Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 from what I have heard, the outcome is not necessarily any better than doing it the usual open way. I would not call it " non-invasive " . They are taking disc tissue out just like with the regular surgery. The only thing is that you dont need a big long incision, so the immediate recovery period after the operation is not too bad. barbarac102 <barbarac102@...> wrote: OK, Has anyone had this or know anything about this? It is suppose to be non invasive. Anyone? Thanks. --------------------------------- Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 <barbarac102@...> wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin <tristanjouvin99@...> wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Yes it was nice to have 10 good years. I was active, including regular sports. I had aches and pains but they were tolerable. But the past few years have been miserable. The only surgery options right now are either fusion or artificial disc. Both are too scary for me to consider right now. The six months after the surgery were not fun. I was in worse pain overall than I was before surgery! But I could still work full time through it. It eventually settled down. I was not good with following proper rehab though. I had my surgery 6 months after the onset of symptoms. If I was to do it all over again, I would have avoided or at least delayed that surgery, and would have given it more time, tried more conservative things, and just put up with the pain and made some lifestyle changes. If it had still been bad for 3-4 years, then I think that would have been a good time frame to do the discectomy. But that is just my opinion in hindsight - always 20/20 I guess Barbara <barbarac102@...> wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin <tristanjouvin99@...> wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara <barbarac102@...> wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin <tristanjouvin99@...> wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Ok, if you don't mind my questions, I have to know, the friends you speak of, are they in pain and if so, what do they do for it? And it's good to know that your parents are doing well, good for them, sorry you aren't doing as well though. Tristan Jouvin <tristanjouvin99@...> wrote: I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 It's a tough decision. I've tried conservative methods and I know I'm not as bad off as others, I don't want any pain and want my old life back or at least close to it. Tristan Jouvin <tristanjouvin99@...> wrote: Yes it was nice to have 10 good years. I was active, including regular sports. I had aches and pains but they were tolerable. But the past few years have been miserable. The only surgery options right now are either fusion or artificial disc. Both are too scary for me to consider right now. The six months after the surgery were not fun. I was in worse pain overall than I was before surgery! But I could still work full time through it. It eventually settled down. I was not good with following proper rehab though. I had my surgery 6 months after the onset of symptoms. If I was to do it all over again, I would have avoided or at least delayed that surgery, and would have given it more time, tried more conservative things, and just put up with the pain and made some lifestyle changes. If it had still been bad for 3-4 years, then I think that would have been a good time frame to do the discectomy. But that is just my opinion in hindsight - always 20/20 I guess Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Please me first me first. Sorry about that but I have three rare diseases all steming around the spinal cord and would love my old life back as well. Instead everytime I turn around one more thing goes wrong. Anyone want to give me my old life back this one is wearing the heck out of me. And I have two more spinal cord operations yet to come had three already. Barbara <barbarac102@...> wrote: It's a tough decision. I've tried conservative methods and I know I'm not as bad off as others, I don't want any pain and want my old life back or at least close to it. Tristan Jouvin <tristanjouvin99@...> wrote: Yes it was nice to have 10 good years. I was active, including regular sports. I had aches and pains but they were tolerable. But the past few years have been miserable. The only surgery options right now are either fusion or artificial disc. Both are too scary for me to consider right now. The six months after the surgery were not fun. I was in worse pain overall than I was before surgery! But I could still work full time through it. It eventually settled down. I was not good with following proper rehab though. I had my surgery 6 months after the onset of symptoms. If I was to do it all over again, I would have avoided or at least delayed that surgery, and would have given it more time, tried more conservative things, and just put up with the pain and made some lifestyle changes. If it had still been bad for 3-4 years, then I think that would have been a good time frame to do the discectomy. But that is just my opinion in hindsight - always 20/20 I guess Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 The ones I am referring to: most of them had quite a bit of pain at one point, but they say that eventually (could have taken a couple of years) things got better and now they just have off and on pain if they overdo things or don't get enough rest. They did physical therapy, some did some medicines. ONe friend said that epidurals helped, but who knows if it was just that it got better with time. the doctors told me that of people who have herniated discs like me, 80% will get somewhat better over time. Tristan Barbara <barbarac102@...