Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 I have been trying to get to the core of my NT daughters night sweats for a while. She is 3 1/2 and I can have the ac on 70 and she is the only one dripping from her forehead. She does this in the winter too. My ped. said its okay that that is the only sweat glands that she has and shrugged it off. My son is a new patient of Dr. Holmes. He is 2 1/2 and we start chelation next month. I am going to discuss this with her and see what she thinks. Any one else with ideas? Wendi Dupuy People with mercury poisoning from amalgam, occupational, commonly have this problem. I had it. Most do. Likely the problem here also. Have you had her tested?? The hormonal glands control the autonomous nervous system and night sweats. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Wendi, This can be a sign of sulfation problems. When my daughter was a baby, I used to wonder if her diaper were leaking, because when I picked her up in the morning, her bed was totally soaked, but it never seemed to be a leaky diaper. We started using epsom salts when she was 3 and a half, and we haven't seen the night sweats since then. Boys and girls do not handle sulfation the same: boys have a sulfation chemistry that is much more dialed up, and they require much more sulfate in the brain than girls to satisfy their need. I think some girls, like my daughter, may have sulfation problems as severe as boys, but because they are girls, it may be a little less prone to associate with neurological problems. My daughters problems are more with her immune system. At 9/26/2000 -040009:24 PM, you wrote: >I have been trying to get to the core of my NT daughters night sweats >for a >while. She is 3 1/2 and I can have the ac on 70 and she is the only >one >dripping from her forehead. She does this in the winter too. My ped. >said >its okay that that is the only sweat glands that she has and shrugged it >off. > My son is a new patient of Dr. Holmes. He is 2 1/2 and we start >chelation >next month. I am going to discuss this with her and see what she >thinks. >Any one else with ideas? >Wendi Dupuy > > People with mercury poisoning from amalgam, occupational, >commonly have this problem. I had it. Most do. Likely the problem >here also. Have you had her tested?? The hormonal glands control >the autonomous nervous system and night sweats. >Bernie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 This speaks to me of PST deficiency, just my thoughts Kathy [ ] Night Sweats My functioning daughter 9-( LD, certainly on the spectrum to a degree) has done this several times but not regularly. The whole bed was soaked on several nights. She has no dental fillings- we will be chelating her soon. Joan kenjoan@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Somehow in all my reading about the evil candy, I missed that night sweats are one of the possible side effects of pred. I had these HORRIBLY for several years...hhmmm....the years I was having the most trouble with my asthma and HHHMMM, haven't been having them since I detoxed from pred about six months after starting Xolair. WOW. Oh - terrible sinus infection. Started antibiotics the first day but still couldn't keep it out of my lungs. Sigh. Sleep? What's that. Gotta buy some stock in Puffs so I can get some of my money back. Used half a box just over night! Take care all, Addy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 hi addy, sorry you've been feeling kinda poopy lately. my sinuses used to be a first rate disaster. since i started the constant antibiotics, i have only had 2-3 sinus infections this past school year, and none of them were as bad as they used to be -- and one didn't even hit the lungs. the antibiotics (before people think my dr is nuts!!) have to be the biaxin family (what the heck is that family called??). i took biaxin every day from jan 05 - jan 06. my dr decided to change it up and now i take start the zpack the first of every month. studies have shown (links to the literature are below if your interested ) that long term biaxin/zpack actually reduces inflamation in the sinus tracts. i know i can no longer use this class of antibiotics when i have an infection, but, i've got plenty others to pick from! the proof is in the pudding as they say....i'm light years better!!! =o) feel better addy!!! heather links - Macrolides for the Treatment of Chronic Sinusitis, Asthma, and COPD http://www.chestjournal.org/cgi/content/full/125/2_suppl/52S from medline http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstra\ ct & list_uids=12075221 & query_hl=4 & itool=pubmed_docsum One-year low-dose erythromycin treatment of persistent chronic sinusitis after sinus surgery: clinical outcome and effects on mucociliary parameters and nasal nitric oxide. pyle456 <coachmac@...