Home from hospital

[Guest guest]

Dear , I am so sorry to hear about your crazy experience during your recent hospital stay. My husband never seems to understand why it is the last place I want to go no matter what is happening. He thinks it is the best place because they are trained to help us.

Sometimes I believe medical care in the United States has gone back to the dark ages. Last time I was in I never say my primary care physician instead in came this little guy who I could barely understand and tell me Dr, Mabbe no longer makes hospital visits so he has been retained by him to do inpatient care. I received a separate bill from this little guy who says I don't settle for insurance payments pay t he balance I am independent. I told him since I never requested him and had nothing to de with hiring him to send the extra bill to Dr. Mabbe(by the way that is his real name there are two of the Dr. Mabbee and Dr. Mabbe)

The only nice thing for me is Since I am a patient of the wonderful Dr. Terry Gordon and Dr. Kleaman I always get a private room as I general need to be watched closely due to many problem so I am usually in the step down unit.

Cheer up you made it home and you are able to write about it. I think that we should all get together after the holidays and do an acid sit com for TV. Any takers

Love & Hugs and Prayers

Sharon

[Guest guest]

Dear . Wow, you are having a time of it. I am just glad you are back home again. Hospitals are loud, especially at night it seems.

You didn't really need this, right before the holidays, but thoughts and prayers to you to stay as well as possible for a long long time.

audi

Home from Hospital

, Sharon and All,

I just got home from being in the ER and hospital for 4 days. Seems like every three months I have to go in!! My blood sugar went into the mid-500's, had a Zap at home and turns out I also had bronchitis.

My worst nightmare, anyone else have this one? I had my primary Doc, Cardio, EP and ICD Tech all trying to figure out what the heck to do with me. Not a bad thing if they all would get together, but no, no one communicates well and they are all making their own choices........it was a joke to say the least.

I know I am whining but you could not believe my experiences. The ER was over run and people called our CCU floor a war zone. They had to open a stock room to house patients admitted in. I had an old asian woman in the next bed who kept trying to escape and pulling out her IV each time. 4-5 nurses couldn't keep her down!! She was like Houdini and could get out of her restraints. I felt sorry for her because she would become loud and agitated and only wanted to go home. You could hear such pain in her tone but I became so sleepless that they ended up moving her on the 3rd night. At one point I was talking to my Therapist on the phone and she could hear all of the noise from our floor (not even my roomie) and she said it sounded like the Psych Ward........I told her Psych Wards are quiet.....patients are all sedated!

Everyone try to stay healthy and out of the hospital......especially the one in my town.

From California.....where without a sense of humor we would be dust,

Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

I could make millions off a story about my life and my experiences with my 3 kids. My twin daughters (17 yrs old) were teasing my almost 13 year old son about whether he had had his first wet dream yet, several weeks ago. He showed them! Last week he threw his underwear at them and told them that he had finally had it. I guess you could say that they asked for it but I am still in shock. I came from a nice quiet Catholic Family.......how did I end up with these kids! I'd try to write it off due to the ADHD but it just doesn't completely fly.

I think that we should all get together after the holidays and do an acid sit com for TV. Any takers

[Guest guest]

I couldn't help but to snicker when I read your post. My Children are all grown now. I have two sons and a daughter. My oldest lives in St. Louisout of choice for his life style. My middle son lives within 15 mimutes of me he is married for the and has two children a son 4 and a daughter 3months. My daugther and best friend live about 20 mimutes away and is married to the perfect man and has a little girl who turned 2 yestarday. When my kid even though adults now get together sometimes I shake my head and wonder are these really my kids/ My husband and I are able to sit back a laugh now at some of the antics they put us through. Shocking to say the least.

Sharon

[Guest guest]

Carole,

I hate to dispute your GI, but it is entirely possible to have pancreatitis with totally normal labs. I am living proof of that. I'm not saying that what you had was pancreatitis, but just because the labs were normal, that does not mean it can be totally ruled out. If it was pancreatitis, the best thing you can do is to eat small low fat meals. Doesn't sound like that is a problem right now. I know what you mean about not caring about food. Today has been a no food day for me. I've had water, gatorade, one boost, and one yogurt drink. I can tell that there is no way that anything more solid than that is going to stay down today. Go slow with advancing your diet. I have found the slower the better. I have had both boost and glucerna and they actually taste pretty good. Also, soy milk is one of the things I can often tolerate when I can't tolerate a lot of other things. I actually like the chocolate soy in the brands Silk and 8th Continent. Costco has Silk Chocolate soy milk in the little juice box type cartons that don't have to be kept in the fridge. I keep a few in the fridge and the rest in the garage. They are wonderful to take on trips or when you are on the go. Stay away from caffiene and citrus drinks as they are hard on the pancreas. Beef is something I absolutely cannot tolerate even on my best days. I will NEVER touch beef again as long as I live! I pray that you do not have pancreatitis or that if you did have an attack of acute pancreatitis, that it will be just the one attack and you'll never have it again. There is truly nothing to compare with the pain of pancreatitis in my opinion. I hate to be skeptical, but I think too many GI docs are too quick to say its IBS, when they just really don't know what it is. Pancreatitis does not always present in the textbook manner. However, the only thing they might do differently if they knew for sure it was pancreatitis would be to have you take pancreas enzymes with your food. That's something you might want to consider since I don't think the enzymes can hurt you. I think you can actually get them from the health food store, but I'd rather see you get a prescription for them. That way you could be more sure of what you are getting and also the insurance will pay for them. They are often expensive.

Take care and get lots of rest. Let us know how you are doing.

