Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 My experience with my daughter was 1.5 was enough TBI when we went higher she didn't do as well. 1.5 atp was more than suficent we noticed the biggest dieference between 40 and 80. You can contact Dr. Neubauer at Ocean hyperbaric's at 954-771-4000. He will be more than glad to talk with you. IF you have any problems gettign through to him give me a call Darin 972-427-8825 Im nobody don't take as to be anybody just a father that knows HBOT work's if you want I can send you before and after pictures of my child you can also access her webpage and get her full story at www.katysplace.fullmoonwebs.com it also has her case summary on the homepage. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Hello Sue, Many people have benefited from the chamber pressure of 1.50 ATA, however, this does not mean that it is the correct pressure for everyone. The first " rule " to remember is that: Everyone is different and must be treated on an individual basis. We only use the number of 1.50 ATA as a general guide - but not as a magic number for everyone. Some kids do well with 1.50 ATA, while others cannot start at that pressure - they must start at a very low pressure and build up. [For these reasons it is critical to have a medical evaluation before starting hyperbaric treatment.] Lane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Hi Sue, The same concept for the amount of treatments. Some can take more than others. Lane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Greetings! That seems to be the $64,000.00 question. The best way to know what is too much, is to observe your loved one. Is he continuing to progress? Has his personality changed? Is he iritable? Hyper? If you haven't seen any progress yet, sometimes you have to stop the treatments and 3 weeks later you'll see a great big jump in ability or abilities. Some people don't see any change until after the 60th treatment, some see change right away. Some say the change starts more quickly if the injury and/or the loved one is young. Some people who have had their brain injuries for years see changes within 2 treatments, but they still need 200. Obviously this is very individual which smacks in the face of the reasearch scientists. They have to be able to put everything into a nice neat package. It's to make their jobs easier to do. What they don't remember or don't believe, is that no two people are alike. We are all unique to ourselves. Yes we all are humans, and most of us have all the necessary parts in the right places, but not any two people react to medicine in the same way. They have to make you believe that drug reactions can be compartmentalized. It's is done with probabilities and statistics. It's all part of the lie the medical community must make you believe. To make you trust them with your loved ones lives. If you walk into their offices with that knowledge in the back of your mind, you're bound to think more about what they are saying, you're bound to ask about the side effects of the drugs, you're bound to notice those side effects when they happen and force the Doctors to document the reactions - acceptable or not. They will become more responsible. How can we lose? With Much Respect, Marlena Orndorff Sue Dropp wrote: > Just wondering what the proper protocol for HBOT treatments is. My > son (TBI) received 20 dives in July. Currently he is getting 40 dives > for a total of 60 for the summer. (1.5 ata) We are wondering if more > would be too much??? Please let me know. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 >If you walk into >their offices with that knowledge in the back of your mind, you're bound >to think more about what they are saying, you're bound to ask about the >side effects of the drugs, you're bound to notice those side effects >when they happen and force the Doctors to document the reactions - >acceptable or not. They will become more responsible. How can we lose? > Is this ultimately why there is so much universal resistance to hyperbaric oxygen therapy? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " Trust in the LORD with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight. Do not be wise in your own eyes; fear the LORD and shun evil. " [Prov. 3:5-7] Freels 2948 Windfield Circle Tucker, GA 30084-6714 770/491-6776 (phone and fax) 509/275-1618 (efax, sends fax as email attachment) mailto:dfreels@... http://www.freelanceforum.org/content/portfolio.asp?ID=195 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Sue, In fairness that specific question should be only answered by the physician managing the HBOT center and your son's treatments. Further, I would think that it can only be answered at the end of the next 40 sessions. This is why it is important to begin your journey at a top center with lots of experience. Best Wishes and good luck for your sons improvement! Ed Nemeth At 12:10 AM 8/23/2002 -0500, you wrote: >Just wondering what the proper protocol for HBOT treatments is. My son >(TBI) received 20 dives in July. Currently he is getting 40 dives for a >total of 60 for the summer. (1.5 ata) We are wondering if more would be >too much??? Please let me know. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 Dear friend, a protocol is a plan for a course of treatment or for a scientific experiment. A plan is made having in mind the current factors, so it depends on them. Effects are also a factor, that may modify the plan. A treatment protocol, then, is not something inscribed in stone..., while a research protocol is more so. Your trusted practitioner can appraise partial results, and make the necessary corrections in the originally suggested protocol. Best regards. Ignacio Fojgel, M.D. Buenos Aires, Argentina. PS: there is no water involved, so don' call them dives, ...please? Sessions sounds more like it... Sue Dropp wrote: > Just wondering what the proper protocol for HBOT treatments is. My son (TBI) received 20 dives in July. Currently he is getting 40 dives for a total of 60 for the summer. (1.5 ata) We are wondering if more would be too much??? Please let me know. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Sandy, Your doctors office is responsible for showing you how to use this stuff. If they didn't, call them immediately and make them tell you how to mix it and how to give yourself the shot!! YES, the Ribavirin will make you feel icky. Some people get side effects the day after their first shot. Some don't ever have any. Some get them after the 4th shot. It varies among the individual. LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 EXCELLENT instructional post !! Thanks a bunch!