Re: Up Date

[Guest guest]

Phyllis,

URGH, I know how much pain I was in just from my gall bladder

stones! I really feel for you, I hear they can be VERy VERY

painful. I've also heard they have lots of new treatments for

them. Good luck to you.

manda

> Hi All fellow mgbers. I have been doing well for 2 1/2 years but

like

> everything else. All good things must come to an end it seems.

I started haveing

> lower abdominal pain about a month ago and went to my PCP and was

told I had

> occult blood in my stool and to schedule a Colonoscopy. Well, I

don't know

> how many of you know about our Dr. Shortage in Florida but could

not get an

> appointment until June 11 to see a gastroenterologist. Went to

CAry for a few

> days while my husband worked and on the way home about 200 miles

away I got a

> terrible cramp in my right side and fought the pain for

approximeqately 40

> miles and stopped right outside Savannah and found the nearest

hospital which was

> a small hospital but they had wat I needed. A Dr. and drugs. I

had a kidney

> stone. They gave me drugs and sent me on my way to ville

to see my

> PCP. She sent me for sonogram and waited for results. No results

for 5 days and

> by this time I had to go back out of town. The results of the

sonogrtam were

> negative and then I had another attack. Th e hospital here did

another

> sonogram and found a 3-4 cm stone and sent me to a urologist who

said I could pass

> that and wait 2 weeks and come backl. Well to make a long story

short I am

> playing the wait and hurt game. I did pass some small stones

yesterday but that

> must not have been all of them because I still hurt. Thats about

the sum of

> my update. I am sure this too shall pass. I will update you

when I see

> the gastroenterologist. I am going to have both colonoscopy and

EGD,

>

> Hope all of you are doing great and I am enjoying the post

although I don't

> write often. If it weren't so much trouble to change my e-mail

address I

> would change to something else because I am really happy where I

am and don't

> really want to loose much more. Phyllis

>

>

>

[Guest guest]

Was it your low Free T3 result that made Dr P suggest you try Cytomel. Can you let us know what your Free T4 result was, as I need to see the whole picture. also, were you taking the Nutri Thyroid at the same time as you started taking the Cytomel?

I hope the endo writes to you soon, but if he doesn't do this within 10 days, send copies to your local Primary Care Trust and tell them you are making an official complaint against this man. Good luck, and remind me of the 24 hour Urine thyroid results.

Luv - Sheila

Hi All,I hope you don't mind me giving you an update on my 'progress' so far.I wrote to my endo on the 19th March after he discharged me saying that the blood tests were normal. He disregarded my NPTech 24hr urine test which showed my T3 was under range. I wrote to him on Sheila's advice asking him why he discharged me and ignored my 24 hr urine test - and why he told me to consider HRT - even though he said my oestrogen was normal and he knew I was using natural progesterone cream. So far no reply from him. I have now sent him another letter, with copy of my first letter and a copy of the Duties of a Doctor, asking for a reply within 10 days.I was taking 5 Nutri Adrenal and 6 Nutri Thyroid. I contacted Dr P and he suggested I try taking 25mg Cytomel. I started with the T3 but on the fourth day I felt weird and my BP and pulse was very high mid afternoon - so I stopped. Dr P has been very busy but I booked a call from him and he told me to stop the Nutri Thyroid. So now I am on 5 Nutri Adrenal - my temps are becomming stable at about 97.1 most mornings and my pulse during the day has lowered to about mid 80s. I still feel very tired, my body feels weak, my back, neck and legs ache - along with the other symptoms I have become used to, unfortunately.I am due to see Dr P Tuesday next week and I hope to ask him to explain my NHS blood results. I will also ask him if I can start again with Cytomel but at a very, very low dose. I think I am one of those people who are sensitive to 'normal' initial doses and then increase in tiny amounts, slowly. I hope to keep you all posted with good news - when I get a reply from the endo (and pigs will fly). B

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[Guest guest]

Hi Sheila,

My NPTech results were -

T3 - 629 ref range 800-2500

T4 - 1230 ref range 550-3160

T3-T4 ratio 0.51 0.5-2.30

I was taking Nutri Thyroid when I started the Cytomel - Dr P did ask

me at the time but did not seem to think I should stop.

