Carole's hill of beans

[Guest guest]

Carole K.......... now stop and think...there has to be something

happening to be grateful for...there always is.

I give a lot of " leads " (tell my story to A.A.

meetings) and I always say that I haven't had a bad DAY since I got

sober...... remember a day is made up of moments following

moments....one can have a bad moment but it is up to him/her to choose

not to let it become a bad " day " .... the biggest offender is feeling

sorry for ones self.....sort out those things you can change (like

attitude) and accept those things you can't change... (asking a higher

power for help may bring about that change). Don' sweat small stuff and

laugh at all you can, especially yourself, and remember there is always

those who are worse off than you.... you, personally, seem to be doing

just fine considering, I still detect a sense of humor. What exactly is

worrying going to do for you ....it isn't going to change things one bit

but drive you nuts...... you remember the song... " Que sera, sera. " ?..

(and Bobby McFarren ?).

Now.....your symptoms and conditions.... why did they wait so long

for another biopsy? Are they doing anything in the way of treatment.....

the things you mentioned suggest cirrhosis....spider veins and red spots

( I have, btw, files on this, as it has come up before in this group)

suggest portal systemic hypertension as does what seems to be ascites

and muscle wasting (from poorly metabolized proteins) Are you on any

diuretics? Have they scanned you for ascites or scoped you for varices?

What other complications do you present? Cirrhosis is chronic and

progressive but the progression may be stopped (the Imuran ?) and the

complications treated.

I don't exactly know how imuran will lessen your pain....it isn't pain

reliever.

Why have you not been Rx'd Prednisone?

As has been stated here many times.... aren't you listening .....the

liver itself has no nerve endings (no pain receptors)...like your brain

........ but when its damaged it may swell...excerting pressure on the

sac that encloses it and the surrounding structures ...so the amount of

inflammation may or may not influence pain.... however the path the

doctor takes to sample the liver tissue can....in that area are a number

of nerves (the brachial plexus if I remember my anatomy) swelling of the

liver could push these or other things out of their normal position and

they could be nicked by the needle ....presenting a case for scan guided

procedures...( I had one which was carefully guided by scope after my Tx

so as not to hit any thing out of place due to the swelling it was slow

and uncomfortable).... in any case such pain is usually temporary

(quitcher bitching ....you still delivered dem children didn't chew) and

they can give you narcotics if you whine enough...Sometimes they may not

be able to biopse if ascites is too bad...

Any way I'm glad you are getting biopsied

because I fear some advanced cirrhosis ....(or maybe not)

As far as the lump I don't know..perhaps just a worrisome (tsk, tsk)

but benign cyst or maybe a blood clot as a resukt some how from portal

hypertension ..get it checked out please/..i'm not sure that it actually

involves the bone from your description.

You'd better shape up girl you're worrying yourself into a sorry

mess..... that's what we are here for....let us worry for you so as to

give you time for other important things. I'll pray for you and God and

I get a long pretty well...he seems to like me (and only He knows why)

so I'm sure he loves you....

BTW... I learned long ago from having hemmorhoids from portal

hypertension and constant pot time due to the chronic (yech) use of

Lactulose that one needs to grow thicker skin and use Charmin Ultra

extra (containing baby oil ) and to keep a good supply of baby

wipes...so I rebounded relatively well...

Listen everything will turn out exactly how it's supposed to and

worrying will not change it but only to make things worse....you'll be

just fine.... I have spoken....

I send my love and concern jerry

[Guest guest]

Jerry,

So well said, and much better than I. Worrying is what I think triggered my

mom's second liver issue in 6 years (first one never BX or DX'd). Most of

her panic attacks and changes in her health over the years has been related

to stress. Usually it falls into the catastrophising and negaholism

syndromes where if one bad thing occurs everything will follow. This is

followed by if something bad follows, badness will continue.

I admit I follow in that category of never asking " what next " . because just

when I see the light at the end of the tunnel, it becomes blocked with

another roadblock of life, repeatedly!

My favorite saying is " where there is life there is hope " , and " life's not a

song, life isn't bliss life is just this; it's living. You'll get along,

the pain that you feel you can only heal by living " (Once more with feeling

Episode 107). I quote, but I like the sense and feeling of the words. My

favorite " what can't face if we are together " !

As to the bone issue, an X-ray or MRI will put this issue into perspective.

I draw strength from you all that are actively dealing with this disease,

and know regardless of the travails of my little family, it can never

compare. Of course to me it can be overwhelming.

