Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Well, soy messes with the thyroid anyways, so it'd kind of make sense if it messed with the meds that were given for the thyroid also. Qadoshyah Book ~ Down Syndrome: What You CAN Dowww.gotdownsyndrome.net/Book/whatyoucandobook.html Re: alternative therapies Hi !It wasn't so much a "natural therapy" as it was asincere desire to get my son off of high fat/hormonelaced cows milk. I decided hey lets try soy! Wrong.Apparently soy interrupts with the proper absorptionof certain meds. In Freddie's case it was his thyroidmeds. My son's pediatrician didn't know it either. Iread it on the medication manufactures web site. Icalled the Endocrinologist and he confirmed it onlyafter he called the manufacture himself. That makestwo physicians who didn't know about the combinationof meds and soy. Worries ya a little doesn't it?Turned out it wasn't so much using soy as it was thetime between taking the meds and taking ant soyproduct. I imagine there are a lot of over the countermeds or herbs that would effect other prescriptionmeds. As I said, do your research!nnaMommy to Freddie 6 yrsFull Inclusion Kindy (Again-But it's a good thing!!!)--- Keener <ninepreciousgiftsfromgod >wrote:> nna,> > You wrote: "My son's pediatrician is an awesome> doctor but he isn't necessarily an expert on my> son's hyperthyroidism or on his medications and how> they mix with "natural therapies". I learned this> one the hard way!"> > Would you mind to elaborate on that just a little?> I mean is there something we should know that you> found out about a certain "natural therapy" that> should not be given if a child is on a certain> medication? has not been diagnosed with> hyperthyroidism, but his last blood test (2 mos.> ago) was on the borderline, so he is to be retested> in another month. I hope it will be fine. He does> grow very slowly, but that may be due to his> uncorrected CHD. Anyway, if he ever does get put on> thyroid meds, I don't want to "learn the hard way"> what "natural therapy" NOT to try!> > Blessings,> > > > > Freddies Mommy <freddie5smommy > wrote:> I would also add that talking to any> specialist your> child see's should also be scheduled. My son's> pediatrician is an awesome doctor but he isn't> necessarily an expert on my son's hyperthyroidism or> on his medications and how they mix with "natural> therapies". I learned this one the hard way!> > nna> Mommy to Freddie 6yrs> Full Inclusion Kindy (Again-But it's a good> thing!!!)> > --- Kathy Ratkiewicz <Kathy_Rcomcast (DOT) net> wrote:> > > I just want to take a minute to stress how> important> > it is to try to work> > with a doctor who knows your child when using> > alternative therapies.before I> > try something new with Danny, I always get input> > from his doctor. Also, as> > a rule of thumb, when you are trying something> new,> > it is usually best to> > only add one new thing at a time, that way, if> your> > child has a reaction> > (good or bad) you will have a better idea as to> what> > caused it.> > > > kathyR> > > > > > > > > >__________________________________________________________> Never miss a thing. Make your home page. > http://www./r/hs> > > > > > > (one and only wife to Fred; mom to Kari, Melody,> Faith, Heidi, Isaac, Josiah, , Alana, and> ! Yes, they're all ours!)> > Is. 40:31 "They that wait upon the Lord shall> renew their strength; they shall mount up with wings> as eagles, they shall run and not be weary, they> shall walk and not faint."> > > ---------------------------------> Be a better friend, newshound, and know-it-all with> Mobile. Try it now.__________________________________________________________Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1214 - Release Date: 1/8/2008 1:38 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Yep. What she said;-) KathyR From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Freddies Mommy Sent: Tuesday, January 08, 2008 2:07 PM Down Syndrome Treatment Subject: Alternative therapies I think you have to research for yourself the sense of using ANY product. I think you could go to six different doctors and get six different opinions. My son's pediatrician is Asian. When I told him of the Ginkgo he said rather matter of factly that the Chinese have used GB for thousands of years and that it isn't anything new on the market nor was the concept of using it to improve memory. He had no problem approving the use of the product (60 MG) in my 5/6 year old 33 pound son. It was the higher dosage that he was concerned about (blood thinning). He monitors Freddie's blood every six months and sees Freddie regularly for height/weight changes, language improvements, cognitive improvements and general health. Once again I think open communication with your child's providers and your own research are the best answer to the question of whether or not you should chose an alternative or co-therapy for your child. I wouldn't take the advice of a non-professional, manufacturer/professional promoter of a product or a parent who is suggesting it is the end all cure for anything. But I also do not ignore testimonials of parents whose children are similar to mine. I simply research it, consult ALL my son's providers and make a judgement based on what I feel is truly SAFE for my child. I also go into any therapy with the thought that it may not work and I give it a time line for results. If I see no improvements or negative side effects I call my son's pediatrician and stop the dosing immediately. It's all about common sense and communication. nna Mommy to Freddie 6 yrs Full Inclusion Kindy (Again-But it's a good thing!