Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hi Debra, Thanks so much for the response to my query. I really appreciate it! I am sorry I am only now responding, I was laid low the past few days with some pretty heavy breakthrough pain. I have been taking Opana ER now for 6 days and really don't feel a whole lot of difference. As I stated earlier - I have been having a lot of breakthrough pain the past four days. The pain wakes me up, we are talking pain like I haven't had since I first had my diskectomy - 10+ on the pain scale. My pain Dr had advised that I could take half of my normal hydrocodone pill for breakthrough pain. I find I am taking at least one half dose of the hydrocodone a day on top of the Opana to barely make it through. I don't want to take extra and invalidate the trial time to see if med will work - but would like to be able to get out of bed in the morning. Called and spoke with my pharmacist and they said they have me the lowest dose available - 7.5 mg. Not sure about the dilaudid - I don't recognize the name right off the bat, sorry. Are there any other names for this med? I got lucky and my insurance covered the med - up to a point. Also, I received an info pack that had a trial card that gives a discount on the first 12 doses - so that was a real blessing. Thanks again for your kind reply and the info you were nice enough to forward along from your personal knowledge and experience. Let me say once again, I am extremely grateful and appreciative. It always helps me to know that when I am hurting my worst - that somewhere out there - someone else understands, has experienced, lived through and survived. Thanks and Blessings, Callie -------------------------------------------------------------------- Re: Anyone with experience with Opana ER? Posted by: " Debra " Fri Oct 17, 2008 7:18 pm (PDT) Callie, This medicine could be a g-dsend for you....it is long acting dilaudid......dilaudid is an excellent drug and often doesn't have some of the side effects.....the easiest way to explain Is you have when you are speaking in the codeine family you have codeine..and then the perfected as I call it drug from that or the engineered drug is hydro codone......not " naturally occurring but say engineered. You then have morphine the synthetic drug of morphine is hydromorphone otherwise known as dilaudid. Give it a try.......it might suit you perfect.....have you ever tried dilaudid for bt pain.....I used to use all the time and it was very effective........ Unfortunatly the reason no one carries probably has to do with the cost of the drug. Deb RN ____________________________________________________________ Save hundreds on Beauty School - Click here. http://thirdpartyoffers.juno.com/TGL2131/fc/Ioyw6iiglKzSZJzAtSmV3ZrrH6QN9iI7eCV6\ A3AfgfvrxVD9P9aM2p/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 My doctor had me try Opana ER 10mg and I have to agree with you. It did nothing for me. I went back to my norco. It works for me. I do have to take more since it isn't long lasting, but at least it works. I did not get any relief from Opana. I hope that helps. Lynda > > Hi Debra, > > Thanks so much for the response to my query. I really appreciate it! I am sorry I am only now responding, I was laid low the past few days with some pretty heavy breakthrough pain. > > I have been taking Opana ER now for 6 days and really don't feel a whole lot of difference. As I stated earlier - I have been having a lot of breakthrough pain the past four days. The pain wakes me up, we are talking pain like I haven't had since I first had my diskectomy - 10+ on the pain scale. My pain Dr had advised that I could take half of my normal hydrocodone pill for breakthrough pain. I find I am taking at least one half dose of the hydrocodone a day on top of the Opana to barely make it through. I don't want to take extra and invalidate the trial time to see if med will work - but would like to be able to get out of bed in the morning. Called and spoke with my pharmacist and they said they have me the lowest dose available - 7.5 mg. > > Not sure about the dilaudid - I don't recognize the name right off the bat, sorry. Are there any other names for this med? > > I got lucky and my insurance covered the med - up to a point. Also, I received an info pack that had a trial card that gives a discount on the first 12 doses - so that was a real blessing. > > Thanks again for your kind reply and the info you were nice enough to forward along from your personal knowledge and experience. Let me say once again, I am extremely grateful and appreciative. It always helps me to know that when I