Guest guest Posted June 18, 2003 Report Share Posted June 18, 2003 Having had 3 mylegrams in my spinal experience it is so important that you have it done not only by a great radiologist but that they have tha best equipment. Without that the pictures are cloudy, so I beg you to go to a University setting where they have the latest and greatest. Also Emg results vary so greatly depending on the competency of the Doc and the equipment used. If after myelogram you are getting varying opinions you can suggest having a discogram which is a very very painful experience but they might be able to identify your exact problem. Good Luck to YOU JI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2003 Report Share Posted June 18, 2003 Yeah I was totally confused yesterday. After i saw the Neuro on monday he scheduled me for a myelogram on June 26th. So yesterday at 445pm I get a call from the hospital saying that I needed to be at the hospital no later then 6am and to bring insurance card,id and $$$$. I told them that the doctor had scheduled me for the 26th and they said that maybe the doctor moved the appt up. Okay fine...I would love to get it over and done with. So I called my Neuro but the office was already closed and I got the answering service and told her what was going on and she said she would page him for me....hours and hours went by and I still hadn't heard back. So i called Connie as i was freaking out not knowing what to do.....if it had been changed and i didn't go then i'd be screwed. So i decided to just go ahead and go.....AND SOMEONE their at the hospital screwed up. After i got home this morning i did call my Neuro office and told them what had happened and they were very apologetic and she didn't know what happened about the doctor not returning my page as he was at a different hospital doing surgery,but she is going to get back with me on that....WHAT A MESS! Damn and I was so so close of getting a shot of valium!!!! Should of made them give it to me anyhow LOL Re: Myelogram Please accept my apology for the post I just sent, I meant to send it to and via private emails but after what had said I was Very upset (could you tell? lol) and goofed on who I sent it to. I am so sorry, I had talked to last night, she had called telling me about the mix up yesterday and when I read that this morning I was mad, can't believe they not only screwed up yesterday but then today what she went through... ugh you may want to fill them in on the call last night and the page sent to your doc so they know what I'm talking about. Again my apologies for the words, no excuse but I have not had my meds yet today and should have double checked the addy I was sending it to, I thought had emailed me personally and went to hit " To " to send a copy to also and hit send by accident, wasnt paying attention. Connie I will not swear in posts again I will double check my addresses I will not swear in posts again I will double check my addresses I will not swear in posts again I will double check my addresses I will not swear in posts again I will double check my addresses Well.. I will not swear again in posts unless I use #@)$(*#$ -- __________________________________________________________ Sign-up for your own FREE Personalized E-mail at Mail.com http://www.mail.com/?sr=signup CareerBuilder.com has over 400,000 jobs. Be smarter about your job search http://corp.mail.com/careers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Horrible HORRIBLE pain, wasn't it??? Did ya manage to finish the entire test? I couldn't and had to have a MRI. ******* > > > I had a mylegram today and I don't think I EVER want another one of these. I see the neurosurgeon on Wed. I already have fusion of c4-5 and now they are looking at fusion of c2-4. Will this keep me from turning my neck at all? > _________________________________________________________________ > Windows Live™ Hotmail®:…more than just e-mail. > http://windowslive.com/explore? ocid=TXT_TAGLM_WL_t2_hm_justgotbetter_explore_012009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Hi Cindi, Unfortunately, you cannot be put to sleep for the test. It may be possible to get some light sedation, but I'm not positive. The test involves the doc/ radiologist removing a small amount of cerebrospinal fluid from your spine and replacing the exact amount with a contrast (dye) that is radiopaque, which allows them to see it with flouroscopy which is a live xray, not just snapshots like standard xray. Once the contrast is injected they look at your spine with flouro and can see much more clearly the spine anatomy and it will give them a better idea of what is truly causing your symptoms. the risks include infection, which is a very low risk. More serious risks include a spinal headache and damage to the spinal cord. You will have to lie flat for about 24 hours after the procedure so your dura (the sac that surrounds your spinal cord and holds in the CSF) can heal up the hole that was created by the needle. If the hole does not seal up on it's own, you have a loss of CSF which gives you a muther trucker of a spinal headache. Not fun. --- From: Cindi <jerseerose@...