Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Hey Judy, I tried that whole watching what I ate thing..but I saw no change in how I felt. I lost about twenty pounds eating healthy (and I was already to skinny)..so I went back to eating my normal cruddy ways.. but hey that's the teenage life for ya. But my grandmother who has RA did something similar to what your talking about and she completely went into remission..which is good because she had an allergic reaction to just about every NSAID there is. Summer has been ok. I'm currently on meds that just don't seem to be working..but I'll be changing meds on the 25th of July..so I only have a few more weeks to wait. But I'm trying to make the most of my summer despite the flare. How is Dakota's summer going..despite the pain I mean? Is it warm down in so cal?? Northern Cal has had quite the heat wave..but it's only seem to make the flare more annoying. I thing RA and JRA is annoying at any age.. Young and old alike..just no fun.. It's not a very fair disease.. (poly JRA 18) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Hi... Yes ...you are right in the spelling of Petechia....good to know someone can spell here...since I can't...lol... I was diagnosed when I was in my 40's...my moms just being diagnosed at 83..very weird....my mom also has thyroid...as do I...and I have endometreosis... I haven't had my playlets check in about 6 months...and they were about 100 the last time checked.... oh well... take care Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Hi.... I don't have AIH...Tyler does...along with other auto-immune diseases...some of them being...PSC another liver disease...Rhuematoid arthritis..Vasculitis..Crohns...the list goes on.... I have ITP...another auto-immune disease...causing low playlets...although right now I am doing fine..and playlets are pretty good.... I too have problems with downloading pictures at times...some come thru fine...others don't ...sorry I don't have any ideas for you...not that smart when it comes to the computers.... We live in right now..for the last 17 yrs...before that we lived in Toms River and before that in Lavalette... Bob plays in the Rag Time band alot...summertime is very busy...he plays every thursday in Seaside Park...and every friday at the Avon Pavilion...then lots of other places the other nights.... Bob and I both are from Boonton...thats north jersey...I lived other places before that but was there from 6th grade until we got married...that is when we moved to central jersey... oh well... talk soon Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Sorry I sent a reply to you but forgot to change the subject to your name..so it still have my name in it...hope you saw it... my mine is not working right ...too many things going on... maybe I should just go to bed...but afraid I won't be able to get to sleep...I hate that.... Luanne Ty's mom.. next time I write hopefully I will be making more sense... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 completely understood this is a person who needs her batteries recharged and feels like she is living under the sea with no daylight in sight the WV hillbilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Hi , The way you're able to look at the brighter side of situations is so remarkable. Spending Christmas Eve in a hospital bed isn't quite the cheery picture we'd like to conjure but that's true: a great way to begin the new year ... with one less thing to worry about. You are such an incredibly strong person! Know that you'll be in our thoughts, as the surgery date nears. I hope that Santa really surprises you this year. You deserve it! Aloha, Georgina hburger64 wrote: > > Im so happy to read that the tests all went well and you are able to > have the full surgery. The timing kinda suxs, but at least you can > take it easy and let everyone pamper you. I wish you well and will > keep you close in my prayers for a sucessful surgery and so long > awaited relief from the reflux.. > > Also, Let me be the 1st to sing HAPPY BIRTHDAY TO YOU!!!!!!!!!!! )) > > Have a super day sweetie!!! > > Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 , Sharon posted about a certain model phone she likes. It comes with one handset, but one can buy additional ones. And these handsets can be used as intercom also/ *---* *---* *---* *---* *---* Experience is something you don't get until just after you need it. -- & Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup rlclark77@... http://home.comcast.net/~rlclark77/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 , Have you heard of the Nokia cell phone that takes pictures and tells you what the color is? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 , Yes I have heard of that brand. But it requires *buying* the speech software to do that. Some say the software works well. Thing is, you can buy one of these phones for under $50 or even free and then to spend another $100 or so for software? And that software is going to eat up the phone's resources. *---* *---* *---* *---* *---* I started out with nothing and still have most of it left. & Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup rlclark77@... http://home.comcast.net/~rlclark77/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 , Not to mention what happens if your cell phone provider changes or stops supporting Talx (or similar) software on a given cell phone. If either of those things happen, you can forget about using that phone. A friend of mine has a " talking " cell phone. 