Re: - Muscle Pain Extreme? FIBROMYALGIA

[Guest guest]

Hi ,

Sorry you are in pain also. It really takes a lot out of a person as you know. There is no specific test for Fibro but dr.'s do other tests and if they come back neg. they sometimes diagnose Fibro. That is what the Rheumatologist is doing now with me. I see her today for all test results. Follow up. Of course I had already tested pos. for Hep. C this spring.

She did talk about Fibro and how it possibly is that. I do have all the tender points that go with it. And the PAIN.

I have researched the subject for about a year now. And have all the symptoms of it.

In Tennessee as well as other states they are very weiry of prescribing pain meds because they think everyone is an addict here. I have no way of convincing them otherwise.

No doctor I have seen has ever even considered helping me with this pain. I do know that only 1% of pain patients do turn into addicts when prescribed pain meds. But dr's still won't listen to me.

I know for a fact i would not abuse these because for the most important reason being if you take a bunch at a time what will ya do when they run out? So I would take them as prescribed.

Anyway thanks for your time. I truly am appreciative.

Thanks and I hope your pain turns around soon.

I know the hell of it and it has changed my life all together, so much I can't socialize or get out of the house.

Pooderdog.

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi

Doctors do use STEROIDS to control and treat fibro.

You may not need to deal with pain meds.

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=fibromyalgia%20steroids & type=

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=fibromyalgia%20steroid%20treatment & type=

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Actually, I don't believe that there is yet any medication that is safe for us with the Hep C to take for the Fibro!!! I was using Advil Liquid Gels and they were the best, until my Dr. almost had a heart attack, cause they were no good for someone with High Blood Pressure. They have my brother on some kind of codeine because they could not find anything that would work for him in prescriptions.Gloria

Hi ,

Sorry you are in pain also. It really takes a lot out of a person as you know. There is no specific test for Fibro but dr.'s do other tests and if they come back neg. they sometimes diagnose Fibro. That is what the Rheumatologist is doing now with me. I see her today for all test results. Follow up. Of course I had already tested pos. for Hep. C this spring.

She did talk about Fibro and how it possibly is that. I do have all the tender points that go with it. And the PAIN.

I have researched the subject for about a year now. And have all the symptoms of it.

In Tennessee as well as other states they are very weiry of prescribing pain meds because they think everyone is an addict here. I have no way of convincing them otherwise.

No doctor I have seen has ever even considered helping me with this pain. I do know that only 1% of pain patients do turn into addicts when prescribed pain meds. But dr's still won't listen to me.

I know for a fact i would not abuse these because for the most important reason being if you take a bunch at a time what will ya do when they run out? So I would take them as prescribed.

Anyway thanks for your time. I truly am appreciative.

Thanks and I hope your pain turns around soon.

I know the hell of it and it has changed my life all together, so much I can't socialize or get out of the house.

Pooderdog.

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi,

I was diagnosed with Adrenal Fatigue in February by a Dr. in GA. She put me on Hydrocortisone. It did not help with the pain and it made me feel very sick. So I weaned off of it. But thanks for the information.

I went for my follow up today with my Rheumatologist. She had tested for everything under the sun two wks. ago. Today she just told me that I tested positive again for Hep. C.

My father went along too. She went through a number of meds for the pain thinking I had not tryed anything yet. I had to let her know I have been on several muscle relaxers such as Flexeril, Soma, and Zanaflex. No help at all. Also i have been put on by previous doctors over the yrs. many anti-depressants which were no help either.

She of course would not prescribe any narcotic. So I am stuck living with this excruciating pain for the rest of my life. Right now I have no idea how I am going to deal.

My father was very upset with her and said, "So what your really saying is she has to live this way". I tryed to calm him down. He is also fed up with me being forced to live in so much pain that i can't work or do anything outside the home.

I had a guy I know today I saw as I was walking my dog. After I told him about my visit he said he had a bunch of Loratab and some Percocet. If I get much worse I am considering taking him up on his offer. I have gotten to the point where I don't really care if it destroys the liver just kill the pain no matter what! It is that bad.

I have read somewhere that some dr.'s are now treating Fibro with anti-viral drugs. Do you know if that is true?