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Hi, I am new to the group and haven't posted yet. My son had 80 treatments in a row and did wonderful. I will tell you that the most significant changes in him happened in the first 20 treatments, and his spect scan after 40 showed this improvement as well, and after 80 treatments, it showed a little bit more, but not to the same degree that the after 40 did. He continued to improve throughout the 80 treatments, but we noticed that with each 20 block we saw less and less improvement. So in our personal opinion ( please nobody slam me for saying this), we think that an initial 20 treatments to start with would be OK. We would suggest that you continue in blocks that you can afford until you stop seeing any improvements though. And if I may also say, please don't forget to work with your child after each treatment doing patterning, PT and OT and speech/eating. For the life of me, I can not understand how some parents get these treatments and then do nothing else. If your going to 'wake' up brain cells and expect them to perform, you have to teach them what you want them to do. We had been doing patterning along with the PT/OT and speech for over a year before we started and weren't getting anywhere really. And we did decrease the time we worked with him because of the time it took to go to the treatments every day, but we still did it in shorter sessions. One thing we didn't even work on that improved right off the bat (after 4 treatments), was that he ate applesauce and grits without vomiting. He would always vomit if we even touched his lips with the stuff before the treatments. His speech and eating skills only kept improving after that. And now he is eating us out of house and home. So don't forget to work on the eating while your doing the treatments. Oh, and of course my favorite thing, 2 weeks into the treatments, and at 20 months old, he looked at his daddy and said dada. Mama came at 22 months old and it was slow going but now we can't get him to shut up ;o) Physically, he is much better, and would probably be walking in his walker by now, but we had some medical issues pop up that caused him to become more spastic leading to the removal of a baclofen pump last year and then adductor releases this past March at Shriners. He had to start over physically last year after a very close to death experience, but is now better than before and is starting to work in a walker again. So go for it and remember to teach those cells what you want them to do. [ ] treatments I would like the groups opinion on how many treatments are needed when first starting hbot.I have been told two different things so I would like to know the groups.I was told by one clinic if you took one treatment it still does some good for you and the other clinic told me in there program the min. is 40 straight then after that if you want to do less that's o.k.if you do less than the first 40 you may as well throw your money out the window.Well, some of cannot afford that many at one time so my question is if you only do a couple treatments at a time is it the same?Thanks for any comments or suggestions. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Jackie, We can probably give you several opinions on this question, but let's see if we can help you with something everyone agrees on. First, everything depends on the patient, and the condition, or illness. I am assuming, that since you are addressing this group, that you are referring to HBOT for a child with a brain injury. So, this discussion will proceed on that premise. Second, there are short term / immediate effects of HBOT, and longer term growth and development, as well. In the short term (a treatment, or a few treatments) your child will receive some benefit, but they may not be permanent. Thus, with fewer short term improvements, and less permanency, it MAY be that there is not enough benefit to your child to warrant to effort. (I will be interested in Dr. and Dr. Fojgel on their opinions on this). 40 HBOT's seems to be a number that most will agree is a fairly good number of HBOT's to get more short term effects, and to have these effects be long lasting. You should do those 40 in a " group " : 2 per day 5 days per week for 4 weeks or 1 per day 5 days per week for 8 weeks or something similar with no large breaks. This, in essence, is healing the tissue " wounds " like damage to the blood vessels, etc. Also, this is releasing a number of growth hormones (some known, some/many unknown) on an ongoing basis. And, these help your child to better recover from the tissue injuries. Third, the next step does depend on your child's response to the first 40 sessions. But, if the child demonstrated a good response, you would probably continue (you know it is working for the child) and do another " set " of 40 HBOT's similar to how you did the first set. Fourth, thereafter, you will probably be better to proceed with smaller sets of 20, or possibly even fewer, if the results continue. Fifth, every child and condition differs, thus the rules must be adjusted for the needs and response of the child, as well as to support the issues you have with travel, getting the treatments paid for, family issues, etc. Sixth, I highly suggest additional therapies to coincide with the HBOT ( " once you wake up the neurons, you have to give them something to do " ), and you have to get this injured child's body into a condition so that he/she can use his body to " learn " to move, etc. i.e. make certain the child gains flexibility so he can move, and learn to move. I hope this makes sense, and helps you with your questions. If you want more specifics, please let us know more about the patient. As mentioned, I assumed a few things to write this note. Best Wishes! Ed Nemeth At 12:36 PM 10/23/2002 +0000, you wrote: >I would like the groups opinion on how many treatments are needed >when first starting hbot.I have been told two different things so I >would like to know the groups.I was told by one clinic if you took >one treatment it still does some good for you and the other clinic >told me in there program the min. is 40 straight then after that if >you want to do less that's o.k.if you do less than the first 40 you >may as well throw your money out the window.Well, some of cannot >afford that many at one time so my question is if you only do a >couple treatments at a time is it the same?Thanks for any comments or >suggestions. > > > > > > > Jackie > > > >_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._. >Unrestricted downloads of 50+ pdf files on HBOT efficacy >medicaid/files/ > >Download your state EPSDT program >http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the >word " ameliorate " . State Medicaid websites >http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver >programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html > >Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm > >HBOT can save billions of dollars and millions of heartaches. Subscribe to > by sending a blank email to >mailto:medicaid-subscribe > >Unsubscribe? Click here mailto:medicaid-unsubscribe . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Dear Jackie, following sound protocols, established since long, we indicate a minimum of 16-20 sessions, generally Mo through Fri, that is four weeks in a row. Some biological changes at microcirculatory and tissue level take that long to kick in, so if something of the sort is what you want to acheive, it would be mandatory to engage at least in such a commitment. On the contrary, if you only needed to detox from a carbon monoxide accident or wanted to prepare a person for surgery, or recuperate a patient after such a stressful situation, an air transportation incident, etc., fewer sessions are called for. A handful of sessions do not establish change, or oxygen status as firmly as a full course, and the condition may dwindle back to where it was. Other intercurrent conditions, surgery, certain remedies, lack of excercise, food allergies, etc., may make it quickly regress, too. Protective measures against this posibility must be taken. For selected cases, the best situation would be owning their chambers, either individually or as a group, which provides access to treatment for life, as some patients do in the UK, and elswhere. There you have, you are told a third thing, necessarily without any influence other than medico-biological considerations. Of course, it is a broad statement, without any personal implication, either with a particular patient, protocol or actual condition. Best regards. Ignacio Fojgel, M.D. CIMDept. and Hyperbaric Unit Maimonides University, Buenos Aires, Argentina jsmith0553 wrote: > I would like the groups opinion on how many treatments are needed > when first starting hbot.I have been told two different things so I > would like to know the groups.I was told by one clinic if you took > one treatment it still does some good for you and the other clinic > told me in there program the min. is 40 straight then after that if > you want to do less that's o.k.if you do less than the first 40 you > may as well throw your money out the window.Well, some of cannot > afford that many at one time so my question is if you only do a > couple treatments at a time is it the same?Thanks for any comments or > suggestions. > > Jackie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 > > Other intercurrent conditions, surgery, certain remedies, lack of excercise, food allergies, etc., may make it quickly regress, too. > Protective measures against this posibility must be taken.< < Dr. Fojgel, can you please elaborate on this statement? I am thinking specifically of your mention of " certain remedies. " My son is undergoing acupuncture and although we plan to discontinue the treatment while he receives HBOT (mostly due to schedule and logistics), we intend to return to acupuncture if necessary, once we've completed the first round of 40 treatments. Is it possible that this might cause regression in any progress made from HBOT? What sort of " protective measures " do you recommend to avoid this? Your input is appreciated. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Seems to me that all of a sudden there is a whole lot of "big" news from the big Pharms about their version of a protease inhibitor!!Hope everyone understands that these inhibitor's are in conjunction with the Interferon and Ribavirn. Also, it seems that the only big pharm that is really close is the one with the Telapavir. At least they are announcing the stats from their Phase II studies, all the while that they are well into Phase III clinicals.Gloria Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I think Vertix is going for the big bucks and fast they want it and have the product. The other big Pharms are running scared because Telapavr is getting the money now. From: Gloria <gadamscan@...>Subject: [ ] Treatments"Hep C Web Warriors" < >Date: Wednesday, November 4, 2009, 6:49 PM Seems to me that all of a sudden there is a whole lot of "big" news from the big Pharms about their version of a protease inhibitor!!Hope everyone understands that these inhibitor's are in conjunction with the Interferon and Ribavirn. Also, it seems that the only big pharm that is really close is the one with the Telapavir. At least they are announcing the stats from their Phase II studies, all the while that they are well into Phase III clinicals.Gloria Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 I am starting my 4th month of treatment and was told I have PTSD about ten years ago and I have been on several different medications for it and about a year ago found one that helps the depression, within a month from that they found the hep c. The medicine used for treatment wears me out more than most people so I don't do much because of my past history but I am watched very closely. I go tuesday for more bloodwork but when last checked the medicine was working the way it is suppose to and all my levels are dropping back to where they are suppose to be. So I guess being sick for now is going to be worth it in the end. The dr. told me that if I had attempted to kill myself in the past I would have been refused treatment for the hep c, is this the problem in your case? Just wondering? Every time I go in I have to take a test to see how depressed I am, I answer a bunch of questions, they add up the numbers and I have to be in a certain range in order to continue on with the medicines, so far I have been close once to being removed but they let it go because of the things that were happening during that week. If I can answer anything more for you please just ask. Sheri ________________________________ From: timink169 <timink169@...> Hepatitis C Sent: Sat, June 19, 2010 1:09:07 PM Subject: treatments  I have now been turned down by 4 doctors for treatment, simply because i was diagnosed as depressed years ago..... Anyone heard of this????? HELP!!!! Quote Link to comment Share on other sites More sharing options...
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