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hi all,

At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

I told her that the more I am up and around the more I have to take.  I told

reminded her again that

walking is very painful for me and that I almost couldn't make it out of Walmart

last month I hurt so bad.

So she asked if I would like to try these patches listed below and I told her I

would love to try something that might give me longer lasting relief as long as

I could stay on my normal prescription routine until I knew the patches worked

for me as it is hard to get in to see her, she is very busy.  So finally I get

to try these 2 patches.

I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

Fentanyl patch and Lidocaine patch.

I am just now looking them up.  If anyone can clue me in on the ups and downs of

them, plus your own experiences with them, that would be very appreciated.

She kept asked where my pain was.  I told her it is in the middle of my back and

then also down at L4-5.

I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those moon

pies were going to do it to me

but they are so good but make it more painful to walk with the added pounds.  I

can't carry weight.   The peanut butter and jelly sandwiches didn't help either,

I was eating them because I am getting my teeth pulled for dentures and can't

chew very well.  I usually eat like a bird anyways so I think I can just cut

down the portions and hopefully lose a few pounds.  How can I exercize?  My

doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

So, any input on those patches would be great.  The pain radiates from my spine

but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

Thanks, Coleen

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Colleen,

I have tried fentynal in many forms, Patches included.  Fentanyl is a very

short lived substance(metabolizes quickly, about 1.25 hrs..even with the 100mcg

patch i was severly diapointed ot in the Actiq lozonges up to 1200mcg ... very

little relief . My dr told me they were purely for " breakthru " pain and not for

chronic use. For me, they were a waste of time compared to oxycodone but with

pain of such severity(510 mg of oxy/day) not a lot helps but i do kno this they

are the shortest acting narcotic i have had and can cost a lot.  I didnt notice

the patches at all and i was told that fentanyl is strong and even dangerous. 

I researched it thru many sources and concluded it was more to sell than to

help.

Good luck finding the right med..it isnt easy.

Harold

________________________________

From: Coleen Fox <foxycol63@...>

hugs N Pain <Hugs-N-Pain >;

spinal problems ;

Spondylolisthesissupport ; neck pain

Sent: Thu, December 17, 2009 11:12:20 AM

Subject: Going to try Lidocaine and Fentanyl patches

 

hi all,

At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

I told her that the more I am up and around the more I have to take.  I told

reminded her again that

walking is very painful for me and that I almost couldn't make it out of Walmart

last month I hurt so bad.

So she asked if I would like to try these patches listed below and I told her I

would love to try something that might give me longer lasting relief as long as

I could stay on my normal prescription routine until I knew the patches worked

for me as it is hard to get in to see her, she is very busy.  So finally I get

to try these 2 patches.

I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

Fentanyl patch and Lidocaine patch.

I am just now looking them up.  If anyone can clue me in on the ups and downs

of them, plus your own experiences with them, that would be very appreciated.

She kept asked where my pain was.  I told her it is in the middle of my back

and then also down at L4-5.

I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those moon

pies were going to do it to me

but they are so good but make it more painful to walk with the added pounds.  I

can't carry weight.   The peanut butter and jelly sandwiches didn't help

either, I was eating them because I am getting my teeth pulled for dentures and

can't chew very well.  I usually eat like a bird anyways so I think I can just

cut down the portions and hopefully lose a few pounds.  How can I exercize? 

My doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

So, any input on those patches would be great.  The pain radiates from my spine

but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I

need all the help/advice I can get.

Thanks, Coleen

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Actually Coleen, the pain is coming from the nerve root on either side of the

L4, L5 area. If the pain is mostly on the left side put the patch there. If it

is coming from the right put the patch there. Radiculopathy means radiating

pain from a nerve root. The patches worked on me very well for a time. In my

case I built up a tolerance to medication and had to keep taking more. My Mri

showed massive impingement on the nerve root. I had surgery July 30th and I

feel great., My neuro said the reason why it was so painful to walk was because

the bone grew over the nerve root, and the epidurals and pain patches could no

longer reach the affected nerve.

Surgery was the last resort for me. The recovery is long but I feel better

now than I have for 5 yrs. Betty

>

> hi all,

>

> At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

> I told her that the more I am up and around the more I have to take.  I told

reminded her again that

> walking is very painful for me and that I almost couldn't make it out of

Walmart last month I hurt so bad.

>

> So she asked if I would like to try these patches listed below and I told her

I would love to try something that might give me longer lasting relief as long

as I could stay on my normal prescription routine until I knew the patches

worked for me as it is hard to get in to see her, she is very busy.  So finally

I get to try these 2 patches.

>

> I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

>

> Fentanyl patch and Lidocaine patch.

>

> I am just now looking them up.  If anyone can clue me in on the ups and downs

of them, plus your own experiences with them, that would be very appreciated.

