Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Tracie, Welcome! I am mom to JJ () age 15 with autism and I have a 30 year old son () who is fine and a grandson (Diamond) who is 7 and well. When JJ hit puberity he started having behaviours and we have him on resperdal. It has worked well for him. Some kids gain alot of weight aand/or have " pee " problems but JJ is not one of them. Lois Lois Noland President Washington county ASA 721 Georgia Ave Hagerstown Md 21740 240-420-3692 jlois@... Add this card to your address book Hi All New here Hello to all. I am Tracie mom to 7 yo Collin. I was searching with desperation tonight for some solution (or direction) to his ever increasing violence and rage and came across this group. I am hoping someone here can help -or maybe just relate It just started in September and gets worse every day. Today was one of those days that I got kicked in the head while I was driving. Likemit wsn't bad enough I had at least 2 people comment that I need to get it under control before he gets too big. Well duh!! Like I needed to be told that. Hope to talk to you all soon. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Hi , welcome to the group! My name is Robin,my daughter was just dx 3 months ago as autistic, so I am new to all this. I too have heard wonderful results from parents using Risperdal. Its becoming known as the wonder drug for autism, but if you research it it is also stressed to be a drug of last resort, and it sounds like you are desperate. Do you take Collin to a developmental ped, or for any type of Behavioral psycologist? Maybe you should ask for a reference to a genecists for testing to see whats causing the violence, Sometimes our kids have hidden virsuses or strep infections. And What about a nutrutionist? Sometimes it vitamins/minerals that are lacking in our kids that can also cause behaviors.Hope this helps, feel free to expand on your sons behavior problems or anything you may want to discuss. You can e-mail me privately if you want. BiloxiRobin2@... Good Luck!!! Robin mom to Whitney 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Traci, what medication is your son on? Zydis, Abilify, Risperdal, and Thorizine are four medications that help control aggression. Abilify seems to have the fewest side effects. Zydis and Risperdal cause weight gain. A relatively new drug is Geodon which doesn't cause weight gain, but has a 1 in 4000 risk of serious heart problems. We have just put Karac (10 years old) on Risperdal because he began having attacks of aggression. Risperdal has stopped the aggression. I am Karac's grandmother and I have worked with him every day for 8 years. Good luck. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Tracie: Does Collin see an occupational therapist for sensory integration issues? That would be a good place to start if he doesn't already see one. Does Collin see a therapist for behavioral issues? That would be another great place to go to help you help him better control his anger as well as help him better communicate his wants/needs/desires/frustrations. Does Collin take any meds? You may need to contact your doc re: adjustments/reconsiderations. Do you know about A-B-C data collection? It's Antecedent, Behavior, Consequence. What precipitates his anger/aggressions? What does he get from it -- is he trying to express himself, trying to avoid a task, seeking something tangible (i.e. going home if you're out)? I have an 11-year-old with autism, and we've done all of this to help her. It's worked phenomenally. Hope it can help you guys, too! Missy in land Hi All New here Hello to all. I am Tracie mom to 7 yo Collin. I was searching with desperation tonight for some solution (or direction) to his ever increasing violence and rage and came across this group. I am hoping someone here can help -or maybe just relate It just started in September and gets worse every day. Today was one of those days that I got kicked in the head while I was driving. Likemit wsn't bad enough I had at least 2 people comment that I need to get it under control before he gets too big. Well duh!! Like I needed to be told that. Hope to talk to you all soon. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Oh, Mine is only 5.5. We didn't want to, but give him Risperdal to control his tantrums. It has helped incredibly, but I am still looking for behavioral interventions instead. Time outs work well for us at home but not out. there are soooooo many places I can't take him anymore. : ( Kathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 I think Evan is just mostly stubborn also. I emailed his teacher and asked how he was doing at school and he has been doing the same thing there that he is here. Well I guess that answers whether I can take him back to Sunday School. Not yet. Her reply to me. {Evan has been screaming alot here at school. Today has not been so bad but yesterday he screamed all day. He is also more physical with the other kids than he has ever been. I am very cautious when he is close to other students because he has been leaning into them and biting his hand. Acdemically we have seen a small regression in his skills. He is not doing things he knows how to do and is screaming, pushing at Amy, and squeezing her hands. So, over all I would say he is not doing better on the Abilify. Sorry} That was the pits because at first Amy said he was doing better. It seems he might have been doing better on the 5 mg than the 10 mg. Where oh, where is that magic wand?? BETTY ANN-61 yo, possibly Bipolar but undx'd, grandma and guardian to ANDREW - 11 yo-- Bipolar/ADHD, EVAN - 9 yo-- nonverbal autism DAVID 7 yo Bipolar/ADHD/PTSD and mother to ANDREA -32 yo, their mom - wife to BOB - 72 yo, a very patient and tired grandpa ----- Original Message ----- From: " theprincess_ts " <theprincess_ts@...