[Guest guest]

Hey Woman, What are you trying to do be in coemption with me for the most shocks in one hour session. You and the others amaze me. You just go on like nothing happen. I know that is what we are suppose t o do, but I never made it that far. As soon as those dam zaps start being repeated one after the other I cower. By the time I EMS gets here I am stupid and by the time they get me to the Emergency room I am begging for someone every one to turn the dam thing of.

Were your shocks necessary to bring you back around? If so I am so glad your shocking little friend was working properly. If it was from a break in the wires or other problem I hope they got it fixed.

I talk to you later. Take care and know you are in my thought and prayers

Sharon try to make a slow recovery

[Guest guest]

In a message dated 4/24/2004 10:42:52 AM Pacific Daylight Time, IIPistacio@... writes:

Hey Woman, What are you trying to do be in coemption with me for the most shocks in one hour session. You and the others amaze me. You just go on like nothing happen. I know that is what we are suppose t o do, but I never made it that far. As soon as those dam zaps start being repeated one after the other I cower. By the time I EMS gets here I am stupid and by the time they get me to the Emergency room I am begging for someone every one to turn the dam thing of.

I am definitely not going on as if nothing happened. I am scared shitless to get shocked again.......wish they would just turn this damn thing off completely. If I didn't have the worry of the next one I think I would be a whole lot better off. When I went into the hospital the 2nd and 3rd time recently all I could say to the EMT's was don't make me walk or move or this thing will go off!!!

Were your shocks necessary to bring you back around? If so I am so glad your shocking little friend was working properly. If it was from a break in the wires or other problem I hope they got it fixed.

According to the Tech and my Doc.....these were not due to a life threatening event. I went into A-Fib and due to me moving around it caused my Ventricular to Tach briefly but a shock was not needed to correct it. The Tech fine tuned my AICD and it should react less to these events now. To me I would be better off if it no longer worked. I have gotten something like 53 shocks total and none of them were need for life threatening situations. WHAT THEY DO TO ME THOUGH IS MAKE ME A WRECK! I am afraid to move around much.

I went into A-Fib on Tuesday and stayed in bed and used a porta potty. No Zaps but the fear is killing me..... My therapist keeps talking to me but even she is afraid to get into anything too serious. Seems like I have conquered to Anxiety attacks that were going on but I still live in fear.

How are you doing these days? Know that I think of you often and hope all is well. I don't write very often these days but read all emails.

Hugz,

[Guest guest]

Glad you are on the mend. I do not know about the mesenteric

lymphadenitis....other than I think its an inflammation of the lymph nodes in

the GI tract which signifies that they have had/or have chronic infection.

Don't quote me on that, just my guess. Hope things get better. Will keep you

in our prayers.

Quoting Falconer <buttrfly@...>:

>

>

>

>

>

>

> Hi all,

>

> woke in the early hours of Wednesday morning with abdominal pain

> which resulted in admission to hospital shortly after.  Morphine was given

> for the pain, and iv fluids and meds for the vomitting. He had initially

> bought up a few of the calculi he has in the past, but this was a different

> type of episode so I think the stones were incidental and not the cause, as

> opposed to the other two times.  was also vomitting up fecal matter,

> which was a real eye opener, I have read about it but never really quite

> believed it could happen- silly me.

>

>

>

>   During his stay in hospital some new things were found as a result of

> testing, some may lead to answers for the chronic ab pain,  and the GI seems

> to have something to finally work on as organic causes (FINALLY!). It was a

> surprise the amylase and lipase levels were in range this time, but it helped

> with their conclusion of pseudo obstruction.  Imaging also found mesenteric

> lymphadenitis, which may help explain the recurrent ab pain, and xray showed

> spina bifida occulta so next stop is a spinal MRI.  It ties in with s'

> genetic syndrome (FG Syndrome) where tethered spinal cord is often present,

> but it shook me all the same.   His kidneys  are still obstructed so back to

> the renal surgeon. was discharged after 3 days on iv fluids and pain

> relief- still not eating or drinking but looking brighter.

>

>

>

> I came down with a gastro bug that is prevelant in the hospitals here at the

> moment (norovirus I think its called) on the morning of the 3rd day, and

> followed by early afternoon, I was in no state to be there with

> but he cannot let me out of his sight when he is in hospital- I was so

> thankful the dr allowed him to be discharged.  I went straight to my own dr

> for a shot of maxolon and buscopan script and was wiped out for the next 24

> hours.  Thankfully dh has become more involved in the care of the children

> recently, and was doing better although still no oral intake. 

> somehow came out of it almost unscathed with only 2 episodes of vomitting,

> being left more tired than anything else.  Two days from discharge and we are

> all on the mend, much more slowly, but he was able to have a little

> to eat today and is now drinking some water, so I am not worried over

> dehydration.  He was totally completely full of stool on hospital admission,

> so they cleaned him out and we are now trying a regime of new med to

> hopefully keep the constipation in check.

>

>

>

> I know I've missed some other stuff, but will post later when I am less

> scatter brained.

>

>

>

> If anyone has knowledge of mesenteric lymphadenitis- what causes recurrent

> cases, etc- please let me know.

>

>

>

> Take care

>

> (Australia) mum to (9yo w/ pids) and (6yo with pids and

> fg syndrome)

>

>

>

>

>

>

[Guest guest]

Glad you are on the mend. I do not know about the mesenteric

lymphadenitis....other than I think its an inflammation of the lymph nodes in

the GI tract which signifies that they have had/or have chronic infection.

Don't quote me on that, just my guess. Hope things get better. Will keep you

in our prayers.

