Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi : The only thing my doctor had to do for me to get approved for Xolair was to submit IgE levels to prove allergy. I am told that I have asthma, although I've never wheezed. I do sometimes feel short of breath. The doctor says it's silent asthma and says he has it also. Maybe you do, too. Carol wrote: I actually don't have asthma, but have severe uncontrolled throat allergies that started up 2 years ago and have basically turned my life upside down. I might as well be living in a bubble. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Count me in on the Silent Asthma as well. I was diagnosed 20 years ago and I think I've wheezed once. I took the methacholine challenge test and I was barking after the 3rd vial so I'm 100% sure I'm asthmatic. According to my doctor, silent asthmatics are pretty rare but they do exist. It took me an entire year before I got a definitive diagnosis. I was tested for heart problems, holes in my lungs, obstructions, (all because I never wheezed) etc...it wasn't until I went to a pulmo that I was tested for asthma. Carol Corley <mybouvs@...> wrote: Hi : The only thing my doctor had to do for me to get approved for Xolair was to submit IgE levels to prove allergy. I am told that I have asthma, although I've never wheezed. I do sometimes feel short of breath. The doctor says it's silent asthma and says he has it also. Maybe you do, too. Carol wrote: I actually don't have asthma, but have severe uncontrolled throat allergies that started up 2 years ago and have basically turned my life upside down. I might as well be living in a bubble. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Carol, My IgE level is above normal, but I don't have an asthma diagnosis. I took a methacholine challenge about a year ago, and my air flow reduction wasn't enough for my doctor to give me an asthma diagnosis. I need to talk to my doctor about the possibility of starting Xolair, but somehow I doubt he'll give me a false asthma diagnosis so I can get it! Thanks for letting me know about the silent asthma though...I've never heard of that! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 Wow..i didn't think my lungs were that touchy until I started xolair and realized just how much I had changed over the last 10-20 years. I don't go outside anymore except to and from the car, I have all wood floors and massive filtration on my house, not to mention all the meds I've racked up over the years. I was diagnosed with asthma at 4 years old and never had a pulmonary function test. This fall I finally took the methacholine (sp?) challenge (expecting it all to take around 2 hours including slight paperwork time). I was in and out, paperwork, 2 neb treatments after, and the wait to go back, in less than 45 minutes. I almost " failed " after the 1st round, but the second was definitely bad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi , I can identify with never being able to go outside. So have things changed for you since starting Xolair? Are you able to go outside more? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 So far so good, fall was tough with cotton spray but not unbearable like usual. Spring will be the true challenge since that's always the worst, but as for the rest of the year I'm able to be outside for a lot longer period with no allergy symptoms and even made it through winter without taking my normal regiment of astelin, nasacort, clarinex, zyrtec, and singulair for allergies. Every once in awhile i've taken a benadryl-d for the sinus issues that never seem to go away, but even that is few and far between these days. <justinlouisville@...> wrote: Hi , I can identify with never being able to go outside. So have things changed for you since starting Xolair? Are you able to go outside more? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2010 Report Share Posted September 11, 2010 What is this medication Mo? Luv - Sheila I have seen a private consultant who has prescribed a med for my severe and lifelong insomnia. It works! I have been sleeing through the night this late week for the first time in many, many, mnay years. Now my concern is that the GP will not prescribe because of off-label status and I read on this list somewhere that we then could ask for a second opinion but I think it unlikely another GP at the practice would go against my own GP. The other I would rather not take is to continue to get private scripts from the private guy as he will only prescribe for 8 weeks and will insist on a consultation (which costs a lot) every time he puts pen to paper. Is there anything I can do if the GP refuses me folks? Ta. It is this Monday I see the GP and it would help to have some information. Mo No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.445 / Virus Database: 271.1.1/3123 - Release Date: 09/10/10 18:41:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 Hi Sheila - It is called Trazodone in thge U.S. cannot remember the UK name. It is the first med that has enabled me to sleep through the night for many years but it is meant to be for depression in high dose. I am only taking 50 mg whereas 300 or 400 mg is, I believe, usual for depression. Mo > What is this medication Mo? > > Luv - Sheila > > > > I have seen a private consultant who has prescribed a med for my severe and > lifelong insomnia. > It works! I have been sleeing through the night this late week for the first > time in many, many, mnay years. > Now my concern is that the GP will not prescribe because of off-label status > and I read on this list somewhere that we then could ask for a second > opinion but I think it unlikely another GP at the practice would go against > my own GP. > The other I would rather not take is to continue to get private scripts from > the private guy as he will only prescribe for 8 weeks and will insist on a > consultation (which costs a lot) every time he puts pen to paper. > Is there anything I can do if the GP refuses me folks? > Ta. It is this Monday I see the GP and it would help to have some > information. > > Mo > > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.445 / Virus Database: 271.1.1/3123 - Release Date: 09/10/10 > 18:41:00 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 Mo, Is the UK name Molipaxin? A friend of mine was on them years ago, were they not banned in the UK? Love Tess > > Hi Sheila - It is called Trazodone in thge U.S. cannot remember the UK name. > It is the first med that has enabled me to sleep through the night for many years but it is meant to be for depression in high dose. I am only taking 50 mg whereas 300 or 400 mg is, I believe, usual for depression. > > Mo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 Another name for this is Desyrl Mo. See what your GP has to say, surely if he knows this really works wonders for you, he will prescribe it, especially as you are taking such a small dose. You might be able to purchase Desyryl/Taszodone online without a prescription - but you would need to search around. luv - Sheila Hi Sheila - It is called Trazodone in thge U.S. cannot remember the UK name. It is the first med that has enabled me to sleep through the night for many years but it is meant to be for depression in high dose. I am only taking 50 mg whereas 300 or 400 mg is, I believe, usual for depression. Mo > What is this medication Mo? > > Luv - Sheila > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 The doctor gave me an antidepressant, which is used and licenced as an antidepressant at a higher dose. However he gave it to me because I could not sleep due to severe pains in my back and hips, at a very low dose. It is not licenced to be used as a pain-killer, but at a very low dose it works perfectly and of course he can still prescribe unlicensed if he considers it beneficial. Lilian Hi Sheila - It is called Trazodone in thge U.S. cannot remember the UK name.It is the first med that has enabled me to sleep through the night for many years but it is meant to be for depression in high dose. I am only taking 50 mg whereas 300 or 400 mg is, I believe, usual for depression. Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 is that amitryptiline Lilian? I have been looking into this, i took it years ago, apaprently it can affect growth hormone > > The doctor gave me an antidepressant, which is used and licenced as an > antidepressant at a higher dose. However he gave it to me because I could > not sleep due to severe pains in my back and hips, at a very low dose. It > is not licenced to be used as a pain-killer, but at a very low dose it works > perfectly and of course he can still prescribe unlicensed if he considers it > beneficial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 Yes that's the one. How does it affect growth hormone? I found that after the first few nights it helped so much that I did not have to take it every night, and now I only need to take once every six weeks or so, if that. Lilian is that amitryptiline Lilian?I have been looking into this, i took it years ago, apaprently it can affect growth hormone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 http://www.springerlink.com/content/g173012kw3421qrl/ http://www.ncbi.nlm.nih.gov/pubmed/7190314 > > Yes that's the one. How does it affect growth hormone? I found that > after the first few nights it helped so much that I did not have to take it > every night, and now I only need to take once every six weeks or so, if > that. > > Lilian > > is that amitryptiline Lilian? > > > > I have been looking into this, i took it years ago, apaprently it can > > affect growth hormone > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.