> wrote: Ok, if you don't mind my questions, I have to know, the friends you speak of, are they in pain and if so, what do they do for it? And it's good to know that your parents are doing well, good for them, sorry you aren't doing as well though. Tristan Jouvin <tristanjouvin99@...> wrote: I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 I hope you can achieve that. FOR ME, I have realized that the best thing that I have done for myself is to adjust my expectations. I no longer have any expectation to get back to my old life. Due the my back pain, my expectations have shifted. Now, if I get through a full workday with no or minimal pain, and then can play with my son in the evening, I am happy. Before, I used to do sports, competitive tennis, even skiing and snowboarding with falling over etc, but there is no way that I can do any of those now, and I have gotten used to it. BUT, my discectomy 15 years ago did allow me to continue these activities for 10 more years, so I guess that the surgery did give me some more good years, but now my back has caought up with me! I hope you get some relief, and can get back to as much as possible. Barbara <barbarac102@...> wrote: It's a tough decision. I've tried conservative methods and I know I'm not as bad off as others, I don't want any pain and want my old life back or at least close to it. Tristan Jouvin <tristanjouvin99@...> wrote: Yes it was nice to have 10 good years. I was active, including regular sports. I had aches and pains but they were tolerable. But the past few years have been miserable. The only surgery options right now are either fusion or artificial disc. Both are too scary for me to consider right now. The six months after the surgery were not fun. I was in worse pain overall than I was before surgery! But I could still work full time through it. It eventually settled down. I was not good with following proper rehab though. I had my surgery 6 months after the onset of symptoms. If I was to do it all over again, I would have avoided or at least delayed that surgery, and would have given it more time, tried more conservative things, and just put up with the pain and made some lifestyle changes. If it had still been bad for 3-4 years, then I think that would have been a good time frame to do the discectomy. But that is just my opinion in hindsight - always 20/20 I guess Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Ok let me explain that one since I happen to be one of them. You learn to live with it I have the entire spine shot and I now go through seizures on top of it they told my son to many operations were required I had two brain operations having Arnold Chiari I, 5 of the 7 discs are screwed and rodded, I have tethered cord thus needing lumbar fusion as they fixed that. I have an acoustic neuroma which is a small brain tumor on the hearing nerve. You don't get away from the pain you just endure and eventually that pain is more and more ignored. You get up everyday you do what you need to do normally trying to do enough to keep you mind off it. I moderate two groups on top of everything else. Pain medication doesn't work for me because I have to much going on I have been to many pain doctors I have been on duregesic and morphine as well as many other medications to reduce it they try the so called new medication on me. Guess what they don't help they make me floaty. I have hypersensitive arms and loss of feeling in legs. I am 51 and I am worse off that a 80 year old but my life has got to continue going on. My fingers hurt typing but it is my life and no one is going to jump in and say heck I will cure you they can't. My one disc in my neck has a hard time holding up my whole head. Anyone wanting my life is welcome to it. But I have two sons who need me my husband passed on at 47 ten days after his birthday with yet another rare disease called a Glioblastoma Multiforme. I could sit here and cry and go poor me but there is no one who is going to jump in there and hold me and say your right poor you. I have no family support so is it hard heck yeah. So when I hear people say we want our lives back well so do I throw in my husband to while your at it. Tristan Jouvin <tristanjouvin99@...> wrote: The ones I am referring to: most of them had quite a bit of pain at one point, but they say that eventually (could have taken a couple of years) things got better and now they just have off and on pain if they overdo things or don't get enough rest. They did physical therapy, some did some medicines. ONe friend said that epidurals helped, but who knows if it was just that it got better with time. the doctors told me that of people who have herniated discs like me, 80% will get somewhat better over time. Tristan Barbara <barbarac102@...> wrote: Ok, if you don't mind my questions, I have to know, the friends you speak of, are they in pain and if so, what do they do for it? And it's good to know that your parents are doing well, good for them, sorry you aren't doing as well though. Tristan Jouvin <tristanjouvin99@...> wrote: I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Thanks for yor response, I wish you well. Tristan Jouvin <tristanjouvin99@...