Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Hi Anita! My eye will wander out when I'm tired, but as for your eyelid drooping, that is called " ptosis " (pronounced 'toe-sis'). It can be caused by mechanical or neurological problems. Mechanical; meaning that the muscles in the lid just don't function right to keep the eyelid up, such as an injury to the levator muscle, for example. Or it could be a damaged facial nerve that moves the periorbital or temporal muscles. If the eyeball itself is shrinking in volume or if there is a loss of fat behind the eye, it can cause the lid to drop because it has nothing to prop it up. Strange that it's on one side only. I would let the doctor know what is going on as soon as you can. Does it obstruct your vision? Love, Re: [ ] AIH Treatments?? > > BlankHello, My name is a - I am new and don't post much - but enjoy reading all the info. In regards to the article you mentioned - my doctor is Heneghan @ Duke University - Is this the same one who wrote the article.? I have an appointment for a check-up next month. Where can I get a copy of that. > > Also - in response to other problems - I also since being diagnosed in May/2000 have had swallowing problems - I've never had mouth ulcers or thrush. I've also had problems with my eyes " feeling numb " - no vision loss - just a weird feeling. I've been to the eye doctor - no problem found - > > Also - It seems other have had alot of questions and problems with prednisone. I have found a very good book that Ive never seen any one suggest before its called > " Coping with Prednisone - It may work miracles, but how do you handle the side effects " by Eugenia Zukerman and R. Inglefinger,MD. > > Oh well - enough for now I will try to be more active online from now on out. > > a > > I > > > [ ] AIH Treatments?? > > > > Persarverance got the snail to the Ark. Spurgeon From an article I read. Joanne > Opinions vary as to whether all patients with AIH need treatment. Some doctors feel that treatment is required only in the more severe cases and that patients with milder AIH do not need to be treated unless the disease flares up. The problem is that AIH is a naturally fluctuating disease and there is no easy way of knowing if or when it will flare up or how fast it will progress. For this reason, many authorities consider that all patients should receive at least some form of treatment to guard against the disease progressing. If you have a good relationship with your doc, you might like to draw his/her attention to an article entitled " Current and Novel Immunosuppressive Therapy for Autoimmune Hepatitis " which was published in January this year by M.A. Heneghan and I.G. McFarlane in the medical journal " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might ask to be referred to an AIH specialist for a second opinion. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Dear Anita, I am sorry about the loss of Meg, had wanted to tell you that before. She must have been a beautiful dog, all shiny black. She sounds like she was a delight! Do you dream about her as I did with my little ones? My dad longs for a black lab, the question is how to sneak one in without my mom finding out! Re: Re: [ ] AIH Treatments?? > > Hi Anita, > My son complains that his eyes feel like they want to close sometimes. > I love your messages from the otherside..I am a believer, I wish I had your > gift. My sweet wonderful pup, my best friend, went to the otherside > yesterday,.....I miss him so... > Love, > Connie..Devins mom > (Presley's mom too) > > [ ] AIH Treatments?? > > > > > > > > > > > > Persarverance got the snail to the Ark. Spurgeon > From an article I read. Joanne > > > Opinions vary as to whether all patients with AIH need treatment. Some > doctors feel that treatment is required only in the more severe cases and > that patients with milder AIH do not need to be treated unless the disease > flares up. The problem is that AIH is a naturally fluctuating disease and > there is no easy way of knowing if or when it will flare up or how fast it > will progress. For this reason, many authorities consider that all patients > should receive at least some form of treatment to guard against the disease > progressing. If you have a good relationship with your doc, you might like > to draw his/her attention to an article entitled " Current and Novel > Immunosuppressive Therapy for Autoimmune Hepatitis " which was published in > January this year by M.A. Heneghan and I.G. McFarlane in the medical journal > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might ask to > be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 hi lisa, i will try and send this message again, everytime i try, my computer crashes. think its trying to tell me something.. all my doctors (except liver doc) know about this problem. i was checked years ago for myesthenia gravis, an auto-immune disease. but it was ruled out and i was told it was all in my head, yes, i said, thats exactly where my eye is and went home. i am going to mention it again on wednesday, wish me luck. you get copies of your results, we dont, were only the people who are ill. it does affect my vision when it is really bad, i cant drive then. my left eye is permanently half closed, damned nuiscence (cant spell today, very tired). , is it you or someone close to you, family or friend, who is having problems with oain going from there shoulder down thre back, if you dont know who it is, dont worry, yoou will soon. when you find out, please tell them to go to the docs and get it checked, very easily treated, and no more pain. love anita > > From: " lisa m skowron " <lsmaxfax@...