Thanks for the feedback

[Guest guest]

Debra:

First, the easy question--ph is our only child so

far.

As for the rest, I'm not sure we can say exactly what

made ph begin speaking because it happened so

fast. He went from being completely non-verbal to a

five word vocabulary within a week and it's been

growing ever since. My question to you would be how

your son's receptive skills have been rated. I ask

because ph's receptive skills were very high, even

from the beginning. What we think has happened with

him is that the ABA has been bringing him " out " of his

PDD by forcing him to focus and recognize people, as

well as listen for instructions, etc. However, the

ABA could not bridge the gap to show him how to speak.

He really had no oral awareness and was very

defensive; Joe has a high intolerance for soft foods

which everybody is working on. Once we began the

PROMPT-style therapy, Joe was actually shown HOW to

move his mouth. Because Joe's receptive skills are so

good. he just picked up on it and is now copying it

and using it on his own. So, to put it bluntly, the

ABA softened him up and made him receptive to the

right style of therapy. It sounds like PROMPT is the

right therapy for your son, too.

My thoughts on the lack of initiation is that it's

part of the development. Joe has to learn when speech

is appropriate and the need to use it. Our SLPs have

recommended naming everything like cup, juice, et al

as we're giving them to Joe. At this point, we do not

accept grunts from Joe; we ask him to say or point to

what he wants. If he opts to point, we name the

object and then have him repeat it. We never force

him to say anything; that's the wrong approach for

apraxic children. If Joe doesn't want to repeat it,

we just say what the object is a couple of times and

then provide it. More often than not, he will come

back another time and ask for the object by name.

Like most little boys, something has to be Joe's idea

for him to be willing to do it. Plus, with about 35

hours of therapy a week, I think sometimes Joe just

gets sick and tired of being told what to do. We cut

him some slack sometimes when we know his day was

somewhat heavy.

I wouldn't be too concerned about your son's pointing;

ph had to be taught to point to express his wants

so to me, you're ahead of the game. From your

description, it sounds like your boy's receptive

skills are good and he's responding to what he's being

shown in therapy. The process may seem agonizingly

slow sometimes but hang in there, it's all worth it

when your son will surprise you with something you

didn't think he knew how to do (Joe said " Hi, "

to the school receptionist yesterday--on his own).

Also, I would keep using the Pro-Efa for awhile. It

does no harm to children and like we found, the

effects can be subtle or longer in coming. We didn't

realize what the effect on Joe was until witnessing

his skill deterioration once it was withheld for two

weeks.

Sorry for being so long winded; let me know how this

compares with your son.

Jim

--- lollipop11230 <ltathome80@...> wrote:

> Hi Jim. thank you so much for your response. our

> kids really do sound

> very the same except that mine isn't PDD. He also

> gets prompt therapy

> 3 times a week. We just found a prompt therapist and

> he just started

> making more sounds and trying to repeat any word you

> say although

> most times it doesn't come out clear at all but, he

> does have some

> clear words which is all thanks to the prompt

> tharapy. We just began

> the pro efa aweek ago but, do not see any results

> yet. My question

> is that he also does not speak spontaneously, he

> points first for

> what he wants and then I have to say say the word or

> say orange and

> then he'll say it. You mentioned your son had the

> same problem. What

> made him start talking to get things? Do you have

> any other children?

> Do they also have these issues? Debra

>

>

>

__________________________________________________

[Guest guest]

> Glad to see some response, I appreciate it. That's right it is

like a

> pact with the devil, lol. Does your sex drive return to normal if

I

> quit Lexapro, like the way it was before you ever began taking

> medication? I hope this isn't permanent.

> I have thought about taking just Wellbutrin, but I was given

Lexapro

> to combat anxiety, panic symtoms, and periodic depression. My doc

> told me Wellbutrin wouldn't help, and it might even make me feel

> worse. But I have heard these doctors spin some pretty wild tales

> about medications, they all say some thing different.

> Has anyone tried Effexor? He told me there is very little risk of

> sexual side effects, but I looked at the presciption information

and

> it was the same as all the rest of the SSRI's.

Just a suggestion.....a drug called Serzone is NOT supposed to

affect you sexually. Might be an idea to ask you Dr. about.

SRT

[Guest guest]

In a message dated 3/9/2004 2:22:54 PM Eastern Standard Time,

JaysTownsend@... writes:

> The above suggestions are from my personal experiences with 28 flushes.

>

Jay: Thank you for taking the time to provide an extensive report of your

experiences. Could you give us all a little more info? How long has it taken

you

to flush 28 times? How often do you flush now? What is your standard diet

now?

Thank you.

[Guest guest]

Hi Karin,

I can understand your caution when what you are hearing here goes so

contrary to the established medical " wisdom " in the US. I mean, we

are the greatest in health care, aren't we? And, doctors in general

recommend yanking out the gall bladder instead of nourishing and

cleaning it out.

The more I look into it though, the more questions I come up with

like: why are Americans so unhealthy if our health care is so

great? Answer: because our " health care " system would be more

accurately called " sick care " system. We aren't taught how to get

well and stay well. We are patched up when we are sick. Other

cultures and other times in our own human history are/were not like

that. We now have the benefit of modern late intervention care by

doctors, nurses, and hospitals; and the knowledge (if we are willing

to search it out for our selves) to get well and stay that way. The

sources of information of our " sick care " system are paid for by

those who only profit when we are sick. We have to go to other

sources for information on how to get well and stay well. Hence the

benefit of the internet and lists like this. Getting information

this way is a different way of thinking than we are used to. We

don't have ultimate authorities to tell us exactly what to think

here. You get the information. You digest it. You choose what you

want to use. You use it. You take responsibility for it. Totally

opposite of " following the doctor's orders " like every good

patient " should " .