9 times out of 10 she can't get strong enough reception to make outgoing phone calls. While I'd love to have a phone that talks, I'd rather have a phone that does what I want it to -- especially if I'm going to pay an extra $100 for it to talk back to me. Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years " Surviving a loss and letting go is only half of the story. The other half is the secret belief that we will find, in one form or another, what we have lost. And it is that potential, shimmery as a star on a clear night, that helps us survive. " -- Chambers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 , Right. Verizon gets the vote for best reception where others drop connections. I think the phone I want will do enough talking and even if not, I wont be out the cost of the software. May get one when I move, havent decided yet. If you get Verizon, we can talk ALL weekend free. Oooooops I may regret that. LOL *---* *---* *---* *---* *---* Don't be irreplaceable; if you can't be replaced, you can't be promoted. & Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup rlclark77@... http://home.comcast.net/~rlclark77/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 , I'm sorry, I didn't hear you...could you repeat that? LOL! Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years " Surviving a loss and letting go is only half of the story. The other half is the secret belief that we will find, in one form or another, what we have lost. And it is that potential, shimmery as a star on a clear night, that helps us survive. " -- Chambers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 , Sorry I dont remember what all I said. Probably best too if it was incriminating. LOL *---* *---* *---* *---* *---* A synonym is a word you use if you can't spell the other one. & Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup rlclark77@... http://home.comcast.net/~rlclark77/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 , Selective hearing and selective memory. Hmmmm. What other selective tendencies do you have? LOL! Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years " Surviving a loss and letting go is only half of the story. The other half is the secret belief that we will find, in one form or another, what we have lost. And it is that potential, shimmery as a star on a clear night, that helps us survive. " -- Chambers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Helen, You can't believe the list of activities she participates in. She figure skates, plays soccer, she is in dancing, and in her down time it's girl scouts and church choir. And that's just one kid! You know the routine! and Allie (8poly) ________________________________ From: hburger64 [mailto:hburger64@...] Sent: Wednesday, March 30, 2005 2:01 PM Subject: ... Please tell Allie that Nick and I are very proud of her for the award she got last night. She deserved it and then some!!!!!!! Shes a great kid with a GREAT attitude. I think as parents a lot of learn an awful lot about spirit and determination from watching our kids battle this. Does Allie figure stake as well???? hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 You are very sweet. I am trying hard and have a ways to go. This has been a lifetime struggle for me and I feel like I am finally going to get close to winning the battle. Thanks --- heleny_t <heleny_t@...> wrote: --------------------------------- Hey , i saw ur pics and ur right we can really see a difference. its very motivating to see the positive change. keep it up ..u look great! heleny --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 No, I am having a total. I have decided on the spinal. (Oh Lord be with me) I spoke with my favorite Dr at the hospital today. This is the surgeon that did my gastric bypass and other surgeries needed as a result of that one. Anyway, he said that he will come into the OR to be with me when they administer the spinal; if for some reason he can't then his nurse will. So I do feel better about that. It's not that I am afraid of needles, I'm not at all. Just of those being stuck into my back. I am VERY healthy now since losing all of that weight. I had been diabetic on three insulin shots a day, blood sugars in the 300 range. I am no longer diabetic, in fact I am hypoglycemic now. No longer on two different kinds of blood pressure meds. So you see, it's not my health that I am worried about, it is just the spinal thing. Looking forward to being able to walk without the grinding pain. learning2lean@... How Do You Make God Laugh?Tell Him YOUR plans for the day. ... , I had my TKR done both ways and I prefer the spinal. Just make sure that the have you sit up and lean forward on a pillow. I had one for a c-section many years ago and was laying down. OUCH!! Sitting up hardly hurts at all. I had my Totals Christmas time and in Feb. so I am finally getting to where the pain is diminishing. Some people are lucky and don't have much pain. I had alot because I had multiple surgeries in a short amount of time. 3 OPtscopics, 2 partials and my Totals in 2 1/2 years...You said a Total, right?? I recommend no-one getting a partial unless you are rail thin, petite and around 80 and are very inactive. Most OS's are not doing them at all now. You will be fine. I am a big girl too. Tell them the truth about any medical problems and your weight (it determines how much ans. you recieve).... My thoughts will be with you. Blessings! Salem Gutshall <learning2lean@...