Quoting Falconer <buttrfly@...>:

>

>

>

>

>

>

> Hi all,

>

> woke in the early hours of Wednesday morning with abdominal pain

> which resulted in admission to hospital shortly after.  Morphine was given

> for the pain, and iv fluids and meds for the vomitting. He had initially

> bought up a few of the calculi he has in the past, but this was a different

> type of episode so I think the stones were incidental and not the cause, as

> opposed to the other two times.  was also vomitting up fecal matter,

> which was a real eye opener, I have read about it but never really quite

> believed it could happen- silly me.

>

>

>

>   During his stay in hospital some new things were found as a result of

> testing, some may lead to answers for the chronic ab pain,  and the GI seems

> to have something to finally work on as organic causes (FINALLY!). It was a

> surprise the amylase and lipase levels were in range this time, but it helped

> with their conclusion of pseudo obstruction.  Imaging also found mesenteric

> lymphadenitis, which may help explain the recurrent ab pain, and xray showed

> spina bifida occulta so next stop is a spinal MRI.  It ties in with s'

> genetic syndrome (FG Syndrome) where tethered spinal cord is often present,

> but it shook me all the same.   His kidneys  are still obstructed so back to

> the renal surgeon. was discharged after 3 days on iv fluids and pain

> relief- still not eating or drinking but looking brighter.

>

>

>

> I came down with a gastro bug that is prevelant in the hospitals here at the

> moment (norovirus I think its called) on the morning of the 3rd day, and

> followed by early afternoon, I was in no state to be there with

> but he cannot let me out of his sight when he is in hospital- I was so

> thankful the dr allowed him to be discharged.  I went straight to my own dr

> for a shot of maxolon and buscopan script and was wiped out for the next 24

> hours.  Thankfully dh has become more involved in the care of the children

> recently, and was doing better although still no oral intake. 

> somehow came out of it almost unscathed with only 2 episodes of vomitting,

> being left more tired than anything else.  Two days from discharge and we are

> all on the mend, much more slowly, but he was able to have a little

> to eat today and is now drinking some water, so I am not worried over

> dehydration.  He was totally completely full of stool on hospital admission,

> so they cleaned him out and we are now trying a regime of new med to

> hopefully keep the constipation in check.

>

>

>

> I know I've missed some other stuff, but will post later when I am less

> scatter brained.

>

>

>

> If anyone has knowledge of mesenteric lymphadenitis- what causes recurrent

> cases, etc- please let me know.

>

>

>

> Take care

>

> (Australia) mum to (9yo w/ pids) and (6yo with pids and

> fg syndrome)

>

>

>

>

>

>

[Guest guest]

In a message dated 12/12/2004 1:58:49 AM Pacific Standard Time,

buttrfly@... writes:

which may help explain the recurrent ab pain, and xray showed spina bifida

occulta so next stop is a spinal MRI. It ties in with s' genetic

syndrome (FG Syndrome) where tethered spinal cord is often present, but it shook

me

all the same.

Hi ,

I know that hearing a diagnosis can be so difficult, even if it's in the

best interest of our children to finally be diagnosed. has been tested

for Tethered Cord and over here the newest diagnostic tool is called a CineView

MRI. I just wondered if they use that there?? They use complete sedation as

the patient cannot move at all. The CineView measures the spinal movement

with breathing.

I'm glad you're all on the mend--I've missed you!!!

Sandi, Mom to , age 11. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, chronic ear, nose and throat/strep

infections, asthma, severe allergies (including meds), Carnitine deficiency,

GERD,

suspected Di syndrome.

[Guest guest]

In a message dated 12/12/2004 1:58:49 AM Pacific Standard Time,

buttrfly@... writes:

which may help explain the recurrent ab pain, and xray showed spina bifida

occulta so next stop is a spinal MRI. It ties in with s' genetic

syndrome (FG Syndrome) where tethered spinal cord is often present, but it shook

me

all the same.

Hi ,

I know that hearing a diagnosis can be so difficult, even if it's in the

best interest of our children to finally be diagnosed. has been tested

for Tethered Cord and over here the newest diagnostic tool is called a CineView

MRI. I just wondered if they use that there?? They use complete sedation as

the patient cannot move at all. The CineView measures the spinal movement

with breathing.

I'm glad you're all on the mend--I've missed you!!!

Sandi, Mom to , age 11. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), Mitral valve stenosis, chronic ear, nose and throat/strep

infections, asthma, severe allergies (including meds), Carnitine deficiency,

GERD,

suspected Di syndrome.

[Guest guest]

-

I am so impressed at how level headed you were during this crisis and hope that

you are able to get some rest and heal quickly. I am new to this group and have

never heard of mesenteric lymphadenitis--but I was able to find a decent article

about it at E-medicine: http://www.emedicine.com/med/topic1456.htm

Thank you for sharing your experience and please let us know how the new med

works for preventing " constipation " /pseudo obstruction. My daughter regularly

suffers with this (since she was an infant) and don't know why.... We are

afraid to use fiber (which may cause more impaction), senna (which can

permenantly damage the colon), mineral oil (which causes bacterial growth), etc.

etc. and are desparate. We have a new GI appointment on Thursday (Thanks,

Dayna!) and pray he will work with us.

It sounds like you are taking excellent care of yourself and your dear ones.

Bless your heart.

(mom to la 3 years old, deficient Igs, variable T-cell function,

gut problems under investigation...chronic abdominal pain, " constipation?

obstruction? microflora screwed up? Ugh.....)

Falconer <buttrfly@...> wrote:

Hi all,

woke in the early hours of Wednesday morning with abdominal pain which

resulted in admission to hospital shortly after. Morphine was given for the

pain, and iv fluids and meds for the vomitting. He had initially bought up a few

of the calculi he has in the past, but this was a different type of episode so I

think the stones were incidental and not the cause, as opposed to the other two

times. was also vomitting up fecal matter, which was a real eye opener,

I have read about it but never really quite believed it could happen- silly me.