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 RICHARD wrote: .... Nobody will argue against the benefits of "good posture" and "fast walking/running," and probably not against corriander seeds (though I don't know what they are) for being good for one's general health. ... There is another problem with these otherwise good ideas, and if I seemed a little more outspoken about the last diet suggestion it is because of this. One of the problems we face is family, friends, coworkers and complete strangers, who tell us our problem is because we don't eat the right foods, or have the right mind set, and we don't try their treatment ideas that worked for uncle Jim or somebody on the Internet. Some of the old timers here will remember a member that tried to convince the rest of us that our problem was that we were not vegetarians. To many that seemed to be about the cruelest suggestion that could be made considering some members fear trying to eat a salad for very good reasons. Just imagine if their families believed that idea. That kind of thing has left a sensitivity for me about food related treatments in particular and about any treatment that could end up just being more noise for others to have to deal with. The answer of course is not to prevent discussions of these things, but I feel a need to question the reasons and suggested benefits. Questioning does not mean that the reasons and benefits are not real it just means evidence should be presented so people can make the most informed decisions for or against them. Also, if someone has to listen to a friend or family member tell them about some thing that will cure them it would be nice if they could have useful information to defend their own decision not to try it. .... The ironic, if not tragic thing about that is, that at the same time the patient might be doing some of the things mentioned above and think that they are feeling better because of it (or anything else they are doing), but instead are only feeling better from the esophagus getting stretched more. Also, we tend to go through times when our achalasia is better or worse than others. These times can last for days, weeks, or months. It would be hard to tell if an improvement is just a better time or better because of some treatment, unless the improvement is dramatic and lasting. Often the result is described as I seem to be a little better. Sometimes the benefits are describe as something like "helps a lot" yet the person still seems to have significant symptoms remaining. Please make an informed decision as to what you will eventually do to try to return your life to how it once was. And to do that one needs hear the skeptics side of issues. Then we will know why we believe what we do and be able to defend our decision to friends and family. Not they will necessarily be convinced by us, but at least our confidence to do as we choose will be better. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Hello, Thanks for discussing my points and for your advices, actually I do check my E regularly to see if its getting stretched or have any other problems, when I say I feel better, it means I can feel the food I ate 4 hrs ago getting into my stomach and it doesn't stay as long as it used to be like before, I don't think surgery is the best option to heal achalasia, I am tryig to heal it naturally, and I belive that the problem is either from poor muscles coordination or damaged nerve or both, maybe the nerve isn't working properly cuz of weak muscles, I would really like all achalasians to check if they have " normal spine " because I don't have normal spine, and poor posture is one of the main causes that my back doesn't look normal, when I sit in good posture I feel the food is getting into my stomach, i was even diagnosed with something that is called gastroparesis , that's when food get stuck into the stomach for so long and the cause of that disease is exactly the same for achalasia; damaged vagus nerve, this is another reason why I would never do the surgery, cuz it dosent solve the problem from its roots. > > The following post was the most recent one on the Achalasia alternative website. The author is very well-intended, and the purpose of my copying it is not to be critical of it, but to discuss a couple of points that have been raised on our site. > > " Re: summary of the alternative treatment for A > > I havent posted in a while, this is a great idea, here is my list > > 1. Good posture (lower/upper back exercises are important, as well as shoulder posture) > > 2. Corriander seeds helps alot to relaxe my E, and taking flax seed oil before each meal > > 3. Fast walkimg/running helps. > > Thats all i can think off, i am getting better by time, i just figured out that i have poor muscle coordination in my upper back, when i stretch my shoulder back when sitting for so long i feel some pain, i > think having a good