GREAT NEWS

[Guest guest]

Thank you so much for your news, Mercy. It is so uplifting to hear about his

progress.

Tina

Tina M. Hendrix

Cure2000@...

President, Coalition, Northern California

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

Hi ,

Read your post and just wanted to say Yeah!!!!!! That is so great. Keep up

the good work.

I also wanted to say Tammy and Joya it's great to hear your good news too. I

was wondering how your little guys have been doing. It's great to hear from

you.

Wish I could write more but I'm having a rough night just wanted to let you

know it is good to hear from you all.

Take care

de Poortere

Mom to 5 and Bobby 3

Bernardsville NJ

CHERAB Foundation

Director of Fundraising

[Guest guest]

Hi Everyone!

Let's all wish well tomorrow-she's going in for a medical

test-and she's not feeling that well right now. A bunch of us from

CHERAB had to get together for a publicity picture for the December

Tree Lighting that is honoring CHERAB Foundation so I had a chance to

see today and give her a hug. She is such an awesome person

and is working hard to help all of our children and I'm so happy

she's one of my friends.

Thanks -and hope all goes well tomorrow!! Feel better soon!!

Love,

=====

[Guest guest]

Hi everyone,

Just wanted to let you know I'm back on track and running again. All

went well, just waiting for some further test results but everything

looks OK for now. , Thanks for your well wishes!

Now back to business. The Christmas tree lighting is DEC 5 and I will

be picking up the invites this week, and sending them out as soon as

possible so please e-mail me at md070264@... (md070264 at

aol.com) with your address or anyone else's that you think would like

to come (family, friends etc. ALL are welcome) It will be a lovely

and fun family evening with food, carolers, Santa, a huge, huge tree,

etc. What a great way to start off the Holiday Season with family and

friends. And since the Cherab Foundation is being honored this year

and this is a media event every year with TV, radio, newspapers,

magazines, etc., what more can you ask for to help us raise awareness

about our children?

I have some very exciting news, next week Nov. 19 my husband and I

will be driving to Washington D.C to meet with our Congressmen Mike

Ferguson. I can't wait. We will represent the CHERAB Foundation to

discuss the issues as parents we are concerned about. Dr. Katz will

also be attending this meeting with us to let Congressmen Ferguson

know about the research the CHERAB Foundation has planned, and about

the continued funding we will need for this very important study. We

have heard that Congressmen Ferguson is looking forward to attending

both the Tree Lighting and the CHERAB fundraiser on Feb 16.

Speaking of the CHERAB Fundraiser even though Feb. sounds far away it

really isn't. This will be a dinner dance held at Headquarters Plaza

Hotel in town, NJ, there will be a cocktail hour with open bar

all night, a gourmet dinner and dancing, a Chinese auction and much

more. A great way to have fun and raise money for research.

Everything we will be doing for this fundraiser will rely on

donations, this is where I will be asking for your help. We need

donations for the Chinese auction. It could be anything, if your

Mother knits a baby blanket that would be nice, if your husband or

wife gets tickets to a sports event through work we could use that,

if you would like to donate a basket in your family name of books,

toys, bath products that would be great too.

I have my sister donating a fish tank and the fish from her pet

store, my other sister will be making up a gourmet food basket and my

other sister is donating a DVD player. I have my brother in law

donating a TV and my cousins husband will be donating a queen size

bed spread. I have Waterford coming from My Irish Cottage in Summit,

Higgens and I will be going to business's in the area

looking for other donations gift certificates for dinner lunch etc.

Well, you get the picture. You don't have to live in Jersey to help.

Anything or any time donated would be a great help. This is our

chance to have some fun and raise money for the research that is so

badly needed. You can send any donations to:

CHERAB Foundation

6 5 7 Valley Road Box 339

Gillette, NJ 07933

Attn: de Poortere Director of Fundraising

I know we all have busy lives and things to do, yet any help sent our

way will be greatly appreciated and we will be on our way to helping

to give our children a smile and a voice. Thank you

Take Care

de Poortere

Mom to 5 and Bobby 3

Bernardsville NJ

Director of Fundraising CHERAB Foundation

http://www.apraxia.cc

--- In @y..., "

[Guest guest]

Dear Sheila,

What great news!! I remember when I started Bobby on EFA's I didn't know

what to expect. Each child is different and in some cases it may be a couple

of weeks before you see any results but with Bobby it was days! It just

wasn't just his speech it was everything, he was much happier more focused

and even walked around the house humming and then singing. You'll see new

changes every day and it gets better and better. Good luck and keep us

posted!!