The dr. today scheduled an appt. with a Nurse Practioner who works with people with Fibro. She works at a Gastroenterologist's office. If they won't put me on any narcotic and nothing I have tryed in the last several yrs. hasn't helped what other option do I have? Since my vial load was undetectable the first time do ya think I should have it retested?

Thanks for listening.

Pooderdog.

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi,

I wish Advil helped me, any OTC one and I would be very very grateful..

Am considering getting some strong stuff from a guy I know. Don't really care much more if it destroys the liver. I can not live in this amount of pain 24/7.

Pooderdog.

PS- Thank you so much for your very caring email the other night. I appreciate it so much.

Ya just don't find people anymore not even friends, at least mine, that give a hoot. Thanks for caring.

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi

First let me say that I am not a doctor, or any medical professional, so anything I tell you is simply my opinion, not backed up by any specific personal knowledge of medicine.

I can give you links, stories I have heard, and my opinion.

1 - From what you have decribed as your symptoms of pain, and what I have read/heard/experianced about Fibro, makes me suspect that this is possibly your problem also.

2 - To my understanding Fibro is very hard to diagnose, and is often related to one having HCV, but not always.

3 - The stories I have discussed with my friend, who has suspected [diagnosed???] Fibro, is being given steroid shots, with good results. My friend has sought out a PAIN MANAGEMENT doctor. She does not have HCV.

search results - fibromyalgia

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=fibromyalgia & type=

search results - hepatitis c + fibromyalgia

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20C%20%2b%20fibromyalgia & type=

search results - fibromyalgia steroids

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=fibromyalgia%20steroids & type=

search results - fibromyalgia steroid treatment

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=fibromyalgia%20steroid%20treatment & type=

- I dont think you should take any narcotic pain meds, as they are possibly bad for your liver. So are some OTC meds. You could drink alcohol too for relief, but these things will possibly speed up liver problems. Not a good solution.

- I do think you should be re-tested for HCV stats. If for no other reason than you will have a second record of how your bloodwork stands. The 'undetectable' bothers me.

- I suggest that you seek out a PAIN MANAGEMENT specialist, not a GP, Hdoc, Gastro, or nurse practioner.

- The must be a solution.

This is only my opinion.

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Here is a link to a site I just looked up - don't know if it would be any help; but, at least it adds to the information for your illness: http://www.fibromyalgiatreatment.com/I honestly know the pain you are talking about!! Makes one feel old, away too early and could put us in wheelchairs long before our time. Even on a good day, I could not walk a block without a rest!! I actually had to grieve the loss of my health and come to an acceptance that this is what it is... I hate feeling

like such an invalid; but, just can't allow that to push me beyond my tolerance because the price is too high. Right now, my pain level seems to be tolerable and has been for awhile. Don't know if it has anything to do with being on treatment or not!! However, I also keep my activity very limited as well.Gloria

Hi,

I wish Advil helped me, any OTC one and I would be very very grateful..

Am considering getting some strong stuff from a guy I know. Don't really care much more if it destroys the liver. I can not live in this amount of pain 24/7.

Pooderdog.

PS- Thank you so much for your very caring email the other night. I appreciate it so much.

Ya just don't find people anymore not even friends, at least mine, that give a hoot. Thanks for caring.

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Thank you Gloria for the link.

I have added it to the links library.

http://health.dir./group/ /links/010___HCV_and_FIBROMYALGIA_001254351819/

I wish I knew of ways to be more help to everyone.

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi,

I had steroid injectons back a couple yrs. ago for the back pain in the muscles. The beginning symptoms of Hep. C I think now.

I had a round of 4 visits. They were no help. He wouldn't do anymore because steroids can cause diabetes, and osteroporosis. Just found out that steroids are as hard on the liver as narcotics and alcohol.

I was doing all the wrong things for this but had no idea that i had Hep. C at the time.

Had morphine and oxycodone after the surgery to take the tumor out in May and two ribs out. Bad. But had no idea then either abt this disease.

Then a NP dr. put me on steroids again to support my adrenal glands because she tested me and found the adrenal fatigue. I have very little cortisol in my system.

Weaned off them now.

Why does the undetectable bother you? People can have the antibody and not have a viral load that is detectable. Mine was <50. I think. And they couldn't find a genotype because of that.