> > Date: Sun 05/Jan/2003 14:31 GMT > < > > Subject: RE: Re: [ ] AIH Treatments?? > > Hi Anita! > > My eye will wander out when I'm tired, but as for your eyelid drooping, > that is called " ptosis " (pronounced 'toe-sis'). It can be caused by > mechanical or neurological problems. Mechanical; meaning that the > muscles in the lid just don't function right to keep the eyelid up, such > as an injury to the levator muscle, for example. Or it could be a > damaged facial nerve that moves the periorbital or temporal muscles. If > the eyeball itself is shrinking in volume or if there is a loss of fat > behind the eye, it can cause the lid to drop because it has nothing to > prop it up. > > Strange that it's on one side only. I would let the doctor know what is > going on as soon as you can. Does it obstruct your vision? > > Love, > > > > Re: [ ] AIH Treatments?? > > > > BlankHello, My name is a - I am new and don't post much - but > enjoy reading all the info. In regards to the article you mentioned - > my doctor is Heneghan @ Duke University - Is this the same one > who wrote the article.? I have an appointment for a check-up next > month. Where can I get a copy of that. > > > > Also - in response to other problems - I also since being diagnosed in > May/2000 have had swallowing problems - I've never had mouth ulcers or > thrush. I've also had problems with my eyes " feeling numb " - no vision > loss - just a weird feeling. I've been to the eye doctor - no problem > found - > > > > Also - It seems other have had alot of questions and problems with > prednisone. I have found a very good book that Ive never seen any one > suggest before its called > > " Coping with Prednisone - It may work miracles, but how do you handle > the side effects " by Eugenia Zukerman and R. Inglefinger,MD. > > > > Oh well - enough for now I will try to be more active online from now > on out. > > > > a > > > > I > > > > > > [ ] AIH Treatments?? > > > > > > > > Persarverance got the snail to the Ark. Spurgeon > From an article I read. Joanne > > Opinions vary as to whether all patients with AIH need treatment. > Some doctors feel that treatment is required only in the more severe > cases and that patients with milder AIH do not need to be treated unless > the disease flares up. The problem is that AIH is a naturally > fluctuating disease and there is no easy way of knowing if or when it > will flare up or how fast it will progress. For this reason, many > authorities consider that all patients should receive at least some form > of treatment to guard against the disease progressing. If you have a > good relationship with your doc, you might like to draw his/her > attention to an article entitled " Current and Novel Immunosuppressive > Therapy for Autoimmune Hepatitis " which was published in January this > year by M.A. Heneghan and I.G. McFarlane in the medical journal > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might ask > to be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 hi nancy, yes a very big help. as i have said i was tested for(sp) but as i had no other symptoms and not yet diagnosed aih, they said it was all in my head. typical, if they dont know its either a virus, or its in the mind. i am back at the liver clinic on wednesday, so i am going to ask again many thanks anita (the witch) > > From: NKS52@... > Date: Sun 05/Jan/2003 15:28 GMT > > Subject: Re: [ ] AIH Treatments?? > > Hi Anita, > About a year ago,I had problems with the muscles in my eyes. I just so > happened to have an appointment with my endocrinologist and told him about > it. He tested me for myasthenis gravis (sp) which is an autoimmune disease > that affects the muscles. He said that you usually see it in the eyes first. > Hope this helps. > L, K > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Hi Anita, Once again you hit the mark!! Friday, my brother who lives down the street injured his back picking up the garbage. He had to rest all weekend and was quite cranky about it. So he could not join my other brother and I to go antique shopping. It seems worse than a simple pulled back, which everyone gets. I was worried about him and thinking about him and was going to make them a New Orleans butterscotch pie. But he complains about back to shoulder pain now and then, which to me spells