> wrote: Somehow in all my reading about the evil candy, I missed that night sweats are one of the possible side effects of pred. I had these HORRIBLY for several years...hhmmm....the years I was having the most trouble with my asthma and HHHMMM, haven't been having them since I detoxed from pred about six months after starting Xolair. WOW. Oh - terrible sinus infection. Started antibiotics the first day but still couldn't keep it out of my lungs. Sigh. Sleep? What's that. Gotta buy some stock in Puffs so I can get some of my money back. Used half a box just over night! Take care all, Addy There is work that is work and there is play that is play; there is play that is work and work that is play. And in only one of these lie happiness. -- Gelett Burgess --------------------------------- New Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 I wish I could take those antibiotics, I hate having constant sinus infections. I'm down to two. . . doxycycline (which doesn't work so well anymore) and augmentin at high doses for dang near a month (with prednisone of course, to stop the rash i get with it). Gotta love drug allergies, don't ya? > Somehow in all my reading about the evil candy, I missed that night > sweats are one of the possible side effects of pred. I had these > HORRIBLY for several years...hhmmm....the years I was having the most > trouble with my asthma and HHHMMM, haven't been having them since I > detoxed from pred about six months after starting Xolair. WOW. > > Oh - terrible sinus infection. Started antibiotics the first day but > still couldn't keep it out of my lungs. Sigh. Sleep? What's that. > Gotta buy some stock in Puffs so I can get some of my money back. > Used half a box just over night! > > Take care all, > > Addy > > > > > > There is work that is work and there is play that is play; there is play that is work and work that is play. And in only one of these lie happiness. > -- Gelett Burgess > > > > > > > --------------------------------- > New Messenger with Voice. Call regular phones from your PC and save big. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Have you tried the fluoroquinolones (Levaquil, etc.)? They help me a lot. I can't tolerate biaxin (yeast), so that wasn't a good option for me. They tried me on a low doese of Levaquil for 3 months, but it didn't seem to m ake a major impact. Addy > > Somehow in all my reading about the evil candy, I missed that > night > > sweats are one of the possible side effects of pred. I had these > > HORRIBLY for several years...hhmmm....the years I was having the > most > > trouble with my asthma and HHHMMM, haven't been having them since > I > > detoxed from pred about six months after starting Xolair. WOW. > > > > Oh - terrible sinus infection. Started antibiotics the first day > but > > still couldn't keep it out of my lungs. Sigh. Sleep? What's > that. > > Gotta buy some stock in Puffs so I can get some of my money back. > > Used half a box just over night! > > > > Take care all, > > > > Addy > > > > > > > > > > > > There is work that is work and there is play that is play; > there is play that is work and work that is play. And in only one of > these lie happiness. > > -- Gelett Burgess > > > > > > > > > > > > > > --------------------------------- > > New Messenger with Voice. Call regular phones from your PC > and save big. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Unfortunately int he last 8 years I have added most every anti to my list of can't take anymores....used to be just e-mycin and related since i was 4 and my throat swelled up.... had a bad rash to cipro and then my throat swelled up with tequin so that family is out, the levaquin used to clear up my bronchitis and lung funk really well. then my old faithful keflex brought a horrific rash the day after i started, thinking possibly it was coincidental and the fact it was a red pill (red dye is always a bad reaction), we tried ceftin and it didid the same.....ughhhhhhhhhhhhh the augmentin works in high does now (i'm sure i have built up the tolerance, or what have you) but i get a rash now, luckily not full body like with the others, so a little prednisone lets me still have one left to take. no that i'm reading this i see exactly how scatter-brained i am today. sorry! =) rebecca > > Have you tried the fluoroquinolones (Levaquil, etc.)