back will help with A greatly " > > There is probably nothing wrong, on the surface, as to what is being said. Nobody will argue against the benefits of " good posture " and " fast walking/running, " and probably not against corriander seeds (though I don't know what they are) for being good for one's general health. It remains to be seen if this will help the achalasia over the long term, but hopefully it will. > > For newer people here on our site, often it is the case with achalasia that in earlier stages, food will get stuck in the E, forcing regurgitation and to often have sleepless nights as incessant coughing and regurgitating will occur thoughout the night. As the disease progresses, the esophagus gets stretched out (from the food that has been sitting there, pressuring the walls of the E outwards), but strangely the person might actually feel better for a while since there is now more room for food to remain there without having to regurgitate. The ironic, if not tragic thing about that is, that at the same time the patient might be doing some of the things mentioned above and think that they are feeling better because of it (or anything else they are doing), but instead are only feeling better from the esophagus getting stretched more. > > When I first became symptomatic of the disease (1982), before it was diagnosed, not knowing any better, I started an exercise program and my symptoms lessened. Being ignorant I thought that my problems had mostly gone away. Then I tried some chiropractic, and also felt better. The symptoms always returned. I was never actually getting better; I only thought I was. > > My point is, once you know you have achalasia, try whatever you are going to try, but for God sakes, make sure you have a qualified doctor to monitor your condition. While you may be feeling better, you might actually be getting worse than before. Please make an informed decision as to what you will eventually do to try to return your life to how it once was. > > > > > > > > > > > > > > ______________________________________________________________________ ______________ > Never miss a thing. Make your home page. > http://www./r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Ahmed, Glad to hear you've found some things to help you feel better! I'm also glad you are still having things monitored by a doctor, to make sure you're not doing permanent damage to your E (VERY important). Has your DES progressed into A? 's is still DES, as far as we know, but we've read it can develop into A. Good luck to you! in Michigan > > Hello, Thanks for discussing my points and for your advices, actually > I do check my E regularly to see if its getting stretched or have any > other problems, when I say I feel better, it means I can feel the > food I ate 4 hrs ago getting into my stomach and it doesn't stay as > long as it used to be like before, I don't think surgery is the best > option to heal achalasia, I am tryig to heal it naturally, and I > belive that the problem is either from poor muscles coordination or > damaged nerve or both, maybe the nerve isn't working properly cuz of > weak muscles, I would really like all achalasians to check if they > have " normal spine " because I don't have normal spine, and poor > posture is one of the main causes that my back doesn't look normal, > when I sit in good posture I feel the food is getting into my > stomach, i was even diagnosed with something that is called > gastroparesis , that's when food get stuck into the stomach for so > long and the cause of that disease is exactly the same for achalasia; > damaged vagus nerve, this is another reason why I would never do the > surgery, cuz it dosent solve the problem from its roots. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Hi- I read your post with a lot of interest. I have been involved in one-on-one assisted yoga for the past year and a half, and non-assisted yoga for many years. The results from the assisted version have been astounding to me regarding my posture. I would have to say that you are on the right track in thinking about posture. I also feel that for some of us having been overweight may have impacted the sphincter. I am sure there is much more to it than this, but I will attach a link to the yoga studio I belong to in the Seattle area. It contains a lot of valuable thoughts, images and dietary information. I hope it is of use. It is www.orangecarbon.net. Take care, Jan Re: Alternative therapies Hello, Thanks for discussing my points and for your advices, actually I do check my E regularly to see if its getting stretched or have any other problems, when I say I feel better, it means I can feel the food I ate 4 hrs ago getting into my stomach and it doesn't stay as long as it used to be like before, I don't think surgery is the best option to heal achalasia, I am tryig to heal it naturally, and I belive that the problem is either from poor muscles coordination or damaged nerve or both, maybe the nerve isn't working properly cuz of weak muscles, I would really like all achalasians to check if they have "normal spine" because I don't have normal spine, and poor posture is one of the main causes that my back doesn't look normal, when I sit in good posture I feel the food is getting into my stomach, i was even diagnosed with something that is called gastroparesis , that's when food get stuck into the stomach for so long and the cause of that disease is exactly the same for achalasia; damaged vagus nerve, this is another reason why I would never do the surgery, cuz it dosent solve the problem from its roots. >> The following post was the most recent one on the Achalasia alternative website. The author is very well-intended, and the purpose of my copying it is not to be critical of it, but to discuss a couple of points that have been raised on our site.