Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Hi everyone, I haven't been feeling well, so all I've done is read the emails, not reply. Sorry, I do think of you all and include you in my prayers. I went to my GP today. Starting the process of getting a medical ally...lol! He can and will, too! Especially after reading the detailed report I wrote about Stills Disease, complete with all necessary information for him to make an educated decision how to help me get the treatment that is right for me. Mark took me to deliver it this afternoon. I will go again, after he has had a chance to read the report and has the receptionist make me an appointment. Probably next Thursday. I do think he will be a big help, after getting all the facts. He's been my GP since 1996 and he knows me pretty well. He has even proformed surgery on my leg, to remove a big abcess (in right thigh). I was under general anestesia, in his office operating/emergency room. (Yes, I was awake through the whole thing!) The only thing he numbed was the skin where he made the incision. Everything else he did, I could feel...it didn't feel good at all when he ripped out a quarter sized chunk of my thigh muscle, which was crushed, rolled up to my hip joint and still attached a little at the top. It only hurt bad for a few seconds, similar to how stumpping your toe or pulling a baby tooth does, but it felt like I'd been chopped with a battle ax! IT HURT! He used a big long pair of forcepts, with a square of gauze clamped into them (and he changed 15 times). He used that to 'fish' the abcessed bloodclot from my thigh. The whole thigh area was abcessed, from hip to knee. He made the incision in the fatty part of the outer thigh, a little higher than half way between knee and hip. (I don't have a scanner or I would include a picture of the bruising, I do have one. The bruise, itself, covered 3/4's of my leg, hip to toes) but only the thigh area was abcessed. The bottom was from my body trying to break up and remove the blood clot. There was just more there than my body could fix on it's own. The area got infected and caused the abcess. I had surgery 5 weeks after the initial accident. My GP told said, teasingly yet truthfully, when he was washing his hands to start the proceedure, that he'd seen people killed in car wrecks, with less damage than I had! It really was very gross and disgusting...and also, very panful. I fell into a 5 inch wide crack (between a diesel tank and truck frame) on my dad's semi while washing it (spraying it with a power sprayer!) Other people were doing the hard scrubbing, I was the wet/rinse person. Love those types of " toys " ( 'air' power tools! yeah, fun!;-) LOL! Anyway, I will get help and he will help me get it! SOON, too! Got to go. Just wanted to update you on my situation. I'm as well as can be expected...and very hopeful! Things are lookin' up! Y'all have a pleasant and PAIN FREE day! I'll remember y'all in my prayers. Thanks for all the help and support you gave me to get the help I need and deserve! Sincerely, ~~Karla J. Fight~~ Platinum Dragon DLC PlatinumDragonDLC-owner ---------------------------------------------------------------------------- -------------------- Platinum Dragon DLC - Do you do internet marketing to earn money?...Would you like to learn how? Then, this is the group for you! Got tons of marketing resources! I scrounged, searched and compiled for 3 long years (still do, too!)...Then, I realizied there are others who could use them too, and you may not have all the time I do...so, I started this club to share them all with you! Come check it out and join! PlatinumDragonDLC/ or Send a blank email to PlatinumDragonDLC-subscribe :-) Have a GREAT day! :-D ---------------------------------------------------------------------------- -------------------- Digest Number 1543 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Hi everyone, I haven't been feeling well, so all I've done is read the emails, not reply. Sorry, I do think of you all and include you in my prayers. I went to my GP today. Starting the process of getting a medical ally...lol! He can and will, too! Especially after reading the detailed report I wrote about Stills Disease, complete with all necessary information for him to make an educated decision how to help me get the treatment that is right for me. Mark took me to deliver it this afternoon. I will go again, after he has had a chance to read the report and has the receptionist make me an appointment. Probably next Thursday. I do think he will be a big help, after getting all the facts. He's been my GP since 1996 and he knows me pretty well. He has even proformed surgery on my leg, to remove a big abcess (in right thigh). I was under general anestesia, in his office operating/emergency room. (Yes, I was awake through the whole thing!) The only thing he numbed was the skin where he made the incision. Everything else he did, I could feel...it didn't feel good at all when he ripped out a quarter sized chunk of my thigh muscle, which was crushed, rolled up to my hip joint and still attached a little at the top. It only hurt bad for a few seconds, similar to how stumpping your toe or pulling a baby tooth does, but it felt like I'd been chopped with a battle ax! IT HURT! He used a big long pair of forcepts, with a square of gauze clamped into them (and he changed 15 times). He used that to 'fish' the abcessed