>

> She kept asked where my pain was.  I told her it is in the middle of my back

and then also down at L4-5.

> I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

>

> I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

>

> Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those

moon pies were going to do it to me

> but they are so good but make it more painful to walk with the added pounds. 

I can't carry weight.   The peanut butter and jelly sandwiches didn't help

either, I was eating them because I am getting my teeth pulled for dentures and

can't chew very well.  I usually eat like a bird anyways so I think I can just

cut down the portions and hopefully lose a few pounds.  How can I exercize?  My

doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

>

> So, any input on those patches would be great.  The pain radiates from my

spine but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

>

> Thanks, Coleen

>

>

>

>

>

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hi Harold,

Thanks for your email.  I am running out of steam after yesterday.  Will try and

catch up tomorrow or soon.

Wish I could write you more right now but am pooped now.  I was reading emails

and looking up neurosurgeons and these patches on a slow modem.  nap time.

gentle hugs and many sincere thanks to you, Coleen :)

________________________________

From: harold ewing autark@...

neck pain

Sent: Thu, December 17, 2009 12:03:03 PM

Subject: Re: Going to try Lidocaine and Fentanyl patches

Colleen,

I have tried fentynal in many forms, Patches included.  Fentanyl is a very short

lived substance(metabolizes quickly, about 1.25 hrs..even with the 100mcg patch

i was severly diapointed ot in the Actiq lozonges up to 1200mcg ... very little

relief . My dr told me they were purely for " breakthru " pain and not for chronic

use. For me, they were a waste of time compared to oxycodone but with pain of

such severity(510 mg of oxy/day) not a lot helps but i do kno this they are the

shortest acting narcotic i have had and can cost a lot.  I didnt notice the

patches at all and i was told that fentanyl is strong and even dangerous.  I

researched it thru many sources and concluded it was more to sell than to help.

Good luck finding the right med..it isnt easy.

Harold

________________________________

From: Coleen Fox <foxycol63@...>

hugs N Pain <Hugs-N-Pain >;

spinal problems ;

Spondylolisthesissupport ; neck pain

Sent: Thu, December 17, 2009 11:12:20 AM

Subject: Going to try Lidocaine and Fentanyl patches

 

hi all,

At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

I told her that the more I am up and around the more I have to take.  I told

reminded her again that

walking is very painful for me and that I almost couldn't make it out of Walmart

last month I hurt so bad.

So she asked if I would like to try these patches listed below and I told her I

would love to try something that might give me longer lasting relief as long as

I could stay on my normal prescription routine until I knew the patches worked

for me as it is hard to get in to see her, she is very busy.  So finally I get

to try these 2 patches.

I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

Fentanyl patch and Lidocaine patch.

I am just now looking them up.  If anyone can clue me in on the ups and downs of

them, plus your own experiences with them, that would be very appreciated.

She kept asked where my pain was.  I told her it is in the middle of my back and

then also down at L4-5.

I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those moon

pies were going to do it to me

but they are so good but make it more painful to walk with the added pounds.  I

can't carry weight.   The peanut butter and jelly sandwiches didn't help either,

I was eating them because I am getting my teeth pulled for dentures and can't

chew very well.  I usually eat like a bird anyways so I think I can just cut

down the portions and hopefully lose a few pounds.  How can I exercize?  My

doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

So, any input on those patches would be great.  The pain radiates from my spine

but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

Thanks, Coleen

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Hi again Colleen: the first time I used the patch I put one on each side.

Later I cut them in half and only used a half on each side.

Keep them on for 24 hours. The pain relief will continue even after you remove

them. Good luck... Betty

> >

> > hi all,

> >

> > At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

> > I told her that the more I am up and around the more I have to take.  I told

reminded her again that

> > walking is very painful for me and that I almost couldn't make it out of

Walmart last month I hurt so bad.

> >

> > So she asked if I would like to try these patches listed below and I told

her I would love to try something that might give me longer lasting relief as

long as I could stay on my normal prescription routine until I knew the patches

worked for me as it is hard to get in to see her, she is very busy.  So finally

I get to try these 2 patches.

> >

> > I haven't gotten them yet but wanted some input from you all and how you

like them and what not.

> >

> > Fentanyl patch and Lidocaine patch.

> >

> > I am just now looking them up.  If anyone can clue me in on the ups and

downs of them, plus your own experiences with them, that would be very

appreciated.

> >

> > She kept asked where my pain was.  I told her it is in the middle of my back

and then also down at L4-5.

> > I told her I have radiculopathy (sp?).   She knew that already, I wasn't

even sure on how to pronounce it.