> Subject: Myelogram spinal problems Date: Monday, March 2, 2009, 7:45 PM Hi, I'm new to this group and wanted to see if anyone has ever had a Myelogram of the lumbar spine. I originally went to a Neurosurgeon because I have been having leg numbness, and hip pain which is really painful at night. I was diagnosed 10 yrs. ago with 2 degenerated discs. The pain from it has been off and on for years but now that I have new symptoms, I decided to go see a Dr. again. The new MRI states that I have narrowing of the spine, bone spurs and of course degenerative disc disease with fluid leaking. I also have very painful neck and shoulder which I have had for years but I never checked into, when I told the Neuro. this, he immediately ordered an MRI of the Cervical area. I guess with a Myelogram you have to be careful of no problems with the spinal cord in the neck. I just got a message back from the Dr.'s of saying that I have arthritis in my neck at 3 different levels, and that I will also need a myelogram for that also. Could anyone tell me what this test is like? Can I be put to sleep for it if I press the issue? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 > > Hi Cindi, > > Unfortunately, you cannot be put to sleep for the test. It may be possible to get some light sedation, but I'm not positive. The test involves the doc/ radiologist removing a small amount of cerebrospinal fluid from your spine and replacing the exact amount with a contrast (dye) that is radiopaque, which allows them to see it with flouroscopy which is a live xray, not just snapshots like standard xray. Once the contrast is injected they look at your spine with flouro and can see much more clearly the spine anatomy and it will give them a better idea of what is truly causing your symptoms. > > the risks include infection, which is a very low risk. More serious risks include a spinal headache and damage to the spinal cord. You will have to lie flat for about 24 hours after the procedure so your dura (the sac that surrounds your spinal cord and holds in the CSF) can heal up the hole that was created by the needle. If the hole does not seal up on it's own, you have a loss of CSF which gives you a muther trucker of a spinal headache. Not fun. > > --- Whew! Glad I never had to have one. I had Radio Frequency Lesioning on both sides of my neck and it got rid of about 90% of the pain. oops.... I had fusions C-4 to 6 in 1999 and 6 to 7 in 06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 I have had good relief from RFL, but sadly it doesn't last long enough for me to be a viable source of pain relief. I only get about 2 -3 weeks relief and you can do it no sooner than 3 months apart on the same side. --- From: uca79iii <uca79iii@...> Subject: Re: Myelogram spinal problems Date: Monday, March 2, 2009, 8:23 PM > > Hi Cindi, > > Unfortunately, you cannot be put to sleep for the test. It may be possible to get some light sedation, but I'm not positive. The test involves the doc/ radiologist removing a small amount of cerebrospinal fluid from your spine and replacing the exact amount with a contrast (dye) that is radiopaque, which allows them to see it with flouroscopy which is a live xray, not just snapshots like standard xray. Once the contrast is injected they look at your spine with flouro and can see much more clearly the spine anatomy and it will give them a better idea of what is truly causing your symptoms. > > the risks include infection, which is a very low risk. More serious risks include a spinal headache and damage to the spinal cord. You will have to lie flat for about 24 hours after the procedure so your dura (the sac that surrounds your spinal cord and holds in the CSF) can heal up the hole that was created by the needle. If the hole does not seal up on it's own, you have a loss of CSF which gives you a muther trucker of a spinal headache. Not fun. > > --- Whew! Glad I never had to have one. I had Radio Frequency Lesioning on both sides of my neck and it got rid of about 90% of the pain. oops.... I had fusions C-4 to 6 in 1999 and 6 to 7 in 06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 HI CIndi I just had a myelogram about a month ago. I had never had one before. I don't think I would ever have another.. The doc had a hard time getting the needle in the wrong place. So when he finally got it in the right place it sends needle feeling like stuff and I thought we were done then he injected this med think it was iodine or something that was real hot and felt like I was wetting myself. Then I went into cat scan and they did a scan. Then I had to lay in recovery for at least 2 hours.. Hope I didn't freak you out but I wish I had known before I went in.. Good luck. I just had my 2nd fusion surgery. It will be 3 weeks this coming Thursday.. Good luck spinal problems From: pbelluk73@... Date: Tue, 3 Mar 2009 08:19:34 +0000 Subject: Re: Myelogram Cindi, I had one of these done wow must be over 20 years ago. I didn't think they still did them! Anyways, from what I remember, the only part that was hurting was the needle coming out. I felt a lot of pushing and pulling it was a funny weird feeling. You have to lay flat for the rest of the day due to the spinal fluid travelling up your spine, otherwise you'll get a nasty headache. I dont know if they would sedate you or not, I guess you can make this a request. Hope you get on ok! > > From: Cindi <jerseerose@...