> wrote: The ones I am referring to: most of them had quite a bit of pain at one point, but they say that eventually (could have taken a couple of years) things got better and now they just have off and on pain if they overdo things or don't get enough rest. They did physical therapy, some did some medicines. ONe friend said that epidurals helped, but who knows if it was just that it got better with time. the doctors told me that of people who have herniated discs like me, 80% will get somewhat better over time. Tristan Barbara wrote: Ok, if you don't mind my questions, I have to know, the friends you speak of, are they in pain and if so, what do they do for it? And it's good to know that your parents are doing well, good for them, sorry you aren't doing as well though. Tristan Jouvin wrote: I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Thanks so much and I wish the same for you. ~Barbara~ Tristan Jouvin <tristanjouvin99@...> wrote: I hope you can achieve that. FOR ME, I have realized that the best thing that I have done for myself is to adjust my expectations. I no longer have any expectation to get back to my old life. Due the my back pain, my expectations have shifted. Now, if I get through a full workday with no or minimal pain, and then can play with my son in the evening, I am happy. Before, I used to do sports, competitive tennis, even skiing and snowboarding with falling over etc, but there is no way that I can do any of those now, and I have gotten used to it. BUT, my discectomy 15 years ago did allow me to continue these activities for 10 more years, so I guess that the surgery did give me some more good years, but now my back has caought up with me! I hope you get some relief, and can get back to as much as possible. Barbara wrote: It's a tough decision. I've tried conservative methods and I know I'm not as bad off as others, I don't want any pain and want my old life back or at least close to it. Tristan Jouvin wrote: Yes it was nice to have 10 good years. I was active, including regular sports. I had aches and pains but they were tolerable. But the past few years have been miserable. The only surgery options right now are either fusion or artificial disc. Both are too scary for me to consider right now. The six months after the surgery were not fun. I was in worse pain overall than I was before surgery! But I could still work full time through it. It eventually settled down. I was not good with following proper rehab though. I had my surgery 6 months after the onset of symptoms. If I was to do it all over again, I would have avoided or at least delayed that surgery, and would have given it more time, tried more conservative things, and just put up with the pain and made some lifestyle changes. If it had still been bad for 3-4 years, then I think that would have been a good time frame to do the discectomy. But that is just my opinion in hindsight - always 20/20 I guess Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 , I don't know what to say except I am truely sorry for all the troubles you've had and are still enduring. I sincerely wish you well and comfort. I couldn't let your post go by without saying a word. Yet I feel my words are not sufficient but I mean what I wrote. God Bless you. Buergerhoff <forevermylove50@...> wrote: Ok let me explain that one since I happen to be one of them. You learn to live with it I have the entire spine shot and I now go through seizures on top of it they told my son to many operations were required I had two brain operations having Arnold Chiari I, 5 of the 7 discs are screwed and rodded, I have tethered cord thus needing lumbar fusion as they fixed that. I have an acoustic neuroma which is a small brain tumor on the hearing nerve. You don't get away from the pain you just endure and eventually that pain is more and more ignored. You get up everyday you do what you need to do normally trying to do enough to keep you mind off it. I moderate two groups on top of everything else. Pain medication doesn't work for me because I have to much going on I have been to many pain doctors I have been on duregesic and morphine as well as many other medications to reduce it they try the so called new medication on me. Guess what they don't help they make me floaty. I have hypersensitive arms and loss of feeling in legs. I am 51 and I am worse off that a 80 year old but my life has got to continue going on. My fingers hurt typing but it is my life and no one is going to jump in and say heck I will cure you they can't. My one disc in my neck has a hard time holding up my whole head. Anyone wanting my life is welcome to it. But I have two sons who need me my husband passed on at 47 ten days after his birthday with yet another rare disease called a Glioblastoma Multiforme. I could sit here and cry and go poor me but there is no one who is going to jump in there and hold me and say your right poor you. I have no family support so is it hard heck yeah. So when I hear people say we want our lives back well so do I throw in my husband to while your at it. Tristan Jouvin wrote: The ones I am referring to: most of them had quite a bit of pain at one point, but they say that eventually (could have taken a couple of years) things got better and now they just have off and on pain if they overdo things or don't get enough rest. They did physical therapy, some did some medicines. ONe friend said that epidurals helped, but who knows if it was just that it got better with time. the doctors told me that of people who have herniated discs like me, 80% will get somewhat better over time. Tristan Barbara wrote: Ok, if you don't mind my questions, I have to know, the friends you speak of, are they in pain and if so, what do they do for it? And it's good to know that your parents are doing well, good for them, sorry you aren't doing as well though. Tristan Jouvin wrote: I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Thank you so much Barbara God I am so tired of crying already. There is a time and place for everything God is watching out for me. I am going to get that put on a shirt for me. So I can look at it and remind myself. Hugs Barbara <barbarac102@...