am hurting my worst - that somewhere out there - someone else understands, has experienced, lived through and survived. > > Thanks and Blessings, > Callie > > > -------------------------------------------------------------------- > Re: Anyone with experience with Opana ER? > Posted by: " Debra " > Fri Oct 17, 2008 7:18 pm (PDT) > Callie, > This medicine could be a g-dsend for you....it is long acting > dilaudid......dilaudid is an excellent drug and often doesn't have some of > the side effects.....the easiest way to explain > Is you have when you are speaking in the codeine family you have > codeine..and then the perfected as I call it drug from that or the > engineered drug is hydro codone......not " naturally occurring but say > engineered. You then have morphine the synthetic drug of morphine is > hydromorphone otherwise known as dilaudid. Give it a try.......it might > suit you perfect.....have you ever tried dilaudid for bt pain.....I used to > use all the time and it was very effective........ > > Unfortunatly the reason no one carries probably has to do with the cost of > the drug. > > Deb RN > > ____________________________________________________________ > Save hundreds on Beauty School - Click here. > http://thirdpartyoffers.juno.com/TGL2131/fc/Ioyw6iiglKzSZJzAtSmV3ZrrH6QN9iI7eCV6\ A3AfgfvrxVD9P9aM2p/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Hi,I have been taking OpanaEr for two years now-I take 20mg twice a day-with 4 mg hydromorphone for breakthroug up to 6 a day(if needed).I also take 15mg Restoril at night if its really bad.I started the Opana at 10mg,the reason I take is I am allergic to so much(anything with codiene,OxyContin-etc.)......Some days are really bad,I tell myself its proably worse if not on these drugs,most days are about a7-8(pain) with bouts all day of screaming breakthrough pain..I cant even remember what its like to wake up and feel no pain-pretty sad..............Best,Dottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Dottie, Have you asked your doc about increasing your drug. A pain journal might be what you need.....a 7-8 is pretty high to be dealing with on a daily basis? Do you see a pain management doc? Deb RN From: spinal problems [mailto:spinal problems ] On Behalf Of Dottie Neubert Sent: Tuesday, October 21, 2008 12:30 PM spinal problems Subject: Re: Opana ER - To Debra Hi,I have been taking OpanaEr for two years now-I take 20mg twice a day-with 4 mg hydromorphone for breakthroug up to 6 a day(if needed).I also take 15mg Restoril at night if its really bad.I started the Opana at 10mg,the reason I take is I am allergic to so much(anything with codiene,OxyContin-etc.)......Some days are really bad,I tell myself its proably worse if not on these drugs,most days are about a7-8(pain) with bouts all day of screaming breakthrough pain..I cant even remember what its like to wake up and feel no pain-pretty sad..............Best,Dottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Callie, The good thing..it sounds like you are not having side effects which means that there is room to increase the drug. Speak with your doc and ask him to increase the drug. I hope that you start feeling better..... Deb RN From: spinal problems [mailto:spinal problems ] On Behalf Of ljw75010 Sent: Tuesday, October 21, 2008 12:20 PM spinal problems Subject: Re: Opana ER - To Debra My doctor had me try Opana ER 10mg and I have to agree with you. It did nothing for me. I went back to my norco. It works for me. I do have to take more since it isn't long lasting, but at least it works. I did not get any relief from Opana. I hope that helps. Lynda > > Hi Debra, > > Thanks so much for the response to my query. I really appreciate it! I am sorry I am only now responding, I was laid low the past few days with some pretty heavy breakthrough pain. > > I have been taking Opana ER now for 6 days and really don't feel a whole lot of difference. As I stated earlier - I have been having a lot of breakthrough pain the past four days. The pain wakes me up, we are talking pain like I haven't had since I first had my diskectomy - 10+ on the pain scale. My pain Dr had advised that I could take half of my normal hydrocodone pill for breakthrough pain. I find I am taking at least one half dose of the hydrocodone a day on top of the Opana to barely make it through. I don't want to take extra and invalidate the trial time to see if med will work - but would like to be able to get out of bed in the morning. Called and spoke with my pharmacist and they said they have me the lowest dose available - 7.5 mg. > > Not sure about the dilaudid - I don't recognize