trouble. My dad hurt his back lifting something one month ago but he is fine now. Strange that you were checked for MG but nothing was found. Of course that is good! But it has to be something. It's possible that the muscles that raise and open the eyelids, the orbicularis and levator are becoming weak on one side, but why? Do you have double vision? How long has it been going on? Not particularly clairvoyant, but trying Re: [ ] AIH Treatments?? > > > > BlankHello, My name is a - I am new and don't post much - but > enjoy reading all the info. In regards to the article you mentioned - > my doctor is Heneghan @ Duke University - Is this the same one > who wrote the article.? I have an appointment for a check-up next > month. Where can I get a copy of that. > > > > Also - in response to other problems - I also since being diagnosed in > May/2000 have had swallowing problems - I've never had mouth ulcers or > thrush. I've also had problems with my eyes " feeling numb " - no vision > loss - just a weird feeling. I've been to the eye doctor - no problem > found - > > > > Also - It seems other have had alot of questions and problems with > prednisone. I have found a very good book that Ive never seen any one > suggest before its called > > " Coping with Prednisone - It may work miracles, but how do you handle > the side effects " by Eugenia Zukerman and R. Inglefinger,MD. > > > > Oh well - enough for now I will try to be more active online from now > on out. > > > > a > > > > I > > > > > > [ ] AIH Treatments?? > > > > > > > > Persarverance got the snail to the Ark. Spurgeon > From an article I read. Joanne > > Opinions vary as to whether all patients with AIH need treatment. > Some doctors feel that treatment is required only in the more severe > cases and that patients with milder AIH do not need to be treated unless > the disease flares up. The problem is that AIH is a naturally > fluctuating disease and there is no easy way of knowing if or when it > will flare up or how fast it will progress. For this reason, many > authorities consider that all patients should receive at least some form > of treatment to guard against the disease progressing. If you have a > good relationship with your doc, you might like to draw his/her > attention to an article entitled " Current and Novel Immunosuppressive > Therapy for Autoimmune Hepatitis " which was published in January this > year by M.A. Heneghan and I.G. McFarlane in the medical journal > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might ask > to be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 once again, i tried to send you a message when my pc crashed, so i will try again. please can i have the recipe for the new orleans butterscotch pie, it sound lovely. anyway, no i dont have double vision, but i need new glasses every 6 months cos my vision alter from 1 day to the net. damn cant find my cigs..hang on > ok found them. glad i could help with your dad and dont forget he will be fine.ill send out healing prayer for him and the rest of the group. i have a new email address august3591@... i can 1-1 chat with this one. i am also going to set it up on the msn site hopefully using the same user name. i wil add you to my list of contacts, if i can work it out, it will tell me if you are on line.. hope this is ok. readings could be better aswell, as i would have a link with you there and then please take care.lots os love anita the witch > From: " lisa m skowron " <lsmaxfax@...> > Date: Sun 05/Jan/2003 22:19 GMT > < > > Subject: RE: Re: [ ] AIH Treatments?? > > Hi Anita, > > Once again you hit the mark!! Friday, my brother who lives down the > street injured his back picking up the garbage. He had to rest all > weekend and was quite cranky about it. So he could not join my other > brother and I to go antique shopping. It seems worse than a simple > pulled back, which everyone gets. I was worried about him and thinking > about him and was going to make them a New Orleans butterscotch pie. > > But he complains about back to shoulder pain now and then, which to me > spells trouble. > > My dad hurt his back lifting something one month ago but he is fine now. > > Strange that you were checked for MG but nothing was found. Of course > that is good! But it has to be something. It's possible that the muscles > that raise and open the eyelids, the orbicularis and levator are > becoming weak on one side, but why? Do you have double vision? How long > has it been going on? > > > Not particularly clairvoyant, but trying > > Re: [ ] AIH Treatments?? > > > > > > BlankHello, My name is a - I am new and don't post much - but > > enjoy reading all the info. In regards to the article you mentioned - > > my doctor is Heneghan @ Duke University - Is this the same one > > who wrote the article.? I have an appointment for a check-up next > > month. Where can I get a copy of that. > > > > > > Also - in response to other problems - I also since being diagnosed > in > > May/2000 have had swallowing