very upset

July 21, 2007

Janine,

I understand excactly what you mean but this total disreguard

and misconception that we choose not to eat. Not that we CAN'T eat.

I have received one of my discharge form from a Doctor in charge of

the Gastroentestional Science ward of a major hospital (Monash) here

in Melbourne. Only to read with such anger that I wrote to him

telling

him " To get it straight. " that my discharge diagnosis was

Achalasia.

Malnutrition.

Chronic pain

and

Eating disorder

He used to come to the bedside and point to the Psych ward, and

eating

disorder floor, directly opposite my room and say " If you keep this

up, you will end up in there. "

Why, I explained while steaming out of my ears with anger, would

someone with 'anorexia' eat cheese, which I would eat like crazy. Or

buy and eat high fat and calorie foods and hate being so skinny?

He couldn't answer that.

I think most of us have been in this position in hospital or another

Doctor or even Casualty.

Vent on.

Australia

>

> hello all,

> I had to go over to the hospital today and pick up my records that

> pertained to my 7 day stay in April. I need them for when I go to

> Shands. I decided to read them and right there inn black and white

> that stupid neurologist stated that he felt this was due to an

eating

> disorder! I am the kind of girl who has never weighed more than 115

> (unless I was pregnant) but could eat all the food I wanted. Why

would

> someone with an eating disorder plead with the doctors to help her

> find a way to eat! Stupid Doctor. I am so frustrated right now.

Thanks

> for letting me vent.

> Blessed Be,

> Janine

>

July 21, 2007

Hi Janine, Sorry to hear you're so upset. I think when I was first admitted to hospital 20 years ago,they were checking for signs of a disorder, as they were checking my finger nails to see if there was staining from making my self throw up. Luckliy, after they actually diagnosed it, I ended up with one of the best GI doctors in Canada. He was a real sweetheart. Just like a regular old farm boy. But, it's true, I went from 235 to 159 in two months. My dr wasn't paying attention to what I was saying because I was so big to begin with. It was a dr on duty during my dr's holidays that ordered a simple barium swallow and found the achalasia. I was the first case my local GI had seen of achalasia since he started his practice and it was 2 years at that point. That's why he sent me to Toronto to my specialist there. As for sedation for motility test, I don't

know if they do. I would think it could interfere with the results. Well, I hope all works out for you. We need to get it out there about Achalasia and that it is a disease and not an eatin disorder. You take care and don't work about ignorant dr's. We know what's true. bye for now, janinezoltan <janinegraeff@...> wrote: hello all,I had to go over to the hospital today and pick up

my records thatpertained to my 7 day stay in April. I need them for when I go toShands. I decided to read them and right there inn black and whitethat stupid neurologist stated that he felt this was due to an eatingdisorder! I am the kind of girl who has never weighed more than 115(unless I was pregnant) but could eat all the food I wanted. Why wouldsomeone with an eating disorder plead with the doctors to help herfind a way to eat! Stupid Doctor. I am so frustrated right now. Thanksfor letting me vent.Blessed Be,Janine

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July 21, 2007

Janine

Hi again. Am reading posts after a few days off....saw you are going to Shands. Guess you live close? I live in Eustis - South of G'ville. I went to Tampa Gen. for my surgery on 6/5 by Dr. Rosemurgy. He is a great surgeon - not really easy to get in touch with following surgery but I would rather have a GREAT surg than a caregiver. Just wondering if you would change your location to Tampa. They are very familiar with A.

Tammy

very upset

hello all,I had to go over to the hospital today and pick up my records thatpertained to my 7 day stay in April. I need them for when I go toShands. I decided to read them and right there inn black and whitethat stupid neurologist stated that he felt this was due to an eatingdisorder! I am the kind of girl who has never weighed more than 115(unless I was pregnant) but could eat all the food I wanted. Why wouldsomeone with an eating disorder plead with the doctors to help herfind a way to eat! Stupid Doctor. I am so frustrated right now. Thanksfor letting me vent.Blessed Be,Janine

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July 22, 2007

I really wanted to go to the center in south FL. known for swallowing disorders and so did my GI however my insurance(Health First HMO ) won't cover the place I have to go to Shands. Re: very upset

Janine

Hi again. Am reading posts after a few days off....saw you are going to Shands. Guess you live close? I live in Eustis - South of G'ville. I went to Tampa Gen. for my surgery on 6/5 by Dr. Rosemurgy. He is a great surgeon - not really easy to get in touch with following surgery but I would rather have a GREAT surg than a caregiver. Just wondering if you would change your location to Tampa. They are very familiar with A.