> >

> > I got my phone interview for SSI yesterday and she will send out papers for

me to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

> >

> > Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those

moon pies were going to do it to me

> > but they are so good but make it more painful to walk with the added

pounds.  I can't carry weight.   The peanut butter and jelly sandwiches didn't

help either, I was eating them because I am getting my teeth pulled for dentures

and can't chew very well.  I usually eat like a bird anyways so I think I can

just cut down the portions and hopefully lose a few pounds.  How can I

exercize?  My doctor said to walk around a bit, ug, that just requires more pain

meds  lol.....boohoo.

> >

> > So, any input on those patches would be great.  The pain radiates from my

spine but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

> >

> > Thanks, Coleen

> >

> >

> >     

> >

> >

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  • 2 weeks later...

I too am on a fentanyl patch. Do NOT cut them in two and do NOT put on more than

one unless directed by your doctor. If you have the one with the gel in the

middle and cut it into you might overdose!They are one of the strongest, if not

the strongest, pain medication prescribed and you shouldn't mess around with

them by putting more on than your physician tells you or by cutting them. There

was a class action lawsuit years ago where some of the patches leaked and people

died. The patches have been repaired and no longer leak but they are not to be

taken lightly. I'm sure whoever posted to cut them in two is referring to the

Mylan patches which do not have gel in them, but not all patches are the same.

It is my understanding that you should place it where the instructions tell you

to and not over the place that hurts. Your bone/nerve may hurt but the drug

releases into muscle and fat which provides the relief and there may not be

enough muscle and/or fat where you place the patch if you try to place it

directly on your spine (bone) where it hurts.

It has helped me some. I do not understand how you put one on for 24 hours. They

are generally prescribed for one patch every three days, but I have to switch

them every two days instead of every three days because of the break-through on

the third day my neurologist chose to prescribe the switch every two days. Good

luck, I hope it helps.

> > >

> > > hi all,

> > >

> > > At my doctor's appt the 15th she asked me how I was doing on Oxycodone and

I told her the truth.

> > > I told her that the more I am up and around the more I have to take.  I

told reminded her again that

> > > walking is very painful for me and that I almost couldn't make it out of

Walmart last month I hurt so bad.

> > >

> > > So she asked if I would like to try these patches listed below and I told

her I would love to try something that might give me longer lasting relief as

long as I could stay on my normal prescription routine until I knew the patches

worked for me as it is hard to get in to see her, she is very busy.  So finally

I get to try these 2 patches.

> > >

> > > I haven't gotten them yet but wanted some input from you all and how you

like them and what not.

> > >

> > > Fentanyl patch and Lidocaine patch.

> > >

> > > I am just now looking them up.  If anyone can clue me in on the ups and

downs of them, plus your own experiences with them, that would be very

appreciated.

> > >

> > > She kept asked where my pain was.  I told her it is in the middle of my

back and then also down at L4-5.

> > > I told her I have radiculopathy (sp?).   She knew that already, I wasn't

even sure on how to pronounce it.

> > >

> > > I got my phone interview for SSI yesterday and she will send out papers

for me to go over to make sure they are correct and then I will send them back

in or take them personally to their office because I will be up there anyways. 

So this should be a good thing.

> > >

> > > Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those

moon pies were going to do it to me

> > > but they are so good but make it more painful to walk with the added

pounds.  I can't carry weight.   The peanut butter and jelly sandwiches didn't

help either, I was eating them because I am getting my teeth pulled for dentures

and can't chew very well.  I usually eat like a bird anyways so I think I can

just cut down the portions and hopefully lose a few pounds.  How can I

exercize?  My doctor said to walk around a bit, ug, that just requires more pain

meds  lol.....boohoo.

> > >

> > > So, any input on those patches would be great.  The pain radiates from my

spine but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

> > >

> > > Thanks, Coleen

> > >

> > >

> > >     

> > >

> > >

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Sage advice, Barb. They really should be used exactly as directed: no trying to

change anything without clearing with your doc first.

Hope you have gotten them by now, Coleen. And that they're working.

> > > >

> > > > hi all,

> > > >

> > > > At my doctor's appt the 15th she asked me how I was doing on Oxycodone

and I told her the truth.

> > > > I told her that the more I am up and around the more I have to take.  I

told reminded her again that

> > > > walking is very painful for me and that I almost couldn't make it out of

Walmart last month I hurt so bad.

> > > >

> > > > So she asked if I would like to try these patches listed below and I

told her I would love to try something that might give me longer lasting relief

as long as I could stay on my normal prescription routine until I knew the

patches worked for me as it is hard to get in to see her, she is very busy.  So

finally I get to try these 2 patches.

> > > >

> > > > I haven't gotten them yet but wanted some input from you all and how you

like them and what not.

> > > >

> > > > Fentanyl patch and Lidocaine patch.

> > > >

> > > > I am just now looking them up.  If anyone can clue me in on the ups and

downs of them, plus your own experiences with them, that would be very

appreciated.

> > > >

> > > > She kept asked where my pain was.  I told her it is in the middle of my

back and then also down at L4-5.