> > Subject: Myelogram > spinal problems > Date: Monday, March 2, 2009, 6:45 PM > > > > > > > Hi, I'm new to this group and wanted to see if anyone has ever had a > Myelogram of the lumbar spine. I originally went to a Neurosurgeon > because I have been having leg numbness, and hip pain which is really > painful at night. I was diagnosed 10 yrs. ago with 2 degenerated > discs. The pain from it has been off and on for years but now that I > have new symptoms, I decided to go see a Dr. again. The new MRI > states that I have narrowing of the spine, bone spurs and of course > degenerative disc disease with fluid leaking. I also have very > painful neck and shoulder which I have had for years but I never > checked into, when I told the Neuro. this, he immediately ordered an > MRI of the Cervical area. I guess with a Myelogram you have to be > careful of no problems with the spinal cord in the neck. I just got a > message back from the Dr.'s of saying that I have arthritis in my neck > at 3 different levels, and that I will also need a myelogram for that > also. Could anyone tell me what this test is like? Can I be put to > sleep for it if I press the issue? > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Hi - its again- so the Orthopedic and the Osteopath says what I have is " Congenital Stenosis " from the small pedicules I have in my spine. The Ortho says that impacts the fact joints from moving well. Besides the SI joint pain which I got the RF for and seems to be working well- I have chronic sciatica which radiates into my right foot the first interspace between big toe and goes into 2,3 toes and when its strong it makes my toes curl. It just comes off and on, sometimes its first thing in the am when Im stiff getting out of bed. Does surgery help that leg and foot pain? I hate taking pain pills every day but it seems that thats is the only thing that knocks the sciatica out. thanks RN in DC Re: Myelogram spinal problems Date: Monday, March 2, 2009, 9:58 PM > > I have had good relief from RFL, but sadly it doesn't last long enough for me to be a viable source of pain relief. I only get about 2 -3 weeks relief and you can do it no sooner than 3 months apart on the same side. --- > I had mine the last week in December and it took a few weeks for the pain to subside. I don't have half as much burning pain in my arms as I once did. I hope mine lasts a while. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 I had surgery anterior fusion surgery in Feb and still have pain. I went to a different neurosurgeon today and he wants to do a myelogram.. I had one before my last surgery in Feb. Why would I have to have another one.. He said it was to see if there was any nerves that are squeezed.. I thought the last myelogram was painful.. Not sure what I should do.. anyone have any idea for me? Thanks _________________________________________________________________ Hotmail: Powerful Free email with security by Microsoft. http://clk.atdmt.com/GBL/go/171222986/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 HI . This is from great5kids.I have had Myelograms, Disco gram, C4-C7 fusions and 5 bad disc's on my lumbar spine. As with any surgery if you feel uneasy at any time then you can always get a second opinion. It is your body and after a surgery is not the time to ask questions. Just make sure that you understand exactly what they are doing or going to do before they do it. Make sure it is what you want and understand. I hope this will help you.. Good luck great5kids FAITH--( Being sure of what you hope for, and certain of what you can not see) From: <ljorichardson0912@...> Subject: Myelogram neck pain , spinal problems Date: Wednesday, September 23, 2009, 2:07 PM I had surgery anterior fusion surgery in Feb and still have pain. I went to a different neurosurgeon today and he wants to do a myelogram.. I had one before my last surgery in Feb. Why would I have to have another one.. He said it was to see if there was any nerves that are squeezed.. I thought the last myelogram was painful.. Not sure what I should do.. anyone have any idea for me? Thanks ____________ _________ _________ _________ _________ _________ _ Hotmail: Powerful Free email with security by Microsoft. http://clk.atdmt. com/GBL/go/ 171222986/ direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Honestly they are a little outdated...and I've never heard of someone needing more than one. Not sure I would go through one again! --- Babbitt ________________________________ From: <ljorichardson0912@...