Take care

de Poortere

Mom to 5 and Bobby 3

Bernardsville NJ

Director of Fundraising

CHERAB Foundation

[Guest guest]

Yeah !!!!!!!

[Guest guest]

-

That is great news. People considering banding need to hear of the

success others have had with insurance companies. Not everyone is

turned down, but unfortunately, it is those who are turned down that

they hear from the most!

Don't feel bad for getting what you rightly deserve and pay for with

your policy premiums!

Good luck tomorrow.

Dane's mom DOC Grad

>

> I feel guilty posting this here, but I found out today that our

insurance, Sprintchoice, a Sprint employee exclusive health

insurance (a PPO) which is administered by Harrington Benefits..is

COVERING THE BAND 100%...I'm SHOCKED. I have been loosely putting

together an appeal since we started all of this, thinking that they

would deny us...Also, I thought the best we could do was 80%

covered, since it is out of network to go to CT. Again, I am

dumbfounded, shocked. I don't have it in writing yet, but they said

the letter of approval, stating that we have no out-of-pocket costs,

has already been mailed to us and the CT office.

>

> Also, Grant's band came in early today and we got our appt for the

fitting moved up to TOMORROW. I'm so nervous, excited, scared, etc.

>

>

>

> , Mom to Grant (born 9/26/01)

>

>

> ---------------------------------

>

[Guest guest]

Thats WONDERFUL!!!! Trisha

Robben <kellysdogs@...> wrote:

I feel guilty posting this here, but I found out today that our insurance, Sprintchoice, a Sprint employee exclusive health insurance (a PPO) which is administered by Harrington Benefits..is COVERING THE BAND 100%...I'm SHOCKED. I have been loosely putting together an appeal since we started all of this, thinking that they would deny us...Also, I thought the best we could do was 80% covered, since it is out of network to go to CT. Again, I am dumbfounded, shocked. I don't have it in writing yet, but they said the letter of approval, stating that we have no out-of-pocket costs, has already been mailed to us and the CT office.

Also, Grant's band came in early today and we got our appt for the fitting moved up to TOMORROW. I'm so nervous, excited, scared, etc. , Mom to Grant (born 9/26/01)

[Guest guest]

Thats great news kelly!!

Good luck for tomorrow when Grant gets his band. Let us know how he gets on.

Best wishes

Kerry - Marcus (3) Dylan in second DOCband (16months)

Calgary,AB

>From: Robben <kellysdogs@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Great News

>Date: Thu, 13 Jun 2002 11:25:29 -0700 (PDT)

>

>

>I feel guilty posting this here, but I found out today that our insurance,

>Sprintchoice, a Sprint employee exclusive health insurance (a PPO) which is

>administered by Harrington Benefits..is COVERING THE BAND 100%...I'm

>SHOCKED. I have been loosely putting together an appeal since we started

>all of this, thinking that they would deny us...Also, I thought the best we

>could do was 80% covered, since it is out of network to go to CT. Again, I

>am dumbfounded, shocked. I don't have it in writing yet, but they said the

>letter of approval, stating that we have no out-of-pocket costs, has

>already been mailed to us and the CT office.

>

>Also, Grant's band came in early today and we got our appt for the fitting

>moved up to TOMORROW. I'm so nervous, excited, scared, etc.

>

>

>

> , Mom to Grant (born 9/26/01)

>

>

>---------------------------------

>

[Guest guest]

:

Yay!!!!!!!! This is TERRIFIC news, so happy to hear . Also great

news Grant's band is in a bit early.

Best of luck at the fitting tomorrow...we look forward to hearing how

it goes.

Debbie Abby's Mom DOCgrad

MI

>

> I feel guilty posting this here, but I found out today that our

insurance, Sprintchoice, a Sprint employee exclusive health insurance

(a PPO) which is administered by Harrington Benefits..is COVERING THE

BAND 100%...I'm SHOCKED. I have been loosely putting together an

appeal since we started all of this, thinking that they would deny

us...Also, I thought the best we could do was 80% covered, since it

is out of network to go to CT. Again, I am dumbfounded, shocked. I

don't have it in writing yet, but they said the letter of approval,

stating that we have no out-of-pocket costs, has already been mailed

to us and the CT office.