problems - I've never had mouth ulcers or > > thrush. I've also had problems with my eyes " feeling numb " - no > vision > > loss - just a weird feeling. I've been to the eye doctor - no problem > > found - > > > > > > Also - It seems other have had alot of questions and problems with > > prednisone. I have found a very good book that Ive never seen any > one > > suggest before its called > > > " Coping with Prednisone - It may work miracles, but how do you > handle > > the side effects " by Eugenia Zukerman and R. Inglefinger,MD. > > > > > > Oh well - enough for now I will try to be more active online from > now > > on out. > > > > > > a > > > > > > I > > > > > > > > > [ ] AIH Treatments?? > > > > > > > > > > > > Persarverance got the snail to the Ark. Spurgeon > > From an article I read. Joanne > > > Opinions vary as to whether all patients with AIH need treatment. > > Some doctors feel that treatment is required only in the more severe > > cases and that patients with milder AIH do not need to be treated > unless > > the disease flares up. The problem is that AIH is a naturally > > fluctuating disease and there is no easy way of knowing if or when it > > will flare up or how fast it will progress. For this reason, many > > authorities consider that all patients should receive at least some > form > > of treatment to guard against the disease progressing. If you have a > > good relationship with your doc, you might like to draw his/her > > attention to an article entitled " Current and Novel Immunosuppressive > > Therapy for Autoimmune Hepatitis " which was published in January this > > year by M.A. Heneghan and I.G. McFarlane in the medical journal > > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might > ask > > to be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Dear Anita, This recipe is so easy, and fun too. I made it pretty fast and it was good too! The whole house smelled nice! First make your pastry shell: 2 cups flour 1 egg yolk 1/2 tsp salt 2 tsp sugar 1 1/3 sticks butter 3 Tbsp cold water First sift 2 cups flour with 1/2 tsp salt into a bowl. Chop 1 1/3 sticks of butter into small pieces and mix into the flour with your fingers. Keep mixing until the mixture looks like crumbs. Make a well in the center of the mixture and add 1 egg yolk, 2 teaspoons sugar, and 3 tablespoons cold water. Stir to combine all the ingredients and knead lightly to form a smooth dough. Wrap the dough in wax paper or plastic and put in the fridge for 1/2 hour. Roll the dough out on a floured board until it's 1/8 inch thick. Then put in your 9 " pie pan. Bake the shell " blind " That means to bake without the filling. To prevent the shell from shrinking, line it with foil then fill with rice or dried beans. Put the shell in a 400 degree preheated oven for 10 minutes and then turn the heat down to 275. Continue baking for 15 minutes longer. Remove the foil about halfway through the baking. Now for the filling: 1/2 stick butter 1 9 " pie shell baked- 1/4 cup all purpose flour 1/2 pt whipping cream 2 cups milk 2 Tbsp confectioners sugar 2 egg yolks beaten 2 Tbsp brandy (too small of an amount to 1 cup sugar worry about harming our livers, I think, 1 Tbsp pure vanilla extract unless you eat the whole pie yourself) Melt 2 tablespoons of the butter in a heavy skillet over low heat. Stir in the flour. Cook, stirring for about 3 minutes. Slowly add the milk, stir and bring to a boil. Let it simmer over the low heat. Melt the remaining butter in another heavy pot or skillet, add the sugar and cook over medium heat, stirring constantly, until the sugar turns a light brown. Pour into the hot flour sauce and continue to stir over the low heat until the mixture is smooth. Remove from the heat and stir in the beaten egg yolks and vanilla. If there are lumps, pour through a strainer. Let the mixture cool, then pour in the baked pastry shell. Pour the whipping cream into a bowl and whip until it peaks. Mix in the confectioners sugar and the brandy. Top the pie with the cream and chill until it's ready to serve! This book also has a recipe for Roast Possum with Stuffing, if you're interested I'll send it too. I personally haven't tried it myself! Re: [ ] AIH Treatments?? > > > > > > BlankHello, My name is a - I am new and don't post much - but > > enjoy reading all the info. In regards to the article you mentioned - > > my doctor is Heneghan @ Duke University - Is this the same one > > who wrote the article.? I have an appointment for a check-up next > > month. Where can I get a copy of that. > > > > > > Also - in response to other problems - I also since being diagnosed > in > > May/2000 have had swallowing problems - I've never had mouth ulcers or > > thrush. I've also had problems with my eyes " feeling numb " - no > vision > > loss - just a weird feeling. I've been to the eye doctor - no problem > > found - > > > > > > Also - It seems other have had alot of questions and problems with > > prednisone. I have found a very good book