Re: Relapse, information request RE: Evil Candy

[Guest guest]

Ron - sorry to hear that you are so debilitated by your symptoms and

evil candy. Have you gotten hold of the book " Coping with

Prednisone? " It is a great resource for how to fight off side

effects, cravings, and other evil candy issues.

Take care,

Addy

--- In , " ronaldcrpntr " <cowtrail@...>

wrote:

>

> Although Xolair has helped my overall quality of life, I am still

on all my Meds. I have not

> been back in the hospital since April, that is a good thing. My Dr

has " retired me from

> work " fearing more hospitalizations so I'm going through that

insane process. I have

> recently had to use my rescue inhaler way to much. My Dr increased

my Prednisone to 20

> mg (I am extremely sensitive to the adverse reactions so this is a

catch 22).

>

> 1. My legs muscles have become extremely weak, which is of course a

side effect of

> Prednisone. I have been unable to locate an explanation and " term "

for this but i remember

> the group talking about it, I think someone even spent time in a

wheel chair, any

> information will be appreciated.

>

> 2. I have been on Prednisone for over a couple of years and I do

not recall my Dr telling me

> when I should take it (My wife says I'm brain dead anyway, or was

that an air head). All the

> internet " stuff " says to take it in the morning to mimic your

adrenal gland. I take 7

> different Asthma drugs so I was trying the half in the morning,

half at night spread them

> out thing. Maybe I'm causing my own problems! Any information will

be appreciated.

>

> For the new people to the forum with pre-Xolair concerns, the

concerns are valid when

> ever we take a new drug and I looked for all the information I

could get, but even with

> Xoliar not helping me " as much " as some, it has increased my well

being tremendously, I

> have had no side effects (My wife assures me that since I am a man,

I have been an airhead

> all my life, it is not a side effect!), and I would not stop taking

it for anything. Sometimes a

> little help is a lot! When I question if Xolair is helping, My wife

reminds me of what it was

> like pre-Xolair, oh ya, Duh!

>

> Ron

>

[Guest guest]

I just got through reading this book. It is well worth taking the time

to read it. It helps.

~STEVE ZIMMERMAN, CPM, CVOM~

________________________________

From: [mailto: ]

On Behalf Of pyle456

Sent: Sunday, July 09, 2006 11:07 AM

Subject: [ ] Re: Relapse, information request RE: Evil Candy

Ron - sorry to hear that you are so debilitated by your symptoms and

evil candy. Have you gotten hold of the book " Coping with

Prednisone? " It is a great resource for how to fight off side

effects, cravings, and other evil candy issues.

Take care,

Addy

--- In

<mailto: %40> , " ronaldcrpntr " <cowtrail@...>

wrote:

>

> Although Xolair has helped my overall quality of life, I am still

on all my Meds. I have not

> been back in the hospital since April, that is a good thing. My Dr

has " retired me from

> work " fearing more hospitalizations so I'm going through that

insane process. I have

> recently had to use my rescue inhaler way to much. My Dr increased

my Prednisone to 20

> mg (I am extremely sensitive to the adverse reactions so this is a

catch 22).

>

> 1. My legs muscles have become extremely weak, which is of course a

side effect of

> Prednisone. I have been unable to locate an explanation and " term "

for this but i remember

> the group talking about it, I think someone even spent time in a

wheel chair, any

> information will be appreciated.

>

> 2. I have been on Prednisone for over a couple of years and I do

not recall my Dr telling me

> when I should take it (My wife says I'm brain dead anyway, or was

that an air head). All the

> internet " stuff " says to take it in the morning to mimic your

adrenal gland. I take 7

> different Asthma drugs so I was trying the half in the morning,

half at night spread them

> out thing. Maybe I'm causing my own problems! Any information will

be appreciated.

>

> For the new people to the forum with pre-Xolair concerns, the

concerns are valid when

> ever we take a new drug and I looked for all the information I

could get, but even with

> Xoliar not helping me " as much " as some, it has increased my well

being tremendously, I

> have had no side effects (My wife assures me that since I am a man,

I have been an airhead

> all my life, it is not a side effect!), and I would not stop taking

it for anything. Sometimes a

> little help is a lot! When I question if Xolair is helping, My wife

reminds me of what it was

> like pre-Xolair, oh ya, Duh!

>

> Ron

>

[Guest guest]

Hi Ron,

In regard to the muscle weakness, I believe the term you're looking for

is probably " muscle atrophy. " I had problems with this after being on

40-60 mg of prednisone for only 3 months. I was basically one big

noodle by the end of that course of steroids. I could barely raise my

arms to wash my hair, and I had to use a stool in the shower because I

couldn't stand for very long.

From what I understand, you are supposed to take steroids in the

morning to keep your adrenal glands working. One of my doctors

prescribed them at 7 am and 12 pm (noon), but no later than that. When

things got really bad for me, I started splitting the doses throughout

the day, but I think you're supposed to avoid this if at all possible!

Maybe that's why I got so bad so fast!

I'm sorry you're having such problems. I hope things start getting

better soon!

, 32, Louisville

[Guest guest]

Thanks,

When I got out of the hospital my legs were so weak I fell a couple

of times. Lowered my Prednisone dose and I got my strength back. I am

now borderline weak, at 20 mg I have every side effect Prednisone has

to offer LOL

My daughter just called furious with my Dr, she agrees that it is to

be taken in the morning, I'm going to make the transition. (she took

high doses for a couple of years)

I ordered the living with Prednisone book, I had it some time back

and " loaned " it to a friend that apparently needed it more then me,

they still have it.

I'm confident things will get better, if not I can live with one day

at a time! I'll just do what I have to do. Things could be far worse,

I'm actually lucky I'm in as good shape as I am considering the life

I have lead!

Ron

On Jul 10, 2006, at 5:29 PM, wrote:

> Hi Ron,

>

> In regard to the muscle weakness, I believe the term you're looking

> for

> is probably " muscle atrophy. " I had problems with this after being on

> 40-60 mg of prednisone for only 3 months. I was basically one big

> noodle by the end of that course of steroids. I could barely raise my

> arms to wash my hair, and I had to use a stool in the shower because I

> couldn't stand for very long.

>

> From what I understand, you are supposed to take steroids in the

> morning to keep your adrenal glands working. One of my doctors

> prescribed them at 7 am and 12 pm (noon), but no later than that. When

> things got really bad for me, I started splitting the doses throughout

> the day, but I think you're supposed to avoid this if at all possible!

> Maybe that's why I got so bad so fast!

>

> I'm sorry you're having such problems. I hope things start getting

> better soon!

>

> , 32, Louisville

>

>

>