> wrote: , I don't know what to say except I am truely sorry for all the troubles you've had and are still enduring. I sincerely wish you well and comfort. I couldn't let your post go by without saying a word. Yet I feel my words are not sufficient but I mean what I wrote. God Bless you. Buergerhoff <forevermylove50@...> wrote: Ok let me explain that one since I happen to be one of them. You learn to live with it I have the entire spine shot and I now go through seizures on top of it they told my son to many operations were required I had two brain operations having Arnold Chiari I, 5 of the 7 discs are screwed and rodded, I have tethered cord thus needing lumbar fusion as they fixed that. I have an acoustic neuroma which is a small brain tumor on the hearing nerve. You don't get away from the pain you just endure and eventually that pain is more and more ignored. You get up everyday you do what you need to do normally trying to do enough to keep you mind off it. I moderate two groups on top of everything else. Pain medication doesn't work for me because I have to much going on I have been to many pain doctors I have been on duregesic and morphine as well as many other medications to reduce it they try the so called new medication on me. Guess what they don't help they make me floaty. I have hypersensitive arms and loss of feeling in legs. I am 51 and I am worse off that a 80 year old but my life has got to continue going on. My fingers hurt typing but it is my life and no one is going to jump in and say heck I will cure you they can't. My one disc in my neck has a hard time holding up my whole head. Anyone wanting my life is welcome to it. But I have two sons who need me my husband passed on at 47 ten days after his birthday with yet another rare disease called a Glioblastoma Multiforme. I could sit here and cry and go poor me but there is no one who is going to jump in there and hold me and say your right poor you. I have no family support so is it hard heck yeah. So when I hear people say we want our lives back well so do I throw in my husband to while your at it. Tristan Jouvin wrote: The ones I am referring to: most of them had quite a bit of pain at one point, but they say that eventually (could have taken a couple of years) things got better and now they just have off and on pain if they overdo things or don't get enough rest. They did physical therapy, some did some medicines. ONe friend said that epidurals helped, but who knows if it was just that it got better with time. the doctors told me that of people who have herniated discs like me, 80% will get somewhat better over time. Tristan Barbara wrote: Ok, if you don't mind my questions, I have to know, the friends you speak of, are they in pain and if so, what do they do for it? And it's good to know that your parents are doing well, good for them, sorry you aren't doing as well though. Tristan Jouvin wrote: I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 I don't know in the back of my mind or front I keep going I want to walk up that mountain 3 times a day since it is a 7 mile walk and I used to do it all the time. I want to be able to think of things correctly and I want the seizures to go away. I am not stupid although I feel as if I am with this thing. So when you say you want your life back I can fully understand. Where did my life go??? Hugs Barbara <barbarac102@...> wrote: Thanks so much and I wish the same for you. ~Barbara~ Tristan Jouvin <tristanjouvin99@...> wrote: I hope you can achieve that. FOR ME, I have realized that the best thing that I have done for myself is to adjust my expectations. I no longer have any expectation to get back to my old life. Due the my back pain, my expectations have shifted. Now, if I get through a full workday with no or minimal pain, and then can play with my son in the evening, I am happy. Before, I used to do sports, competitive tennis, even skiing and snowboarding with falling over etc, but there is no way that I can do any of those now, and I have gotten used to it. BUT, my discectomy 15 years ago did allow me to continue these activities for 10 more years, so I guess that the surgery did give me some more good years, but now my back has caought up with me! I hope you get some relief, and can get back to as much as possible. Barbara wrote: It's a tough decision. I've tried conservative methods and I know I'm not as bad off as others, I don't want any pain and want my old life back or at least close to it. Tristan Jouvin wrote: Yes it was nice to have 10 good years. I was active, including regular sports. I had aches and pains but they were tolerable. But the past few years have been miserable. The only surgery options right now are either fusion or artificial disc. Both are too scary for me to consider right now. The six