that Ive never seen any > one > > suggest before its called > > > " Coping with Prednisone - It may work miracles, but how do you > handle > > the side effects " by Eugenia Zukerman and R. Inglefinger,MD. > > > > > > Oh well - enough for now I will try to be more active online from > now > > on out. > > > > > > a > > > > > > I > > > > > > > > > [ ] AIH Treatments?? > > > > > > > > > > > > Persarverance got the snail to the Ark. Spurgeon > > From an article I read. Joanne > > > Opinions vary as to whether all patients with AIH need treatment. > > Some doctors feel that treatment is required only in the more severe > > cases and that patients with milder AIH do not need to be treated > unless > > the disease flares up. The problem is that AIH is a naturally > > fluctuating disease and there is no easy way of knowing if or when it > > will flare up or how fast it will progress. For this reason, many > > authorities consider that all patients should receive at least some > form > > of treatment to guard against the disease progressing. If you have a > > good relationship with your doc, you might like to draw his/her > > attention to an article entitled " Current and Novel Immunosuppressive > > Therapy for Autoimmune Hepatitis " which was published in January this > > year by M.A. Heneghan and I.G. McFarlane in the medical journal > > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might > ask > > to be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 sorry marty, my dog is a cross alsation/bordercollie in tan. sounds like a fashion acsessory doesnt it. shes totally mad and scared of her own shadow. a few weeks ago my husband took her for her nightly walk. as he neared the back of the house there was a gang of boys there. taras hackles rose, she growled...and then slipped her collar, came home and was shaking like a leaf. honestly, if anyone shouts near her (that happens alot here) she jumps onto the nearest chair and shakes. some guard dog eh. but we still love her, shes only just 3. love anita > > From: " Martha Christensen " <msaire@...> > Date: Mon 06/Jan/2003 04:16 GMT > < > > Subject: Re: Re: [ ] AIH Treatments?? > > Dear Anita, , and other Dog Lovers with AIH, > Do any of you happen to have Airedale Terriers? > I have a 6 year old Hobbes, and a 4 year old Callie. > They really keep me going. > No matter how sick I feel I have to get them out for > exercise every day. They run, I walk. > I consider them part of my therapy. > Marty > [ ] AIH Treatments?? > > > > > > > > > > > > > > > > Persarverance got the snail to the Ark. > Spurgeon > > From an article I read. Joanne > > > > Opinions vary as to whether all patients with AIH need > treatment. Some > > doctors feel that treatment is required only in the more severe cases > and > > that patients with milder AIH do not need to be treated unless the > disease > > flares up. The problem is that AIH is a naturally fluctuating disease > and > > there is no easy way of knowing if or when it will flare up or how > fast it > > will progress. For this reason, many authorities consider that all > patients > > should receive at least some form of treatment to guard against the > disease > > progressing. If you have a good relationship with your doc, you might > like > > to draw his/her attention to an article entitled " Current and Novel > > Immunosuppressive Therapy for Autoimmune Hepatitis " which was > published in > > January this year by M.A. Heneghan and I.G. McFarlane in the medical > journal > > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might > ask to > > be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 dear lisa, yes i am always dreaming about my dog, meg. as for getting one yourselves, i can highly reccomend them. we rescued her and on her 1st night here she chewed thru a complete 3 piece suite. but didnt chew again. labradors are the gentlest dogs i have ever known. when i had amy, my mum and brother told me to get rid of her. of course i didnt and she looked after amy all the time. guarding her pram and leting me know when she was asleep. god how i miss that dog. love anita the witch ps its 3/10am here, what time is it with you > > From: " lisa m skowron " <lsmaxfax@...> > Date: Mon 06/Jan/2003 01:00 GMT > < > > Subject: RE: Re: [ ] AIH Treatments?? > > Dear Anita, > > This recipe is so easy, and fun too. I made it pretty fast and it was > good too! The whole house smelled nice! > > First make your pastry shell: > > 2 cups flour 1 egg yolk > 1/2 tsp salt 2 tsp sugar > 1 1/3 sticks butter 3 Tbsp cold water > > First sift 2 cups flour with 1/2 tsp salt into a bowl. Chop 1 1/3 sticks > of butter into small pieces and mix into the flour with your fingers. > Keep mixing until the mixture looks like crumbs. Make a well in the > center of the mixture and add 1 egg yolk, 2 teaspoons sugar, and 3 > tablespoons cold water. Stir to combine all the ingredients and knead > lightly to form a smooth dough. Wrap the dough in wax paper or plastic > and put