During his stay in hospital some new things were found as a result of testing,

some may lead to answers for the chronic ab pain, and the GI seems to have

something to finally work on as organic causes (FINALLY!). It was a surprise the

amylase and lipase levels were in range this time, but it helped with their

conclusion of pseudo obstruction. Imaging also found mesenteric lymphadenitis,

which may help explain the recurrent ab pain, and xray showed spina bifida

occulta so next stop is a spinal MRI. It ties in with s' genetic

syndrome (FG Syndrome) where tethered spinal cord is often present, but it shook

me all the same. His kidneys are still obstructed so back to the renal

surgeon. was discharged after 3 days on iv fluids and pain relief- still

not eating or drinking but looking brighter.

I came down with a gastro bug that is prevelant in the hospitals here at the

moment (norovirus I think its called) on the morning of the 3rd day, and

followed by early afternoon, I was in no state to be there with but he

cannot let me out of his sight when he is in hospital- I was so thankful the dr

allowed him to be discharged. I went straight to my own dr for a shot of

maxolon and buscopan script and was wiped out for the next 24 hours. Thankfully

dh has become more involved in the care of the children recently, and

was doing better although still no oral intake. somehow came out of it

almost unscathed with only 2 episodes of vomitting, being left more tired than

anything else. Two days from discharge and we are all on the mend, much

more slowly, but he was able to have a little to eat today and is now drinking

some water, so I am not worried over dehydration. He was totally completely

full of stool on hospital admission, so they cleaned him

out and we are now trying a regime of new med to hopefully keep the

constipation in check.

I know I've missed some other stuff, but will post later when I am less scatter

brained.

If anyone has knowledge of mesenteric lymphadenitis- what causes recurrent

cases, etc- please let me know.

Take care

(Australia) mum to (9yo w/ pids) and (6yo with pids and fg

syndrome)

[Guest guest]

-

I am so impressed at how level headed you were during this crisis and hope that

you are able to get some rest and heal quickly. I am new to this group and have

never heard of mesenteric lymphadenitis--but I was able to find a decent article

about it at E-medicine: http://www.emedicine.com/med/topic1456.htm

Thank you for sharing your experience and please let us know how the new med

works for preventing " constipation " /pseudo obstruction. My daughter regularly

suffers with this (since she was an infant) and don't know why.... We are

afraid to use fiber (which may cause more impaction), senna (which can

permenantly damage the colon), mineral oil (which causes bacterial growth), etc.

etc. and are desparate. We have a new GI appointment on Thursday (Thanks,

Dayna!) and pray he will work with us.

It sounds like you are taking excellent care of yourself and your dear ones.

Bless your heart.

(mom to la 3 years old, deficient Igs, variable T-cell function,

gut problems under investigation...chronic abdominal pain, " constipation?

obstruction? microflora screwed up? Ugh.....)

Falconer <buttrfly@...> wrote:

Hi all,

woke in the early hours of Wednesday morning with abdominal pain which

resulted in admission to hospital shortly after. Morphine was given for the

pain, and iv fluids and meds for the vomitting. He had initially bought up a few

of the calculi he has in the past, but this was a different type of episode so I

think the stones were incidental and not the cause, as opposed to the other two

times. was also vomitting up fecal matter, which was a real eye opener,

I have read about it but never really quite believed it could happen- silly me.

During his stay in hospital some new things were found as a result of testing,

some may lead to answers for the chronic ab pain, and the GI seems to have

something to finally work on as organic causes (FINALLY!). It was a surprise the

amylase and lipase levels were in range this time, but it helped with their

conclusion of pseudo obstruction. Imaging also found mesenteric lymphadenitis,

which may help explain the recurrent ab pain, and xray showed spina bifida

occulta so next stop is a spinal MRI. It ties in with s' genetic

syndrome (FG Syndrome) where tethered spinal cord is often present, but it shook

me all the same. His kidneys are still obstructed so back to the renal

surgeon. was discharged after 3 days on iv fluids and pain relief- still

not eating or drinking but looking brighter.

I came down with a gastro bug that is prevelant in the hospitals here at the

moment (norovirus I think its called) on the morning of the 3rd day, and

followed by early afternoon, I was in no state to be there with but he

cannot let me out of his sight when he is in hospital- I was so thankful the dr

allowed him to be discharged. I went straight to my own dr for a shot of

maxolon and buscopan script and was wiped out for the next 24 hours. Thankfully

dh has become more involved in the care of the children recently, and

was doing better although still no oral intake. somehow came out of it

almost unscathed with only 2 episodes of vomitting, being left more tired than

anything else. Two days from discharge and we are all on the mend, much

more slowly, but he was able to have a little to eat today and is now drinking

some water, so I am not worried over dehydration. He was totally completely

full of stool on hospital admission, so they cleaned him

out and we are now trying a regime of new med to hopefully keep the

constipation in check.

I know I've missed some other stuff, but will post later when I am less scatter

brained.

If anyone has knowledge of mesenteric lymphadenitis- what causes recurrent

cases, etc- please let me know.

Take care

(Australia) mum to (9yo w/ pids) and (6yo with pids and fg

syndrome)

[Guest guest]

> Home today, a week to the day after my re-revision of my right THR.

Hi ,

I was 6 weeks no weight bearing on my THR. It was very difficult. I

used a walker and the palm of my hand got very sore. I ended up

using padded bicycling gloves. I had blisters and then callouses.

But doing ok now!!

Valeri

[Guest guest]

Welcome home . May each step B easier then the next and your recovery B a rapid & well healed one

[Guest guest]

Dear Lori,

I'm so glad to hear that you are out of the woods. Do you feel relieved? I

read that you think that the abscess might not be rid of. Did you get a

full sinus clearing or only the infected part.