the name right off the bat, sorry. Are there any other names for this med? > > I got lucky and my insurance covered the med - up to a point. Also, I received an info pack that had a trial card that gives a discount on the first 12 doses - so that was a real blessing. > > Thanks again for your kind reply and the info you were nice enough to forward along from your personal knowledge and experience. Let me say once again, I am extremely grateful and appreciative. It always helps me to know that when I am hurting my worst - that somewhere out there - someone else understands, has experienced, lived through and survived. > > Thanks and Blessings, > Callie > > > ---------------------------------------------------------- > Re: Anyone with experience with Opana ER? > Posted by: " Debra " > Fri Oct 17, 2008 7:18 pm (PDT) > Callie, > This medicine could be a g-dsend for you....it is long acting > dilaudid......dilaudid is an excellent drug and often doesn't have some of > the side effects.....the easiest way to explain > Is you have when you are speaking in the codeine family you have > codeine..and then the perfected as I call it drug from that or the > engineered drug is hydro codone......not " naturally occurring but say > engineered. You then have morphine the synthetic drug of morphine is > hydromorphone otherwise known as dilaudid. Give it a try.......it might > suit you perfect.....have you ever tried dilaudid for bt pain.....I used to > use all the time and it was very effective........ > > Unfortunatly the reason no one carries probably has to do with the cost of > the drug. > > Deb RN > > __________________________________________________________ > Save hundreds on Beauty School - Click here. > http://thirdpartyoffers.juno.com/TGL2131/fc/Ioyw6iiglKzSZJzAtSmV3ZrrH6QN9iI7 eCV6A3AfgfvrxVD9P9aM2p/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Hi Debra, Thanks for the response. I am extremely happy about not having any side effects - you don't know how happy. I hate reading the info papers the pharmacy sends home and the " little " talks the pharmacist has with you about your meds when you pick up your prescriptions. I think these are important - but a cruel twist of fate as everyone I talk to says that they only make them not want to take the medications. My dilemma now is finding the line between not breaching the trial period of the Opana Er by invalidating the outcome with too much of the short acting hydrocodone and trying to get some relief from the constant pain as I am not sleeping well (past several nites I have only gotten about 2 hrs each) and am having trouble moving around doing my daily routines. My migraines (which are a normal, about 1 a week, due to the nature of my spinal condition) are up to about 1 a day now in varied but gradually increasing intensity and duration. I am even having some of my pre-surgery complaints returning - IE. limited lifting of hands and arms over shoulder height, arm strength and hand grip. I am again dropping dishes, much to the dismay of my husband, my cat and my kitchen floor. :/ I would be interested and appreciative in hearing your $.02 on the issue of taking pre-trail med during an initial trial time on new med, if you don't mind. Thanks and Blessings, Callie ------------------------------------------------------ Re: Opana ER - To Debra Posted by: " Debra " Tue Oct 21, 2008 12:20 pm (PDT) Callie, The good thing..it sounds like you are not having side effects which means that there is room to increase the drug. Speak with your doc and ask him to increase the drug. I hope that you start feeling better..... Deb RN _____________________________________________________________ Compete with the big boys. Click here to find products to benefit your business. http://thirdpartyoffers.juno.com/TGL2111/fc/Ioyw6iifXQ9HP7HdVFvmb2mzD9pUJyAN2oQg\ aNeSIi6ADD3XxCQuHj/?count=1234567890 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Callie, I am unsure about how many days you have been on the meds. Most pain docs will make weekly appointments when manipulating or titrating drugs. If the dr doesn't suggest you certainly can. I have never been told not to take bt meds during a new drug. The point is to start you at a low level...certainly take your bt meds as needed...keep track on how many bt pills a day. Make note if you are having side effects...if no side effects and you are requiring frequent bt meds.....ask the doctor to increase the dose. You know that you are on a reasonable dose when you are not requiring BT meds every three hours. The only time the doc is limited on the dose he can go up to is when and if you are having