? They help me > a lot. I can't tolerate biaxin (yeast), so that wasn't a good > option for me. They tried me on a low doese of Levaquil for 3 > months, but it didn't seem to m ake a major impact. > > Addy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 You sound like I used to with the constant sinus infections. I had tons of big-guns antibiotics (often intravenously for weeks at a time) and many sinus surgeries for severe and almost constant sinus infections, with only minimal benefit from these treatmentsover a period of years. MY ENT then sent me to an immunologist at a medical school(allergists are also technically immunologists as well but those in community practice don't generally have a lot of experience with immunological puzzlers like I was). At the medical schools (University of Miami in Florida and again at University of South Florida in Tampa)I had extensive workups that showed I have antibody deficiencies that could be treated with monthly intravenous immunoglobulin (IVIG). (Immunoglobulin is the broad term for antibodies in the blood - the immunoglobulins are purified out of donated blood.) The treatments were very successful for about 7 years - far fewer sinus infections and easier to treat. Just a thought - perhaps you also have an immune deficiency that can be pinpointed by an experienced immunologist and that could then be treated with IVIG. Suggest talking to your allergist and pulmonologist to see if they would initiate the immune workup and give you a referral to a medical school immunologist if it seems warranted. Fran > > Somehow in all my reading about the evil candy, I missed that > night > > sweats are one of the possible side effects of pred. I had these > > HORRIBLY for several years...hhmmm....the years I was having the > most > > trouble with my asthma and HHHMMM, haven't been having them since > I > > detoxed from pred about six months after starting Xolair. WOW. > > > > Oh - terrible sinus infection. Started antibiotics the first day > but > > still couldn't keep it out of my lungs. Sigh. Sleep? What's > that. > > Gotta buy some stock in Puffs so I can get some of my money back. > > Used half a box just over night! > > > > Take care all, > > > > Addy > > > > > > > > > > > > There is work that is work and there is play that is play; > there is play that is work and work that is play. And in only one of > these lie happiness. > > -- Gelett Burgess > > > > > > > > > > > > > > --------------------------------- > > New Messenger with Voice. Call regular phones from your PC > and save big. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 fran, was your immunodefficiency found with bloodwork? my allergist (also immunologist and asthma specialist) has ran several bloodtests on me, including IgG, IgE, IgM, IgAnything else i left out! just wondering if she is missing something. the only test that showed anything out of wack was my IgE - hence the xolair, which has done wonders for me she even (as a long shot) gave me the pnemonia shot and 2 months later had my titers drawn to see if my body accepted the shot. something about if it didn't, that was a clue of immunodefficiency. with all these tests, she's determined i'm a healthy person who is chronically sick (sounds like an oxymoron!!) just wondering heather tiredofsteroids <sitesee@...> wrote: You sound like I used to with the constant sinus infections. I had tons of big-guns antibiotics (often intravenously for weeks at a time) and many sinus surgeries for severe and almost constant sinus infections, with only minimal benefit from these treatmentsover a period of years. MY ENT then sent me to an immunologist at a medical school(allergists are also technically immunologists as well but those in community practice don't generally have a lot of experience with immunological puzzlers like I was). At the medical schools (University of Miami in Florida and again at University of South Florida in Tampa)I had extensive workups that showed I have antibody deficiencies that could be treated with monthly intravenous immunoglobulin (IVIG). (Immunoglobulin is the broad term for antibodies in the blood - the immunoglobulins are purified out of donated blood.) The treatments were very successful for about 7 years - far fewer sinus infections and easier to treat. Just a thought - perhaps you also have an immune deficiency that can be pinpointed by an experienced immunologist and that could then be treated with IVIG. Suggest talking to your allergist and pulmonologist to see if they would initiate the immune workup and give you a referral to a medical school immunologist if it seems warranted. Fran > > Somehow in all my reading about the evil candy, I missed that > night > > sweats are one of the possible side effects of pred. I had these > > HORRIBLY for several years...hhmmm....the years I was having the > most > > trouble with my asthma and HHHMMM, haven't been having them since > I > > detoxed from pred about six months after starting Xolair. WOW. > > > > Oh - terrible sinus infection. Started antibiotics the first day > but > > still couldn't keep it out of my lungs. Sigh. Sleep? What's > that. > > Gotta buy some stock in Puffs so I can get some of my money back. > > Used half a box just over night! > > > > Take care all, > > > > Addy > > > > > > > > > > > > There is work that is work and there is play that is play; > there is play that is work and work that is play. And in only one of > these lie happiness. > > -- Gelett Burgess > > > > > > > > > > > > > > --------------------------------- > > New Messenger with Voice. Call regular phones from your PC > and save big. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 I was wondering the same thing, about a year or two ago I got the workup with all the IGA, IGE, IGG, etc., etc..... Got the pneumonia shot, checked a month or two late to see if it worked. It did slightly but not much they said, they won't give it to me again though because I had a bad reaction to it within the first hour after the injection. LOL....come to think of it, I haven't had any shots/meds in the last 10 years (except the Xolair, steroids, and my daily asthma/allergy) without a reaction afterwards....don't think i'll ever get to self-inject at home. The sinus infections seem to be less since the Xolair, but I think that's more of an indirect benefit. I'm on two antihistamines orally a day plus the Astelin and Nasacort AQ, and still take benadryl about once a day....so long as the nose doesn't stop up from allergies I don't seem to have the infections near as much. My ENT said he couldn't do much else with surgery, I haven't ever had polyps and the windows are the largest he can do without my face looking caved in by my nose. After all that rambling, yes, if there are any specific tests I need to ask about, let me know. > You sound like I used to with the constant sinus infections. I had > tons of big-guns antibiotics (often intravenously for weeks at a time) > and many sinus surgeries for severe and almost constant sinus > infections, with only minimal benefit from these treatmentsover a > period of years. MY ENT then sent me to an immunologist at a medical > school(allergists are also technically immunologists as well but those > in community practice don't generally have a lot of experience with > immunological puzzlers like I was). At the medical schools (University > of Miami in Florida and again at University of South Florida in > Tampa)I had extensive workups that showed I have antibody deficiencies > that could be treated with monthly intravenous immunoglobulin (IVIG). > (Immunoglobulin is the broad term for antibodies in the blood - the > immunoglobulins are purified out of donated blood.) > The treatments were very successful for about 7 years - far fewer > sinus infections and easier to treat. > > Just a thought - perhaps you also have an immune deficiency that can > be pinpointed by an experienced immunologist and that could then be > treated with IVIG. Suggest talking to your allergist and pulmonologist > to see if they would initiate the immune workup and give you a > referral to a medical school immunologist if it seems warranted. > > Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Tracey, thank you for replying and for all the reassurance. I donot think I want to risk any stay in a hospital so the bmt is just not for me. I feel I only weigh 108 lbs and woud absolutely wither away. I weighed 86 from 2 wks in the hosp. That was enough to last a life time. I am a big chicken when it comes to hospitals and dr's. I do not trust them. Anita Tracey <traceyincanada@...> wrote: Hi Anita, I totally understand the fear you are experiencing with the night sweats. That was my only symptom on diagnosis so now I automatically associate any night sweats with active CML. The reality though is that night sweats are not necessarily due to CML. I've been on Gleevec for 6 years now and have had a 3 log reduction for the last couple of years yet I still have occasional night sweats. I suspect that hormones play a role as do many other factors. I've noticed that even my husband (who's perfectly healthy) has occasional night sweats as well so don't worry right away that your night sweats are due to CML. Many doctors recommend bone marrow transplants for patients who were diagnosed in blast crisis, even if they respond well to drug therapy. Is this something you've considered? Tracey > > I woke up with night sweats this 3 am. Should I be alarmed I am (47) > maybe just change of life? I have a dr. and blood work appts this tues. > Am on 90 mg of sprycel since may 2006, dx'd april 2007,I reached > cystogenic remission for less than a month in nov.. Was dx'd CML blast > crisis and 2nd doctor said I had maybe 2 yrs because I was in blast > crisis when dx'd. So needless I feel concerned. Hoping you guys would > relieve my mind. > All in put would be greatly appreciated. > God Bless Anita > --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Hi Anita, If you reached