Re: Tough breathing

[Guest guest]

>

> Hi everyone,

>

> I need some help.

> I have been taking Xolair injections, one in each arm for about 4

> months now. I thought I was lucky because I was actually feeling

> quite well and attributed the good feeling to the Xolair. Great!!

>

> Well, last weekend while I was mowing I experienced shortness of

> breath a couple of times and had to use my inhaler. It helped but

> only for a short while.

>

> Yesterday, I spent the afternoon at my sons track meet which took 8

> hours to complete (he was next to the last to run). By the time it

> ended it became a little chilly and a bit uncomfortable. Thoughout

> the afternoon, I found it very difficult to breathe and again had to

> resort to using my inhaler a number of times just to walk from one

> side of the field to the other. When I got home I had to use my

> nebulizer before going to bed simply to make breathing easier. The

> mucus in my throat and chest is causing me to wheeze and cough quite

> a lot. This morning I am breathing OK but I am congested and

> wheezing a little. I have an appointment this afternoon with the

> DR. I hope she does not recommend going back on Prednisone.

>

> I thought Xolair should be relieving many of these asthmatic

> symptoms and therefore making living easier. Am I wrong?

>

> Maybe it is it too soon for Xolair to be doing its thing?

>

> Will these symptoms soon go away after I have been taking the

> injections for a while longer? I hate to be paying as much as I do

> for Xolair if it does not work for me.

>

> Has anyone been on Xolair and had to continue dealing with shortness

> of breath and the other symptoms of asthma?

>

> Thanks for the help.

Steve,

II sure wish that Xolair was a rescue medication but unfortunately, it

is not! Sigh!

I have been on it about 3 years now. It took just about a year to feel

the full benefits. I have been on plenty of bursts of " evil candy "

since starting Xolair but mostly the first year and a half. This year

I am pred free and the pollen and dust are HORRIBLE!

Remember, everyone is different. Some people get relief almost after

the first few shots; others are like me and have to wait a bit.

My advice is to trust your doctor and give it some more time. If she

doctor prescribes Pred take it. Just remember, the odds of you getting

off of it permanently because of Xolair are very high. I know we all

hate the " evil candy " but sometimes it is the only option we have.

Doug

[Guest guest]

Dear Steve,

I have been on Xolair for almost 3 years. I just got my shots last week and

today I was outside watching a softball game between our Varsity and JV team. I

began to have problems breathing and started to be congested. I am on a

decongestent and antihistamine twice a day and a nasal spray that I don't like

because it is a spray not the mist that I used to take. I hate the spray going

down my throat. I came inside and still have some problems but not as bad. But

the others I live with have to have Lilies and other flowers in the house and

then wonder why I am not always as good as they want me to be. I was told that

I fuss tomuch about my asthma. But if a person is not breathing right isn't it

a problem???? Hope this gives you some hope I just keep going and try to avoid

what I can. Some times just going into the car or vehicle for a little bit

helps.

Breathing hopefully,

Sr. Volz, C.R.

Steve <steve@...> wrote:

Hi everyone,

I need some help.

I have been taking Xolair injections, one in each arm for about 4

months now. I thought I was lucky because I was actually feeling

quite well and attributed the good feeling to the Xolair. Great!!

Well, last weekend while I was mowing I experienced shortness of

breath a couple of times and had to use my inhaler. It helped but

only for a short while.

Yesterday, I spent the afternoon at my sons track meet which took 8

hours to complete (he was next to the last to run). By the time it

ended it became a little chilly and a bit uncomfortable. Thoughout

the afternoon, I found it very difficult to breathe and again had to

resort to using my inhaler a number of times just to walk from one

side of the field to the other. When I got home I had to use my

nebulizer before going to bed simply to make breathing easier. The

mucus in my throat and chest is causing me to wheeze and cough quite

a lot. This morning I am breathing OK but I am congested and

wheezing a little. I have an appointment this afternoon with the

DR. I hope she does not recommend going back on Prednisone.

I thought Xolair should be relieving many of these asthmatic

symptoms and therefore making living easier. Am I wrong?

Maybe it is it too soon for Xolair to be doing its thing?