intolerable side effects. Talk your doc..communication is the key to successful medical care. Granted, some docs do not want to prescribe any break thru drugs. For me, this means that you would be consistently on too high of a dose too account for the severe pain. By utilizing break thru...you can be on a lower constant dose and bump it up as needed by utilizing fast acting meds. I always think it is reasonable to ask pain doc for meds to work in conjunction with pain meds such as sleeping pills, muscle relaxers or SSRI's etc. Deb RN Re: Opana ER - To Debra Hi Debra, Thanks for the response. I am extremely happy about not having any side effects - you don't know how happy. I hate reading the info papers the pharmacy sends home and the " little " talks the pharmacist has with you about your meds when you pick up your prescriptions. I think these are important - but a cruel twist of fate as everyone I talk to says that they only make them not want to take the medications. My dilemma now is finding the line between not breaching the trial period of the Opana Er by invalidating the outcome with too much of the short acting hydrocodone and trying to get some relief from the constant pain as I am not sleeping well (past several nites I have only gotten about 2 hrs each) and am having trouble moving around doing my daily routines. My migraines (which are a normal, about 1 a week, due to the nature of my spinal condition) are up to about 1 a day now in varied but gradually increasing intensity and duration. I am even having some of my pre-surgery complaints returning - IE. limited lifting of hands and arms over shoulder height, arm strength and hand grip. I am again dropping dishes, much to the dismay of my husband, my cat and my kitchen floor. :/ I would be interested and appreciative in hearing your $.02 on the issue of taking pre-trail med during an initial trial time on new med, if you don't mind. Thanks and Blessings, Callie ------------------------------------------------------ Re: Opana ER - To Debra Posted by: " Debra " Tue Oct 21, 2008 12:20 pm (PDT) Callie, The good thing..it sounds like you are not having side effects which means that there is room to increase the drug. Speak with your doc and ask him to increase the drug. I hope that you start feeling better..... Deb RN _____________________________________________________________ Compete with the big boys. Click here to find products to benefit your business. http://thirdpartyoffers.juno.com/TGL2111/fc/Ioyw6iifXQ9HP7HdVFvmb2mzD9pUJyAN 2oQgaNeSIi6ADD3XxCQuHj/?count=1234567890 ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Hi Debra, Thanks for getting back to me. I really appreciate your opinion. That is basically how I feel about the issue of Opana vs breakthrough meds. I just wondered if I was alone in my opinion. Now I guess I will just have to see if my pain Dr thinks the same way, wont I? I go to my Dr this morning so hopefully I will be able to get resolution and relief very soon. The whole idea of the Opana is to take less med and get more consistent pain coverage relief. I am taking a few more pills a day now (including a new Neuropathy pill Dr has me on and the additional half doses of original pain med and my original muscle relaxer/sleeping med) as I was before beginning the Opana and was just on the Hydrocodone and epam - with way less results/pain relief. As you can see I am sitting here typing this at 5 am. I have been up since 3:30 when the pain woke me up. Looked back at the pain diary they have had me keep as well as my own private medical diary I have been keeping since my surgery and I haven't been below an 8 since the day after I stopped my original med regimen. I am almost positive they will have to increase dosage or change meds. I plan on taking the diary with me when I go to Dr this morning to hopefully help the Dr better understand my predicament. Fingers crossed and whispering a prayer. Thanks again for your kind and knowledgeable words. They gave comfort in a time of unease. Blessings, Callie -------------------------------------------------------------- Re: Opana ER - To Debra Posted by: " Debra " Wed Oct 22, 2008 6:21 pm (PDT) Callie, I am unsure about how many days you have been on the meds. Most pain docs will make weekly appointments when manipulating or titrating drugs. If the dr doesn't suggest you certainly can. I have never been told not to take bt meds during a new drug. The point is to start you at a low level...certainly take your bt meds as needed...keep track on how many bt pills a day. Make note if you are having side effects...if no side effects and you are