bloodclot from my thigh. The whole thigh area was abcessed, from hip to knee. He made the incision in the fatty part of the outer thigh, a little higher than half way between knee and hip. (I don't have a scanner or I would include a picture of the bruising, I do have one. The bruise, itself, covered 3/4's of my leg, hip to toes) but only the thigh area was abcessed. The bottom was from my body trying to break up and remove the blood clot. There was just more there than my body could fix on it's own. The area got infected and caused the abcess. I had surgery 5 weeks after the initial accident. My GP told said, teasingly yet truthfully, when he was washing his hands to start the proceedure, that he'd seen people killed in car wrecks, with less damage than I had! It really was very gross and disgusting...and also, very panful. I fell into a 5 inch wide crack (between a diesel tank and truck frame) on my dad's semi while washing it (spraying it with a power sprayer!) Other people were doing the hard scrubbing, I was the wet/rinse person. Love those types of " toys " ( 'air' power tools! yeah, fun!;-) LOL! Anyway, I will get help and he will help me get it! SOON, too! Got to go. Just wanted to update you on my situation. I'm as well as can be expected...and very hopeful! Things are lookin' up! Y'all have a pleasant and PAIN FREE day! I'll remember y'all in my prayers. Thanks for all the help and support you gave me to get the help I need and deserve! Sincerely, ~~Karla J. Fight~~ Platinum Dragon DLC PlatinumDragonDLC-owner ---------------------------------------------------------------------------- -------------------- Platinum Dragon DLC - Do you do internet marketing to earn money?...Would you like to learn how? Then, this is the group for you! Got tons of marketing resources! I scrounged, searched and compiled for 3 long years (still do, too!)...Then, I realizied there are others who could use them too, and you may not have all the time I do...so, I started this club to share them all with you! Come check it out and join! PlatinumDragonDLC/ or Send a blank email to PlatinumDragonDLC-subscribe :-) Have a GREAT day! :-D ---------------------------------------------------------------------------- -------------------- Digest Number 1543 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Hi Karla, Well that had to hurt really really bad! It put some gory thoughts in my mind as I read what you went through. Your GP did that right in his office? You are one tough girl Karla! Are you on antibiotics now? Looks like you could use a hug too! ((((((((((((((Karla)))))))))))))))))) from WIsconsin, Tricia ******************************************************************** -- Re: Update on my situation... Hi everyone,I haven't been feeling well, so all I've done is read the emails, not reply.Sorry, I do think of you all and include you in my prayers. I went to my GPtoday. Starting the process of getting a medical ally...lol! He can andwill, too! Especially after reading the detailed report I wrote aboutStills Disease, complete with all necessary information for him to make aneducated decision how to help me get the treatment that is right for me.Mark took me to deliver it this afternoon. I will go again, after he has hada chance to read the report and has the receptionist make me an appointment.Probably next Thursday. I do think he will be a big help, after getting allthe facts.He's been my GP since 1996 and he knows me pretty well. He has evenproformed surgery on my leg, to remove a big abcess (in right thigh). I wasunder general anestesia, in his office operating/emergency room. (Yes, I wasawake through the whole thing!)The only thing he numbed was the skin where he made the incision. Everythingelse he did, I could feel...it didn't feel good at all when he ripped out aquarter sized chunk of my thigh muscle, which was crushed, rolled up to myhip joint and still attached a little at the top. It only hurt bad for a fewseconds, similar to how stumpping your toe or pulling a baby tooth does, butit felt like I'd been chopped with a battle ax! IT HURT!He used a big long pair of forcepts, with a square of gauze clamped intothem (and he changed 15 times). He used that to 'fish' the abcessedbloodclot from my thigh.The whole thigh area was abcessed, from hip to knee. He made the incision inthe fatty part of the outer thigh, a little higher than half way betweenknee and hip. (I don't have a scanner or I would include a picture of thebruising, I do have one. The bruise, itself, covered 3/4's of my leg, hipto toes) but only the thigh area was abcessed. The bottom was from my bodytrying to break up and remove the blood clot. There was just more there thanmy body could fix on it's own. The area got infected and caused the abcess.I had surgery 5 weeks after the initial accident. My GP told said, teasinglyyet truthfully, when he was washing his hands to start the proceedure, thathe'd seen people killed in car wrecks, with less damage than I had! Itreally was very gross and disgusting...and also, very panful.I fell into a 5 inch wide crack (between a diesel tank and truck frame) onmy dad's semi while washing it (spraying it with a power sprayer!) Otherpeople were doing the hard scrubbing, I was the wet/rinse person. Love thosetypes of "toys" ( 'air' power tools! yeah, fun!;-) LOL!Anyway, I will get help and he will help me get it! SOON, too!Got to go. Just wanted to update you on my situation. I'm as well as can beexpected...and very hopeful! Things are lookin' up!Y'all have a pleasant and PAIN FREE day! I'll remember y'all in my prayers.Thanks for all the help and support you gave me to get the help I need anddeserve!Sincerely,~~Karla J. Fight~~Platinum Dragon DLCPlatinumDragonDLC-owner ------------------------------------------------------------------------------------------------. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Hi Karla, Well that had to hurt really really bad! It put some gory thoughts in my mind as I read what you went through. Your GP did that right in his office? You are one tough girl Karla! Are you on antibiotics now? Looks like you could use a hug too! ((((((((((((((Karla)))))))))))))))))) from WIsconsin, Tricia ******************************************************************** -- Re: Update on my situation... Hi everyone,I haven't been feeling well, so all I've done is read the emails, not reply.Sorry, I do think of you all and include you in my prayers. I went to my GPtoday. Starting the process of getting a medical ally...lol! He can andwill, too! Especially after reading the detailed report I wrote aboutStills Disease, complete with all necessary information for him to make aneducated decision how to help me get the treatment that is right for me.Mark took me to deliver it this afternoon. I will go again, after he has hada chance to read the report and has the receptionist make me an appointment.Probably next Thursday. I do think he will be a big help, after getting allthe facts.He's been my GP since 1996 and he knows me pretty well. He has evenproformed surgery on my leg, to remove a big abcess (in right thigh). I wasunder general anestesia, in his office operating/emergency room. (Yes, I wasawake through the whole thing!)The only thing he numbed was the skin where he made the incision. Everythingelse he did, I could feel...it didn't feel good at all when he ripped out aquarter sized chunk of my thigh muscle, which was crushed, rolled up to myhip joint and still attached a little at the top. It only hurt bad for a fewseconds, similar to how stumpping your toe or pulling a baby tooth does, butit felt like I'd been chopped with a battle ax! IT HURT!He used a big long pair of forcepts, with a square of gauze clamped intothem (and he changed 15 times). He used that to 'fish' the abcessedbloodclot from my thigh.The whole thigh area was abcessed, from hip to knee. He made the incision inthe fatty part of the outer thigh, a little higher than half way betweenknee and hip. (I don't have a scanner or I would include a picture of thebruising, I do have one. The bruise, itself, covered 3/4's of my leg, hipto toes) but only the thigh area was abcessed. The bottom was from my bodytrying to break up and remove the blood clot. There was just more there thanmy body could fix on it's own. The area got infected and caused the abcess.I had surgery 5 weeks after the initial accident. My GP told said, teasinglyyet truthfully, when he was washing his hands to start the proceedure, thathe'd seen people killed in car wrecks, with less damage than I had! Itreally was very gross and disgusting...and also, very panful.I fell into a 5 inch wide crack (between a diesel tank and truck frame) onmy dad's semi while washing it (spraying it with a power sprayer!) Otherpeople were doing the hard scrubbing, I was the wet/rinse person. Love thosetypes of "toys" ( 'air' power tools! yeah, fun!;-) LOL!Anyway, I will get help and he will help me get it! SOON, too!Got to go. Just wanted to update you on my situation. I'm as well as can beexpected...and very hopeful! Things are lookin' up!Y'all have a pleasant and PAIN FREE day! I'll remember y'all in my prayers.Thanks for all the help and support you gave me to get the help I need anddeserve!Sincerely,~~Karla J. Fight~~Platinum Dragon DLCPlatinumDragonDLC-owner ------------------------------------------------------------------------------------------------. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 Okay, so yesterday I was supposed to have the discogram. Went to the Appt., Signed in, signed the consent to treat me, took the sedative, went into the room and got undressed and put on the nice gown & waited for the dr. I asked for him to come in a just walk me through the procedure b/c I was so nervous. I was also going to ask him to pray with me before the procedure. The Dr., a very nice man, walked into the room and said that he was uncomfortable with doing this procedure b/c I had just had the cervical epidural. He asked how the lumbar epidural helped me and how it made me feel. I told him that the lumbar injection did not help me, and it made the actual space that the injection was put in to hurt worse when it was over. He with that in mind he didn't feel like the procedure was necessary. He said that with the increased pain from the epidural it was indication enough that I am in need of surgery and said I should be seeing a surgeon as soon as possible. I told him I was seeing the surgeon on the 13th. I told him I was relieved, but I didn't want to hinder my care or getting surgery, if needed. He said he wanted to wait to see if the surgeon wanted to have the discogram done. Going through my notes he asked me why no one listened to the last surgeon when he said that he wanted to fuse L3,4,5 & S1? He said that the former surgeon