> > > > I told her I have radiculopathy (sp?).   She knew that already, I wasn't

even sure on how to pronounce it.

> > > >

> > > > I got my phone interview for SSI yesterday and she will send out papers

for me to go over to make sure they are correct and then I will send them back

in or take them personally to their office because I will be up there anyways. 

So this should be a good thing.

> > > >

> > > > Whew!  Oh yes, another thing, I gained weight, over my limit, I knew

those moon pies were going to do it to me

> > > > but they are so good but make it more painful to walk with the added

pounds.  I can't carry weight.   The peanut butter and jelly sandwiches didn't

help either, I was eating them because I am getting my teeth pulled for dentures

and can't chew very well.  I usually eat like a bird anyways so I think I can

just cut down the portions and hopefully lose a few pounds.  How can I

exercize?  My doctor said to walk around a bit, ug, that just requires more pain

meds  lol.....boohoo.

> > > >

> > > > So, any input on those patches would be great.  The pain radiates from

my spine but I also know that sciatic nerve goes through the hip on both sides. 

My normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

> > > >

> > > > Thanks, Coleen

> > > >

> > > >

> > > >     

> > > >

> > > >

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  • 2 weeks later...

HI group,

I am going to be seen in the pain clinic next week and was wondering what if any

experiences any of you have had with these places?

I was mailed a form of 15 pages that asked everything about my background and

some if it was intimidating.

I know that they have to have a good medical history but this was an

inquisistation.

Any ideas of how to proceed? I just want to seek out  injections maybe--not into

looking for more drugs!

Annie

 A poet is, after all, to see

________________________________

From: Abbott <jeannieboo1@...>

neck pain

Sent: Fri, January 8, 2010 2:02:55 AM

Subject: Re: Going to try Lidocaine and Fentanyl patches

Hi Harold

Am trying to kill time while waiting to leave for the airport on my way back to

Vegas from Seattle. It's very emotional now, will definitely be taking Xanax in

a few minutes..

My husband's ex-wife married a guy who has severe back pain and is on 400mg? of

Fentanyl-was told he has to be registered with DEA because of the amount he has

to take. That sounds a bit drastic to me, but we all have different pain levels.

I've used lidocaine patches quite a bit, it helps some of the pain some of the

time. I found no difference in my level of pain being here with all the dampness

and humidity. or being in Vegas-for me there's no difference weatherwise on my

pain level. At least I'll be seeing the sun in a few hours, but will be missing

my daughter and grandkids terribly.

Hope everyone is doing well-I'm off to the airport

Jeannie

From: Coleen Fox <foxycol63@...>

Subject: Re: Going to try Lidocaine and Fentanyl patches

neck pain

Date: Saturday, December 19, 2009, 11:00 AM

 

hi Harold,

Thanks for your email.  I am running out of steam after yesterday.  Will try and

catch up tomorrow or soon.

Wish I could write you more right now but am pooped now.  I was reading emails

and looking up neurosurgeons and these patches on a slow modem.  nap time.

gentle hugs and many sincere thanks to you, Coleen :)

____________ _________ _________ __

From: harold ewing autarksbcglobal (DOT) net

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 12:03:03 PM

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

Colleen,

I have tried fentynal in many forms, Patches included.  Fentanyl is a very short

lived substance(metaboliz es quickly, about 1.25 hrs..even with the 100mcg patch

i was severly diapointed ot in the Actiq lozonges up to 1200mcg ... very little

relief . My dr told me they were purely for " breakthru " pain and not for chronic

use. For me, they were a waste of time compared to oxycodone but with pain of

such severity(510 mg of oxy/day) not a lot helps but i do kno this they are the

shortest acting narcotic i have had and can cost a lot.  I didnt notice the

patches at all and i was told that fentanyl is strong and even dangerous.  I

researched it thru many sources and concluded it was more to sell than to help.

Good luck finding the right med..it isnt easy.

Harold

____________ _________ _________ __

From: Coleen Fox <foxycol63 (DOT) com>

hugs N Pain <Hugs-N-Pain>; spinedisorderssuppo

rtgroup@gro ups.com; Spondylolisthesissu pport@group s.com;

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 11:12:20 AM

Subject: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

 

hi all,

At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

I told her that the more I am up and around the more I have to take.  I told

reminded her again that

walking is very painful for me and that I almost couldn't make it out of Walmart

last month I hurt so bad.

So she asked if I would like to try these patches listed below and I told her I

would love to try something that might give me longer lasting relief as long as

I could stay on my normal prescription routine until I knew the patches worked

for me as it is hard to get in to see her, she is very busy.  So finally I get

to try these 2 patches.

I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

Fentanyl patch and Lidocaine patch.

I am just now looking them up.  If anyone can clue me in on the ups and downs of

them, plus your own experiences with them, that would be very appreciated.

