Re: AMEN ALEX -depression....

[Guest guest]

> I am sure most of you have dealt with this. In fact I can

remember being on

> the other side and not understanding the pain thing. And thinking

if they

> just got up off their butt they might feel better.

>

>

>

> Hubby made an off hand comment about having to listen to me about

my pain

> and if you are going to exercise you are going to feel pain. Well I

have no

> problem with muscle pain…I worked out body building (even competed)

and I

> welcome that type of pain but this nerve pain is difficult.

>

>

>

> And I did a pilates class the other night, went to get up and

couldn't bear

> weight on my leg. I remember when this happened (had something that

caused

> a pain flare that sent me to the hospital in Sept – I still have no

idea

> what caused that and before that I could usually function with

> blocks/nsaids/stretching/lidoderm patch/tens unit. But this is bad

and it

> doesn't seem to be resolving. And I have no idea why or what caused

it.

> And I am getting very depressed.

>

>

>

> My husband and I have always been the most active people I know.

Skiing,

> cycling (100 mile rides), running, walking, windsurfing, swimming,

body

> building etc. and I am struggling now to even get out and walk

2miles or do

> some light cardio. I know he has no clue what I am feeling because

before

> all this, I had no clue what people in pain were feeling. And I am

starting

> to feel like this is not going to get better. And now I feel like I

can't

> even talk to the one person that should support me – my husband. It

seems

> like he is getting tired of hearing it.

>

>

>

> I called today to make another appointment at a back clinic that my

> insurance case manager actually recommended. I am afraid my pain

management

> doc might get miffed – he is more intent on treating it than

figuring out

> what is causing it and while I need the pain management, I still

need to

> have a diagnosis.

>

>

>

> I never thought I would take narcotics and I have crossed over to

that side.

> My friend said to me. How are you going to deal with this if it is

> permanent? I thought she was insane….now I am starting to think she

may be

> right.

>

>

>

> Any words of wisdom? What do you guys do when the ones close to you

are

> tired of hearing it? When you feel as though you can't do anything

you

> would normally do as a family? We are supposed to go skiing with my

parents

> (yes they ski – all over Europe and out west) for a week in March.

I don't

> even want to go now. Have any of you gone on to several docs before

getting

> a doc that finds your cause and treats your pain?

>

> JP

>

>

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