than Rice touch

-

> > > > colleage or not anyway!

> > > > They said should not be having any problems and he

> needed

> > to

> > > > be seen tomorrow regardless.

> > > > If he was vmiting,spitting blood or something a litle more

> > severe

> > > we

> > > > would of course drop everything and go but I think someone

is

> > > being

> > > > a little to jumpy.Dr Rice is out of town until Tuesday so I

> > think

> > > > this other DR does not want nothing being held over his head

> so

> > he

> > > > wants to see to just be careful.If there was something

> > wrong

> > > > like I said no one except Rice is messing with him unless of

> > > course

> > > > it was a life or death kinda ordeal but I dont see it as

> > that.They

> > > > want to do a barrium and possible scope if needed.

> > > > Heres where I need your help-I know its all personal opinion

> and

> > > > preference but what would you all do in this situation?

Should

> I

> > > go

> > > > on Friday after I have time to get these things together and

> we

> > > get

> > > > some sleep for the ride or just waitt ill we talk to Rice on

> > > > Tuesday? I JUST AM CONFUSED AS TO WHAT TO DO. is eating

> > like

> > > a

> > > > pig and everything.He does have a cold and has a cough and

> > > sniffles

> > > > and such but other than that he is fine,no other problems.He

> had

> > > > roast beef sandwiches from Arbys today and large curly fry

and

> > > > cocunut cake for desert with no problems.Ijust think its

> jumping

> > > too

> > > > quickly over something not that serious.Please what do you

all

> > > > think???I dont want to run up ther for only a barrium and it

> be

> > > > nothing wrong but dont want not to go and it be something

but

> if

> > > > thats the case we would wait till tuesday for Rice to get

back

> > in

> > > > anayway.I kinda think its where he has bee having this cold

> and

> > > > dealing with all the phlem and such in his esophagus.Help me

> > > > please!!!!!!!!Tonia

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

>

>

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