Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 I will just be lurking and reading comments for now...I'm just trying to decide whether to start Xolair...my doc is really really pushing me. I need to..I'm tired of this life of shortness of breath and not being able to sleep because of waking up up gasping for air. I have been on allergy shots for 5 years, I think they're usefulness has run out..besides the 1st couple days after the shot are horrible! anyway, there are some really really helpful comments here..I'm glad I found this group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 I am sorry I really would loike help n advise itFs just hard bot to be offended.I am very senitive right now, I have tried everything with alyssa I feel like and still no verbal progress right now she's speech outside school which was just focusing on augmentive device during the school but now we are back to total comm. and oral motor exercises. in school they use a program designed for apraxia kids(the title is on the tip of my tongue) it a seiresh of pics an small words boo moo me bee and we make agame out of practicing them. [ ] Re: Hi new member Hi again ! Sorry I got off on the wrong foot with you when I took my time to try to help. I spent time to archive for you late last night and you pulled out one sentence and then distorted it to say that I was calling you clueless. Um no. It's your choice of course what you want to do and I was making suggestions based on the thousands of apraxic children that we have gotten to know over the almost 10 years in this group. I never called you clueless so please don't put words in my mouth. ALL of us however are ignorant until we go down a road unless someone suggests a different path and advices us why it's easier. Even then it's up to us to go that path or not. As far as ready for kindergarten: Genius runs in my mom's side of the family and while it's hard to know exactly what Tanner's abilities are -in third grade in some areas he was at 5th grade level -my ADHD son Dakota has been tested gifted by various neurologists and psychologists. Academically he was ready to start kindergarten at 5 -but his birthday is July 30 -and he was not ready maturity wise. I have many stories in the archives and I to this day regret that I started him in kindergarten at 5 and didn't wait till he was 6. On top of that I was new to the town in NJ at the time -we had just moved from Long Island NY -and most of the parents in the school (which nobody told me) didn't send their " normal " kids to kindergarten until 6 years old for academic or athletic reasons. They say the more schooled and affluent parents tend to withhold kindergarten until 6 if there is a delay in " ANY " area. Like you was I insulted that the study (that I didn't publish and that was funded by the US Dept of Education as in that long archive I sent to you) implied I wasn't schooled or affluent enough?!!! No -and also like you I didn't know that maturity level is included in being " ready " Like you I assumed they just mean academically and like you I didn't want to " hold him back " I don't care if anyone today called me clueless even for doing what I did because I'll call myself clueless. I was!!! As I wrote in the archives many times once I started Dakota there was no way to start over. He made friends easily and due to his grades he was always a bright student - but....he was constantly being yelled at " Dakota pay attention! " or whatever. His kindergarten teacher during a parent teacher conference actually said to me " all the other children sit nicely on the rug during story time but your son is sprawled out on the rug " (as if that was horrible) I said to her " Well nobody told me that in this town parents don't start their children in kindergarten until they are 6 years old! All the other children that are sitting nicely on the rug are 6 with some going on 7 and my son just turned 5 years old a few months ago! He's still a baby and that's why I wish I could have started over and put him in kindergarten next year " So the teacher said " well I wouldn't advice that because academically he's doing very well " there was only one other 5 year old in his class -Molly - and both Dakota and Molly were thought to be the ADHD kids. Now granted Dakota even long before kindergarten was suspected to be ADHD -but for sure his age was at least a year younger than the others. I spoke to Dakota and no way did he want to start kindergarten the next year and I left it up to him. He went on to be yelled at so much by his first grade teacher and I found out from Molly that this teacher actually would grab Dakota's desk that he was attached to in the chair and whip it across the room to separate him from the other children he was trying to play with -and some days would whip it out to the hallway and leave my 6 year old there alone. Not only did she do this but she yelled at him enough to where Molly called her the wicked witch. It was close to the end of the year before I found out the nightmare that Dakota lived through that year of first grade. Again -excellent grades- the child is brilliant and still is- but if I wasn't so " clueless " that child could have skipped the abuse. That teacher I nicely call " crispy " retired the next year. Dakota is the type of kid not to tell on others and he never (again) shared any of that with us until we confronted him with what Molly said. When we asked him why he didn't tell us he said " I don't know " head down he shrugged. The next year (yes this goes on) the teacher was aware there were issues from the previous teachers but she unlike the other two felt he needed to be classified as ADHD. They started the testing and one on one with the school psychologist he scored 99 percentile which meant he wasn't qualified for classification. Thing is the same child in a room full of children would notice a dot on the ceiling while the teacher was asking him a question -or would be playing with his pencil- or speaking of pencils since Dakota couldn't sit long would keep getting up to sharpen it. This was around the time that all the doctors we took him to wanted us to put Dakota on adderall. We ended up not long after starting him on the higher dosages of fish oils and the rest is history. He was classifed BTW as gifted learning disabled. Still- in spite of the fish oils working for him -I so wish I didn't start him in kindergarten until 6 years old because even though (obviously as a gifted child) he was academically ready -he was not ready maturity wise. My point to you was that you can always have your daughter skip a grade which I doubt for the same reasons Dakota didn't want to start over -they become friends with the other kids - but if there is a delay in any area to retain in preschool until 6. About getting up to speed we do have parents here who have essentially nonverbal older children or teens and even 2 adults who didn't secure appropriate therapies while younger who learn things from this group that are not always shared by all of the " experts " your child is only 5. Of course you have your child in therapies - but getting up to speed I meant you can share a bit more about exactly what the therapy is that she's had and we can share suggestions. Also I always say that the more severe a child is the more short term goals should be set. If there isn't enough progress in 3 months to reevaluate therapies, therapists- or diagnosis. Advice however is like air -use what you need and let the rest blow by you. My goal is to keep all apraxic children that are able to be mainstreamed which is the majority in the mainstream. Perhaps your daughter needs to be in a special needs class for her school career. Some things you can't be told about and just have to learn yourself. I don't know you or her but based on you saying she's ready for kindergarten -I think you are in for a life lesson. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 Hi again ! Sorry I got off on the wrong foot with you when I took my time to try to help. I spent time to archive for you late last night and you pulled out one sentence and then distorted it to say that I was calling you clueless. Um no. It's your choice of course what you want to do and I was making suggestions based on the thousands of apraxic children that we have gotten to know over the almost 10 years in this group. I never called you clueless so please don't put words in my mouth. ALL of us however are ignorant until we go down a road unless someone suggests a different path and advices us why it's easier. Even then it's up to us to go that path or not. As far as ready for kindergarten: Genius runs in my mom's side of the family and while it's hard to know exactly what Tanner's abilities are -in third grade in some areas he was at 5th grade level -my ADHD son Dakota has been tested gifted by various neurologists and psychologists. Academically he was ready to start kindergarten at 5 -but his birthday is July 30 -and he was not ready maturity wise. I have many stories in the archives and I to this day regret that I started him in kindergarten at 5 and didn't wait till he was 6. On top of that I was new to the town in NJ at the time -we had just moved from Long Island NY -and most of the parents in the school (which nobody told me) didn't send their " normal " kids to kindergarten until 6 years old for academic or athletic reasons. They say the more schooled and affluent parents tend to withhold kindergarten until 6 if there is a delay in " ANY " area. Like you was I insulted that the study (that I didn't publish and that was funded by the US Dept of Education as in that long archive I sent to you) implied I wasn't schooled or affluent enough?!!! No -and also like you I didn't know that maturity level is included in being " ready " Like you I assumed they just mean academically and like you I didn't want to " hold him back " I don't care if anyone today called me clueless even for doing what I did because I'll call myself clueless. I was!!! As I wrote in the archives many times once I started Dakota there was no way to start over. He made friends easily and due to his grades he was always a bright student - but....he was constantly being yelled at " Dakota pay attention! " or whatever. His kindergarten teacher during a parent teacher conference actually said to me " all the other children sit nicely on the rug during story time but your son is sprawled out on the rug " (as if that was horrible) I said to her " Well nobody told me that in this town parents don't start their children in kindergarten until they are 6 years old! All the other children that are sitting nicely on the rug are 6 with some going on 7 and my son just turned 5 years old a few months ago! He's still a baby and that's why I wish I could have started over and put him in kindergarten next year " So the teacher said " well I wouldn't advice that because academically he's doing very well " there was only one other 5 year old in his class -Molly - and both Dakota and Molly were thought to be the ADHD kids. Now granted Dakota even long before kindergarten was suspected to be ADHD -but for sure his age was at least a year younger than the others. I spoke to Dakota and no way did he want to start kindergarten the next year and I left it up to him. He went on to be yelled at so much by his first grade teacher and I found out from Molly that this teacher actually would grab Dakota's desk that he was attached to in the chair and whip it across the room to separate him from the other children he was trying to play with -and some days would whip it out to the hallway and leave my 6 year old there alone. Not only did she do this but she yelled at him enough to where Molly called her the wicked witch. It was close to the end of the year before I found out the nightmare that Dakota lived through that year of first grade. Again -excellent grades- the child is brilliant and still is- but if I wasn't so " clueless " that child could have skipped the abuse. That teacher I nicely call " crispy " retired the next year. Dakota is the type of kid not to tell on others and he never (again) shared any of that with us until we confronted him with what Molly said. When we asked him why he didn't tell us he said " I don't know " head down he shrugged. The next year (yes this goes on) the teacher was aware there were issues from the previous teachers but she unlike the other two felt he needed to be classified as ADHD. They started the testing and one on one with the school psychologist he scored 99 percentile which meant he wasn't qualified for classification. Thing is the same child in a room full of children would notice a dot on the ceiling while the teacher was asking him a question -or would be playing with his pencil- or speaking of pencils since Dakota couldn't sit long would keep getting up to sharpen it. This was around the time that all the doctors we took him to wanted us to put Dakota on adderall. We ended up not long after starting him on the higher dosages of fish oils and the rest is history. He was classifed BTW as gifted learning disabled. Still- in spite of the fish oils working for him -I so wish I didn't start him in kindergarten until 6 years old because even though (obviously as a gifted child) he was academically ready -he was not ready maturity wise. My point to you was that you can always have your daughter skip a grade which I doubt for the same reasons Dakota didn't want to start over -they become friends with the other kids - but if there is a delay in any area to retain in preschool until 6. About getting up to speed we do have parents here who have essentially nonverbal older children or teens and even 2 adults who didn't secure appropriate therapies while younger who learn things from this group that are not always shared by all of the " experts " your child is only 5. Of course you have your child in therapies - but getting up to speed I meant you can share a bit more about exactly what the therapy is that she's had and we can share suggestions. Also I always say that the more severe a child is the more short term goals should be set. If there isn't enough progress in 3 months to reevaluate therapies, therapists- or diagnosis. Advice however is like air -use what you need and let the rest blow by you. My goal is to keep all apraxic children that are able to be mainstreamed which is the majority in the mainstream. Perhaps your daughter needs to be in a special needs class for her school career. Some things you can't be told about and just have to learn yourself. I don't know you or her but based on you saying she's ready for kindergarten -I think you are in for a life lesson. ===== Quote Link to comment Share on other sites More sharing options...
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