was the best around when it comes to the spine, so what was the deal there? He sounded frustrated at why this hadn't already been done back in November, and I would be be halfway through the worst of the recovery process. He said he was really sorry that this was happening this way, And that my employer not listening to what the dr's are telling them is causing me more pain and damage. He was very sympathetic and understanding. Oh, he also looked at my EMG results and said that on those results alone I should be seeing a surgeon, not him at this point. So, I am happy I didn't have to go through that, upset b/c once again I feel like things are being stalled. This has been going on the whole time! More than the pain, more than what I can't do anymore, I am most frustrated at how slowly things go. I am tired of waiting around for people to decide what they want to do and how to proceed next. Everything seems to be moving at a snails pace!! All I want is to get better, I need help doing that, and I want to get my life back! Is anyone else dealing with this? How do you keep your sanity? How do you make them realize that it's becoming more than you can take? And how do you do it with out seeming like a pain in the ass? Also, when I took the Zanax (sp?) yesterday, it was the first time in a long time I felt relaxed and positive! It was also the first time I was able to sleep for a long time with out waking up! OMG it was the first time my whole body was relaxed! I seriously wish they would give me that to help with the pain and sleeping issues I am having. Anyway, thanks for " listening " ! Sorry so long! Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 Hi Sara, That is more than a little bumpy ride you had yesterday. You may have someone there who is able to co-ordinate things better or at least you can quote, strongly if necessary. It seemed to go well enough with this doctor seeming to take charge maybe you can consult him again? I have given up caring about whether anyone thinks I am a pain in the ass. I am learning to be a guided missile arming myself with information from various websites (but only using it if I get 3 opinions the same.and even though I haven't too many years left I am on a mission to wake up these people. I have annoyed my personal injury claim solicitor in to action because the British National Health Service is rubbish - I spent the first year listening to a doctor telling me it is going to take time. Of course the present doctor does not want to organise scans etc while there is a chance the personal injury claim will sort it. Nothing is better because of them. Because of me and steps I have taken I now know how to deal with my life on a hour by hour basis - they did not help any. Occasionally a little light shines in my window. Just a little inspiration comes from somewhere unexpectedly and the ability to move mountains is suddenly not a vain hope. Be direct, to the point of almost being rude, but be very assertive and let them know that you will persist, that you want all the options, all the benefits all the negatives and they will realise that it will be quicker to deal with you directly rather than you persistently contacting them. Do not be afraid to ask for explanations. You teach best what you need to learn most, !!! This is what I have to do, having lived trusting people to give me a good honest answer and feeling let down when they don't I now demand from them what I would give them. Good luck and better experts to you, . > From: sbs_1975 <sbs_1975@...> > Subject: Update on My situation... > spinal problems > Date: Thursday, 5 February, 2009, 11:46 AM > Okay, so yesterday I was supposed to have the discogram. > Went to the > Appt., Signed in, signed the consent to treat me, took the > sedative, > went into the room and got undressed and put on the nice > gown & waited > for the dr. I asked for him to come in a just walk me > through the > procedure b/c I was so nervous. I was also going to ask him > to pray > with me before the procedure. The Dr., a very nice man, > walked into > the room and said that he was uncomfortable with doing this > procedure > b/c I had just had the cervical epidural. He asked how the > lumbar > epidural helped me and how it made me feel. I told him that > the lumbar > injection did not help me, and it made the actual space > that the > injection was put in to hurt worse when it was over. He > with that in > mind he didn't feel like the procedure was necessary. > He said that > with the increased pain from the epidural it was indication > enough > that I am in need of surgery and said I should be seeing a > surgeon as > soon as possible. I told him I was seeing the surgeon on > the 13th. I > told him I was relieved, but I didn't want to hinder my > care or > getting surgery, if needed. He said he wanted to wait to > see if the > surgeon wanted to have the discogram done. Going through my > notes he > asked me why no one listened to the last surgeon when he > said that he > wanted to fuse L3,4,5 & S1? He said that the former > surgeon was the > best around when it comes to the spine, so what was the > deal there? He > sounded frustrated at why this hadn't already been done > back in > November, and I would be be halfway through the worst of > the recovery > process. He said he was really sorry that this was > happening this way, > And that my employer not listening to what