Tammy

very upset

hello all,I had to go over to the hospital today and pick up my records thatpertained to my 7 day stay in April. I need them for when I go toShands. I decided to read them and right there inn black and whitethat stupid neurologist stated that he felt this was due to an eatingdisorder! I am the kind of girl who has never weighed more than 115(unless I was pregnant) but could eat all the food I wanted. Why wouldsomeone with an eating disorder plead with the doctors to help herfind a way to eat! Stupid Doctor. I am so frustrated right now. Thanksfor letting me vent.Blessed Be,Janine

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July 22, 2007

Hey, just make sure that the Dr has done LOTS of myotomies......I am pretty sure that mine worked but I am having lots of problems with my stomach accepting the food now. It all goes down - very small amounts at a time - b/c I get very full and if I go past that then my stomach pains - but then in a little while I go to the bathroom. From all I am reading, it just takes time after a major surgery. Just b/c it is a lap surgery, doens't mean it is simple....it is a major surgery and our bodies have to repair. I am just getting impatient.

Anyway, good luck and keep us posted.

Tammy

very upset

hello all,I had to go over to the hospital today and pick up my records thatpertained to my 7 day stay in April. I need them for when I go toShands. I decided to read them and right there inn black and whitethat stupid neurologist stated that he felt this was due to an eatingdisorder! I am the kind of girl who has never weighed more than 115(unless I was pregnant) but could eat all the food I wanted. Why wouldsomeone with an eating disorder plead with the doctors to help herfind a way to eat! Stupid Doctor. I am so frustrated right now. Thanksfor letting me vent.Blessed Be,Janine

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July 22, 2007

Thanks I will. Is there a web site were I can check a doctors stats for free? Tammy I know it must be difficult to stay patient I'll send some prayers out for you. I'll ask the higher powers to send you some patience or at least something fun to distract you :)Blessed Be,Janine Re: very upset

Hey, just make sure that the Dr has done LOTS of myotomies......I am pretty sure that mine worked but I am having lots of problems with my stomach accepting the food now. It all goes down - very small amounts at a time - b/c I get very full and if I go past that then my stomach pains - but then in a little while I go to the bathroom. From all I am reading, it just takes time after a major surgery. Just b/c it is a lap surgery, doens't mean it is simple....it is a major surgery and our bodies have to repair. I am just getting impatient.

Anyway, good luck and keep us posted.

Tammy

very upset

hello all,I had to go over to the hospital today and pick up my records thatpertained to my 7 day stay in April. I need them for when I go toShands. I decided to read them and right there inn black and whitethat stupid neurologist stated that he felt this was due to an eatingdisorder! I am the kind of girl who has never weighed more than 115(unless I was pregnant) but could eat all the food I wanted. Why wouldsomeone with an eating disorder plead with the doctors to help herfind a way to eat! Stupid Doctor. I am so frustrated right now. Thanksfor letting me vent.Blessed Be,Janine

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July 22, 2007

Janine

I'm not sure about the web site. I think you can google A. doctors, etc. and then if you find their names, look them up. I found Dr. Rosemurgy's name and then looked him up ....he had done around 400 myotomies for A. patients and more for GERD patients. He even had A. listed as a specialty - rare from what I found. Notan and others may know more about searching.

Good luck.

Tammy

very upset

hello all,I had to go over to the hospital today and pick up my records thatpertained to my 7 day stay in April. I need them for when I go toShands. I decided to read them and right there inn black and whitethat stupid neurologist stated that he felt this was due to an eatingdisorder! I am the kind of girl who has never weighed more than 115(unless I was pregnant) but could eat all the food I wanted. Why wouldsomeone with an eating disorder plead with the doctors to help herfind a way to eat! Stupid Doctor. I am so frustrated right now. Thanksfor letting me vent.Blessed Be,Janine

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July 23, 2007

Thanks Tammy I'll give it a try.Blessed Be,Janine Re: very upset

Janine

I'm not sure about the web site. I think you can google A. doctors, etc. and then if you find their names, look them up. I found Dr. Rosemurgy's name and then looked him up ....he had done around 400 myotomies for A. patients and more for GERD patients. He even had A. listed as a specialty - rare from what I found. Notan and others may know more about searching.

Good luck.