I remember that Ken was able to clear his sinus with Irrigating to the point

that his surgeon doubted if he still need the surgery.

I have stopped irrigating when I feel completely occluded. It was too

frustrating.

My first water-pick and attachment were given to me by the ENT after my

first surgery with instructions. I have always used it with the maximum

setting with sniffing in and out to assist. I rely on it to clear

infections, actually, that is it's main purpose and has been for 9 years.

Karl (I think it was) boils his solution then lets it cool down to 95º in

order to sterilize the process. I have never done that myself. My nose is

not a clean place, it takes in everything that is available.

I have thought that removing the turbinates with the polyps has reduced my

ability to filter out the bad stuff and that has created asthma.

Doctors can be insensitive, unthinking, and arrogant. In Santa Fe I was

fortunate to have a primary care doctor that knew me and helped translate.

I had a pulmonologist that continued to say that there was nothing wrong

with me. While under his care was my only ER visit for asthma.

Wow, I am amazed that you don't ever need your rescue inhaler anymore.

Could you explain your recovery beyond Advair.

Pam

On 1/28/07 1:39 PM, " truelori " <lori@...> wrote:

> So I had an abscess and had to have it surgically removed -- mark this

> down as the 6th sinus surgery in 18 years. I don't know whether the

> abscess started in my sinuses or my gums but most docs (I saw many)

> think it started in the sinuses. So I really have to question the

> irrigation. I don't really know how one gets an abscess in the sinuses.

>

> However, I have to say, it is NOT the " pushing up the sinuses " issue

> that concerns me. The speed I use the WaterPik on does not really push

> the fluid up in the sinuses too much. Maybe I said that, but I was

> more concerned about it not being able to get back out. I basically

> have to sniff the solution up into my sinuses. The WaterPik would have

> to be on a really high setting with that nasal adaptor to " push it up "

> and I don't think many if any of us use it on that high of a setting.

> I use it on the first, sometimes the second, lowest setting. It is

> more the issue of the sterility of the solution going up in the nose

> and possibly that there could be bacteria or something in the

> WaterPik? I clean it every single time but maybe it is not enough

> because the tubes don't dry out? Any thoughts on this?

>

> In any case for now I am sticking to the sterile spray, Simply Saline

> or ENT-SOL.

>

> I went to the ER three times before they finally admitted me with a 101

> temp and 160 BPM pulse and just overall chills and aches and sweating.

> They did two CAT scans (one Sunday night, another Tuesday when I was

> admitted -- to a different hospital) and an MRI, and I had emergency

> surgery Thursday.

>

> I am not sure the infection is totally cleared up which scares me but

> at least they drained the abscess. I am going to be on a high dose of

> oral Augment for another ten days or so after being on IV antibiotics

> for a few days in the hospital.

>

> This was pretty much the biggest sinus nightmare I have ever had. I

> used to have really bad asthma attacks but I don't anymore, since

> Advair.

>

> Incidentally I got into a huge run-in with a pulmonologist assigned to

> my case in the hospital. He was such a jerk. He went prattling on

> about me not accepting that my asthma is a variable disease and that

> maybe I just didn't notice how bad my asthma was before the surgery and

> blah blah blah. Basically I think the nebulizer treatments he was

> giving me were making me worse! It was Atrovent and something else. I

> hvaen't wheezed that much in years. He thought I just didn't know my

> disease. I was so angry. I asked him what I was supposed to do,

> continue nebulizer treatments at home even though I haven't used my

> nebulizer in years and threw it away a couple of years ago? Suddenly

> my asthma is this much worse. It was ludricous. I don't even use OR

> NEED a rescue inhaler anymore, ever. I simply don't have attacks. I

> know what asthma attacks are and used to be hospitalized for them at

> least once or twice a year with severe asthma -- I would be in the

> hospital for a week or more at a time! And this guy thinks he can tell

> me what bad asthma is. They only did ONE PEAK FLOW meter and my FEV-1

> was 76 percent of predicted.

>

> Anyway that is my little rant. I'm not sure what I have learned if

> anything except that the medical profession sometimes does not listen

> until it is too late -- I think this went much further than it needed

> to go. It took me three days to get on antibiotics at all and five

> days to get on IV antibiotics, when I knew and tried to tell everyone

> who would listen from the beginning that I was very, very sick.

>

> Lori

>

[Guest guest]

Wow! I

am glad that everything is finally clearing up but what an ordeal!

Doctors who won’t listen are such a pain!

As for irrigating, I use my Waterpik on

the highest setting. I irrigate twice a day with ~1000mL of home-made

saline that I make simply with warm tap water. I rinse the Waterpik with

a full reservoir after each time but I do nothing else special to clean the

unit or to sterilize anything. I don’t sniff anything in like other

people have mentioned but I do blow the water out which seems to help get stuff

out. It is sort of like blowing your nose with water! J I have been

irrigating like this for a little over a year, since my last surgery in Dec

2005. I had problems with infections for awhile which I think finally

cleared up after a longer-than-normal dose of antibiotics (actually, I was on

one then a different one because the first one didn’t totally clear it

up). I think the longer course of antibiotics did more than anything

because I have been sinus-infection free for at least 6 months now (knock on

wood). My asthma has also been under control for the last year and I haven’t

used a rescue inhaler in forever (though I rarely used one before). I take

Singulair and Asmanax for the asthma. I also take Allegra and use Flonase

twice a day. All of this together seems to work well for me.

I think the one thing we have all noticed

is that everyone on this list is different! Not one thing works for

everyone. I hope you find what works for you soon!! Good luck!!!

