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Re: to all who have shared their experiences with xolair

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Hi:

I just want to say that you will not be able to come off of your Asthma

medications. That is something the Xolair literature stresses. You will be

able to cut out the prednisons.

Good Luck,

Kathy

asthmatic50 <asthmatic50@...> wrote:

Just a note to say thanks to all of you who have been willing to

share all of your experiences with this drug. I've been tempted to

compile a report on the drug based on what you all have said, just

for my own benefit and to help me in my discussions with my doctor.

I am still waiting for his word on whether or not he will give me

the shot in his office or whether I will take it at a clinic that is

already giving the shots to asthmatics. Either way, I am sure the

drug will help me, although I admit the severity of my asthma pales

in comparison to the reports from some of you. After three bad

attacks in a row and trips to the emergency clinic and to the

emergency room) I do understand what many of you are going through

during the bad allergy seasons. I think I've mentioned before that

it took five years of being on prednisone almost the entire time

before the doctor worked out a medicine regimen for me that allowed

me to come off of prednisone except in bad attacks. The last four

or five years, my time on prednisone has been limited to usually two

times a year--one year it was three times, one year it was only

once. So--if xolair will help me not have to take any asthma

medicine (or use inhalers of any kind) or ever used prednisone

again, then it will be worth whatever it will cost me.

Thanks again for sharing--I really appreciate all of the messages.

I'll keep you posted on what happens both financially and physically

for me with the xolair.

Adah (68 and an asthmatic for 20 years)

---------------------------------

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Guest guest

Kathy,

It really varies per user. Xolair doesn't want anyone coming off

meds without his/her doc's ok and they certainly don't want folks

stopping their meds as they are start Xolair, as it takes each

patient a different amount of time to see full benefit. I've been

able to come off of almost all my meds on a regular basis, not just

prednisone. Also, no more horrible allergy shots for me. Xolair

really has changed my life.

Addy

> Just a note to say thanks to all of you who have been

willing to

> share all of your experiences with this drug. I've been tempted to

> compile a report on the drug based on what you all have said, just

> for my own benefit and to help me in my discussions with my

doctor.

>

> I am still waiting for his word on whether or not he will give me

> the shot in his office or whether I will take it at a clinic that

is

> already giving the shots to asthmatics. Either way, I am sure the

> drug will help me, although I admit the severity of my asthma

pales

> in comparison to the reports from some of you. After three bad

> attacks in a row and trips to the emergency clinic and to the

> emergency room) I do understand what many of you are going through

> during the bad allergy seasons. I think I've mentioned before that

> it took five years of being on prednisone almost the entire time

> before the doctor worked out a medicine regimen for me that

allowed

> me to come off of prednisone except in bad attacks. The last four

> or five years, my time on prednisone has been limited to usually

two

> times a year--one year it was three times, one year it was only

> once. So--if xolair will help me not have to take any asthma

> medicine (or use inhalers of any kind) or ever used prednisone

> again, then it will be worth whatever it will cost me.

>

> Thanks again for sharing--I really appreciate all of the messages.

>

> I'll keep you posted on what happens both financially and

physically

> for me with the xolair.

>

> Adah (68 and an asthmatic for 20 years)

>

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Messenger's low PC-to-Phone

call rates.

>

>

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Guest guest

Hi Addy:

How long have you been on Xolair? And thanks for the info.

Kathy

pyle456 <coachmac@...> wrote:

Kathy,

It really varies per user. Xolair doesn't want anyone coming off

meds without his/her doc's ok and they certainly don't want folks

stopping their meds as they are start Xolair, as it takes each

patient a different amount of time to see full benefit. I've been

able to come off of almost all my meds on a regular basis, not just

prednisone. Also, no more horrible allergy shots for me. Xolair

really has changed my life.

Addy

> Just a note to say thanks to all of you who have been

willing to

> share all of your experiences with this drug. I've been tempted to

> compile a report on the drug based on what you all have said, just

> for my own benefit and to help me in my discussions with my

doctor.