Tammy

very upset

hello all,I had to go over to the hospital today and pick up my records thatpertained to my 7 day stay in April. I need them for when I go toShands. I decided to read them and right there inn black and whitethat stupid neurologist stated that he felt this was due to an eatingdisorder! I am the kind of girl who has never weighed more than 115(unless I was pregnant) but could eat all the food I wanted. Why wouldsomeone with an eating disorder plead with the doctors to help herfind a way to eat! Stupid Doctor. I am so frustrated right now. Thanksfor letting me vent.Blessed Be,Janine

Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

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July 23, 2007

Unfortunately, many of us have been through the same. It's one thing

with friends and family - they don't really get it - but to have

Doctors be so flippin ignorant - it just chafes my backside!!!

I was told, because I was 13-14 years old at the time that I had

a 'rats tail' esophagus - you know, very common in girls, puberty

that kind of thing. What a quack! I do NOT take comfort from the fact

that this stupidity extends beyond the borders of this country.

At least for now, you can take comfort in knowing that we are here

and we do GET IT.

Hang in there.

Happy Swallowing!

- in NC

> >

> > hello all,

> > I had to go over to the hospital today and pick up my records that

> > pertained to my 7 day stay in April. I need them for when I go to

> > Shands. I decided to read them and right there inn black and white

> > that stupid neurologist stated that he felt this was due to an

> eating

> > disorder! I am the kind of girl who has never weighed more than

115

> > (unless I was pregnant) but could eat all the food I wanted. Why

> would

> > someone with an eating disorder plead with the doctors to help her

> > find a way to eat! Stupid Doctor. I am so frustrated right now.

> Thanks

> > for letting me vent.

> > Blessed Be,

> > Janine

> >

>

November 10, 2009

I had x-rays taken yesterday for the study I am participating in (yoga vs. osteoporosis). The doctor's office (my endocrinologist) and said the radiologist's report said that it appeared that some screws were loose and I should contact my orthopedist. I have forwarded the images to Dr. Hey and his PA, Brittany. If it is loose (I think it is the screw in the left pelvis), it would explain the pain I have been having. I am in tremendous pain right now with my hardware because of the front coming up the coast (Ida). Please pray that in this case the radiologist is misreading the films due to lack of experience with this type of hardware. I had x-rays in September at Dr. Hey's office and everything was fine then.

Peggy

November 10, 2009

Peggy,

I do hope and pray that all is well with your hardware and that this is a case of an inexperienced doctor misreading the films. I can only imagine how upsetting this must be for you. Hang in there!

Jeanne

[ ] very upset

I had x-rays taken yesterday for the study I am participating in (yoga vs. osteoporosis). The doctor's office (my endocrinologist) and said the radiologist's report said that it appeared that some screws were loose and I should contact my orthopedist. I have forwarded the images to Dr. Hey and his PA, Brittany. If it is loose (I think it is the screw in the left pelvis), it would explain the pain I have been having. I am in tremendous pain right now with my hardware because of the front coming up the coast (Ida). Please pray that in this case the radiologist is misreading the films due to lack of experience with this type of hardware. I had x-rays in September at Dr. Hey's office and everything was fine then.

Peggy

November 11, 2009

Peggy,

Oh dear...that is unnerving. I hope that nothing is amiss...but you wouldnt be

the first person to have screws loose (no pun intended!).

If DrHey responds that everything is a-okay, are you going to be comfortable

resting on that answer if the pain continues?

Please let us know what you find out.

Take Care, Cam

November 11, 2009

Hi Peggy...

I think it's not uncommon for iliac screws or bolts to be a little loose. It

may or may not have any effect on the fusion. Even if the screw is loose, and

it's affecting your fusion, the fix is usually pretty simple (at least in

comparison to what you went through with the prior surgery).

Hang in there.

Regards,

>

> I had x-rays taken yesterday for the study I am participating in (yoga vs.

osteoporosis). The doctor's office (my endocrinologist) and said the

radiologist's report said that it appeared that some screws were loose and I

should contact my orthopedist. I have forwarded the images to Dr. Hey and his

PA, Brittany. If it is loose (I think it is the screw in the left pelvis), it

would explain the pain I have been having. I am in tremendous pain right now

with my hardware because of the front coming up the coast (Ida). Please pray

that in this case the radiologist is misreading the films due to lack of

experience with this type of hardware. I had x-rays in September at Dr. Hey's

office and everything was fine then.

>

> Peggy

>

November 30, 2009

Peggy,

I'm so sorry to hear about your pain and potential screw issue. You were such a

help to me when I was preparing for my surgery with Dr. Hey a few months ago.

I'll be praying for you that it's nothing serious and there is a simple

resolution.