K.

home from

hospital

So I had an abscess and

had to have it surgically removed -- mark this

down as the 6th sinus surgery in 18 years. I don't know whether the

abscess started in my sinuses or my gums but most docs (I saw many)

think it started in the sinuses. So I really have to question the

irrigation. I don't really know how one gets an abscess in the sinuses.

However, I have to say, it is NOT the " pushing up the sinuses " issue

that concerns me. The speed I use the WaterPik on does not really push

the fluid up in the sinuses too much. Maybe I said that, but I was

more concerned about it not being able to get back out. I basically

have to sniff the solution up into my sinuses. The WaterPik would have

to be on a really high setting with that nasal adaptor to " push it

up "

and I don't think many if any of us use it on that high of a setting.

I use it on the first, sometimes the second, lowest setting. It is

more the issue of the sterility of the solution going up in the nose

and possibly that there could be bacteria or something in the

WaterPik? I clean it every single time but maybe it is not enough

because the tubes don't dry out? Any thoughts on this?

In any case for now I am sticking to the sterile spray, Simply Saline

or ENT-SOL.

I went to the ER three times before they finally admitted me with a 101

temp and 160 BPM pulse and just overall chills and aches and sweating.

They did two CAT scans (one Sunday night, another Tuesday when I was

admitted -- to a different hospital) and an MRI, and I had emergency

surgery Thursday.

I am not sure the infection is totally cleared up which scares me but

at least they drained the abscess. I am going to be on a high dose of

oral Augment for another ten days or so after being on IV antibiotics

for a few days in the hospital.

This was pretty much the biggest sinus nightmare I have ever had. I

used to have really bad asthma attacks but I don't anymore, since

Advair.

Incidentally I got into a huge run-in with a pulmonologist assigned to

my case in the hospital. He was such a jerk. He went prattling on

about me not accepting that my asthma is a variable disease and that

maybe I just didn't notice how bad my asthma was before the surgery and

blah blah blah. Basically I think the nebulizer treatments he was

giving me were making me worse! It was Atrovent and something else. I

hvaen't wheezed that much in years. He thought I just didn't know my

disease. I was so angry. I asked him what I was supposed to do,

continue nebulizer treatments at home even though I haven't used my

nebulizer in years and threw it away a couple of years ago? Suddenly

my asthma is this much worse. It was ludricous. I don't even use OR

NEED a rescue inhaler anymore, ever. I simply don't have attacks. I

know what asthma attacks are and used to be hospitalized for them at

least once or twice a year with severe asthma -- I would be in the

hospital for a week or more at a time! And this guy thinks he can tell

me what bad asthma is. They only did ONE PEAK FLOW meter and my FEV-1

was 76 percent of predicted.

Anyway that is my little rant. I'm not sure what I have learned if

anything except that the medical profession sometimes does not listen

until it is too late -- I think this went much further than it needed

to go. It took me three days to get on antibiotics at all and five

days to get on IV antibiotics, when I knew and tried to tell everyone

who would listen from the beginning that I was very, very sick.

Lori

[Guest guest]

Hi Lori,

Welcome home. I was very worried about you. I have nothing to offer on the irrigation because I don't bother with it anymore.

Doctors I think are becoming way too complacent about people with sinus problems. I think they lump us all into one group and use the traditional remedies on everyone. We all found out how different we with samters can be from one another. Even though I lose faith in my ENT at times, he doesn't treat me like the run of the mill sinus person. He considers each of his patients unique.

Lori, I'm so glad you are strong. You know when you are sick better than they ever will. I have a friend who went to the hospital and they sent him home and said he had the flu. A day later he had a major stroke. He knew something was very wrong, but who was he to tell the doctors. I hope your recovery is swift and painless.

Thinking of you often,

Tami

home from hospital

So I had an abscess and had to have it surgically removed -- mark this down as the 6th sinus surgery in 18 years. I don't know whether the abscess started in my sinuses or my gums but most docs (I saw many) think it started in the sinuses. So I really have to question the irrigation. I don't really know how one gets an abscess in the sinuses.However, I have to say, it is NOT the "pushing up the sinuses" issue that concerns me. The speed I use the WaterPik on does not really push the fluid up in the sinuses too much. Maybe I said that, but I was more concerned about it not being able to get back out. I basically have to sniff the solution up into my sinuses. The WaterPik would have to be on a really high setting with that nasal adaptor to "push it up" and I don't think many if any of us use it on that high of a setting. I use it on the first, sometimes the second, lowest setting. It is more the issue of the sterility of the solution going up in the nose and possibly that there could be bacteria or something in the WaterPik? I clean it every single time but maybe it is not enough because the tubes don't dry out? Any thoughts on this?In any case for now I am sticking to the sterile spray, Simply Saline or ENT-SOL.I went to the ER three times before they finally admitted me with a 101 temp and 160 BPM pulse and just overall chills and aches and sweating. They did two CAT scans (one Sunday night, another Tuesday when I was admitted -- to a different hospital) and an MRI, and I had emergency surgery Thursday. I am not sure the infection is totally cleared up which scares me but at least they drained the abscess. I am going to be on a high dose of oral Augment for another ten days or so after being on IV antibiotics for a few days in the hospital.This was pretty much the biggest sinus nightmare I have ever had. I used to have really bad asthma attacks but I don't anymore, since Advair.Incidentally I got into a huge run-in with a pulmonologist assigned to my case in the hospital. He was such a jerk. He went prattling on about me not accepting that my asthma is a variable disease and that maybe I just didn't notice how bad my asthma was before the surgery and blah blah blah. Basically I think the nebulizer treatments he was giving me were making me worse! It was Atrovent and something else. I hvaen't wheezed that much in years. He thought I just didn't know my disease. I was so angry. I asked him what I was supposed to do, continue nebulizer treatments at home even though I haven't used my nebulizer in years and threw it away a couple of years ago? Suddenly my asthma is this much worse. It was ludricous. I don't even use OR NEED a rescue inhaler anymore, ever. I simply don't have attacks. I know what asthma attacks are and used to be hospitalized for them at least once or twice a year with severe asthma -- I would be in the hospital for a week or more at a time! And this guy thinks he can tell me what bad asthma is. They only did ONE PEAK FLOW meter and my FEV-1 was 76 percent of predicted.Anyway that is my little rant. I'm not sure what I have learned if anything except that the medical profession sometimes does not listen until it is too late -- I think this went much further than it needed to go. It took me three days to get on antibiotics at all and five days to get on IV antibiotics, when I knew and tried to tell everyone who would listen from the beginning that I was very, very sick.Lori