That is why the one dr. said there was nothing he could do for me.

And Lloyd has told me that it is fantastic because it shows that I am one of the lucky few where my body fought off the disease. So I don't know what to think. OR who to believe. That is why I am so concerned and stressed out. I have so many symptoms of the disease. And Lloyd also told me that he has seen thousands of people who had no viral load that also had symptoms. He can't explain this.

He said I would be just fine, but how can i go by that when i feel so sick? I eat right and take the supplements. I can not think of anything else I can do to feel better.

I have been to Pain Management a few yrs. ago. That guy's license should be taken. He gave me a muscle relaxer called zanaflex that did nothing for me. He was a true jerk. I have tryed all kinds of these muscle relaxers and the anti depressants for pain but none helped. Soma, etc...

I am at a loss. But can't live like this anymore.

I still daydream of suicide daily. I feel like I have the worst case flu ever and I have this daily, the pain is so bad I want to die. I have no options now.

I have eaten well and taken supplements for yrs. just cause I have always been a health nut, way before the disease was diagnosed.

So what to do, what to do.....

Thanks for listening,

Pooderdog.

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

:What disease were you diagnosed with?? Certainly not Hep C... Having the antibody and no viral load simply means that you do not suffer from the Hep C Virus. The symptoms of Hep C can be found in a large number of other diseases as well. My Fibromyaligia has bothered me far more that the Hep C virus has ever done. I've never had liver pain of any sort, only had occasional bouts with absolute fatigue, obviously did not have any weight loss etc. etc. prior to diagnosis!! I very easily never would have learned about my Hep C, because of the lack of symptoms, had it not been for an Insurance Policy blood test that I had. By the time my ALT and AST scores were away over 100, they did the liver biopsy and I was already a Phase 3 out of 4, and

that with no one single symptom.Even as short a time as last January, I was still just simply suffering from the Fibromyaligia more than I was any liver disease. Yet, a liver biopsy showed that I was already in early stages of cirrhosis (Phase 4). So I have been taking this second round of treatment which comes to an end on Jan 15th. Now they tell me that there is a good possibilty that I have 2 tumours on my liver and staring at cancer. Still, I feel absolutely no pain whatsoever except what the Fibro might give me.So, please, take your focus off the Hep C and definitely turn it in other directions. Push your Dr's and NP's really hard on this issue and even ask them point blank if they think the Hep C has anything whatsoever to do with this pain.Gloria

Hi,

I had steroid injectons back a couple yrs. ago for the back pain in the muscles. The beginning symptoms of Hep. C I think now.

I had a round of 4 visits. They were no help. He wouldn't do anymore because steroids can cause diabetes, and osteroporosis. Just found out that steroids are as hard on the liver as narcotics and alcohol.

I was doing all the wrong things for this but had no idea that i had Hep. C at the time.

Had morphine and oxycodone after the surgery to take the tumor out in May and two ribs out. Bad. But had no idea then either abt this disease.

Then a NP dr. put me on steroids again to support my adrenal glands because she tested me and found the adrenal fatigue. I have very little cortisol in my system.

Weaned off them now.

Why does the undetectable bother you? People can have the antibody and not have a viral load that is detectable. Mine was <50. I think. And they couldn't find a genotype because of that.

That is why the one dr. said there was nothing he could do for me.

And Lloyd has told me that it is fantastic because it shows that I am one of the lucky few where my body fought off the disease. So I don't know what to think. OR who to believe. That is why I am so concerned and stressed out. I have so many symptoms of the disease. And Lloyd also told me that he has seen thousands of people who had no viral load that also had symptoms. He can't explain this.

He said I would be just fine, but how can i go by that when i feel so sick? I eat right and take the supplements. I can not think of anything else I can do to feel better.

I have been to Pain Management a few yrs. ago. That guy's license should be taken. He gave me a muscle relaxer called zanaflex that did nothing for me. He was a true jerk. I have tryed all kinds of these muscle relaxers and the anti depressants for pain but none helped. Soma, etc...

I am at a loss. But can't live like this anymore.

I still daydream of suicide daily. I feel like I have the worst case flu ever and I have this daily, the pain is so bad I want to die. I have no options now.