My NHS blood test results taken in January were -

TSH (0.35 - 5.50) mu/L 0.44 *0.26 NYA

FT4 (10 - 22.7) pmol/L 15.3 15.9

FT3 (3.5 - 6.5) pmol/L 5.1

I don't understand why my TSH is so low and I don't understand why

the *

B

[Guest guest]

Hi

I take it that the first T3 was Free T3 also.- if so, this is VERY low and below the range. Is the T4 also FT4 as I don't recognise the range. If it is, this is also low and should be nearer the top of the range. I'm sorry, I don't understand the T3-T4 ratio. What medication were you taking when you had this test with NPTech done? They tests done by the NHS have put an asterisk against your TSH with 'NYA' at the side, which means Not Yet Available. Strange!

luv - Sheila

Re: Up date

Hi Sheila,My NPTech results were -T3 - 629 ref range 800-2500T4 - 1230 ref range 550-3160T3-T4 ratio 0.51 0.5-2.30I was taking Nutri Thyroid when I started the Cytomel - Dr P did ask me at the time but did not seem to think I should stop.My NHS blood test results taken in January were -TSH (0.35 - 5.50) mu/L 0.44 *0.26 NYAFT4 (10 - 22.7) pmol/L 15.3 15.9FT3 (3.5 - 6.5) pmol/L 5.1I don't understand why my TSH is so low and I don't understand why the * B

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[Guest guest]

Hi Sheila,

I was not on any medication last year when I had the NPTech tests done.

I had two NHS bloods taken - the first was before I had the radioactive

injection for the scan and the other was about an hour after.

My antibodies count was 7 .

B

[Guest guest]

Hi,

TSH is always very low when taking T3. This is Normal! Mine has been

0.01 for the past 8 years.

Subject: Re: Up date

Hi Sheila,

My NPTech results were -

T3 - 629 ref range 800-2500

T4 - 1230 ref range 550-3160

T3-T4 ratio 0.51 0.5-2.30

I was taking Nutri Thyroid when I started the Cytomel - Dr P did ask

me at the time but did not seem to think I should stop.

My NHS blood test results taken in January were -

TSH (0.35 - 5.50) mu/L 0.44 *0.26 NYA

FT4 (10 - 22.7) pmol/L 15.3 15.9

FT3 (3.5 - 6.5) pmol/L 5.1

I don't understand why my TSH is so low and I don't understand why

the *

B

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

[Guest guest]

Yet another endoprat to add to our ever growing list! I bet if you look up his qualifications his speciality is diabetes - many of them know little of thyroid disease, though they call themselves specialists in metabolic disorders. Can you see a private thyroid specialist Nicola - some of us have no way of getting a diagnosis within the NHS and need to look elsewhere. Had I stayed with the NHS I doubt I would be here, and if I was, I would have been either confined to my bed or wheelchair bound.

luv - Sheila

Well, I just came back from a regular 3 month appointment with my endocrinologist and mentioned my glands been very swollen and hurting and he just looked at me blank and said 'viral' !!He will not hear of the word thyroid - all he says is normal and when I asked for the anti bodies to be tested he would not hear of it as my TSH level was 1.9 miu/L sorry I don't have the range.My prolactin is sky high but it has been for years and I am on medication for this.Nicola

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[Guest guest]

You are so right Sheila, his speciality is Diabetes and has written

many papers on it and I am sure good at that but he will not hear of

Thyroid or adrenals, I have been seeing him privately for 10 years

now due to high prolactin and PCOS.

I am battling like everyone else at the moment as my GP will also not

hear of it to see a thyoid specialist, I am frustrated as I pay huge

amounts each month to BUPA and still end up on battle field, next

week I am going to go back to the GP and argue my case.

Luv

Nicola

Yet another endoprat to add to our ever growing list! I bet if you

look up his qualifications his speciality is diabetes - many of them

know little of thyroid disease, though they call themselves

specialists in metabolic disorders. Can you see a private thyroid

specialist Nicola - some of us have no way of getting a diagnosis

within the NHS and need to look elsewhere. Had I stayed with the NHS

I doubt I would be here, and if I was, I would have been either

confined to my bed or wheelchair bound.

>

> luv - Sheila

>

[Guest guest]

I would write to your GP and list all of your symptoms - your signs (you can check these on our website - www.tpa-uk.org.uk just click on Hypothyroidism in the Menu and then click on Symptoms and Signs. Take your temperature for 4 to 5 days in the morning before you get out of bed and before you drink anything - write these down on the list. Ask your GP for a referral to a specialist in thyroid disease and not a specialist in diabetes, you are entitled to this, and I will send you a copy of my doctors list to you off forum, so you can pick one from there. You are entitled to pick and choose a specialist of your choice since 1st April this year, so don't let your GP fob you off.