> neck pain ; spinal problems Sent: Wednesday, September 23, 2009 5:07:24 PM Subject: Myelogram I had surgery anterior fusion surgery in Feb and still have pain. I went to a different neurosurgeon today and he wants to do a myelogram.. I had one before my last surgery in Feb. Why would I have to have another one.. He said it was to see if there was any nerves that are squeezed.. I thought the last myelogram was painful.. Not sure what I should do.. anyone have any idea for me? Thanks ____________ _________ _________ _________ _________ _________ _ Hotmail: Powerful Free email with security by Microsoft. http://clk.atdmt. com/GBL/go/ 171222986/ direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Kathy is correct. With the advanced radiology techniques available today that are COMPLETELY non-invasive...the use of myelogram is plummeting. It has too many risks and the more you have the higher your risk is. The cerabrospinal fluis is in a delicate balance. Foreign substances can cause a host of problems as well as offsetting the exact amount of fluid you have. This test requires a radiopaque dye to be injected into the fluid that surrounds the of your spinal cord, is is considered part of the spinal cord. This fluid is continuous with the fluid in your brain. the dye will also suround your brain...as well as any bacteria that may get in. I have not heard of a person going through that many myelograms. --- Babbitt ________________________________ From: Kathy <kathy.thun@...> spinal problems Sent: Thursday, September 24, 2009 9:28:37 AM Subject: Re: Myelogram Robin: I don't mean to make something out of nothing, but there is a great deal of information out there concerning the dangers of myleograms. The older dyes can cause something called arachnoiditis -- which is a life time of pain. Read the Burton Report before you consent. I'm sure there are other alternatives for testing (CT scan or MRI). I had compressed nerves at C6-C7 and a CT scan was most sufficient. Kathy > > > From: Babbitt <tpowell1977@ ...> > Subject: Re: Myelogram > spinedisorderssuppo rtgroup@gro ups.com > Date: Thursday, September 24, 2009, 2:02 AM > > > > > > > Honestly they are a little outdated...and I've never heard of someone needing more than one. Not sure I would go through one again! > --- Babbitt > > ____________ _________ _________ __ > From: <ljorichardson0912@ hotmail.com> > painintheneck- back@groups .com; spinedisorderssuppo rtgroup@gro ups.com > Sent: Wednesday, September 23, 2009 5:07:24 PM > Subject: Myelogram > > > > I had surgery anterior fusion surgery in Feb and still have pain. I went to a different neurosurgeon today and he wants to do a myelogram.. I had one before my last surgery in Feb. Why would I have to have another one.. He said it was to see if there was any nerves that are squeezed.. I thought the last myelogram was painful.. Not sure what I should do.. anyone have any idea for me? > > Thanks > > > ____________ _________ _________ _________ _________ _________ _ > Hotmail: Powerful Free email with security by Microsoft. > http://clk.atdmt. com/GBL/go/ 171222986/ direct/01/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 I had a cervical myelogram today.. Oh my goodness that was painful and I have a TERRIBLE headache. I hope they find the news they need to because I won't do that again.. _________________________________________________________________ Hotmail: Free, trusted and rich email service. http://clk.atdmt.com/GBL/go/171222984/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi Val, I totally agree it really wasn't a big deal(the myelogram itself)and I never got the headache either. I will totally agree about being wiped out. Actually, I would have to say that it reminded me of a surgery itself. You know that tired you get after any surgery. Day of myelogram I slept, I felt cold and tired anytime that I was awake. The next day I did take my mom to her Dr. appt in Boise...(shoulda stayed home)sitting in the drivers seat, in the doctors chairs, in the restaraunt booth, all irritated my back. Sure was glad to get home and finely relax. I feel pretty good today. Not as sore as yesterday by a long shot. I can sit on the couch and it doesn't irritate my back. Last night I was telling my husband that it felt like someone was taking dull needles and poking me in butt and upper thigh. I went to sleep on my belly and had a good sleep for a change. (Probably due to pain pills) it was nice either way. > > > > Today, I got this test done. Dr. was not sure he was going to be able to get it to work. My fusions are so solid he took a good 20 minutes to make it work. > > > > Test results should be in tomorrow but I most likely won't hear anything until next week. My entire left side could feel the dye. Dr said it would only bother the nerves that were having issues. Gee I felt it and there are more than I thought. > > > > I was just totally drained from this " simple " test. Slept almost all day after we got home. Moving slow, and trying to avoid that dreaded spinal headache. So off to bed...I'm suppose to take my mother to her Dr. appt. tomorrow, we will see...dear hubby may have to do it. My age is sure letting me know that I can't handle this stuff like I use to. > > > Quote Link to comment Share on other sites More sharing options...
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