I have eaten well and taken supplements for yrs. just cause I have always been a health nut, way before the disease was diagnosed.

So what to do, what to do.....

Thanks for listening,

Pooderdog.

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi ,

I was so sorry to hear about your teeth problems. I am sure that is very uncomfortable. I hope you find some relief soon.

I am still waiting for my test results of my second viral load. If you remember I had a test done for it shortly after testing positive for the Hepatitis C antibody. It showed no viral load. I went to a new dr's. office. I saw the dr's. nurse practitioner and she tested the viral load again at my request. I have read that the viral load can hide or go up and down so I thought I wanted a second test. I stress about the small things.

If it comes back again negative or no viral load, do I still need to be concerned that my liver will continue to get sicker? Or I will get liver cancer? All the things that do happen when one has a viral load?

Or do I not have to worry as much and can pretty much stress less about getting sicker?

I will always continue to eat healthy because I always have.

Also one more question. Do I need to take the supplements such as Selenium, Liv 52, ALA, and Milk Thistle, as well as all the others associated with Hep. C if I do not have a viral load? Oh yea, the fibromyalgia is still hanging on as bad as ever. When I see this new Dr. I will ask if he will at least prescribe me with anti viral drugs since that is one way of treating the pain of fibro now. I understand they can help up to 75% of patients after about 6 weeks.

Thank you for your time and compassion for all of us.

Pooderdog..

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi

Viral load is important, but more important I think, are your other stats, like AST-ALT, etc.

What were all your lab stats?

What does your doctor say about you having HCV?

What do your doctors advise you about your labs?

search results: hepatitis c + no viral load

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=hepatitis%20c%20%2b%20no%20viral%20load & type=

http://www.hepatitis-central.com/hcv/whatis/vl.html

If you can take the anti-virals to relieve your fibro, that would be great.

Fibro is no fun, I know. I suffer too.

Keep us informed please.

I cannot advise you about taking sups/vitamins.

It cant hurt to take some, I dont think.

Eating right is the best thing for maintaining your health.

I wish I could answer your questions with better answers.

I just dont know enough.

Try not to stress to much.

I will do all I can to help you.

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

:Absolutely, if you get the no viral load test result - then you can stop worrying about your liver. None of us here that have been or will be on treatment ever experienced a no-load viral test unless it was happily, someone such as yourself that tested positive for the anti-body but do not actually have the virus. There are many diseases like that.One more thing perhaps you could research and definitely speak to your Dr. about, is the possibility that you have Lupus!! It usually takes Dr's an extremely long time to diagnose Lupus and yet, I believe that a Rheumatogist can eventually find it. I have a sister-in-law that was diagnoses some years back and at first, they tried to call it Chronic Fatigue Syndrome. She told them what they could

do with that and then followed through herself to finally find out it was Lupus. That's one that can take a normally very active person and slam, they are nearly disabled overnight.Gloria

Hi ,

I was so sorry to hear about your teeth problems. I am sure that is very uncomfortable. I hope you find some relief soon.

I am still waiting for my test results of my second viral load. If you remember I had a test done for it shortly after testing positive for the Hepatitis C antibody. It showed no viral load. I went to a new dr's. office. I saw the dr's. nurse practitioner and she tested the viral load again at my request. I have read that the viral load can hide or go up and down so I thought I wanted a second test. I stress about the small things.

If it comes back again negative or no viral load, do I still need to be concerned that my liver will continue to get sicker? Or I will get liver cancer? All the things that do happen when one has a viral load?

Or do I not have to worry as much and can pretty much stress less about getting sicker?

I will always continue to eat healthy because I always have.

Also one more question. Do I need to take the supplements such as Selenium, Liv 52, ALA, and Milk Thistle, as well as all the others associated with Hep. C if I do not have a viral load? Oh yea, the fibromyalgia is still hanging on as bad as ever. When I see this new Dr. I will ask if he will at least prescribe me with anti viral drugs since that is one way of treating the pain of fibro now. I understand they can help up to 75% of patients after about 6 weeks.

Thank you for your time and compassion for all of us.

Pooderdog..

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

,

The first gastroenterologist said he couldn't help me since I had no viral load that was detectable. He said nothing else.