She kept asked where my pain was.  I told her it is in the middle of my back and

then also down at L4-5.

I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those moon

pies were going to do it to me

but they are so good but make it more painful to walk with the added pounds..  I

can't carry weight.   The peanut butter and jelly sandwiches didn't help either,

I was eating them because I am getting my teeth pulled for dentures and can't

chew very well.  I usually eat like a bird anyways so I think I can just cut

down the portions and hopefully lose a few pounds.  How can I exercize?  My

doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

So, any input on those patches would be great.  The pain radiates from my spine

but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

Thanks, Coleen

Link to comment
Share on other sites

Annie.

Pain Clinics were a dead end for me.  I ended up with my Dr i see

regularly(Internal or Adult medicine)as the pain clinics pushed the injections

due they are an expensive med and expensive procedure and benifit the dr much

more than the patient ( I have been told, read  and told as well by DR that the

injections are not for chronic pain as they , if used often have bad side

effects and very few patients benifit from them (did nothing for me)but the Dr

makes a bundle at the expense of risking your health and you most likely wont

improve...sourses, a Dr of Pallative Medicine, Head Proffessor of Internal med.

at Washington Univ., Data Administrator of billing office, Trainer for

EMR(Electronic medical records)I tr5ied to get info from all levels and i was

very suprised at some things I learned.

The Pain Clinics seemed to be set up to make money rather than help you and

had strange ideas about dealing with pain in General, one was so strange that

The State Board of Pharmacy closed them down for not labeling the contents of a

concoction containing narcotics and other meds in accordance with the labeling

act, any way I got a bad Impression.

Good luck,

GHEII

Sent: Fri, January 8, 2010 8:34:50 AM

Subject: Re: Going to try Lidocaine and Fentanyl patches

 

HI group,

I am going to be seen in the pain clinic next week and was wondering what if

any experiences any of you have had with these places?

I was mailed a form of 15 pages that asked everything about my background and

some if it was intimidating.

I know that they have to have a good medical history but this was an

inquisistation.

Any ideas of how to proceed? I just want to seek out  injections maybe--not

into looking for more drugs!

Annie

 A poet is, after all, to see

____________ _________ _________ __

From: Abbott <jeannieboo1>

PainInTheNeck- Back@groups .com

Sent: Fri, January 8, 2010 2:02:55 AM

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

Hi Harold

Am trying to kill time while waiting to leave for the airport on my way back to

Vegas from Seattle. It's very emotional now, will definitely be taking Xanax in

a few minutes..

My husband's ex-wife married a guy who has severe back pain and is on 400mg? of

Fentanyl-was told he has to be registered with DEA because of the amount he has

to take. That sounds a bit drastic to me, but we all have different pain levels.

I've used lidocaine patches quite a bit, it helps some of the pain some of the

time. I found no difference in my level of pain being here with all the dampness

and humidity. or being in Vegas-for me there's no difference weatherwise on my

pain level. At least I'll be seeing the sun in a few hours, but will be missing

my daughter and grandkids terribly.

Hope everyone is doing well-I'm off to the airport

Jeannie

From: Coleen Fox <foxycol63 (DOT) com>

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

PainInTheNeck- Back@groups .com

Date: Saturday, December 19, 2009, 11:00 AM

 

hi Harold,

Thanks for your email.  I am running out of steam after yesterday.  Will try

and catch up tomorrow or soon.

Wish I could write you more right now but am pooped now.  I was reading emails

and looking up neurosurgeons and these patches on a slow modem.  nap time.

gentle hugs and many sincere thanks to you, Coleen :)

____________ _________ _________ __

From: harold ewing autarksbcglobal (DOT) net

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 12:03:03 PM

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

Colleen,

I have tried fentynal in many forms, Patches included.  Fentanyl is a very

short lived substance(metaboliz es quickly, about 1.25 hrs..even with the 100mcg

patch i was severly diapointed ot in the Actiq lozonges up to 1200mcg ... very

little relief . My dr told me they were purely for " breakthru " pain and not for

chronic use. For me, they were a waste of time compared to oxycodone but with

pain of such severity(510 mg of oxy/day) not a lot helps but i do kno this they

are the shortest acting narcotic i have had and can cost a lot.  I didnt notice

the patches at all and i was told that fentanyl is strong and even dangerous. 

I researched it thru many sources and concluded it was more to sell than to

help.

Good luck finding the right med..it isnt easy.

Harold

____________ _________ _________ __

From: Coleen Fox <foxycol63 (DOT) com>

hugs N Pain <Hugs-N-Pain>; spinedisorderssuppo

rtgroup@gro ups.com; Spondylolisthesissu pport@group s.com;

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 11:12:20 AM

Subject: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

 

hi all,

At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

I told her that the more I am up and around the more I have to take.  I told

reminded her again that

walking is very painful for me and that I almost couldn't make it out of Walmart

last month I hurt so bad.