Thanks so much for everuthing,

Kat

[ ] Carole's hill of beans

> Carole K.......... now stop and think...there has to be something

> happening to be grateful for...there always is.

> I give a lot of " leads " (tell my story to A.A.

> meetings) and I always say that I haven't had a bad DAY since I got

> sober...... remember a day is made up of moments following

> moments....one can have a bad moment but it is up to him/her to choose

> not to let it become a bad " day " .... the biggest offender is feeling

> sorry for ones self.....sort out those things you can change (like

> attitude) and accept those things you can't change... (asking a higher

> power for help may bring about that change). Don' sweat small stuff and

> laugh at all you can, especially yourself, and remember there is always

> those who are worse off than you.... you, personally, seem to be doing

> just fine considering, I still detect a sense of humor. What exactly is

> worrying going to do for you ....it isn't going to change things one bit

> but drive you nuts...... you remember the song... " Que sera, sera. " ?..

> (and Bobby McFarren ?).

> Now.....your symptoms and conditions.... why did they wait so long

> for another biopsy? Are they doing anything in the way of treatment.....

> the things you mentioned suggest cirrhosis....spider veins and red spots

> ( I have, btw, files on this, as it has come up before in this group)

> suggest portal systemic hypertension as does what seems to be ascites

> and muscle wasting (from poorly metabolized proteins) Are you on any

> diuretics? Have they scanned you for ascites or scoped you for varices?

> What other complications do you present? Cirrhosis is chronic and

> progressive but the progression may be stopped (the Imuran ?) and the

> complications treated.

> I don't exactly know how imuran will lessen your pain....it isn't pain

> reliever.

> Why have you not been Rx'd Prednisone?

> As has been stated here many times.... aren't you listening .....the

> liver itself has no nerve endings (no pain receptors)...like your brain

> ....... but when its damaged it may swell...excerting pressure on the

> sac that encloses it and the surrounding structures ...so the amount of

> inflammation may or may not influence pain.... however the path the

> doctor takes to sample the liver tissue can....in that area are a number

> of nerves (the brachial plexus if I remember my anatomy) swelling of the

> liver could push these or other things out of their normal position and

> they could be nicked by the needle ....presenting a case for scan guided

> procedures...( I had one which was carefully guided by scope after my Tx

> so as not to hit any thing out of place due to the swelling it was slow

> and uncomfortable).... in any case such pain is usually temporary

> (quitcher bitching ....you still delivered dem children didn't chew) and

> they can give you narcotics if you whine enough...Sometimes they may not

> be able to biopse if ascites is too bad...

> Any way I'm glad you are getting biopsied

> because I fear some advanced cirrhosis ....(or maybe not)

> As far as the lump I don't know..perhaps just a worrisome (tsk, tsk)

> but benign cyst or maybe a blood clot as a resukt some how from portal

> hypertension ..get it checked out please/..i'm not sure that it actually

> involves the bone from your description.

> You'd better shape up girl you're worrying yourself into a sorry

> mess..... that's what we are here for....let us worry for you so as to

> give you time for other important things. I'll pray for you and God and

> I get a long pretty well...he seems to like me (and only He knows why)

> so I'm sure he loves you....

> BTW... I learned long ago from having hemmorhoids from portal

> hypertension and constant pot time due to the chronic (yech) use of

> Lactulose that one needs to grow thicker skin and use Charmin Ultra

> extra (containing baby oil ) and to keep a good supply of baby

> wipes...so I rebounded relatively well...

> Listen everything will turn out exactly how it's supposed to and

> worrying will not change it but only to make things worse....you'll be

> just fine.... I have spoken....

>

> I send my love and concern jerry

>

>

>

[Guest guest]

Kat....thats an extension of 's law...If something can go

wrong...it will.

I do know the feeling...

and nice quote...thanks

love jerry

[Guest guest]

Carole K,

I love your stab at humor. Mine has been " Kat's black cloud " for the last

12 years. Some times it rains, sometimes it avalanches and buries me. I

have yet to see a true ray of sunshine break it's formidible grasp, but just

enough peaks through to give me strength to keep trying for a better

future.:-)

Kat

[ ] Re: Carole's hill of beans

> Jerry-

>

> My husband and myself have joked for some time now about it not being

> murphys law........we call it Joe and Caroles law. It is our

> little stab at humor under stress.

>

> Carole K

>

>

>

> > Kat....thats an extension of 's law...If something can go

> > wrong...it will.

> > I do know the feeling...

> >

> > and nice quote...thanks

> >

> > love jerry

>

>

>