WOW...patience would be appreciated

[Guest guest]

seeing that i am very new here new to even knwoing about flatback revisions

being done since a yr ago, it seems i get immediate abrupt corrective replies of

how im wrong, from other folks here that are to be a support group i thought.

all of us have had more than our share of war stories, pain and

misunderstnadings in our dealings in healthcare.

We have heard others stories as well and if we say something that is minor

incorrect . ive experienced at least the same 4 folks here jumping on any info

that share, i know of only from what ive been exposed to in my small world in

Vegas where flatback specialists arent abundant

I ask you all , since i beilieve it to be expected of me as well, the courtesy

of respect, tolerance of being new and a reminder that this is a group to

SUPPORT we that have PAIN as A CONSTANT unwanted companion at least for me.

If anyone makes a sincere incorrect statement of what they have experienced or

heard lets remind ourselved here that this is a chat group not and i hoped a

compassionate one as well, i dont feel it should be a place to one up antoher on

their vast knowledge verses anothers.

i dont know about you all bUT in my life and with ALL the MANY greater issues of

the world we live in right now, that it shouldnt be necessary for any of us to

make a personal mission to seek to correct each statement.

I for one have too many other things in life to do than sit back and tell

others that are ging thru the hardest thing in life and in TREMENDOUS

intractable pain they are wrong about any detail. that at the end of the day

doesnt harm anyone.

Im not giving meds advice or prescribing certain drs or even telling how bad

or good i was treated at a dr. I have had only a few interactions here and

several folks are so quick to correct its like im in school.

Such a shame , when we i supposed we are all deeply hurting people suffering

with meds that dotn work at least for me, job security inablity to walk etc,

live alone etc

I dont think at the core of what this froup is about should it be about pounvin

gon folks vs offeing help on info if wanted etc

I dont know that a group thats concerend with correcting every thing i say is

supportive at all. I actually havent even been asked how im feeling!! excpet

for a call from a fellow Vegan to see if i needed anything and offer

encouramgent, bless you for that you knwo who you are and thank you

I had hoped i found others that because they are going thru or haev been thru

what i am. that our conversatiosn or exchanges and statements would be sifted

through the sieve of compassion . May God bless ALL of you and keep you well

cared for and strong

donna

[Guest guest]

Donna,

Yes, patience would be appreciated. Perhaps you can show some patience yourself. I corrected you when you said that revision surgeries have been done for only 6 years. It seems to me, rather than being offended, you would be grateful to have the correct information. Information is power and I am sure you would not want to make any decisions about your care based on wrong information.

Moreover, remember that you are not the only one reading these posts. We get new members here all the time and they read old posts. If we leave an incorrect statement intact without correction, then we are giving out wrong information, possibly to hundreds of people. I would not want anyone to make any decisions based on incorrect information.

I have been in this group since its inception, about 7 years ago. I had my revision surgery years before that, and I am not here to get any help, of any kind. I am here so I can help others who have been through the same thing as me. No question, I am definitly not as warm and fuzzy as others, particularly , but you can rest assured that all of us who are at any stage of a battle with scoliosis, pre or post revision surgery, understand your pain. And I should think you would know that. Most people feel relief when they find this Group, because just by its very existence, you know you have found people who have suffered and understand what you are going through, because they've been there themselves, including me. So, I suggest you not be so quick to judge me or my motives. Or anyone else's, for that matter.

Bonnie