question for group

[Guest guest]

Hi all. I have a question for the group. First of all I would like to say there

are two " s " on this group who do post comments. I like the other 's

posts too, just not many people spell our name with a " C " . Just wanted to say

that so not have anybody confused. I am the one in NH freezing to death here in

the winter.... hehehe... maybe the other " one " is someplace warm???? Hope so for

her sake.... hehehe

Anyway, have a question for group. How has your concept of " pain " changed. I am

having a severe pain event right now as I would call it. Have had a lot of

stress this week. Can't sleep. Having severe spasms in my left leg... they

happen every 13 seconds on the dot... but the pain is on a different level. I

can not say whether it is better or worse... It HURTS in a different way now. I

dunno... had a horse kick me in the leg the other day, and it did not really

hurt that much at all! So it makes me wonder, what level of pain have I gotten

used too?? I should note, I do take some pain meds, very low dose, so they tell

me.

My question is... how has your dealing with the pain changed? Now my " personal "

condition is 19 years old, Transverse Myelitis, which turns your nerves into

haywire, you have a 1/ in 3 million chance of getting this stupid thing. (could

I win the lottery??? NOOOOOO). But I am now 50. I dunno. I need to learn what I

can do to help.... keep my body going???... I guess??? The nurses I have all

talked too, they are THE BEST. THEY SHOULD BE GETTING THE BIG BUCKS!!!

sshhheeshhh...Give credit where credit is due. THEY say I need a new doc.

Anyway, have looked online. I need a good nuroerologist. Gonna ask my old

retired family Doc tomorrow. Otherwise, anybody have any ideas or experiences to

tell me of trying to find a GOOD doc????

Well, just my ramblings for today. Hope all had a good day. Sleep well tonight

and know, we who have this weird pain and spine " stuff " know how good a feeling

that can be. To sleep.

in NH