CCR that's pretty good results. Did your Dr tell you that you have about 2 years after giving you those results? Also, this may not be applicable to you but I will share with you that I have been having night sweats ever since being on Gleevec and I have been on it for over 6 & a half years now. Most of the women on the forum have also had similar experiences. Funny thing is I only get them about a week prior to my period and during. I am currently 42 now so I have been enduring this since I was 36. I have had some other issues as well and most recently as of this last year I have had surgery 3 times to remove cyst on my ovaries. My last one was the end of November 07 and I did fine the first month but this month I started the irregular bleeding again. I do know that CML can cause night sweats too, but mine seems to be more in line with Menopause. However, I do believe that Gleevec or CML has caused my problems. The Dr's have continued to say I am not menopausal because all my hormone test are higher than they should be and I believe the high hormone count is what's causing my cyst to return over and over. Higher Ovulation. I have had a really rough year with this and it appears its still happening as of this month. I don't think surgery again is the answer. But I am surely tired of the way this has made me feel emotionally and physically. I'm considering looking else where for help but I have no idea where to turn. This may not be applicable to you but I thought I would share in the event that you have any similar symptoms. ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Yes the dr said that blast crisis will happen again and usually comes on full force..... I had mentioned that The first Dr at time of DX said they could maintain me approx 5 years with sprycel and the dr at that time said no he was wrong you may only have 2 years. I was in CCR for less than a month but hey I was there. I see the CML dr in the morning and will ask him about it. Befor Dx'd I was treated by 3 different dr's for on going pneumona for 6 months and was having the sweats terrible bad. Liver and splen were almost to bursting stage and the dr's all said gas, and change of life and pneumonia..., Finally at an ER a dr did blood work and xray said I had Leukemia rushed me to another hosp they did not treat such there. I was so weak at the time I could only take about 2 steps before falling. This is the first night sweat since dx so that was my concern. Honestly I only concentrate on getting through one day at a time and learned to do this 10 yrs or so back. And I do not worry about when or what if... but the night sweats was new and know can be related to CML or hormonal change. Hearing from others helps. I had a hysterectomy in 2000, then again all the women in my families are around the 60 yrs of age before going through the change of life. Thank you so much for sharing with me... I appreciate it. Somtimes it is nice to know you are not alone. I have learned so much on this forum all have been so helpful. I pray all gets easier for you God bless you, Anita [ ] Re:Night sweats Hi Anita, If you reached CCR that's pretty good results. Did your Dr tell you that you have about 2 years after giving you those results? Also, this may not be applicable to you but I will share with you that I have been having night sweats ever since being on Gleevec and I have been on it for over 6 & a half years now. Most of the women on the forum have also had similar experiences. Funny thing is I only get them about a week prior to my period and during. I am currently 42 now so I have been enduring this since I was 36. I have had some other issues as well and most recently as of this last year I have had surgery 3 times to remove cyst on my ovaries. My last one was the end of November 07 and I did fine the first month but this month I started the irregular bleeding again. I do know that CML can cause night sweats too, but mine seems to be more in line with Menopause. However, I do believe that Gleevec or CML has caused my problems. The Dr's have continued to say I am not menopausal because all my hormone test are higher than they should be and I believe the high hormone count is what's causing my cyst to return over and over. Higher Ovulation. I have had a really rough year with this and it appears its still happening as of this month. I don't think surgery again is the answer. But I am surely tired of the way this has made me feel emotionally and physically. I'm considering looking else where for help but I have no idea where to turn. This may not be applicable to you but I thought I would share in the event that you have any similar symptoms. ez Quote Link to comment Share on other sites More sharing options...
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