[Guest guest]

Hi Lori,

I am so sorry about this nightmare you are living. I would be really

frustrated and angry also. It is so painful to know that something is

really wrong, and getting worse, and that people aren't responding

appropriately to what is going on.

I just want to mention that when I have gotten surgery of my sinuses, my

asthma has gotten considerably worse for a month thereafter. I learned

the hard way that if I don't take prednisone post surgery, then I am

likely to end up hospitalized for asthma within a week or two. I was

told after this happened to me the first time that the reason I was

supposed to take the oral prednisone before and after surgery is

because, when people's sinuses get worked on their lungs get irritated.

If you don't address the asthmatic response (even if you don't normally

have asthma) which I didn't the first time I got my polypectomony, I

ended up having a chronic, gradually developing asthma attack, which in

the end required me to take prednisone orally within a week

postoperatively. It is possible that your asthma is worse right now,

not just because of a sensitivity to the treatment the doctor is giving

you, but also because of having had surgery of your sinus. Of course, I

know that at this point you can't probably take prednisone, so that may

be why the pulmonologist is giving you the other asthma treatment.

Anyways, just an idea.

I wish you strength, rest, and wellness as the year progresses.

[Guest guest]

Lori, I'm so glad they finally found out what was wrong - I didn't doubt that it was very serious. I'm glad you are back home now and wish you as speedy a recovery as possible, regards, Becky xtruelori <lori@...> wrote: So I had an abscess and had to have it surgically removed -- mark this down as the 6th sinus surgery in 18 years. I don't know whether the abscess started in my sinuses or my gums but most docs (I saw many) think it started in the sinuses. So I

really have to question the irrigation. I don't really know how one gets an abscess in the sinuses.However, I have to say, it is NOT the "pushing up the sinuses" issue that concerns me. The speed I use the WaterPik on does not really push the fluid up in the sinuses too much. Maybe I said that, but I was more concerned about it not being able to get back out. I basically have to sniff the solution up into my sinuses. The WaterPik would have to be on a really high setting with that nasal adaptor to "push it up" and I don't think many if any of us use it on that high of a setting. I use it on the first, sometimes the second, lowest setting. It is more the issue of the sterility of the solution going up in the nose and possibly that there could be bacteria or something in the WaterPik? I clean it every single time but maybe it is not enough because the tubes don't dry out? Any thoughts on this?In any case for now

I am sticking to the sterile spray, Simply Saline or ENT-SOL.I went to the ER three times before they finally admitted me with a 101 temp and 160 BPM pulse and just overall chills and aches and sweating. They did two CAT scans (one Sunday night, another Tuesday when I was admitted -- to a different hospital) and an MRI, and I had emergency surgery Thursday. I am not sure the infection is totally cleared up which scares me but at least they drained the abscess. I am going to be on a high dose of oral Augment for another ten days or so after being on IV antibiotics for a few days in the hospital.This was pretty much the biggest sinus nightmare I have ever had. I used to have really bad asthma attacks but I don't anymore, since Advair.Incidentally I got into a huge run-in with a pulmonologist assigned to my case in the hospital. He was such a jerk. He went prattling on about me not accepting that

my asthma is a variable disease and that maybe I just didn't notice how bad my asthma was before the surgery and blah blah blah. Basically I think the nebulizer treatments he was giving me were making me worse! It was Atrovent and something else. I hvaen't wheezed that much in years. He thought I just didn't know my disease. I was so angry. I asked him what I was supposed to do, continue nebulizer treatments at home even though I haven't used my nebulizer in years and threw it away a couple of years ago? Suddenly my asthma is this much worse. It was ludricous. I don't even use OR NEED a rescue inhaler anymore, ever. I simply don't have attacks. I know what asthma attacks are and used to be hospitalized for them at least once or twice a year with severe asthma -- I would be in the hospital for a week or more at a time! And this guy thinks he can tell me what bad asthma is. They only did ONE PEAK FLOW meter and my FEV-1

was 76 percent of predicted.Anyway that is my little rant. I'm not sure what I have learned if anything except that the medical profession sometimes does not listen until it is too late -- I think this went much further than it needed to go. It took me three days to get on antibiotics at all and five days to get on IV antibiotics, when I knew and tried to tell everyone who would listen from the beginning that I was very, very sick.Lori

What kind of emailer are you? Find out today - get a free analysis of your email personality. Take the quiz at the Championship.

[Guest guest]

Lori any blockage of the ostia which drains the maxillary sinus could have

caused your abscess. Mucousal thickening, polyps,calcification or scarring

from samter's or surgical treatment maybe caused this.Here' some references

that might help. American Family Physician,Sept1,1998 Functional Endoscopic

sinus Surgery, Slack, Grant Bates

http://www.aafp.org/afp/980901ap/slack.html Current Management of

Nasal Polyposis,Jayson Greenberg,M.D. SEPT3,1998,Baylor College of Medecine,

http://www.bcm.edu/oto/grand/090398.html Endoscopic sinus

surgery:what we know from the literature,Benninger, S.MD,

http://www.co-otolaryngology.com/pt/re/cooto/fulltext.00020840-200202000-00012.h\

tm;j..