Will these symptoms soon go away after I have been taking the

injections for a while longer? I hate to be paying as much as I do

for Xolair if it does not work for me.

Has anyone been on Xolair and had to continue dealing with shortness

of breath and the other symptoms of asthma?

Thanks for the help.

[Guest guest]

I still have asthma trouble. The way I understand it, the Xolair is

for the allergic end of asthma. I still have to use prednisone when I

catch a respritory virus or develop an infection. I also still have

attacks when exposed to enviromental stuff like smoke or high ozone

levels and the such. The Xolair has helped tremendously, but it

hasn't gotten rid of my asthma completely.

Hope this helps.

[Guest guest]

Dear Sr Volz:

A person with asthma has a right to live without triggers such as flowers

the same as a diabetic has the right to live without their dietary management

being compromised by uncooperative housemates who insist on adding sugar and

other carbohydrates to the cooking pot. Tell your housemates that an RN told

you that. If your housemates compromise your breathing space, you have a right

to fuss. Yes, if a person isn't breathing right, it's a problem.

In nursing school we learn that rescue issues in order of importance are A,

B, C -- airway, breathing, circulation. Your airway is compromised if your

bronchial tubes swell, making breathing difficult. Nowhere does it say anything

about requiring a person to live with flowers.

Your housemates might appreciate a flower garden outside the living room

window, or flowers on the patio, and leave you to clean air in the house.

Carol

Sr. Volz, CR, wrote:

I have been on Xolair for almost 3 years. I just got my shots last week and

today I was outside watching a softball game between our Varsity and JV team. I

began to have problems breathing and started to be congested. I am on a

decongestent and antihistamine twice a day and a nasal spray that I don't like

because it is a spray not the mist that I used to take. I hate the spray going

down my throat. I came inside and still have some problems but not as bad. But

the others I live with have to have Lilies and other flowers in the house and

then wonder why I am not always as good as they want me to be. I was told that

I fuss tomuch about my asthma. But if a person is not breathing right isn't it

a problem???? Hope this gives you some hope I just keep going and try to avoid

what I can. Some times just going into the car or vehicle for a little bit

helps.

[Guest guest]

Dear Carol,

I have been hospitalized a number of times in the last number of years even

after being on Xolair. One time that I was in the hospital and was advised by

my pulmonary doctor to go for Respitory therapy and received the brochure that

tells you about triggers, allergies and other information about asthma and the

care of the patient. My superior went through the book and said that this is my

cause for my asthma. That I drink to much soda and that I use too much sugar in

my tea. As a nurse what do you think.......???? I read the same book and

stress, dust, allergens, flowers, perfumes and molds, carpeting, etc. The only

thing she pointed out and still does not change that is that I drink to much

soda and eat too much sugar. Says nothing about the stress they put me under and

do not support me in having people refrain from perfumes and body lotions that

have sences. I had an asthma attack at rehab one day and the staff though

nothing of it. It was the others that were

in rehab with me that said that there was something wrong. The nurses in rehab

said that that could not happen. But decided that it had indeed happened and

were very careful in the future.

All for now,

As Always,

Sr. Volz, C.R.

Carol Corley <mybouvs@...> wrote:

Dear Sr Volz:

A person with asthma has a right to live without triggers such as flowers

the same as a diabetic has the right to live without their dietary management

being compromised by uncooperative housemates who insist on adding sugar and

other carbohydrates to the cooking pot. Tell your housemates that an RN told

you that. If your housemates compromise your breathing space, you have a right

to fuss. Yes, if a person isn't breathing right, it's a problem.

In nursing school we learn that rescue issues in order of importance are A,

B, C -- airway, breathing, circulation. Your airway is compromised if your

bronchial tubes swell, making breathing difficult. Nowhere does it say anything

about requiring a person to live with flowers.

Your housemates might appreciate a flower garden outside the living room

window, or flowers on the patio, and leave you to clean air in the house.