>

> Also, Grant's band came in early today and we got our appt for the

fitting moved up to TOMORROW. I'm so nervous, excited, scared, etc.

>

>

>

> , Mom to Grant (born 9/26/01)

>

>

> ---------------------------------

>

[Guest guest]

,

Wow - that is GREAT news!! You should not feel bad about posting that here.

We LOVE to hear the insurance company success stories. It gives faith that

there are some insurance companies out there who are willing to step up and

do the right thing.

Let us know how it goes at the fitting tomorrow!

Marci (Mom to )

Oklahoma

[Guest guest]

that is so awesome! One less stress- now go out to dinner with hubby

and celebrate and buy Grant a new toy:-)

Beck

[Guest guest]

Ps Good luck tomorrow please be sure to let us ow how it goes!

beck

[Guest guest]

----- Original Message -----

From: " Tony " <implants@...>

<implants@...>

Sent: Sunday, October 26, 2003 9:27 PM

Subject: Great News

> Salutation to all of you.

>

> Firts: The front pages of our website have been changed. Both pages are

> in the same one.

>

> Just surf around and you'll find yourelf. If you can't find yourself

> please let me know.

>

> The subject of your letter should be:

>

> Can't find myself............................

>

> AS you'll find out the site is now dedicated to my first wife Hélêne.

> Rememeber that she died due to CANCER........

>

> I have been told so many times in the pass that the front pages were

> slow to load jus try it now.

>

> At:

>

> http://www.info-implants.com/

>

> We are not yet done with the page we will keep working on it.

>

> This wek I have posted new articles in the: 'Tigers' Pen Corner' At:

>

> http://implants.clic.net/tony/Corner/index.html

>

> Hope you like the new presentation.

>

> Please foward my letter to your friends.

>

> God Bless you all and all your loved ones

>

>

>

[Guest guest]

Being on pred for so long had my Pancreas throwing fits and I developed

Type II Diabetes. My fasting blood sugar was 275 and my A1C (Special

Blood test for diabetics)was 9.0. BADDDDDDDD!

Well, since I have been off pred, started watching my diet and getting

daily exercise, my fasting blood sugar is now usually 80-90 and my A1C

is now LIKE A NORMAL PERSON AT 5.2. WHOOOOOOOOOO HOOOOOOOOOOOO.

Thanks to Xolair, I no longer have to take that nasty prednisone.!

Doug

Group founder

Co/Owner/moderator

[Guest guest]

doug

that is so AWESOME!! i'm so happy for you. it must feel great to get your

health back!

what did your dr say?? he must be thrilled too!!

congratulations

heather

uca79iii <uca79iii@...> wrote:

Being on pred for so long had my Pancreas throwing fits and I developed

Type II Diabetes. My fasting blood sugar was 275 and my A1C (Special

Blood test for diabetics)was 9.0. BADDDDDDDD!

Well, since I have been off pred, started watching my diet and getting

daily exercise, my fasting blood sugar is now usually 80-90 and my A1C

is now LIKE A NORMAL PERSON AT 5.2. WHOOOOOOOOOO HOOOOOOOOOOOO.

Thanks to Xolair, I no longer have to take that nasty prednisone.!

Doug

Group founder

Co/Owner/moderator

[Guest guest]

I am thrilled for you. The best Xmas, NewYears present anyone can get.

Love & Hugs

Ceil

[Guest guest]

Oh Lottie,

That is the greatest news.. You so well deserve your number with Stardust for

sure.

Congratulations and a great big hug

Anita

________________________________

From: Lottie Duthu <lotajam@...>

CML < >

Sent: Mon, December 28, 2009 7:03:28 PM

Subject: [ ] Great News

I just opened my emails late this afternoon and found one from MDACC.

20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your

megaphone out and I want my number sprinkled with stardust if that is not too

much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie

has his on his cap and he's never without it, but I don't look so good in a hat.

LOL Just wanted to share my good news, I waited 14.5 years to claim it and

announce it.

Another FYI,

Lottie Duthu

[Guest guest]

OH LOTTIE:  This is such fantastic news, and you deserve it more than ever. 

This Christmas Season has been so full of so many miracles.  May the Good Lord

Continue to keep everyone in remission until we can all see a cure.