> wrote: Good Morning all; I am having a left TKR on Thursday morning. I have lots of questions and of course anxieties so any tips, info encouragement from those that have been through this would be most appreciated. Due to being morbidly obese for many years my knee cap is in very bad shape. I have full thickness chondral loss on the lateral and medial side of my patella which is also subluxated laterally. The MRI also said Chondromalacia patella, very shallow trochlear groove etc. My knee gives out on me mostly when I am going down stairs consequently I have fallen down them MANY times. OUCH! My question is regarding the anesthesia. The Dr prefers spinal with sedation, which to be honest I am very scared of someone sticking a needle in my back. I can see the benefits of it though with less bleeding and better pain control. They also inject duramorph into the spinal canal, then a femoral and sciatic nerve block in recovery. I have had MANY surgeries in the past with general anesthesia with no problems what-so-ever. This is where my questions come in. Would you all mind letting me know your experiences with this? Were you sedated prior to the spinal being inserted? P.S. I have lost 240 pounds and am no longer obese, so this is going to be great as far as PT and how long my new knee will last. Thanks so much everyone! learning2lean@... How Do You Make God Laugh?Tell Him YOUR plans for the day. Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Hey , Thanks for remembering about my surgery. The recovery was great. Glad to have that done, and over with. My husband does want to get on some form of a program. It is frustrating. I will hook him up, doing the BFL food. Make his lunch, and make sure he is in his calorie range. Then I find him, sneaking food from my kids plates..(when they are done, of course). Getting a bowl of cereal..Sugar..cereal. Captain Crunch, or honey Comb. So yes, he wants to do this, but he is not taking it seriously. As for the workouts, it ain't gonna happen for awhile. He is so swamped with work, and church obligations that he truly would have to get up at 4:00, and go to bed at midnight. He's not ready for that commitment yet. I know there are some women on this site, that commit to the program with all their obligations of being a mom, and getting four hrs. of sleep, and sticking with the program. But, I think that he is not ready to do it yet. He does however have about 20 mins. that I feel he could use for workout time....but, he is not willing to give it up. I cannot say, I don't blame him. I cannot imagine being that busy, and trying to stick to a program. Although it might make the stress better...but, try telling that to a man..come on, you know how well they listen. So, here I am plugging along. He will soon come around, his obligations will be letting up come the holiday's so we will see how much he wants it then. What happened with your DH....you said he just gave up...what happen? Oh, and how is the religion thing coming along? I think you were saying something about not wanted to commit to his religion or something. Is that still a big debate? ~ Lammail <lammail2003@...> wrote: Hi , Just wanted to say Hi and let you know it was great to see you have a speedy recovery after surgery and that you are back full force with your goals! So did the husband ever come around to the program? Mine bit the dust...LOL **~~W~~** Work hard ~~Play harder --------------------------------- for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 :I just wanted to thank you for being so available on the list. It seems like a lot of the 'regulars', including myself, have been off list lately. I note how welcoming you have been to all the newbies and just wanted to thank you for keeping our spirit of friendliness going!! How are things with going? Is the office open yet? I know its been a tough transition for you guys, but I know that you went to AZ after much prayerful consideration, and that always makes a difference in choosing the right path. Take care, and Happy Thanksgiving! and Rob 16 Spondy On Sat, 19 Nov 2005 23:59:18 -0000 "sonia1md" <sonia1md@...