Carol

Sr. Volz, CR, wrote:

I have been on Xolair for almost 3 years. I just got my shots last week and

today I was outside watching a softball game between our Varsity and JV team. I

began to have problems breathing and started to be congested. I am on a

decongestent and antihistamine twice a day and a nasal spray that I don't like

because it is a spray not the mist that I used to take. I hate the spray going

down my throat. I came inside and still have some problems but not as bad. But

the others I live with have to have Lilies and other flowers in the house and

then wonder why I am not always as good as they want me to be. I was told that

I fuss tomuch about my asthma. But if a person is not breathing right isn't it

a problem???? Hope this gives you some hope I just keep going and try to avoid

what I can. Some times just going into the car or vehicle for a little bit

helps.

[Guest guest]

Sr. Soda has carbon dioxide in it for the bubbles. The carbon dioxide has to

get broken down & exhaled. Those of us with respiratory problems should avoid

making our lives tougher by drinking soda.

Pat

---------------------------------

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[Guest guest]

That sucks! I think that not keeping flowers inside the house is the

least your housemates can do.The question to ask them is that are

the flowers so essential to their well being that it comprimises

your health and the basic act of being able to breathe?? ?

niti

> I have been on Xolair for almost 3 years. I just got my shots

last week and today I was outside watching a softball game between

our Varsity and JV team. I began to have problems breathing and

started to be congested. I am on a decongestent and antihistamine

twice a day and a nasal spray that I don't like because it is a

spray not the mist that I used to take. I hate the spray going down

my throat. I came inside and still have some problems but not as

bad. But the others I live with have to have Lilies and other

flowers in the house and then wonder why I am not always as good as

they want me to be. I was told that I fuss tomuch about my asthma.

But if a person is not breathing right isn't it a problem???? Hope

this gives you some hope I just keep going and try to avoid what I

can. Some times just going into the car or vehicle for a little bit

helps.

>

>

>

>

[Guest guest]

Pat,

That is true but sr was not refering to the carbon dioxide she was refering to

the sugar. What does sugar have to do with a breathing problem?

Thanks for your imput.

Sr. Volz, C.R.

MommaA <mommaa@...> wrote:

Sr. Soda has carbon dioxide in it for the bubbles. The carbon dioxide has to

get broken down & exhaled. Those of us with respiratory problems should avoid

making our lives tougher by drinking soda.

Pat

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

Dear Sr. :

Unfortunately, superiors have a lot of power. But she doesn't have a

medical degree, and she is wrong about your triggers. Did you have allergy

testing? Probable triggers are dust in furniture and carpeting, mold, weeds,

trees, plant pollen, air pollution, animals, strong smells like perfume and body

lotions. Stress and fatigue do seem to cause one to have stronger reactions or

less tolerance to the things she is allergic to. She is wrong about the sodas

and sugar in tea being the cause of your asthma. However, all that sugar

doesn't help your asthma and can contribute to stress and fatigue. Why not try

it her way for a month and if you still have an allergy problem, she can't say

it's your fault. I'm surprised that the nurses in rehab said it wasn't possible

for you to have an asthma attack there. Exercise can bring on an asthma attack,

as can the air quality there, or even anxiety.

Good luck. I think your housemates should keep their flowers outside, for

your sake.

I have a friend with asthma and the only medicine she has to take is

Singular. But if she's around anyone with perfume, or around cut flowers, she

would have an asthma attack. Without those triggers, she's generally fine

unless the air pollution level gets too high in her area.

Carol Corley

Sr. Volz wrote:

I have been hospitalized a number of times in the last number of years even

after being on Xolair. One time that I was in the hospital and was advised by

my pulmonary doctor to go for Respitory therapy and received the brochure that

tells you about triggers, allergies and other information about asthma and the

care of the patient. My superior went through the book and said that this is my

cause for my asthma. That I drink to much soda and that I use too much sugar in

my tea. As a nurse what do you think.......???? I read the same book and

stress, dust, allergens, flowers, perfumes and molds, carpeting, etc. The only

thing she pointed out and still does not change that is that I drink to much

soda and eat too much sugar. Says nothing about the stress they put me under and

do not support me in having people refrain from perfumes and body lotions that

have sences. I had an asthma attack at rehab one day and the staff though

nothing of it. It was the others that were in rehab with me that said that

there was something wrong. The nurses in rehab said that that could not happen.

But decided that it had indeed happened and were very careful in the future.