months after the surgery were not fun. I was in worse pain overall than I was before surgery! But I could still work full time through it. It eventually settled down. I was not good with following proper rehab though. I had my surgery 6 months after the onset of symptoms. If I was to do it all over again, I would have avoided or at least delayed that surgery, and would have given it more time, tried more conservative things, and just put up with the pain and made some lifestyle changes. If it had still been bad for 3-4 years, then I think that would have been a good time frame to do the discectomy. But that is just my opinion in hindsight - always 20/20 I guess Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 I understand . I hope you don't mind but I just prayed for you. I guess our lives haven't gone anywhere they are just different. I do hope you find some relief and comfort and wish for your seizures to stop. ~Barbara Buergerhoff <forevermylove50@...> wrote: I don't know in the back of my mind or front I keep going I want to walk up that mountain 3 times a day since it is a 7 mile walk and I used to do it all the time. I want to be able to think of things correctly and I want the seizures to go away. I am not stupid although I feel as if I am with this thing. So when you say you want your life back I can fully understand. Where did my life go??? Hugs Barbara wrote: Thanks so much and I wish the same for you. ~Barbara~ Tristan Jouvin wrote: I hope you can achieve that. FOR ME, I have realized that the best thing that I have done for myself is to adjust my expectations. I no longer have any expectation to get back to my old life. Due the my back pain, my expectations have shifted. Now, if I get through a full workday with no or minimal pain, and then can play with my son in the evening, I am happy. Before, I used to do sports, competitive tennis, even skiing and snowboarding with falling over etc, but there is no way that I can do any of those now, and I have gotten used to it. BUT, my discectomy 15 years ago did allow me to continue these activities for 10 more years, so I guess that the surgery did give me some more good years, but now my back has caought up with me! I hope you get some relief, and can get back to as much as possible. Barbara wrote: It's a tough decision. I've tried conservative methods and I know I'm not as bad off as others, I don't want any pain and want my old life back or at least close to it. Tristan Jouvin wrote: Yes it was nice to have 10 good years. I was active, including regular sports. I had aches and pains but they were tolerable. But the past few years have been miserable. The only surgery options right now are either fusion or artificial disc. Both are too scary for me to consider right now. The six months after the surgery were not fun. I was in worse pain overall than I was before surgery! But I could still work full time through it. It eventually settled down. I was not good with following proper rehab though. I had my surgery 6 months after the onset of symptoms. If I was to do it all over again, I would have avoided or at least delayed that surgery, and would have given it more time, tried more conservative things, and just put up with the pain and made some lifestyle changes. If it had still been bad for 3-4 years, then I think that would have been a good time frame to do the discectomy. But that is just my opinion in hindsight - always 20/20 I guess Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 You are very welcomed. I know how you feel and I have to remember also that we aren't to lean on our own understanding. I know when I do I can fall deep in despair. I know it's best to remember His promises but some days it's very hard. I pray for His light to break through for you. Barbara Buergerhoff <forevermylove50@...> wrote: Thank you so much Barbara God I am so tired of crying already. There is a time and place for everything God is watching out for me. I am going to get that put on a shirt for me. So I can look at it and remind myself. Hugs Barbara wrote: , I don't know what to say except I am truely sorry for all the troubles you've had and are still enduring. I sincerely wish you well and comfort. I couldn't let your post go by without saying a word. Yet I feel my words are not sufficient but I mean what I wrote. God Bless you. Buergerhoff wrote: Ok let me explain that one since I happen to be one of them. You learn to live with it I have the entire spine shot and I now go through seizures on top of it they told my son to many operations were required I had two brain operations having Arnold Chiari I, 5 of the 7 discs are screwed and rodded, I have tethered cord thus needing lumbar fusion as they fixed that. I have an acoustic neuroma which is a small brain tumor on the hearing nerve. You don't get away from the pain you just endure and eventually that pain is more and more ignored. You get up everyday you do what you need to do normally trying to do enough to keep you mind off it. I moderate two groups on top of everything else. Pain medication doesn't work for me because I have to much going on I have been to many pain doctors I have been on duregesic and morphine as well as many other medications to reduce it they try the so called new medication on me. Guess what they don't help they make me floaty. I have hypersensitive arms and loss of feeling in legs. I am 51 and I am worse off that a 80 year old but my life has got to continue going on. My fingers