> > I dont know about Evan, but Collin is very stubborn (and a bit lazy)! So I think If he made some effort he would pick up sign quickly. the things he wants to learn (like candy) he seems to catch right away. We are starting to push more on the signing so I have to learn too. You are not alone. > > tracie > Collin's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Kathie, that is so familar but we were able to take Evan out until just recently. At 5 yo I could still get him into the shopping cart and he would pretty much stay there. Then he walked nicely along holding on to the cart. Now he has decided that he wants to push the cart everywhere but where we want to shop and forget stopping in line to pay for anything. I now don't dare take him with me unless I take another able bodied adult to take him out or walk him around while I finish shopping. I hate it because I want him to be able to go places and he misses that. He sees his brothers go places and he watches them and you can tell he is wondering why he does not get to go. I cannot take the boys to McD's without an adult to help because the last time I tried, got side tracked watching some other kids and Evan went out the side door. Thankfully another adult grabbed him. BETTY ANN-61 yo, possibly Bipolar but undx'd grandma and guardian to ANDREW - 11 yo-- Bipolar/ADHD, EVAN - 9 yo-- nonverbal autism DAVID 7 yo Bipolar/ADHD/PTSD and mother to ANDREA -32 yo, their mom - wife to BOB - 72 yo, a very patient and tired grandpa ----- Original Message ----- From: <krdorran@...> > Oh, Mine is only 5.5. We didn't want to, but give him Risperdal to > control his tantrums. It has helped incredibly, but I am still looking for > behavioral interventions instead. Time outs work well for us at home but not out. > there are soooooo many places I can't take him anymore. : ( > Kathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Betty, Karac did better on the 5 mg's than the 10 also. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 > > Hi all > > I am a 51 year old woman with two sons 24 and 26 who lives in Pennsylvania in the Poconos. I moderate two sites so any help needed would not mind. > > I have arnold chiari I, acoustic neuroma and tethered cord to mention a few. The first operation I was operated for was arnold chiari I and 5 of the 7 discs in my neck was screwed and rodded. The operation was a botch up they left the spinal cord open which caused the brain to be so compressed they couldn't even use a shunt thats how bad it was. They caught all the nerves in my neck giving me hypersensitive arms and loss of feeling in my legs. It looks like I have a neurological stroke on the left hand side. From head to toe the right although effected is by far not as bad as the left. > > The second operation was done by the Chiari Institute they were able to get rid of the hallucinations and the fluid in the head thank God and to reshape the plate in my head. So that it no longer herniates like it continued to do after the first operation. > > On September 7th I will be having the tethered cord addressed. Laughing my mother swears I didn't have any of these diseases before I married my husband. As we all know its heritory. > > They are also trying to get genetics done during that time since my primary doctor keeps saying he feels something much more is behind all this and the Chiari Institute has informed me that although they originally stated that the operation they said would be it that they did first they can no longer say that they see at least two more they need to do at this point. > > I have learned to live through the pain with determination and the ability to succeed. The pressure in the head the always being off balance the migrane headaches the weakness in my legs and even the hypersensitive arms. I even got past the fact that the man I was engaged to for four years wiped me out before he dumped my buns for being to handicapped. > > Did I pass these problems onto my sons yes but not as bad as my own. > > > --------------------------------- > How low will we go? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 I'm so sorry to hear about all of your problems. I wish I could give you a hug. I hope that you find the help you need to make your life a little easier. Blessings, Dana Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.