> > "Re: summary of the alternative treatment for A > > I havent posted in a while, this is a great idea, here is my list> > 1. Good posture (lower/upper back exercises are important, as well as shoulder posture)> > 2. Corriander seeds helps alot to relaxe my E, and taking flax seed oil before each meal> > 3. Fast walkimg/running helps.> > Thats all i can think off, i am getting better by time, i just figured out that i have poor muscle coordination in my upper back, when i stretch my shoulder back when sitting for so long i feel some pain, i> think having a good back will help with A greatly"> > There is probably nothing wrong, on the surface, as to what is being said. Nobody will argue against the benefits of "good posture" and "fast walking/running, " and probably not against corriander seeds (though I don't know what they are) for being good for one's general health. It remains to be seen if this will help the achalasia over the long term, but hopefully it will.> > For newer people here on our site, often it is the case with achalasia that in earlier stages, food will get stuck in the E, forcing regurgitation and to often have sleepless nights as incessant coughing and regurgitating will occur thoughout the night. As the disease progresses, the esophagus gets stretched out (from the food that has been sitting there, pressuring the walls of the E outwards), but strangely the person might actually feel better for a while since there is now more room for food to remain there without having to regurgitate. The ironic, if not tragic thing about that is, that at the same time the patient might be doing some of the things mentioned above and think that they are feeling better because of it (or anything else they are doing), but instead are only feeling better from the esophagus getting stretched more.> > When I first became symptomatic of the disease (1982), before it was diagnosed, not knowing any better, I started an exercise program and my symptoms lessened. Being ignorant I thought that my problems had mostly gone away. Then I tried some chiropractic, and also felt better. The symptoms always returned. I was never actually getting better; I only thought I was. > > My point is, once you know you have achalasia, try whatever you are going to try, but for God sakes, make sure you have a qualified doctor to monitor your condition. While you may be feeling better, you might actually be getting worse than before. Please make an informed decision as to what you will eventually do to try to return your life to how it once was.> > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _____________ __> Never miss a thing. Make your home page. > http://www.. com/r/hs> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 can you post more information about the corriander seeds? how often do you take them? do you eat them whole? what do they do for the esophagus? thanks!! > > > > The following post was the most recent one on the Achalasia > alternative website. The author is very well-intended, and the > purpose of my copying it is not to be critical of it, but to discuss > a couple of points that have been raised on our site. > > > > " Re: summary of the alternative treatment for A > > > > I havent posted in a while, this is a great idea, here is my list > > > > 1. Good posture (lower/upper back exercises are important, as well > as shoulder posture) > > > > 2. Corriander seeds helps alot to relaxe my E, and taking flax seed > oil before each meal > > > > 3. Fast walkimg/running helps. > > > > Thats all i can think off, i am getting better by time, i just > figured out that i have poor muscle coordination in my upper back, > when i stretch my shoulder back when sitting for so long i feel some > pain, i > > think having a good back will help with A greatly " > > > > There is probably nothing wrong, on the surface, as to what is > being said. Nobody will argue against the benefits of " good posture " > and " fast walking/running, " and probably not against corriander seeds > (though I don't know what they are) for being good for one's general > health. It remains to be seen if this will help the achalasia over > the long term, but hopefully it will. > > > > For newer people here on our site, often it is the case with > achalasia that in earlier stages, food will get stuck in the E, > forcing regurgitation and to often have sleepless nights as incessant > coughing and regurgitating will occur thoughout the night. As the > disease progresses, the esophagus gets stretched out (from the food > that has been sitting there, pressuring the walls of the E outwards), > but strangely the person might actually feel better for a while since > there is now