hurt typing but it is my life and no one is going to jump in and say heck I will cure you they can't. My one disc in my neck has a hard time holding up my whole head. Anyone wanting my life is welcome to it. But I have two sons who need me my husband passed on at 47 ten days after his birthday with yet another rare disease called a Glioblastoma Multiforme. I could sit here and cry and go poor me but there is no one who is going to jump in there and hold me and say your right poor you. I have no family support so is it hard heck yeah. So when I hear people say we want our lives back well so do I throw in my husband to while your at it. Tristan Jouvin wrote: The ones I am referring to: most of them had quite a bit of pain at one point, but they say that eventually (could have taken a couple of years) things got better and now they just have off and on pain if they overdo things or don't get enough rest. They did physical therapy, some did some medicines. ONe friend said that epidurals helped, but who knows if it was just that it got better with time. the doctors told me that of people who have herniated discs like me, 80% will get somewhat better over time. Tristan Barbara wrote: Ok, if you don't mind my questions, I have to know, the friends you speak of, are they in pain and if so, what do they do for it? And it's good to know that your parents are doing well, good for them, sorry you aren't doing as well though. Tristan Jouvin wrote: I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 thank you Barbara it is hard as you said I was told that most people would have climbed under the blanket and stood there. With everything I have endured there is a reason for everything though isn't it. I might not understand it now but there is there has got to be. Hugs Barbara <barbarac102@...> wrote: You are very welcomed. I know how you feel and I have to remember also that we aren't to lean on our own understanding. I know when I do I can fall deep in despair. I know it's best to remember His promises but some days it's very hard. I pray for His light to break through for you. Barbara Buergerhoff <forevermylove50@...> wrote: Thank you so much Barbara God I am so tired of crying already. There is a time and place for everything God is watching out for me. I am going to get that put on a shirt for me. So I can look at it and remind myself. Hugs Barbara wrote: , I don't know what to say except I am truely sorry for all the troubles you've had and are still enduring. I sincerely wish you well and comfort. I couldn't let your post go by without saying a word. Yet I feel my words are not sufficient but I mean what I wrote. God Bless you. Buergerhoff wrote: Ok let me explain that one since I happen to be one of them. You learn to live with it I have the entire spine shot and I now go through seizures on top of it they told my son to many operations were required I had two brain operations having Arnold Chiari I, 5 of the 7 discs are screwed and rodded, I have tethered cord thus needing lumbar fusion as they fixed that. I have an acoustic neuroma which is a small brain tumor on the hearing nerve. You don't get away from the pain you just endure and eventually that pain is more and more ignored. You get up everyday you do what you need to do normally trying to do enough to keep you mind off it. I moderate two groups on top of everything else. Pain medication doesn't work for me because I have to much going on I have been to many pain doctors I have been on duregesic and morphine as well as many other medications to reduce it they try the so called new medication on me. Guess what they don't help they make me floaty. I have hypersensitive arms and loss of feeling in legs. I am 51 and I am worse off that a 80 year old but my life has got to continue going on. My fingers hurt typing but it is my life and no one is going to jump in and say heck I will cure you they can't. My one disc in my neck has a hard time holding up my whole head. Anyone wanting my life is welcome to it. But I have two sons who need me my husband passed on at 47 ten days after his birthday with yet another rare disease called a Glioblastoma Multiforme. I could sit here and cry and go poor me but there is no one who is going to jump in there and hold me and say your right poor you. I have no family support so is it hard heck yeah. So when I hear people say we want our lives back well so do I throw in my husband to while your at it. Tristan Jouvin wrote: The ones I am referring to: most of them had quite a bit of pain at one point, but they say that eventually (could have taken a couple of years) things got better and now they just have off and on pain if they overdo things or don't get enough rest. They did physical therapy, some did some medicines. ONe friend said that epidurals helped, but who knows if it was just that it got better with time. the doctors told me that of people who have herniated discs like me, 80% will get somewhat better over time. Tristan Barbara wrote: Ok, if you don't mind my questions, I have to know, the friends you speak of, are they in pain and if so, what do they do for it? And it's good to know that your parents are doing well, good for them, sorry you aren't doing as well though. Tristan Jouvin wrote: I have friends who have had disc problems for years who have had no surgery, and they are better off than me now. But I also know people who have had discectomy in the past (including both of my parents), who are doing very well. so I guess everyone is different Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 I appreciate your prayers Barbara. Lost a fiancee that way who I was engaged to for four years I guess a good thing though found out real fast he was not the type that would stay with me. Barbara <barbarac102@...