When i made an appt at the second gastro they only will allow me to see a nurse practitioner. They said she is the head of the Hep. C part of their office. I told her that I had no viral load after testing the first time and she said that if that is so then I only have the antibody. That is about all she had to say. Then I asked her to test the viral load again and I am now waiting on the result. She didn't think my Liver Enzymes were anything to worry about if I have no viral load. She said anything can raise those, like meds. I may see her again when the results come back.

My AST and ALT are slighty elevated. All the other results came back ok. My white blood cell count was a little low.

But both her and the first Gastro seemed to think nothing of the liver enzymes that are slighty elevated.

I still worry since I feel so sick most the time.

I have a flu like feeling all the time, especially in the morning.

They don't really say a thing about me having it, pretty much they seem to be unsympathetic mostly. Just like every doctor I have seen in the last 8 yrs.

So I have to wait a couple more days most likely on the second results and then I will let you know if a viral load shows up and what she says if I get to talk to her again. I doubt she will call, just a person that gives out results most likely will call.

I have never had any reasurrance at all about this. That is why I stay concerned.

And feeling so sick has me very concerned.

Thanks for the info.

Pooderdog

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Gloria,

I have been tested for it, and the results were negative.

But thank you for your input.

Have a good evening.

Pooderdog

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi

Some doctors can be very insensative.

They seem to forget ones worry, and insecurity.

That said, it does sound like they are trying to help you within their field of study.

From what youve told me, I cant say if you have HCV or not.

If your labs are close to normal, and you dont have a viral load, then maybe your lucky, and dont have HCV at all, just the antibody.

Even if you do, but the VL is too low to show up, it sounds like you have awhile to wait before you need to worry about a biopsy and/or TX.

This is a good thing, as the 3D TX isnt yet on the market.

This is my case, I have good labs, low VL, and time to wait.

If I were you, this is what I think I would do.

[My unprofessional opinion only.]

Each 6 months go in and be retested, and save all your labs.

That way you can keep track of your livers progress.

This is what my Hdoc advised me to do too.

I would keep after the doctors to find out why you feel sick, and are having symptoms.

There are many reasons why one feels sick, some very elusive.

Pain and worry [stress] makes me sick.

Taking pills on an empty stomach, going too long without eating, lack of fluids.

My teeth are bad, and sometimes that makes me sick from the infections.

I got pretty ill from my gull bladder, and had to have it removed.

I have gotten pretty sick from kidney stones before too.

I have chronic nausea because I have several disorders like acid reflux disease, high blood pressure, motion sickness, depression and anxiety, spastic colon, hemorrhoids, fibro and now HCV. [Arent I having fun?]

Now I watch my diet intake very closely, and avoid fried foods, red and organ meats, alot of seafoods, spicy foods, limit sugar, salt, and dairy. Yogurt is ok. Some cheese.

Check out these search results.

http://en.wikipedia.org/wiki/Nausea <--- most interesting

http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=nausea & type=

, there are a lot of things that can make you feel sick, or have pain.

Nausea and pain are body warning signs that something is not quite right in your body/lifestyle.

Pretty much shelve the HCV approach for now, but do not forget it. Just de-stress about it.

Look at other things that might be causing your discomfort, and symptoms.

I believe there are answers for you, but you have to search them out.

I will help you. DO NOT GIVE UP.

einstein - action causes reaction [both good and bad]

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Don:The difference between you and , is that you have elevated ALT and AST readings, plus they can certainly read your viral load, even if it is low.If HepC were going to show up , it would have done so by now. I doubt that any Dr. would recommend a PCR for a viral load unless your ALT or AST readings shot up.Like Don says, stress and anxiety plays a huge part in our health... I learned this to some degree during my first treatment; but, then had to learn how to live, without taking stress on between these treatments. My whole chosen career, is stress oriented, so of course it was quite a hard job! Now that I also have the added scare of liver cancer - I decided to mostly give up my business. My body could not go through

another tax season without stressing.Gloria

Hi

Some doctors can be very insensative.

They seem to forget ones worry, and insecurity.

That said, it does sound like they are trying to help you within their field of study.

From what youve told me, I cant say if you have HCV or not.