So she asked if I would like to try these patches listed below and I told her I

would love to try something that might give me longer lasting relief as long as

I could stay on my normal prescription routine until I knew the patches worked

for me as it is hard to get in to see her, she is very busy.  So finally I get

to try these 2 patches.

I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

Fentanyl patch and Lidocaine patch.

I am just now looking them up.  If anyone can clue me in on the ups and downs

of them, plus your own experiences with them, that would be very appreciated.

She kept asked where my pain was.  I told her it is in the middle of my back

and then also down at L4-5.

I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those moon

pies were going to do it to me

but they are so good but make it more painful to walk with the added pounds.. 

I can't carry weight.   The peanut butter and jelly sandwiches didn't help

either, I was eating them because I am getting my teeth pulled for dentures and

can't chew very well.  I usually eat like a bird anyways so I think I can just

cut down the portions and hopefully lose a few pounds.  How can I exercize? 

My doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

So, any input on those patches would be great.  The pain radiates from my spine

but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I

need all the help/advice I can get.

Thanks, Coleen

Link to comment
Share on other sites

Thank you -- I( still am going to try at least for one time

Annie

 A poet is, after all, to see

________________________________

From: harold ewing <autark@...>

neck pain

Sent: Fri, January 8, 2010 8:51:57 PM

Subject: Re: Going to try Lidocaine and Fentanyl patches

Annie.

Pain Clinics were a dead end for me.  I ended up with my Dr i see

regularly(Internal or Adult medicine)as the pain clinics pushed the injections

due they are an expensive med and expensive procedure and benifit the dr much

more than the patient ( I have been told, read  and told as well by DR that the

injections are not for chronic pain as they , if used often have bad side

effects and very few patients benifit from them (did nothing for me)but the Dr

makes a bundle at the expense of risking your health and you most likely wont

improve...sourses, a Dr of Pallative Medicine, Head Proffessor of Internal med.

at Washington Univ., Data Administrator of billing office, Trainer for

EMR(Electronic medical records)I tr5ied to get info from all levels and i was

very suprised at some things I learned.

The Pain Clinics seemed to be set up to make money rather than help you and

had strange ideas about dealing with pain in General, one was so strange that

The State Board of Pharmacy closed them down for not labeling the contents of a

concoction containing narcotics and other meds in accordance with the labeling

act, any way I got a bad Impression.

Good luck,

GHEII

Sent: Fri, January 8, 2010 8:34:50 AM

Subject: Re: Going to try Lidocaine and Fentanyl patches

 

HI group,

I am going to be seen in the pain clinic next week and was wondering what if any

experiences any of you have had with these places?

I was mailed a form of 15 pages that asked everything about my background and

some if it was intimidating.

I know that they have to have a good medical history but this was an

inquisistation.

Any ideas of how to proceed? I just want to seek out  injections maybe--not into

looking for more drugs!

Annie

 A poet is, after all, to see

____________ _________ _________ __

From: Abbott <jeannieboo1>

PainInTheNeck- Back@groups .com

Sent: Fri, January 8, 2010 2:02:55 AM

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

Hi Harold

Am trying to kill time while waiting to leave for the airport on my way back to

Vegas from Seattle. It's very emotional now, will definitely be taking Xanax in

a few minutes..

My husband's ex-wife married a guy who has severe back pain and is on 400mg? of

Fentanyl-was told he has to be registered with DEA because of the amount he has

to take. That sounds a bit drastic to me, but we all have different pain levels.

I've used lidocaine patches quite a bit, it helps some of the pain some of the

time. I found no difference in my level of pain being here with all the dampness

and humidity. or being in Vegas-for me there's no difference weatherwise on my

pain level. At least I'll be seeing the sun in a few hours, but will be missing

my daughter and grandkids terribly.

Hope everyone is doing well-I'm off to the airport

Jeannie

From: Coleen Fox <foxycol63 (DOT) com>

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

PainInTheNeck- Back@groups .com

Date: Saturday, December 19, 2009, 11:00 AM

 

hi Harold,

Thanks for your email.  I am running out of steam after yesterday.  Will try and

catch up tomorrow or soon.

Wish I could write you more right now but am pooped now.  I was reading emails

and looking up neurosurgeons and these patches on a slow modem.  nap time.

gentle hugs and many sincere thanks to you, Coleen :)

____________ _________ _________ __

From: harold ewing autarksbcglobal (DOT) net

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 12:03:03 PM

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

Colleen,

I have tried fentynal in many forms, Patches included.  Fentanyl is a very short

lived substance(metaboliz es quickly, about 1.25 hrs..even with the 100mcg patch

i was severly diapointed ot in the Actiq lozonges up to 1200mcg ... very little

relief . My dr told me they were purely for " breakthru " pain and not for chronic

use. For me, they were a waste of time compared to oxycodone but with pain of

such severity(510 mg of oxy/day) not a lot helps but i do kno this they are the

shortest acting narcotic i have had and can cost a lot.  I didnt notice the

patches at all and i was told that fentanyl is strong and even dangerous.  I

researched it thru many sources and concluded it was more to sell than to help.