in the fridge for 1/2 hour. > Roll the dough out on a floured board until it's 1/8 inch thick. > Then put in your 9 " pie pan. > Bake the shell " blind " That means to bake without the filling. To > prevent the shell from shrinking, line it with foil then fill with rice > or dried beans. Put the shell in a 400 degree preheated oven for 10 > minutes and then turn the heat down to 275. Continue baking for 15 > minutes longer. Remove the foil about halfway through the baking. > > Now for the filling: > > 1/2 stick butter 1 9 " pie shell baked- > 1/4 cup all purpose flour 1/2 pt whipping cream > 2 cups milk 2 Tbsp confectioners > sugar > 2 egg yolks beaten 2 Tbsp brandy (too small of an > amount to > 1 cup sugar worry about harming our > livers, I think, > 1 Tbsp pure vanilla extract unless you eat the whole pie > yourself) > > Melt 2 tablespoons of the butter in a heavy skillet over low heat. Stir > in the flour. Cook, stirring for about 3 minutes. Slowly add the milk, > stir and bring to a boil. Let it simmer over the low heat. Melt the > remaining butter in another heavy pot or skillet, add the sugar and cook > over medium heat, stirring constantly, until the sugar turns a light > brown. Pour into the hot flour sauce and continue to stir over the low > heat until the mixture is smooth. Remove from the heat and stir in the > beaten egg yolks and vanilla. If there are lumps, pour through a > strainer. Let the mixture cool, then pour in the baked pastry shell. > Pour the whipping cream into a bowl and whip until it peaks. Mix in > the confectioners sugar and the brandy. Top the pie with the cream and > chill until it's ready to serve! > > This book also has a recipe for Roast Possum with Stuffing, if you're > interested I'll send it too. I personally haven't tried it myself! > > > > > > Re: [ ] AIH Treatments?? > > > > > > > > BlankHello, My name is a - I am new and don't post much - but > > > enjoy reading all the info. In regards to the article you mentioned > - > > > my doctor is Heneghan @ Duke University - Is this the same > one > > > who wrote the article.? I have an appointment for a check-up next > > > month. Where can I get a copy of that. > > > > > > > > Also - in response to other problems - I also since being > diagnosed > > in > > > May/2000 have had swallowing problems - I've never had mouth ulcers > or > > > thrush. I've also had problems with my eyes " feeling numb " - no > > vision > > > loss - just a weird feeling. I've been to the eye doctor - no > problem > > > found - > > > > > > > > Also - It seems other have had alot of questions and problems with > > > prednisone. I have found a very good book that Ive never seen any > > one > > > suggest before its called > > > > " Coping with Prednisone - It may work miracles, but how do you > > handle > > > the side effects " by Eugenia Zukerman and R. Inglefinger,MD. > > > > > > > > > Oh well - enough for now I will try to be more active online from > > now > > > on out. > > > > > > > > a > > > > > > > > I > > > > > > > > > > > > [ ] AIH Treatments?? > > > > > > > > > > > > > > > > Persarverance got the snail to the Ark. > Spurgeon > > > From an article I read. Joanne > > > > Opinions vary as to whether all patients with AIH need > treatment. > > > Some doctors feel that treatment is required only in the more severe > > > cases and that patients with milder AIH do not need to be treated > > unless > > > the disease flares up. The problem is that AIH is a naturally > > > fluctuating disease and there is no easy way of knowing if or when > it > > > will flare up or how fast it will progress. For this reason, many > > > authorities consider that all patients should receive at least some > > form > > > of treatment to guard against the disease progressing. If you have a > > > good relationship with your doc, you might like to draw his/her > > > attention to an article entitled " Current and Novel > Immunosuppressive > > > Therapy for Autoimmune Hepatitis " which was published in January > this > > > year by M.A. Heneghan and I.G. McFarlane in the medical journal > > > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might > > ask > > > to be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Dear Anita, , and other Dog Lovers with AIH, Do any of you happen to have Airedale Terriers? I have a 6 year old Hobbes, and a 4 year old Callie. They really keep me going. No matter how sick I feel I have to get them out for exercise every day. They run, I walk. I consider them part of my therapy. Marty [ ] AIH Treatments?? > > > > > > > > > > > > Persarverance got the snail to the Ark. Spurgeon > From an article I read. Joanne > > > Opinions vary as to whether all patients with AIH need treatment. Some > doctors feel that treatment is required only in the more severe cases and > that patients with milder AIH do not need to be treated unless the disease > flares up. The problem is that AIH is a naturally fluctuating disease and > there is no easy way of knowing if or when