>

> I am still waiting for his word on whether or not he will give me

> the shot in his office or whether I will take it at a clinic that

is

> already giving the shots to asthmatics. Either way, I am sure the

> drug will help me, although I admit the severity of my asthma

pales

> in comparison to the reports from some of you. After three bad

> attacks in a row and trips to the emergency clinic and to the

> emergency room) I do understand what many of you are going through

> during the bad allergy seasons. I think I've mentioned before that

> it took five years of being on prednisone almost the entire time

> before the doctor worked out a medicine regimen for me that

allowed

> me to come off of prednisone except in bad attacks. The last four

> or five years, my time on prednisone has been limited to usually

two

> times a year--one year it was three times, one year it was only

> once. So--if xolair will help me not have to take any asthma

> medicine (or use inhalers of any kind) or ever used prednisone

> again, then it will be worth whatever it will cost me.

>

> Thanks again for sharing--I really appreciate all of the messages.

>

> I'll keep you posted on what happens both financially and

physically

> for me with the xolair.

>

> Adah (68 and an asthmatic for 20 years)

>

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Messenger's low PC-to-Phone

call rates.

>

>

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Guest guest

I just want to say that you will not be able to come off of your Asthma

medications. That is something the Xolair literature stresses. You will be able

to cut out the prednisone.

Good Luck,

Kathy

Hi Kathy:

So if we can't come off the asthma meds, and we're not on prednisone and

never have been, maybe we don't need Xolair?? I'd like to come off something.

Carol

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Guest guest

I have been on Xolair 2.5 years. I started seeing improvements after

3 months. At 5 months I told my allergist I was going to quit

allergy shots. (I've always hated them!) Within 9 months I was off

all my meds except during hurricanes and other really bad periods.

That has pretty much stayed the same, although this spring was really

bad due to know freeze this winter and way too much pollen.

Addy

Xolair Poster Child

-- In , kathy eisen <kathyh1942@...>

wrote:

>

> Hi Addy:

>

> How long have you been on Xolair? And thanks for the info.

>

> Kathy

>

> pyle456 <coachmac@...> wrote:

> Kathy,

>

> It really varies per user. Xolair doesn't want anyone coming off

> meds without his/her doc's ok and they certainly don't want folks

> stopping their meds as they are start Xolair, as it takes each

> patient a different amount of time to see full benefit. I've been

> able to come off of almost all my meds on a regular basis, not just

> prednisone. Also, no more horrible allergy shots for me. Xolair

> really has changed my life.

>

> Addy

>

>

> > Just a note to say thanks to all of you who have been

> willing to

> > share all of your experiences with this drug. I've been tempted

to

> > compile a report on the drug based on what you all have said,

just

> > for my own benefit and to help me in my discussions with my

> doctor.

> >

> > I am still waiting for his word on whether or not he will give me

> > the shot in his office or whether I will take it at a clinic that

> is

> > already giving the shots to asthmatics. Either way, I am sure the

> > drug will help me, although I admit the severity of my asthma

> pales

> > in comparison to the reports from some of you. After three bad

> > attacks in a row and trips to the emergency clinic and to the

> > emergency room) I do understand what many of you are going

through

> > during the bad allergy seasons. I think I've mentioned before

that

> > it took five years of being on prednisone almost the entire time

> > before the doctor worked out a medicine regimen for me that

> allowed

> > me to come off of prednisone except in bad attacks. The last four

> > or five years, my time on prednisone has been limited to usually

> two

> > times a year--one year it was three times, one year it was only

> > once. So--if xolair will help me not have to take any asthma

> > medicine (or use inhalers of any kind) or ever used prednisone

> > again, then it will be worth whatever it will cost me.

> >

> > Thanks again for sharing--I really appreciate all of the

messages.

> >

> > I'll keep you posted on what happens both financially and

> physically

> > for me with the xolair.

> >

> > Adah (68 and an asthmatic for 20 years)

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > How low will we go? Check out Messenger's low PC-to-Phone

> call rates.

> >

> >

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