Good luck finding the right med..it isnt easy.

Harold

____________ _________ _________ __

From: Coleen Fox <foxycol63 (DOT) com>

hugs N Pain <Hugs-N-Pain>; spinedisorderssuppo

rtgroup@gro ups.com; Spondylolisthesissu pport@group s.com;

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 11:12:20 AM

Subject: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

 

hi all,

At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

I told her that the more I am up and around the more I have to take.  I told

reminded her again that

walking is very painful for me and that I almost couldn't make it out of Walmart

last month I hurt so bad.

So she asked if I would like to try these patches listed below and I told her I

would love to try something that might give me longer lasting relief as long as

I could stay on my normal prescription routine until I knew the patches worked

for me as it is hard to get in to see her, she is very busy.  So finally I get

to try these 2 patches.

I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

Fentanyl patch and Lidocaine patch.

I am just now looking them up.  If anyone can clue me in on the ups and downs of

them, plus your own experiences with them, that would be very appreciated.

She kept asked where my pain was.  I told her it is in the middle of my back and

then also down at L4-5.

I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those moon

pies were going to do it to me

but they are so good but make it more painful to walk with the added pounds..  I

can't carry weight.   The peanut butter and jelly sandwiches didn't help either,

I was eating them because I am getting my teeth pulled for dentures and can't

chew very well.  I usually eat like a bird anyways so I think I can just cut

down the portions and hopefully lose a few pounds.  How can I exercize?  My

doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

So, any input on those patches would be great.  The pain radiates from my spine

but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

Thanks, Coleen

Link to comment
Share on other sites

hi annie, i go to a pain clinic, my pain doctor handles all my rx's and also

does my epidurals in my neck and lumbar. he is my hero. i would not have any

quality of life without his help. we tried blocks but they did not help me at

all. like anything, there are good and bad and everyone reacts differently to

different treatments. just my 2 cents, wyld

From: Coleen Fox <foxycol63 (DOT) com>

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

PainInTheNeck- Back@groups .com

Date: Saturday, December 19, 2009, 11:00 AM

 

hi Harold,

Thanks for your email.  I am running out of steam after yesterday.  Will try

and catch up tomorrow or soon.

Wish I could write you more right now but am pooped now.  I was reading emails

and looking up neurosurgeons and these patches on a slow modem.  nap time.

gentle hugs and many sincere thanks to you, Coleen :)

____________ _________ _________ __

From: harold ewing autarksbcglobal (DOT) net

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 12:03:03 PM

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

Colleen,

I have tried fentynal in many forms, Patches included.  Fentanyl is a very

short lived substance(metaboliz es quickly, about 1.25 hrs..even with the 100mcg

patch i was severly diapointed ot in the Actiq lozonges up to 1200mcg ... very

little relief . My dr told me they were purely for " breakthru " pain and not for

chronic use. For me, they were a waste of time compared to oxycodone but with

pain of such severity(510 mg of oxy/day) not a lot helps but i do kno this they

are the shortest acting narcotic i have had and can cost a lot.  I didnt notice

the patches at all and i was told that fentanyl is strong and even dangerous. 

I researched it thru many sources and concluded it was more to sell than to

help.

Good luck finding the right med..it isnt easy.

Harold

____________ _________ _________ __

From: Coleen Fox <foxycol63 (DOT) com>

hugs N Pain <Hugs-N-Pain>; spinedisorderssuppo

rtgroup@gro ups.com; Spondylolisthesissu pport@group s.com;

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 11:12:20 AM

Subject: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

 

hi all,

At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

I told her that the more I am up and around the more I have to take.  I told

reminded her again that

walking is very painful for me and that I almost couldn't make it out of Walmart

last month I hurt so bad.

So she asked if I would like to try these patches listed below and I told her I

would love to try something that might give me longer lasting relief as long as

I could stay on my normal prescription routine until I knew the patches worked

for me as it is hard to get in to see her, she is very busy.  So finally I get

to try these 2 patches.

I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

Fentanyl patch and Lidocaine patch.

I am just now looking them up.  If anyone can clue me in on the ups and downs

of them, plus your own experiences with them, that would be very appreciated.

She kept asked where my pain was.  I told her it is in the middle of my back

and then also down at L4-5.

I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those moon

pies were going to do it to me

but they are so good but make it more painful to walk with the added pounds.. 

I can't carry weight.   The peanut butter and jelly sandwiches didn't help

either, I was eating them because I am getting my teeth pulled for dentures and

can't chew very well.  I usually eat like a bird anyways so I think I can just

cut down the portions and hopefully lose a few pounds.  How can I exercize? 

My doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

So, any input on those patches would be great.  The pain radiates from my spine

but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I

need all the help/advice I can get.

Thanks, Coleen

Link to comment
Share on other sites

Wyld

how have you been? we used to talk more but you dissapeared,?

I am in the cold fronds of Florida.

Annie

 A poet is, after all, to see

________________________________

From: Wyld <wild1inmt@...>

neck pain

Sent: Sat, January 9, 2010 6:19:52 AM

Subject: Re: Going to try Lidocaine and Fentanyl patches

hi annie, i go to a pain clinic, my pain doctor handles all my rx's and also

does my epidurals in my neck and lumbar. he is my hero. i would not have any

quality of life without his help. we tried blocks but they did not help me at

all. like anything, there are good and bad and everyone reacts differently to

different treatments. just my 2 cents, wyld

From: Coleen Fox <foxycol63 (DOT) com>

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

PainInTheNeck- Back@groups .com

Date: Saturday, December 19, 2009, 11:00 AM

 

hi Harold,

Thanks for your email.  I am running out of steam after yesterday.  Will try and

catch up tomorrow or soon.

Wish I could write you more right now but am pooped now.  I was reading emails

and looking up neurosurgeons and these patches on a slow modem.  nap time.

gentle hugs and many sincere thanks to you, Coleen :)

____________ _________ _________ __

From: harold ewing autarksbcglobal (DOT) net

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 12:03:03 PM

Subject: Re: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

Colleen,

I have tried fentynal in many forms, Patches included.  Fentanyl is a very short

lived substance(metaboliz es quickly, about 1.25 hrs..even with the 100mcg patch

i was severly diapointed ot in the Actiq lozonges up to 1200mcg ... very little

relief . My dr told me they were purely for " breakthru " pain and not for chronic

use. For me, they were a waste of time compared to oxycodone but with pain of

such severity(510 mg of oxy/day) not a lot helps but i do kno this they are the

shortest acting narcotic i have had and can cost a lot.  I didnt notice the

patches at all and i was told that fentanyl is strong and even dangerous.  I

researched it thru many sources and concluded it was more to sell than to help.

Good luck finding the right med..it isnt easy.

Harold

____________ _________ _________ __

From: Coleen Fox <foxycol63 (DOT) com>

hugs N Pain <Hugs-N-Pain>; spinedisorderssuppo

rtgroup@gro ups.com; Spondylolisthesissu pport@group s.com;

PainInTheNeck- Back@groups .com

Sent: Thu, December 17, 2009 11:12:20 AM

Subject: [PainInTheNeck- Back] Going to try Lidocaine and Fentanyl patches

 

hi all,

At my doctor's appt the 15th she asked me how I was doing on Oxycodone and I

told her the truth.

I told her that the more I am up and around the more I have to take.  I told

reminded her again that

walking is very painful for me and that I almost couldn't make it out of Walmart

last month I hurt so bad.

So she asked if I would like to try these patches listed below and I told her I

would love to try something that might give me longer lasting relief as long as

I could stay on my normal prescription routine until I knew the patches worked

for me as it is hard to get in to see her, she is very busy.  So finally I get

to try these 2 patches.

I haven't gotten them yet but wanted some input from you all and how you like

them and what not.

Fentanyl patch and Lidocaine patch.

I am just now looking them up.  If anyone can clue me in on the ups and downs of

them, plus your own experiences with them, that would be very appreciated.

She kept asked where my pain was.  I told her it is in the middle of my back and

then also down at L4-5.

I told her I have radiculopathy (sp?).   She knew that already, I wasn't even

sure on how to pronounce it.

I got my phone interview for SSI yesterday and she will send out papers for me

to go over to make sure they are correct and then I will send them back in or

take them personally to their office because I will be up there anyways.  So

this should be a good thing.

Whew!  Oh yes, another thing, I gained weight, over my limit, I knew those moon

pies were going to do it to me

but they are so good but make it more painful to walk with the added pounds..  I

can't carry weight.   The peanut butter and jelly sandwiches didn't help either,

I was eating them because I am getting my teeth pulled for dentures and can't

chew very well.  I usually eat like a bird anyways so I think I can just cut

down the portions and hopefully lose a few pounds.  How can I exercize?  My

doctor said to walk around a bit, ug, that just requires more pain meds 

lol.....boohoo.

So, any input on those patches would be great.  The pain radiates from my spine

but I also know that sciatic nerve goes through the hip on both sides.  My

normal pain is middle back and left lower back/hip.  So where do I put the

patch?  Wouldn't I put them on the spine from where you would think the pain

starts from because of bones rubbing against each other on the nerves?   I need

all the help/advice I can get.

Thanks, Coleen

Link to comment
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