requiring frequent bt meds.....ask the doctor to increase the dose. You know that you are on a reasonable dose when you are not requiring BT meds every three hours. The only time the doc is limited on the dose he can go up to is when and if you are having intolerable side effects. Talk your doc..communication is the key to successful medical care. Granted, some docs do not want to prescribe any break thru drugs. For me, this means that you would be consistently on too high of a dose too account for the severe pain. By utilizing break thru...you can be on a lower constant dose and bump it up as needed by utilizing fast acting meds. I always think it is reasonable to ask pain doc for meds to work in conjunction with pain meds such as sleeping pills, muscle relaxers or SSRI's etc. Deb RN _____________________________________________________________________ A New Way to Get Free & Discounted Offers -- FreeInternet.com! Visit http://offers.juno.com/TGL1111/?u=http://www.freeinternet.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Callie, No problem. The purpose of switching drugs is for better pain control. Sometimes DR's switch for convenience for the patience sake. Ie to a twenty for hour dosing or to fentanyl patches which are a 72 hour drug. I switched to the patches because I would always forget to take my meds with me when I would o out and then bam I would be in w/d. Well let me know what your doc did.....I would bet he increased the dose. I hope that you are feeling better. Deb Re: Opana ER - To Debra Hi Debra, Thanks for getting back to me. I really appreciate your opinion. That is basically how I feel about the issue of Opana vs breakthrough meds. I just wondered if I was alone in my opinion. Now I guess I will just have to see if my pain Dr thinks the same way, wont I? I go to my Dr this morning so hopefully I will be able to get resolution and relief very soon. The whole idea of the Opana is to take less med and get more consistent pain coverage relief. I am taking a few more pills a day now (including a new Neuropathy pill Dr has me on and the additional half doses of original pain med and my original muscle relaxer/sleeping med) as I was before beginning the Opana and was just on the Hydrocodone and epam - with way less results/pain relief. As you can see I am sitting here typing this at 5 am. I have been up since 3:30 when the pain woke me up. Looked back at the pain diary they have had me keep as well as my own private medical diary I have been keeping since my surgery and I haven't been below an 8 since the day after I stopped my original med regimen. I am almost positive they will have to increase dosage or change meds. I plan on taking the diary with me when I go to Dr this morning to hopefully help the Dr better understand my predicament. Fingers crossed and whispering a prayer. Thanks again for your kind and knowledgeable words. They gave comfort in a time of unease. Blessings, Callie -------------------------------------------------------------- Re: Opana ER - To Debra Posted by: " Debra " Wed Oct 22, 2008 6:21 pm (PDT) Callie, I am unsure about how many days you have been on the meds. Most pain docs will make weekly appointments when manipulating or titrating drugs. If the dr doesn't suggest you certainly can. I have never been told not to take bt meds during a new drug. The point is to start you at a low level...certainly take your bt meds as needed...keep track on how many bt pills a day. Make note if you are having side effects...if no side effects and you are requiring frequent bt meds.....ask the doctor to increase the dose. You know that you are on a reasonable dose when you are not requiring BT meds every three hours. The only time the doc is limited on the dose he can go up to is when and if you are having intolerable side effects. Talk your doc..communication is the key to successful medical care. Granted, some docs do not want to prescribe any break thru drugs. For me, this means that you would be consistently on too high of a dose too account for the severe pain. By utilizing break thru...you can be on a lower constant dose and bump it up as needed by utilizing fast acting meds. I always think it is reasonable to ask pain doc for meds to work in conjunction with pain meds such as sleeping pills, muscle relaxers or SSRI's etc. Deb RN _____________________________________________________________________ A New Way to Get Free & Discounted Offers -- FreeInternet.com! Visit http://offers.juno.com/TGL1111/?u=http://www.freeinternet.com ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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