> wrote: I understand . I hope you don't mind but I just prayed for you. I guess our lives haven't gone anywhere they are just different. I do hope you find some relief and comfort and wish for your seizures to stop. ~Barbara Buergerhoff <forevermylove50@...> wrote: I don't know in the back of my mind or front I keep going I want to walk up that mountain 3 times a day since it is a 7 mile walk and I used to do it all the time. I want to be able to think of things correctly and I want the seizures to go away. I am not stupid although I feel as if I am with this thing. So when you say you want your life back I can fully understand. Where did my life go??? Hugs Barbara wrote: Thanks so much and I wish the same for you. ~Barbara~ Tristan Jouvin wrote: I hope you can achieve that. FOR ME, I have realized that the best thing that I have done for myself is to adjust my expectations. I no longer have any expectation to get back to my old life. Due the my back pain, my expectations have shifted. Now, if I get through a full workday with no or minimal pain, and then can play with my son in the evening, I am happy. Before, I used to do sports, competitive tennis, even skiing and snowboarding with falling over etc, but there is no way that I can do any of those now, and I have gotten used to it. BUT, my discectomy 15 years ago did allow me to continue these activities for 10 more years, so I guess that the surgery did give me some more good years, but now my back has caought up with me! I hope you get some relief, and can get back to as much as possible. Barbara wrote: It's a tough decision. I've tried conservative methods and I know I'm not as bad off as others, I don't want any pain and want my old life back or at least close to it. Tristan Jouvin wrote: Yes it was nice to have 10 good years. I was active, including regular sports. I had aches and pains but they were tolerable. But the past few years have been miserable. The only surgery options right now are either fusion or artificial disc. Both are too scary for me to consider right now. The six months after the surgery were not fun. I was in worse pain overall than I was before surgery! But I could still work full time through it. It eventually settled down. I was not good with following proper rehab though. I had my surgery 6 months after the onset of symptoms. If I was to do it all over again, I would have avoided or at least delayed that surgery, and would have given it more time, tried more conservative things, and just put up with the pain and made some lifestyle changes. If it had still been bad for 3-4 years, then I think that would have been a good time frame to do the discectomy. But that is just my opinion in hindsight - always 20/20 I guess Barbara wrote: Thanks, I'm looking and I realize the people here are basically the ones in pain, but unfortunately reading how many have had a hard time makes me sympathetic to them but also scared for myself. Ten good years sounds pretty sucessful to me, can you have another surgery now for the worn disk? How bad was the 6 month recuperation time? It is now 16 months since I hurt myself. It was worse but I am never without any type of pain. I was doing pretty great from just the chiropractor but the last 2 weeks I've not been as well and am very frustrated. I don't want to live this way. I'm an outdoors person, relatively young and always loved exercise, probably too much. I just hope I find a good solution. Thanks again. Tristan Jouvin wrote: The sites are often created by or run by either surgeons who do the procedures, or from the companies who make the special devices to do them, so there is an ulterior motive.... There are people who have successful surgeries, the thing is that most of them are feeling good so they don't have to be on these internet groups! Most of us are on the groups because we have pain. I had a regular type of discectomy, which was temporarily a success. Meaning, that after a difficult 6 month period after the surgery, things settled down and I did'nt have pain for about 10 years. But since then (meaning from the 10 year point to now which is 15 years post surgery), I have had bad pain due to severe wearing out of that disc. So, even though I had 10 good years, I now don't know if the surgery was worth it in the long run. although, how do I know what I would have been like if I had'nt done the surgery. It is a difficult decision to decide whether or not to do it. I would advise to look into all options carefully. barbarac102 wrote: Thanks for your reply. The sites always make it sound like it's the greatest thing. I would love to hear from someone who had it or knows someone who had but then again I'd love to hear from someone who had any sucessful back surgeries. I mostly see horror stories, I would think there has to be people who have benefited from them. Thanks to any replies. > OK, Has anyone had this or know anything about this? It is suppose to > be non invasive. Anyone? Thanks. > > > > > > > --------------------------------- > Everyone is raving about the all-new beta. > > Quote Link to comment Share on other sites More sharing options...
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