If your labs are close to normal, and you dont have a viral load, then maybe your lucky, and dont have HCV at all, just the antibody.

Even if you do, but the VL is too low to show up, it sounds like you have awhile to wait before you need to worry about a biopsy and/or TX.

This is a good thing, as the 3D TX isnt yet on the market.

This is my case, I have good labs, low VL, and time to wait.

If I were you, this is what I think I would do.

[My unprofessional opinion only.]

Each 6 months go in and be retested, and save all your labs.

That way you can keep track of your livers progress.

This is what my Hdoc advised me to do too.

I would keep after the doctors to find out why you feel sick, and are having symptoms.

There are many reasons why one feels sick, some very elusive.

Pain and worry [stress] makes me sick.

Taking pills on an empty stomach, going too long without eating, lack of fluids.

My teeth are bad, and sometimes that makes me sick from the infections.

I got pretty ill from my gull bladder, and had to have it removed.

I have gotten pretty sick from kidney stones before too.

I have chronic nausea because I have several disorders like acid reflux disease, high blood pressure, motion sickness, depression and anxiety, spastic colon, hemorrhoids, fibro and now HCV. [Arent I having fun?]

Now I watch my diet intake very closely, and avoid fried foods, red and organ meats, alot of seafoods, spicy foods, limit sugar, salt, and dairy. Yogurt is ok. Some cheese.

Check out these search results.

http://en.wikipedia .org/wiki/ Nausea <--- most interesting

http://search. / search?ei= utf-8 & fr=slv8-tyc7 & p=nausea & type=

, there are a lot of things that can make you feel sick, or have pain.

Nausea and pain are body warning signs that something is not quite right in your body/lifestyle.

Pretty much shelve the HCV approach for now, but do not forget it. Just de-stress about it.

Look at other things that might be causing your discomfort, and symptoms.

I believe there are answers for you, but you have to search them out.

I will help you. DO NOT GIVE UP.

einstein - action causes reaction [both good and bad]

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi Gloria

Acually I dont really have elevated ALT/AST - 29/23 - normal range <10-42>.

My other stats are in the normal range too, except for GLUCOSE, ANION GAP [a bit high], and BUN/CREAT, CO2 [a bit low].

I eat some sugar and smoke cigs.

Only my VL is a dead giveaway, I think, which is 551K now, [Oct 2009].

I am amazed that with these 'normal' stats, I feel so bad sometimes.

So I too look elsewhere for possible causes.

I agree that 's stats would have shown by now, but I dont feel confident saying that she definately does not have HCV.

I dont know if HCV can hide or not.

I had labs for decades, but no doctor diagnosed me with HCV until 2008.

Could it be that I 'was' tested, but my VL didnt show until recently?

Dont know. Never paid attention.

I agree also that stress and worry can and does make a person 'feel' sick, but I also think that there may be a real physical cause too, and that these may be warning signs.I have experianced both.

Mental issues can cause sickness, and sickness can cause mental issues.

It took me years of looking at my lifestyle and diet to, 'snap', that I was doing some things wrong, and it was affecting me adversely.

Im learning little tricks along the way to avoid some symptoms, like taking pills on a empty stomach, fried foods, not eating, or too little water.

Thus I suggest looking into diet and lifestyle.

If someone is experiancing discomfort, then there must be a answer.

Finding it is the trick.

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

DonWith ALT and AST scores as low as that, I doubt any Dr. would have looked any further and thus wouldn't call for the PCR test to see the viral count. had said that she has been this way now for 8 years. I can only imagine how helpless and hopeless she must feel. However, it wouldn't do any good to focus on the liver when her tests suggest that she is negative and only positive for the antibody."Mental issues can cause sickness, and sickness can cause mental issues." Agree with you wholeheartedly!! However, when we get overly stressed and anxious or obsessive on something - isn't that also a form of mental illness? I know for me it affects the whole wellness triangle!! Physical, Mental and Spiritual. Then, I

believe, that it gets right back down to - what came first, the chicken or the egg??? Ends up being a vicious cycle.Gloria Hi