Happy New Year

From: Lottie Duthu <lotajam@...>

Subject: [ ] Great News

" CML " < >

Date: Monday, December 28, 2009, 8:03 PM

 

I just opened my emails late this afternoon and found one from MDACC.

20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your

megaphone out and I want my number sprinkled with stardust if that is not too

much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie

has his on his cap and he's never without it, but I don't look so good in a hat.

LOL Just wanted to share my good news, I waited 14.5 years to claim it and

announce it.

Another FYI,

Lottie Duthu

[Guest guest]

YEAH!!!!! You go girl.

On Dec 28, 2009, at 8:03 PM, Lottie Duthu wrote:

> I just opened my emails late this afternoon and found one from MDACC.

>

> 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your

megaphone out and I want my number sprinkled with stardust if that is not too

much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie

has his on his cap and he's never without it, but I don't look so good in a hat.

LOL Just wanted to share my good news, I waited 14.5 years to claim it and

announce it.

>

> Another FYI,

> Lottie Duthu

>

>

[Guest guest]

>

> I just opened my emails late this afternoon and found one from MDACC.

>

> 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get

your megaphone out and I want my number sprinkled with stardust if that is not

too much trouble. Just wanted to share my good news, I waited 14.5 years to

claim it and announce it.

__________________________

Hi Lottie,

News flash.......Lottie is NORMAL after 14.5 years!!!!

Yeah.........you give hope to anyone who thinks it won't happen for them.

I am going to picture your Zero number covered in chocolate frosting with

sprinkles on it........or maybe a fuffly white could with your number and a

rainbow hanging from it...........

this is great news.....and you are so deserving.

lots of love to you, Mrs. Normal...........

C.

[Guest guest]

Dear Lottie,

I am jumping up and down and throwing confetti in the air at hearing your GREAT

NEWS!! So, so happy for you, my dear! Talk about " hanging in there! " You are

the champion " hanger in there. " Much, much deserved.

Hugs,

JoAnn

>

> I just opened my emails late this afternoon and found one from MDACC.

>

> 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get

your megaphone out and I want my number sprinkled with stardust if that is not

too much trouble. Now there is a project, printing Zero numbers on T-shirts.

Zavie has his on his cap and he's never without it, but I don't look so good in

a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it

and announce it.

>

> Another FYI,

> Lottie Duthu

>

>

[Guest guest]

Dear Lottie!!

GOD BLESS YOU!!!!

Jo-Dee

From: JoAnn <rosegeranium@...>

Subject: [ ] Re: Great News

Date: Tuesday, December 29, 2009, 3:14 PM

 

Dear Lottie,

I am jumping up and down and throwing confetti in the air at hearing your GREAT

NEWS!! So, so happy for you, my dear! Talk about " hanging in there! " You are

the champion " hanger in there. " Much, much deserved.

Hugs,

JoAnn

>

> I just opened my emails late this afternoon and found one from MDACC.

>

> 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get

your megaphone out and I want my number sprinkled with stardust if that is not

too much trouble. Now there is a project, printing Zero numbers on T-shirts.

Zavie has his on his cap and he's never without it, but I don't look so good in

a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it

and announce it.

>

> Another FYI,

> Lottie Duthu

>

>

[Guest guest]

Hi Lottie,

I am sooooo happy for you.

God Bless,

Don

>

> I just opened my emails late this afternoon and found one from MDACC.

>

> 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get

your megaphone out and I want my number sprinkled with stardust if that is not

too much trouble. Now there is a project, printing Zero numbers on T-shirts.

Zavie has his on his cap and he's never without it, but I don't look so good in

a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it

and announce it.

>

> Another FYI,

> Lottie Duthu

>

>

[Guest guest]

Thank you Bob for a smile!!! She definitely is a swan.

Jackie S.

From: bob1234stewart <bob-stewart@...>

Subject: [ ] Re: Great News

Date: Tuesday, December 29, 2009, 10:16 AM

 

Well I'll be damned, the old turtle became a swan. Congratulations

Lottie!

Bob , Granger, Indiana

>

> I just opened my emails late this afternoon and found one from MDACC.

>

> 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get

your megaphone out and I want my number sprinkled with stardust if that is not

too much trouble. Now there is a project, printing Zero numbers on T-shirts.

Zavie has his on his cap and he's never without it, but I don't look so good in

a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it

and announce it.

>

> Another FYI,

> Lottie Duthu

>

>