Request that the letter be put into your notes. They should do this automatically anyway, but should your GP refuse to allow you a referral to somebody else, and it is later found you have been suffering all along, he might think twice about whether to ignore your request or not.

luv - Sheila

You are so right Sheila, his speciality is Diabetes and has written many papers on it and I am sure good at that but he will not hear of Thyroid or adrenals, I have been seeing him privately for 10 years now due to high prolactin and PCOS.I am battling like everyone else at the moment as my GP will also not hear of it to see a thyoid specialist, I am frustrated as I pay huge amounts each month to BUPA and still end up on battle field, next week I am going to go back to the GP and argue my case.LuvNicolaYet another endoprat to add to our ever growing list! I bet if you look up his qualifications his speciality is diabetes - many of them know little of thyroid disease, though they call themselves specialists in metabolic disorders. Can you see a private thyroid specialist Nicola - some of us have no way of getting a diagnosis within the NHS and need to look elsewhere. Had I stayed with the NHS I doubt I would be here, and if I was, I would have been either confined to my bed or wheelchair bound.> > luv - Sheila>

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[Guest guest]

Hi Marie - none of us are sure yet when the higher grains will be available. We have no option but to take the lower grains at the moment and pray they higher one's will be available soon. The predicted date was the end of October - I hope that still applies.

Afshin btw is a man, not a woman.

Luv - Sheila

Hi Sheila and everyone just to let you know i am doing fine on 4 grains very pleased i wondered how many grains i would be taking if i wasstill taking it of a day. Does any one know were i can get 1 or 2grainsof Nature throid i mailed afshin and she could not give me a date or even a projection of when they will have any larger grains. I dont wantto buy small grains as we are going away for a month in 5 weeks and ihave just had to buy 3 tubs of NAE and a tub of selenium (large )itscheaper and one tub of zinc, omega 369 as well as my nature throid and trying to sort Christmas as well i am just scraping the bottom ofthe barrel now.The hol is a present from our 4 children a belated ruby anniversary and my up and coming 60th shush dont tell any one

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[Guest guest]

Its not Abbots laboratories that make Armour that have just applied to

the FDA for a license for Synthroid is it? It is a different

organisation is it?

luv Dawnx

[Guest guest]

http://www.fda.gov/bbs/topics/news/NEW00697.html

my oh my, that was painful.....

and just the test kits?

Bob

>

> Its not Abbots laboratories that make Armour that have just applied to

> the FDA for a license for Synthroid is it? It is a different

> organisation is it?

>

> luv Dawnx

>

[Guest guest]

Hey, .

I don't have any light to shed, but have been wondering how you're doing. I'll

be hoping it goes well for you, and that you don't have any complications with

your feeding tube installation, or afterward.

Will you need to get all your nutrients from the tube, or are you still able to

eat sometimes? I know you're going through hard times, but know we're here!

Hopefully someone can give you insight as to the feeding tube.

Here's a Wikipedia page on it, in general:

http://en.wikipedia.org/wiki/Feeding_tube

Sorry I'm not more helpful, but I'm filled with good wishes!

>

> Dear all

>  

> As you know my name is i have been digenoised with S.M.A Spinel Muscula

Antfoy a life limmiting disorder i live at home with mum and dad thay both care

for me as i need 24 hour care next week i am going into hospital for a op to

have a feeding tube inserted into my tummey anyone shed some light on what to

expect Please

>  

>  

>

>

>

>

>

[Guest guest]

Hi Nicola, thank you so much for telling us your story and how

you have come through it all with such guts and determination. It is absolutely

true, that if a doctor cannot give you a diagnosis, he will make something up

that sounds suitable, such as chronic fatigue syndrome, fibromyalgia, ME,

depression etc and even 'laziness'. As you say, NEVER, NEVER, NEVER let a

doctor tell you there is nothing they can do because you KNOW your body, and

you know there is something not right, so everybody, do as has done, sit

there and demand as many tests as you can to find the true cause of feeling so

unwell.

I hope you continue to do well , and after so many years,

you can count the day after your operation as the first day of your new life.

Long may it continue.

Luv - Sheila

Just thought I would pop in and give everyone

an update

I have been ill for many years have gone through all channels of thyroid and my

GP dismissed all and a Consultant told me it was Chronic Fatigue

Well in April I collapsed twice and they still told me it was Chronic Fatigue

I went to a private Consultant and sat in his office he dismissed I was ill and

told me to go on holiday, I told him I was not leaving until he did some tests

etc, he did bloods etc and I was grossly anemic (5.9) I had an immediate blood

transfusion and serval more through the summer, long and short of it in August

they found a tumour in the small bowel which was malignant and had been there

for over 6 years, I had an op and recovering well and now have to start

treatment etc

I just want to warn everyone, you no how your body feels and keep at the dr's I

have been battling for 6 years, I just hope it is not to late for me as the

cancer is far gone but I will battle it and prove these dr's I was not a misfit

sitting in there office crying woolf all these years.

Nicola

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