>From: " truelori " <lori@...>

>Reply-samters

>samters

>Subject: home from hospital

>Date: Sun, 28 Jan 2007 18:39:32 -0000

>

>So I had an abscess and had to have it surgically removed -- mark this

>down as the 6th sinus surgery in 18 years. I don't know whether the

>abscess started in my sinuses or my gums but most docs (I saw many)

>think it started in the sinuses. So I really have to question the

>irrigation. I don't really know how one gets an abscess in the sinuses.

>

>However, I have to say, it is NOT the " pushing up the sinuses " issue

>that concerns me. The speed I use the WaterPik on does not really push

>the fluid up in the sinuses too much. Maybe I said that, but I was

>more concerned about it not being able to get back out. I basically

>have to sniff the solution up into my sinuses. The WaterPik would have

>to be on a really high setting with that nasal adaptor to " push it up "

>and I don't think many if any of us use it on that high of a setting.

>I use it on the first, sometimes the second, lowest setting. It is

>more the issue of the sterility of the solution going up in the nose

>and possibly that there could be bacteria or something in the

>WaterPik? I clean it every single time but maybe it is not enough

>because the tubes don't dry out? Any thoughts on this?

>

>In any case for now I am sticking to the sterile spray, Simply Saline

>or ENT-SOL.

>

>I went to the ER three times before they finally admitted me with a 101

>temp and 160 BPM pulse and just overall chills and aches and sweating.

>They did two CAT scans (one Sunday night, another Tuesday when I was

>admitted -- to a different hospital) and an MRI, and I had emergency

>surgery Thursday.

>

>I am not sure the infection is totally cleared up which scares me but

>at least they drained the abscess. I am going to be on a high dose of

>oral Augment for another ten days or so after being on IV antibiotics

>for a few days in the hospital.

>

>This was pretty much the biggest sinus nightmare I have ever had. I

>used to have really bad asthma attacks but I don't anymore, since

>Advair.

>

>Incidentally I got into a huge run-in with a pulmonologist assigned to

>my case in the hospital. He was such a jerk. He went prattling on

>about me not accepting that my asthma is a variable disease and that

>maybe I just didn't notice how bad my asthma was before the surgery and

>blah blah blah. Basically I think the nebulizer treatments he was

>giving me were making me worse! It was Atrovent and something else. I

>hvaen't wheezed that much in years. He thought I just didn't know my

>disease. I was so angry. I asked him what I was supposed to do,

>continue nebulizer treatments at home even though I haven't used my

>nebulizer in years and threw it away a couple of years ago? Suddenly

>my asthma is this much worse. It was ludricous. I don't even use OR

>NEED a rescue inhaler anymore, ever. I simply don't have attacks. I

>know what asthma attacks are and used to be hospitalized for them at

>least once or twice a year with severe asthma -- I would be in the

>hospital for a week or more at a time! And this guy thinks he can tell

>me what bad asthma is. They only did ONE PEAK FLOW meter and my FEV-1

>was 76 percent of predicted.

>

>Anyway that is my little rant. I'm not sure what I have learned if

>anything except that the medical profession sometimes does not listen

>until it is too late -- I think this went much further than it needed

>to go. It took me three days to get on antibiotics at all and five

>days to get on IV antibiotics, when I knew and tried to tell everyone

>who would listen from the beginning that I was very, very sick.

>

>Lori

>

>

_________________________________________________________________

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[Guest guest]

Hooray for you !!! I hope your recovery goes very smoothly. I am doing so well 2.5 weeks postop so hopefully that news gives you some encouragement. I am eating like crazy the last couple of days so the good news is it seems that most foods are not going to be a problem.... the bad news is I need to go back on my diet

take care

dawn

Home from hospital

Hi... I got home yesterday from the hospital. Everything went fine.I am on fluids till Sunday then I can try to eat soft foods. My operation took 4 1/2 hours. Had the barium swallow done the next morning and there were no leaks. Yeah!!!I have a to follow up with an appt in about 3-4 weeks.Thankyou for your suppport and wishes,

[Guest guest]

Hi !

Great to have you back. Good to hear that everything went fine.

That hamburger is comming your way soon! lol.

Love

>

>

>

> Hi... I got home yesterday from the hospital. Everything went fine.

> I am on fluids till Sunday then I can try to eat soft foods. My

> operation took 4 1/2 hours. Had the barium swallow done the next

> morning and there were no leaks. Yeah!!!

> I have a to follow up with an appt in about 3-4 weeks.

> Thankyou for your suppport and wishes,

>

>

>

[Guest guest]

Just got home from the hospital and wanted to check in. The lumbar fusion

surgery went very well but picked up a case of pneumonia during the trip

somehow... Will write more later but for now I'm taking my aching backside to

bed for some much needed rest.

Best wishes to all,

Calvin

[Guest guest]

It is great that you are home, I hope the surgery works!

Dawn E.

I would rather be hated for who I am

than to be like for who I am not ~Author Unknown

From: Calvin <pinchot13495@...>

Subject: Home from hospital

spinal problems

Date: Friday, March 6, 2009, 1:19 AM

Just got home from the hospital and wanted to check in. The lumbar fusion

surgery went very well but picked up a case of pneumonia during the trip

somehow... Will write more later but for now I'm taking my aching backside to

bed for some much needed rest.

Best wishes to all,

Calvin