Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 Alley, I am so thrilled for you. I pray that those who are still taking therapy that when they get through; they will hear such good news for themselves. I am praying for all. Hugs, Virginia Faith is the substance of things that are hoped for and the evidence of things unseen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 Alley, I am so thrilled for you. I pray that those who are still taking therapy that when they get through; they will hear such good news for themselves. I am praying for all. Hugs, Virginia Faith is the substance of things that are hoped for and the evidence of things unseen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 AlleyPat, This makes me soo happy for you. You have gone a long road, and pray that you remain undetectable. I had my first three month viral count done, and I ,too am undetectable-- ALREADY! Being a 1b, cirhosis, and a pre-treatment viral count of 2 million, I feel extremely lucky and fortunate. Alley you have been an inspiration. Sending hugs, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 AlleyPat, This makes me soo happy for you. You have gone a long road, and pray that you remain undetectable. I had my first three month viral count done, and I ,too am undetectable-- ALREADY! Being a 1b, cirhosis, and a pre-treatment viral count of 2 million, I feel extremely lucky and fortunate. Alley you have been an inspiration. Sending hugs, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 I am sooo very happy for you and will keep you in my thoughts so you stay undetectable. And I'm glad you are feeling better....what a relief this must be for you! Tatezi Alley/Pat wrote: > My gastro nurse just called. I'm end of treatment virus > undetected!!!!!!!!!! > > I go back in 6 months for another pcr. > > woo hoo!!!! And, I am feeling better, finally. Still heat sensitive, > but getting some strength back and gonna start weaning off the > anti'd's. > > > / alley > Grand Prairie, Tx, USA, Earth > > " To endure is greater than to dare; to tire out hostile fortune; > to be daunted by no difficulty; to keep heart when all have lost it -- > who can say this is not greatness? " > ~ Makepeace Thackeray ~ (1811 - 1863) > > http://communities.msn.com/TheMagog > http://clubs./clubs/writingandpublishing > http://www.alleypat.com > http://community.dallasnews.com/dmn/dfwliver > http://alleypat.livejournal.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 Way to go Alley Congratulations, now only 6 months and we'll find out if you still are undetected, Glad to hear that you are feeling better Suzy From: " Alley/Pat " <alleypat@...> Reply-Hepatitis C <Hepatitis C > Subject: Great News!!!! Date: Fri, 18 May 2001 17:36:42 -0500 My gastro nurse just called. I'm end of treatment virus undetected!!!!!!!!!! I go back in 6 months for another pcr. woo hoo!!!! And, I am feeling better, finally. Still heat sensitive, but getting some strength back and gonna start weaning off the anti'd's. / alley Grand Prairie, Tx, USA, Earth " To endure is greater than to dare; to tire out hostile fortune; to be daunted by no difficulty; to keep heart when all have lost it -- who can say this is not greatness? " ~ Makepeace Thackeray ~ (1811 - 1863) http://communities.msn.com/TheMagog http://clubs./clubs/writingandpublishing http://www.alleypat.com http://community.dallasnews.com/dmn/dfwliver http://alleypat.livejournal.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 Lora great news!!!! congratulations )) keep up the great work! / alley Grand Prairie, Tx, USA, Earth " To endure is greater than to dare; to tire out hostile fortune; to be daunted by no difficulty; to keep heart when all have lost it -- who can say this is not greatness? " ~ Makepeace Thackeray ~ (1811 - 1863) http://communities.msn.com/TheMagog http://clubs./clubs/writingandpublishing http://www.alleypat.com http://community.dallasnews.com/dmn/dfwliver http://alleypat.livejournal.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Lorad and all, So my question was going to be if anyone had a 3 month post test done but you have answered that for me, is this usual? I thought that they simply waited 6 months, why do it at 3 months when it is more conclusive at 6months? any ideas, Suzy From: Lorad8@... Reply-Hepatitis C Hepatitis C Subject: Re: Great News!!!! Date: Fri, 18 May 2001 22:37:05 EDT AlleyPat, This makes me soo happy for you. You have gone a long road, and pray that you remain undetectable. I had my first three month viral count done, and I ,too am undetectable-- ALREADY! Being a 1b, cirhosis, and a pre-treatment viral count of 2 million, I feel extremely lucky and fortunate. Alley you have been an inspiration. Sending hugs, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Lorad and all, So my question was going to be if anyone had a 3 month post test done but you have answered that for me, is this usual? I thought that they simply waited 6 months, why do it at 3 months when it is more conclusive at 6months? any ideas, Suzy From: Lorad8@... Reply-Hepatitis C Hepatitis C Subject: Re: Great News!!!! Date: Fri, 18 May 2001 22:37:05 EDT AlleyPat, This makes me soo happy for you. You have gone a long road, and pray that you remain undetectable. I had my first three month viral count done, and I ,too am undetectable-- ALREADY! Being a 1b, cirhosis, and a pre-treatment viral count of 2 million, I feel extremely lucky and fortunate. Alley you have been an inspiration. Sending hugs, Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Lora and Alley, Yeah for you two - being undetected! This gives me hope that all this " stuff " I am going through on treatment will have a positive