Gloria Acually I dont really have elevated ALT/AST - 29/23 - normal range <10-42>. My other stats are in the normal range too, except for GLUCOSE, ANION GAP [a bit high], and BUN/CREAT, CO2 [a bit low]. I eat some sugar and smoke cigs. Only my VL is a dead giveaway, I think, which is 551K now, [Oct 2009]. I am amazed that with these 'normal' stats, I feel so bad sometimes. So I too look elsewhere for possible causes. I agree that 's stats would have shown by now, but I dont feel confident saying that she definately does not have HCV. I dont know if HCV can hide or not. I had labs for decades, but no doctor diagnosed me with HCV until 2008. Could it be that I 'was' tested, but my VL didnt show until recently? Dont know. Never paid attention. I agree also that

stress and worry can and does make a person 'feel' sick, but I also think that there may be a real physical cause too, and that these may be warning signs.I have experianced both. Mental issues can cause sickness, and sickness can cause mental issues. It took me years of looking at my lifestyle and diet to, 'snap', that I was doing some things wrong, and it was affecting me adversely. Im learning little tricks along the way to avoid some symptoms, like taking pills on a empty stomach, fried foods, not eating, or too little water. Thus I suggest looking into diet and lifestyle. If someone is experiancing discomfort, then there must be a answer. Finding it is the trick. love don in ks From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!! Who said we are not supposed to eat meat or eggs??I would suggest

that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! ____________ _________ _________ _________ _________ __

[Guest guest]

Hi Gloria

I agree with a lot of what you say.

This is why I suggested to to monitor her future labs, rather than focus on immediate HCV proof.

The answer to her suffering may not lay with HCV at all.

I think her focus at this point should be on her other physical and/or mental issues, [fibro, pain, nausea, stress, anxiety, etc], and also on lifestyle, diet [ways to help herself at home].

First things first.

If HCV does show up on one of her future tests, then that would be the time to switch focus to HCV.

This is my opinion.

Remember I have no medical training, and only limited experiances to draw from.

When one spends years dealing with an issue like chronic pain, then one would tend to obsess about it.

I would.

My heart goes out to her, and everyone who is suffering, whatever the cause.

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Oh, I highly agree !!! If I had to live with as much pain as describes - well I just couldn't imagine. The limitations I have now with the Fibro is enough for me to be focused on, until I got some counselling. Then it works for as long as I don't have a flare up!!Just wouldn't want to see obsessing about HCV that is undetectable!! There is a cause for all this pain but seems to have very little to do with the HCV antibody. That means her body naturally kicked the virus some time back and I suspect is now naturally immune (not sure about that though).

Hi Gloria

I agree with a lot of what you say.

This is why I suggested to to monitor her future labs, rather than focus on immediate HCV proof.

The answer to her suffering may not lay with HCV at all.

I think her focus at this point should be on her other physical and/or mental issues, [fibro, pain, nausea, stress, anxiety, etc], and also on lifestyle, diet [ways to help herself at home].

First things first.

If HCV does show up on one of her future tests, then that would be the time to switch focus to HCV.

This is my opinion.

Remember I have no medical training, and only limited experiances to draw from.

When one spends years dealing with an issue like chronic pain, then one would tend to obsess about it.

I would.

My heart goes out to her, and everyone who is suffering, whatever the cause.

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __

[Guest guest]

Hi Gloria

I suspect that you are right about -

'That means her body naturally kicked the virus some time back and I suspect is now naturally immune (not sure about that though).'

I am also not sure, but I hope we are both right, and she is in the clear.

That would be great.

love

don in ks

From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Muscle Pain Extreme? Date: Saturday, October 24, 2009, 5:11 PM

PooderdogIf you have no readable viral load, you may not have Hep C at all !!! Couldn't be that you did pick it up at some time but that your system was able to blow it off and so you are only left with the antibody!!

Who said we are not supposed to eat meat or eggs??I would suggest that you ask your GP to line up an appointment for you with an arthritis specialist or a neurologist about the pain. Hep C and Fibromyalgia go greatly together in many cases!!Gloria

Hi.Was wondering what do we do for the excruciating muscle pain of the virus. I have no viral load but still many symptoms. Do these symptoms last a lifetime? If so, I would rather be dead than endure this pain constantly daily and nightly.Please help.Thank you, Pooderdog

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free!

____________ _________ _________ _________ _________ __