it will flare up or how fast it > will progress. For this reason, many authorities consider that all patients > should receive at least some form of treatment to guard against the disease > progressing. If you have a good relationship with your doc, you might like > to draw his/her attention to an article entitled " Current and Novel > Immunosuppressive Therapy for Autoimmune Hepatitis " which was published in > January this year by M.A. Heneghan and I.G. McFarlane in the medical journal > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might ask to > be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Hi Anita, Just got your message and it's about 7:35 p.m. I'm glad you kept your dog, Meg. I don't understand people who tell you to get rid of your pet, who do they think they are! My parents are not animal lovers, it really disappoints me sometimes. I'd rather be with animals than with some people, tee hee! Re: [ ] AIH Treatments?? > > > > > > > > BlankHello, My name is a - I am new and don't post much - but > > > enjoy reading all the info. In regards to the article you mentioned > - > > > my doctor is Heneghan @ Duke University - Is this the same > one > > > who wrote the article.? I have an appointment for a check-up next > > > month. Where can I get a copy of that. > > > > > > > > Also - in response to other problems - I also since being > diagnosed > > in > > > May/2000 have had swallowing problems - I've never had mouth ulcers > or > > > thrush. I've also had problems with my eyes " feeling numb " - no > > vision > > > loss - just a weird feeling. I've been to the eye doctor - no > problem > > > found - > > > > > > > > Also - It seems other have had alot of questions and problems with > > > prednisone. I have found a very good book that Ive never seen any > > one > > > suggest before its called > > > > " Coping with Prednisone - It may work miracles, but how do you > > handle > > > the side effects " by Eugenia Zukerman and R. Inglefinger,MD. > > > > > > > > > Oh well - enough for now I will try to be more active online from > > now > > > on out. > > > > > > > > a > > > > > > > > I > > > > > > > > > > > > [ ] AIH Treatments?? > > > > > > > > > > > > > > > > Persarverance got the snail to the Ark. > Spurgeon > > > From an article I read. Joanne > > > > Opinions vary as to whether all patients with AIH need > treatment. > > > Some doctors feel that treatment is required only in the more severe > > > cases and that patients with milder AIH do not need to be treated > > unless > > > the disease flares up. The problem is that AIH is a naturally > > > fluctuating disease and there is no easy way of knowing if or when > it > > > will flare up or how fast it will progress. For this reason, many > > > authorities consider that all patients should receive at least some > > form > > > of treatment to guard against the disease progressing. If you have a > > > good relationship with your doc, you might like to draw his/her > > > attention to an article entitled " Current and Novel > Immunosuppressive > > > Therapy for Autoimmune Hepatitis " which was published in January > this > > > year by M.A. Heneghan and I.G. McFarlane in the medical journal > > > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might > > ask > > > to be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Dear Marty, I have three fluffy cats, wish I could take them for a run but they would just plop. Hope you are doing OK now. Re: Re: [ ] AIH Treatments?? Dear Anita, , and other Dog Lovers with AIH, Do any of you happen to have Airedale Terriers? I have a 6 year old Hobbes, and a 4 year old Callie. They really keep me going. No matter how sick I feel I have to get them out for exercise every day. They run, I walk. I consider them part of my therapy. Marty [ ] AIH Treatments?? > > > > > > > > > > > > Persarverance got the snail to the Ark. Spurgeon > From an article I read. Joanne > > > Opinions vary as to whether all patients with AIH need treatment. Some > doctors feel that treatment is required only in the more severe cases and > that patients with milder AIH do not need to be treated unless the disease > flares up. The problem is that AIH is a naturally fluctuating disease and > there is no easy way of knowing if or when it will flare up or how fast it > will progress. For this reason, many authorities consider that all patients > should receive at least some form of treatment to guard against the disease > progressing. If you have a good relationship with your doc, you might like > to draw his/her attention to an article entitled " Current and Novel > Immunosuppressive Therapy for Autoimmune Hepatitis " which was published in > January this year by M.A. Heneghan and I.G. McFarlane in the medical journal > " Hepatology " (2002; volume 35: pages 7-13). Alternatively, you might ask to > be referred to an AIH specialist for a second opinion. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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