result. I am on week 7 of treatment and struggling with sleeplessness (the Ambien does little to help me, dr. gave me a 10 mg dose), dehydration, diarrhea, lack of energy, itching like crazy (just for the past week - scalp, legs and face), and of course the ever dry dry dry mouth. Lora, the drug rep was telling me (Scherring) that if you go undetectable on treatment, you have about a 90% chance of staying that way and being essentially " cured " . I don't know if what he said is true though. I am going to ask my dr. about this on Thursday when I go in for my 2 month appt. and blood draws. I am so glad for you two!!!! Edie Great News!!!! > My gastro nurse just called. I'm end of treatment virus undetected!!!!!!!!!! > > I go back in 6 months for another pcr. > > woo hoo!!!! And, I am feeling better, finally. Still heat sensitive, but getting some strength back and gonna start weaning off the anti'd's. > > > / alley > Grand Prairie, Tx, USA, Earth > > " To endure is greater than to dare; to tire out hostile fortune; > to be daunted by no difficulty; to keep heart when all have lost it -- who can say this is not greatness? " > ~ Makepeace Thackeray ~ (1811 - 1863) > > http://communities.msn.com/TheMagog > http://clubs./clubs/writingandpublishing > http://www.alleypat.com > http://community.dallasnews.com/dmn/dfwliver > http://alleypat.livejournal.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Lora and Alley, Yeah for you two - being undetected! This gives me hope that all this " stuff " I am going through on treatment will have a positive result. I am on week 7 of treatment and struggling with sleeplessness (the Ambien does little to help me, dr. gave me a 10 mg dose), dehydration, diarrhea, lack of energy, itching like crazy (just for the past week - scalp, legs and face), and of course the ever dry dry dry mouth. Lora, the drug rep was telling me (Scherring) that if you go undetectable on treatment, you have about a 90% chance of staying that way and being essentially " cured " . I don't know if what he said is true though. I am going to ask my dr. about this on Thursday when I go in for my 2 month appt. and blood draws. I am so glad for you two!!!! Edie Great News!!!! > My gastro nurse just called. I'm end of treatment virus undetected!!!!!!!!!! > > I go back in 6 months for another pcr. > > woo hoo!!!! And, I am feeling better, finally. Still heat sensitive, but getting some strength back and gonna start weaning off the anti'd's. > > > / alley > Grand Prairie, Tx, USA, Earth > > " To endure is greater than to dare; to tire out hostile fortune; > to be daunted by no difficulty; to keep heart when all have lost it -- who can say this is not greatness? " > ~ Makepeace Thackeray ~ (1811 - 1863) > > http://communities.msn.com/TheMagog > http://clubs./clubs/writingandpublishing > http://www.alleypat.com > http://community.dallasnews.com/dmn/dfwliver > http://alleypat.livejournal.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Sometimes " brain fog " is due to excess ammonia in your system. If that is the case then leaving out animal proteins in diet and taking Lactulose every day will help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Sometimes " brain fog " is due to excess ammonia in your system. If that is the case then leaving out animal proteins in diet and taking Lactulose every day will help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Suzy, My three month viral count was done three months INTO treatment. I am now in my fourth month of treatment. I am sorry if I confused you. I still have 8 more months of treatment!! However, I will take all positive news! Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Suzy, My three month viral count was done three months INTO treatment. I am now in my fourth month of treatment. I am sorry if I confused you. I still have 8 more months of treatment!! However, I will take all positive news! Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Edie, I'm sorry you are having a ruff time. Drink TONS of water! Try keeping some hard candy or gum handy for the dry mouth. it helped me. Use lotions and oils in your bath when you can and some say Benadryl helped them with itchy skin. But check with your doctor to make sure you can take it. There are creams that might help, cortisone creams and benadryl creams. There is a combo survivors guide on the net I'll see if I can find the url. Good luck! / alley Grand Prairie, Tx, USA, Earth " To endure is greater than to dare; to tire out hostile fortune; to be daunted by no difficulty; to keep heart when all have lost it -- who can say this is not greatness? " ~ Makepeace Thackeray ~ (1811 - 1863) http://communities.msn.com/TheMagog http://clubs./clubs/writingandpublishing http://www.alleypat.com http://community.dallasnews.com/dmn/dfwliver http://alleypat.livejournal.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Edie, I'm sorry you are having a ruff time. Drink TONS of water! Try keeping some hard candy or gum handy for the dry mouth. it helped me. Use lotions and oils in your bath when you can and some say Benadryl helped them with itchy skin. But check with your doctor to make sure you can take it. There are creams that might help, cortisone creams and benadryl creams. There is a combo survivors guide on the net I'll see if I can find the url. Good luck! / alley Grand Prairie, Tx, USA, Earth " To endure is greater than to dare; to tire out hostile fortune; to be daunted by no difficulty; to keep heart when all have lost it -- who can say this is not greatness? " ~ Makepeace Thackeray ~ (1811 - 1863) http://communities.msn.com/TheMagog http://clubs./clubs/writingandpublishing http://www.alleypat.com http://community.dallasnews.com/dmn/dfwliver http://alleypat.livejournal.