the dr's are > telling them > is causing me more pain and damage. He was very sympathetic > and > understanding. Oh, he also looked at my EMG results and > said that on > those results alone I should be seeing a surgeon, not him > at this point. > So, I am happy I didn't have to go through that, upset > b/c once again > I feel like things are being stalled. This has been going > on the whole > time! More than the pain, more than what I can't do > anymore, I am most > frustrated at how slowly things go. I am tired of waiting > around for > people to decide what they want to do and how to proceed > next. > Everything seems to be moving at a snails pace!! All I want > is to get > better, I need help doing that, and I want to get my life > back! > Is anyone else dealing with this? How do you keep your > sanity? How do > you make them realize that it's becoming more than you > can take? And > how do you do it with out seeming like a pain in the ass? > Also, when I took the Zanax (sp?) yesterday, it was the > first time in > a long time I felt relaxed and positive! It was also the > first time I > was able to sleep for a long time with out waking up! OMG > it was the > first time my whole body was relaxed! I seriously wish they > would give > me that to help with the pain and sleeping issues I am > having. > > Anyway, thanks for " listening " ! Sorry so long! > > Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 Hi , Thanks for the support. I can be really assertive when I am writing in here, and when I talking to people I am comfortable with, and I get all fluffed up like a bantee hen when I am on my way to the dr. But when I get there I get really flustered and intimidated. I guess I figure they are the dr and they know everything....I don't know if anyone else gets that feeling or not. I really try to be assertive and proactive with my care. Sometimes I just feel railroaded. I see my treating physician again today, so I will see what happend then! Sara > From: sbs_1975 <sbs_1975 (DOT) com> > Subject: Update on My situation... > spinedisorderssuppo rtgroup@gro ups.com > Date: Thursday, 5 February, 2009, 11:46 AM > Okay, so yesterday I was supposed to have the discogram. > Went to the > Appt., Signed in, signed the consent to treat me, took the > sedative, > went into the room and got undressed and put on the nice > gown & waited > for the dr. I asked for him to come in a just walk me > through the > procedure b/c I was so nervous. I was also going to ask him > to pray > with me before the procedure. The Dr., a very nice man, > walked into > the room and said that he was uncomfortable with doing this > procedure > b/c I had just had the cervical epidural. He asked how the > lumbar > epidural helped me and how it made me feel. I told him that > the lumbar > injection did not help me, and it made the actual space > that the > injection was put in to hurt worse when it was over. He > with that in > mind he didn't feel like the procedure was necessary. > He said that > with the increased pain from the epidural it was indication > enough > that I am in need of surgery and said I should be seeing a > surgeon as > soon as possible. I told him I was seeing the surgeon on > the 13th. I > told him I was relieved, but I didn't want to hinder my > care or > getting surgery, if needed. He said he wanted to wait to > see if the > surgeon wanted to have the discogram done. Going through my > notes he > asked me why no one listened to the last surgeon when he > said that he > wanted to fuse L3,4,5 & S1? He said that the former > surgeon was the > best around when it comes to the spine, so what was the > deal there? He > sounded frustrated at why this hadn't already been done > back in > November, and I would be be halfway through the worst of > the recovery > process. He said he was really sorry that this was > happening this way, > And that my employer not listening to what the dr's are > telling them > is causing me more pain and damage. He was very sympathetic > and > understanding. Oh, he also looked at my EMG results and > said that on > those results alone I should be seeing a surgeon, not him > at this point. > So, I am happy I didn't have to go through that, upset > b/c once again > I feel like things are being stalled. This has been going > on the whole > time! More than the pain, more than what I can't do > anymore, I am most > frustrated at how slowly things go. I am tired of waiting > around for > people to decide what they want to do and how to proceed > next. > Everything seems to be moving at a snails pace!! All I want > is to get > better, I need help doing that, and I want to get my life > back! > Is anyone else dealing with this? How do you keep your > sanity? How do > you make them realize that it's becoming more than you > can take? And > how do you do it with out seeming like a pain in the ass? > Also, when I took the Zanax (sp?) yesterday, it was the > first time in > a long time I felt relaxed and positive! It was also the > first time I > was able to sleep for a long time with out waking up! OMG > it was the > first time my whole body was relaxed! I seriously wish they > would give > me that to help with the pain and sleeping issues I am > having. > > Anyway, thanks for " listening " ! Sorry so long! > > Sara Quote Link to comment Share on other sites More sharing options...
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