Some people have indeed passed a hundreds of stones at once, but

those people usually make stones quickly and pass a lot of stones

the next times they flush too. There is a reason a body makes gall

stones. The stones are symptoms of the problem. Flushing stones

out doesn't cure the problem of the body feeling a need to make

stones for some reason. Our bodies are " smart " enough to stop

making gall stones when we get totally clogged with them, but they

rapidly make more stones when we clean some out - that is until the

conditions in our body change sufficiently that our body doesn't

make stones. It's possible that for most people in our society

stones will continue to be made and maintenance schedule of a flush

every 6 months to a year will be what we need (after several flushes

to get to the maintenance level of stone production).

The fact that people need several flushes and pass a couple of

thousand stones total or more is because they keep making the

stones. If the misinformation was correct, and something else made

the stones, people wouldn't get less and less stones after a certain

number of flushes. How many flushes is enough? That's different

for each individual.

Hey, I just thought of something I know a secret that if

everyone knew about it would prevent most everyone from being

overweight. Eat less calories. calories are either burned or

stored. The only two ways to keep from gaining weight are to burn

more calories (the dreaded exercise word) or eat less calories (the

dreaded don't eat so much good tasting bad stuff). You'd think with

such an easy inexpensive sure fire method that noone would have to

be overweight. Human nature just doesn't work that way though...

Just because the information is there doesn't mean it catches on...

Enough rambling....

Welcome to the list

Vince

> Thanks to those who gave feedback re; ultrasound. It was good to

hear

> that a couple of you feel it has been successful. I'm pretty sure

I

> will go for it although not sure how I'll test it eventually

except

> to try a dab of ice cream just to see (or maybe not <grin>).

>

> Sure would beat surgery. I am a bit skeptical, primarily because

if

> it worked so well, why isn't gallbladder surgery getting obsolete.

> Kind of like hearing a weight loss gimick and then realizing if it

> worked so well, we'd all know about it and it wouldn't be such a

> secret.

>

> I'm very worried about the oil causing an attack since I know i

have

> one very big stone, but it seems some people have passed large

stones

> as well. I do wonder though about those who are saying they've

passed

> thousands of stones - makes me wonder if it isn't something else

> being passed, I mean if someone went their whole life and they

looked

> at the gallbladder afterwards, there likely wouldn't be 2000

stones.

> Know what I mean?

>

> Karin

[Guest guest]

There are stones in your liver as well, not just the gallbladder.

There could very well be TONS of them in the liver. Read Dr. Cabot's

liver book, very interesting.

.......... as well. I do wonder though about those who are saying

they've passed

> thousands of stones - makes me wonder if it isn't something else

> being passed, I mean if someone went their whole life and they

looked

> at the gallbladder afterwards, there likely wouldn't be 2000

stones.

> Know what I mean?

>

> Karin

[Guest guest]

Thanks Vince - your message was well put to say the least. I know

what you mean about the health care system. I taught natural

childbirth for a few years and watched how the MDs controlled a

process that can happen mostly by itself and much of the time, the

way it is controlled causes most of the problems. And of course, your

weight loss remedy hit home - I did go to France to have weight loss

surgery and although it isn't a natural solution - it certainly

wasn't promoted by docs here.

Anyway, I do think it's worth a go - i just have a devils advocate

part to my personality! Well, that and not wanting to examine for

stones that i pass <grin>

I would like to learn how to get healthy in general. very interested

in what people eat and keeping the body cleansed.

Karin

> > Thanks to those who gave feedback re; ultrasound. It was good to

> hear

> > that a couple of you feel it has been successful. I'm pretty sure

> I

> > will go for it although not sure how I'll test it eventually

> except

> > to try a dab of ice cream just to see (or maybe not <grin>).

> >

> > Sure would beat surgery. I am a bit skeptical, primarily because

> if

> > it worked so well, why isn't gallbladder surgery getting

obsolete.

> > Kind of like hearing a weight loss gimick and then realizing if

it

> > worked so well, we'd all know about it and it wouldn't be such a

> > secret.

> >

> > I'm very worried about the oil causing an attack since I know i

> have

> > one very big stone, but it seems some people have passed large

> stones

> > as well. I do wonder though about those who are saying they've

> passed

> > thousands of stones - makes me wonder if it isn't something else

> > being passed, I mean if someone went their whole life and they

> looked

> > at the gallbladder afterwards, there likely wouldn't be 2000

> stones.

> > Know what I mean?

> >

> > Karin

[Guest guest]

Thanks to everyone for thier positive feedback. I hope to start xolair

treatment soon. I have had allergy testing done again last week. I am

extremely allergic to an outdoor mold that is in this part of the

country.

Thanks again,

Pat

[Guest guest]

Where do you live? What type of mold do you know bothers you?

pfiore65 wrote:

>Thanks to everyone for thier positive feedback. I hope to start xolair

>treatment soon. I have had allergy testing done again last week. I am

>extremely allergic to an outdoor mold that is in this part of the

>country.

>

>Thanks again,

>

>Pat

>

>

>

>

>

>

>