> writes: Thanks Georgina for taking the time to post all of the new research..I like to see what the develpments are as well as the achievements that have been made by many kids that suffer from JRA.Praying that Josh's taper continues to go well...Did you get the labs back yet? Hopefully, this time will be a success! (aundrea 10 systmeic)>> Hi Everybody,> > As you can probably tell from all of my recent postings, I've been keeping busy for the last few days gathering summaries of the research data that was presented at this past weeks' American College of Rheumatology Conference in California. This happens just once a year. Everybody's different. Some of us really like this stuff. Others couldn't care less. Either way, most of the pediatric-specific studies have now been posted. (Is that a sigh of relief I just heard?)> > Last week, Josh spoke at an Arthritis Foundation Fundraiser here on Maui. A whole new group of people now realize that kids get arthritis, too. And ... yesterday ... he finally lowered his Prednisone to just 3mgs a day. Overall, he's been feeling so good. Doing great. We're just hoping that all continues to go well on the lowered dose. This time around we know not to change too much too soon, no matter how well he appears to be doing at the moment - so we're only adjusting the Prednisone. Last time we got down to this level, he was on all the same meds he's taking now - except the Enbrel. Then we started decreasing this and that and on came a flare. This time, the timing is right. I'll be sure to update, if there's any news.> > Well, we're on our way out. Meeting some friends at the pool in Kihei. I hope all of you have a very nice weekend : )> > Aloha,> Georgina> > .> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 HI ; Welcome -- it was 70+ degree her in the sunny bay area of California!!!! What made you move to Minneapolis???? Good luck at your interrogation. ~guin Re: Newbe here Hi , welcome! I myself am still a newbie. I had my ICD implanted 02/20/06 at the age of 24! You will find all kinds of nice people on the site. I don't post too often but I read every post that comes my way. I was diagnosed with Prolonged QT Syndrome which they found after I passed out twice. It is different having this device but I have grown pretty accustomed to it. Not driving for 2 months was pretty bad. I don't even know what kind of device I have, how did you find out? I go for my interrogation next Tuesday and I pretty excited about that! Best of luck to you and be patient with all of the adjustments if you have any at all. As I said before, everyone here is very welcoming and kind, not to mention good humored! in Minneapolis, MN (Formerly of Sacramento, CA) Why I moved to the snow and the arctic cold temps, I have no idea! <garymtnhomeqwest (DOT) net> wrote: Hi All,I just had my ICD implanted Nov. 8th so I know almost nothing aboutliving with a ICD. I'll be anxious to hear from you "Old Timers" thathave been carting one around for a while. Right now I'm still in the"recovery" stage and I'm bored out of my mind stuck here in the house.I'm in the process of writing the story of my "incident" that led up togetting the ICD implanted. It's much like one of the old Keystome Copsmovies. Once I finish it I'll post it and give you a laugh or two. Ihave the new Medtronic C154DwK Concerto for the techies here. I'll morethan likely just lurk for a while but would like to hear from any of youlocated in Arizona. Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi Guin- Oh nice weather, lucky you! When I went to work this morning it was 0 degrees! I moved to MN when I was 22, so almost 3 years ago and I did it for a change of scenery. My entire family is still in Sacramento but I figured you are only young once and I wanted to experience different places, things and lifestyles while I still could! I was lucky enough to meet a really great guy who took care of me through my surgery and all of the other heart issues since my family wasn't here with me. I will be going back to CA for Christmas so hopefully I can catch a glimpse of that nice weather! Oh, and who would have thought that I moved to a city where the headquarter's of Medtronic is located-maybe it was a sign! Take care! Guin Van Dyke <guin@...> wrote: HI ; Welcome -- it was 70+ degree her in the sunny bay area of California!!!! What made you move to Minneapolis???? Good luck at your interrogation. ~guin ----- Original Message ----- From: Crone Sent: Tuesday, December 05, 2006 3:48 PM Subject: Re: Newbe here Hi , welcome! I myself am still a newbie. I had my ICD implanted 02/20/06 at the age of 24! You will find all kinds of nice people on the site. I don't post too often but I read every post that comes my way. I was diagnosed with Prolonged QT Syndrome which they found after I passed out twice. It is different having this device but I have grown pretty accustomed to it. Not driving for 2 months was pretty bad. I don't even know what kind of device I have, how did you find out? I go for my interrogation next Tuesday and I pretty excited about that! Best of luck to you and be patient with all of the adjustments if you have any at all. As I said before, everyone here is very welcoming and kind, not to mention good humored! in Minneapolis, MN (Formerly of Sacramento, CA) Why I moved to the snow and the arctic cold temps, I have no idea! <garymtnhomeqwest (DOT) net> wrote: Hi All,I just had my ICD implanted Nov. 8th so I know almost nothing aboutliving with a ICD. I'll be anxious to hear from you "Old Timers" thathave been carting one around for a while. Right now I'm still in the"recovery" stage and I'm bored out of my mind stuck here in the house.I'm in the process of writing the story of my "incident" that led up togetting the ICD implanted. It's much like one of the old Keystome Copsmovies. Once I finish it I'll post it and give you a laugh or two. Ihave the new Medtronic C154DwK Concerto for the techies here. I'll morethan likely just lurk for a while but would like to hear from any of youlocated in Arizona. Access over 1 million songs - Music Unlimited. Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 The person who posted this is actually a "member" of this board. I honestly don't think she was doing this to make people angry, I imagine she just saw this as an opportunity to share with the bandsters on this group. I don't like advertising at all but I think she only did it because she posts here just like the rest of us. JenniBipley <mybipley@...> wrote: ... Thanks. I think maybe the reason I was so annoyed with that email was because all the fat years of my life people have been trying to sell me their various snake oils. Now that we finally have REAL snake oil that actually WORKS, I am not the least bit interested in the versions people seem to be selling anymore. Unless Dr. A or Nina tell me to pull out my checkbook, it ain't happening. I love this list because all the garbage is filtered out. I don't have to read insults, I don't have to read sales pitches, nada. Just stuff that matters. Mods do a FANTASTIC job here!NANCY <nancy8887 > wrote: //I didn't realize this group was for these kinds of posts.//It is not.Thank you for pointing it out.PLease do not post advertising on this site.7/18/05280/180/140 Any questions? Get answers on any topic at Answers. Try it now. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Hi ...and welcome, I and I'm sure many other would suggest you first take a look at this link if you're considering the MP (which by the way I don't think is allowed in this group, but not sure...) Here's the link however: http://lassesen.com/cfids/MarshallProtocolRisks.htm d. > > Hi everyone! > > My name is and I am a new member of the group. I am in a middle > of a move, so I haven't been able to post, but I wanted to introduce > myself. > > I am in my early 40s and have been dealing with fibromyalgia since > 2001. I had a good career before then that came to a screeching halt. > I am married and have a standard poodle that works as my service dog. > I am training his replacement at the moment who is also a standard > poodle. I plan to retire my first service dog in a few years (and he > will remain a member of our family). > > Until a few years ago, I was basically bedridden with my symptoms. > Through the help of my doctor, Dr. Berndston of Chicago,, and > the works of Dr. Lowe (www.drlowe.com) we discovered that I was > thyroid resistant. I now take Cytomel (T3 thyroid hormone) which has > been helping me. > > The next step I am attempting is the Marshall Protocol > (www.marshallprotocol.com). I haven't started it yet, but I'm hoping > it will help me improve. > > While I might not be posting right away, I hope I get to know the > members of the group and become a participating member here. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 , I did the Marshall Protocol and I would be happy to share my experience with you. Please write me offlist at retractap@... Re: ... Hi ...and welcome, I and I'm sure many other would suggest you first take a look at this link if you're considering the MP (which by the way I don't think is allowed in this group, but not sure...) Here's the link however: http://lassesen.com/cfids/MarshallProtocolRisks.htm d. > > Hi everyone! > > My name is and I am a new member of the group. I am in a middle > of a move, so I haven't been able to post, but I wanted to introduce > myself. > > I am in my early 40s and have been dealing with fibromyalgia since > 2001. I had a good career before then that came to a screeching halt. > I am married and have a standard poodle that works as my service dog. > I am training his replacement at the moment who is also a standard > poodle. I plan to retire my first service dog in a few years (and he > will remain a member of our family). > > Until a few years ago, I was basically bedridden with my symptoms. > Through the help of my doctor, Dr. Berndston of Chicago,, and > the works of Dr. Lowe (www.drlowe.com) we discovered that I was > thyroid resistant. I now take Cytomel (T3 thyroid hormone) which has > been helping me. > > The next step I am attempting is the Marshall Protocol > (www.marshallprotocol.com). I haven't started it yet, but I'm hoping > it will help me improve. > > While I might not be posting right away, I hope I get to know the > members of the group and become a participating member here. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 I do have an attorney and feel that it has been a benefit. We'll see if it helps. Quote Link to comment Share on other sites More sharing options...
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