more room for food to remain there without having to > regurgitate. The ironic, if not tragic thing about that is, that at > the same time the patient might be doing some of the things mentioned > above and think that they are feeling better because of it (or > anything else they are doing), but instead are only feeling better > from the esophagus getting stretched more. > > > > When I first became symptomatic of the disease (1982), before it > was diagnosed, not knowing any better, I started an exercise program > and my symptoms lessened. Being ignorant I thought that my problems > had mostly gone away. Then I tried some chiropractic, and also felt > better. The symptoms always returned. I was never actually getting > better; I only thought I was. > > > > My point is, once you know you have achalasia, try whatever you are > going to try, but for God sakes, make sure you have a qualified > doctor to monitor your condition. While you may be feeling better, > you might actually be getting worse than before. Please make an > informed decision as to what you will eventually do to try to return > your life to how it once was. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > ____________ __ > > Never miss a thing. Make your home page. > > http://www.. com/r/hs > > > > > > > > ______________________________________________________________________ ______________ > Never miss a thing. Make your home page. > http://www./r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I am curios. I am not against trying acupuncture. Or pressure point therapy, which probably is similar (but since I do not know, I do not want to open a whirlwind of discussions like yesterday). But since it is a non invasive form of therapy, how would you know a good one, from a " quack " ? (oh gosh....I wrote that before I thought of Mr. " aqua_doc " ). I am sure there are very good chiropractors out there too. I am not willing to dismiss the whole " lot " of them. But I think most people, who takes one look of somebody's x-rays... sees allot of hardware and screws, would have to be an idiot, to try and " adjust " your bones??? Or suggest it??? Just plain stupid. But I have had a lot of luck with OTC stuff like glucosamine-chondroitin, MSM, yucca, stuff like that. Don't take any of it until you ask your pharmacist, you never know what might interfere with your meds you are taking. Actually, to be totally honest with you all, probably the best thing for me is if I could afford A HOT TUB!!! or had a place to put it in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I think the best way to find someone good is to ask around, by word of mouth. You may want to try 2 or 3 different people. Some people specialize in different areas, too. alternative therapies >I am curios. I am not against trying acupuncture. Or pressure point >therapy, which probably is similar (but since I do not know, I do not want >to open a whirlwind of discussions like yesterday). But since it is a non >invasive form of therapy, how would you know a good one, from a " quack " ? >(oh gosh....I wrote that before I thought of Mr. " aqua_doc " ). > > I am sure there are very good chiropractors out there too. I am not > willing to dismiss the whole " lot " of them. But I think most people, who > takes one look of somebody's x-rays... sees allot of hardware and screws, > would have to be an idiot, to try and " adjust " your bones??? Or suggest > it??? Just plain stupid. > > But I have had a lot of luck with OTC stuff like glucosamine-chondroitin, > MSM, yucca, stuff like that. Don't take any of it until you ask your > pharmacist, you never know what might interfere with your meds you are > taking. > > Actually, to be totally honest with you all, probably the best thing for > me is if I could afford A HOT TUB!!! or had a place to put it > > in NH > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I think the best way to find someone good is to ask around, by word of mouth. You may want to try 2 or 3 different people. Some people specialize in different areas, too. alternative therapies >I am curios. I am not against trying acupuncture. Or pressure point >therapy, which probably is similar (but since I do not know, I do not want >to open a whirlwind of discussions like yesterday). But since it is a non >invasive form of therapy, how would you know a good one, from a " quack " ? >(oh gosh....I wrote that before I thought of Mr. " aqua_doc " ). > > I am sure there are very good chiropractors out there too. I am not > willing to dismiss the whole " lot " of them. But I think most people, who > takes one look of somebody's x-rays... sees allot of hardware and screws, > would have to be an idiot, to try and " adjust " your bones??? Or suggest > it??? Just plain stupid. > > But I have had a lot of luck with OTC stuff like glucosamine-chondroitin, > MSM, yucca, stuff like that. Don't take any of it until you ask your > pharmacist, you never know what might interfere with your meds you are > taking. > > Actually, to be totally honest with you all, probably the best thing for > me is if I could afford A HOT TUB!!! or had a place to put it > > in NH > > > Quote Link to comment Share on other sites More sharing options...
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