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Edie, Lots of good aadvice out there. I started putting oil on my skin after the showere and it helped tremendously with the itching, then applied lotion too if later my skin still itched. I used Avon skin so soft but also used neutrgena sesame oil, I drank at lest a gallon of water a day, sometimes 2 but then I have always or lately ( maybe my liver was telling me?) before dx'ed with hep c, I woke a lot the first par tof tx but later than all I did was sleep. Good luck and i have never heard of if being undectable then there is a 90% chance of the meds working Take caare Suzy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Edie, Lots of good aadvice out there. I started putting oil on my skin after the showere and it helped tremendously with the itching, then applied lotion too if later my skin still itched. I used Avon skin so soft but also used neutrgena sesame oil, I drank at lest a gallon of water a day, sometimes 2 but then I have always or lately ( maybe my liver was telling me?) before dx'ed with hep c, I woke a lot the first par tof tx but later than all I did was sleep. Good luck and i have never heard of if being undectable then there is a 90% chance of the meds working Take caare Suzy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Lorad, Still have that brain fog! well glad to hear that the tx is working at least, ggood luck you have a ways to go Mine is 2 months after tx , does anyone know if brain fog stuff ever goes away, maybe i've got a little alzeimers! lol Suzy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Lorad, Still have that brain fog! well glad to hear that the tx is working at least, ggood luck you have a ways to go Mine is 2 months after tx , does anyone know if brain fog stuff ever goes away, maybe i've got a little alzeimers! lol Suzy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Suzy.... Reishi Mushroom helps with brain fog. Also Ginkgo biloba but you have to watch your platelettes if you take Ginkgo because it sometimes thins the blood. Green tea is also good for brain fog, just remember not to drink it too close to bedtime. But, the only thing I have found that really cleared the brain fog was acupunture. I asked my chinese doctor if he could do anything about it and after the first treatment it was gone for about four days...now it the treatments last several weeks. As long as we are on rebetron, that blasted fog is a constant battle. I know what you mean about feeling like you have alzheimers....and it's truly frightening. Tatezi Suzy Balone wrote: > > Lorad, > > Still have that brain fog! well glad to hear that the tx is working > at > least, ggood luck you have a ways to go > Mine is 2 months after tx , does anyone know if brain fog stuff ever > goes > away, maybe i've got a little alzeimers! lol > Suzy > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Suzy.... Reishi Mushroom helps with brain fog. Also Ginkgo biloba but you have to watch your platelettes if you take Ginkgo because it sometimes thins the blood. Green tea is also good for brain fog, just remember not to drink it too close to bedtime. But, the only thing I have found that really cleared the brain fog was acupunture. I asked my chinese doctor if he could do anything about it and after the first treatment it was gone for about four days...now it the treatments last several weeks. As long as we are on rebetron, that blasted fog is a constant battle. I know what you mean about feeling like you have alzheimers....and it's truly frightening. Tatezi Suzy Balone wrote: > > Lorad, > > Still have that brain fog! well glad to hear that the tx is working > at > least, ggood luck you have a ways to go > Mine is 2 months after tx , does anyone know if brain fog stuff ever > goes > away, maybe i've got a little alzeimers! lol > Suzy > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 On the brain fog thing, it's wierd, but I have only mild liver inflamation and I got it too. Even before treatment. I stopped doing my college work cuz my brain just wasn't " sharp " . I didn't know what caused it at the time, but now i just rack it up to another HCV virus infiltration. Or maybe its the terminal case of blondeness I have hahah Have a great weekend!! Grand Prairie, Tx, USA, Earth " To endure is greater than to dare; to tire out hostile fortune; to be daunted by no difficulty; to keep heart when all have lost it -- who can say this is not greatness? " ~ Makepeace Thackeray ~ (1811 - 1863) http://communities.msn.com/TheMagog http://clubs./clubs/writingandpublishing http://www.alleypat.com http://community.dallasnews.com/dmn/dfwliver http://alleypat.livejournal.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 On the brain fog thing, it's wierd, but I have only mild liver inflamation and I got it too. Even before treatment. I stopped doing my college work cuz my brain just wasn't " sharp " . I didn't know what caused it at the time, but now i just rack it up to another HCV virus infiltration. Or maybe its the terminal case of blondeness I have hahah Have a great weekend!! Grand Prairie, Tx, USA, Earth " To endure is greater than to dare; to tire out hostile fortune; to be daunted by no difficulty; to keep heart when all have lost it -- who can say this is not greatness? " ~ Makepeace Thackeray ~ (1811 - 1863) http://communities.msn.com/TheMagog http://clubs./clubs/writingandpublishing http://www.alleypat.com http://community.dallasnews.com/dmn/dfwliver http://alleypat.livejournal.com Quote Link to comment Share on other sites More sharing options...
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