Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 In a message dated 11/15/01 6:47:17 PM Pacific Standard Time, scott_p@... writes: I was diagnosed 20 years ago hi patty.....20 years huh????? i am happy you are alive and here with us.... :-) :-) veenting is all i seem to do lately....but!!!!!! i will say.....the more i read everyones e-mails, the more confident i feel about getting better....... i will try to stay calm.....just need some answers ya know? i am definately educating myself here.....i know more these last 2 days than in the last couple years....thanks guys..and gals... i don't know if i have had this for the last 2 years, but my symtoms have been consistent..... i am glad i found this group....it's been fun too..... ttyl....bert. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 thnx so much for yr reply.....well im v v reg with my pap smear...in fact just had one done 1 mth ago! i do one every yr without fail! as of ever i can rem when i had high enzymes my period wud do the disappearing trick....but i thought once i was ok they wud rtn to normal....but i only hv them like every 2-3 mths! such a bummer cos my enzymes have been normal for awhile now....so just wondering if i was the only one or was i to live with this 'surprise' every couple of mths cos i never know when to expect it!! sheesh!! K. >From: sunshinedotson@... >Reply- > >Subject: Re: [ ] quest for the ladies! >Date: Mon, 3 Dec 2001 22:51:24 EST > > >Hi K., >I have always been regular until 4 months ago. I will spot for 4 >days..then >BLEED HEAVY for 1 day...then spot for 4 or 5 more days..... >thats how it has been the last 4 months......I am in remission from >Endometreosis now for 13 yrs., but not sure if my current problems are from >the recent DX of AIH...or my Endo..is back! >Doc.'s are trying to figure it out! >I also seem to pass dark/brown blood too, in between periods! >Doc. says that is (old blood)...but he can't tell me why or where it would >be >coming from.....not yet anyways. > >I might have to have a Lapascope to find out the problem! >of course along with the liver biopsy.......and other tests! >I am in the guiena pig stage........LOL! > >are you having unusal pain/bleeding that you didn't experience before? >If you are...you might want to consider talking with our doc. about a >Lapascope.....also when was your last pap-smear? >EVERY WOMAN SHOULD HAVE THIS DONE AT LEAST ONCE A YEAR! >I will say, that I know having irregular periods can be caused from many >things!....it's real hard to say............sorry....... >sorry I couldn't be of more help! >just wanted you to know you're not alone on this one right now! >Best wishes...... > **HAPPY**HOLIDAYS** > **AND WARM HUGS** > Bert. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 I was that way for a year and my gyn kept telling me that each time I would get it it would be the last one. Well she was wrong. Finally went to another gyn because my liver dr. suggested it, since I was having so much trouble and ended up with a hysterectomy. My uterous wasn't working properly. I haven't missed it at all. Of course, I'm 49 and have 3 kids so I didn't expect to miss it. The greatest part is when you go on vacation you don't have to work around it. Ann Re: [ ] quest for the ladies!>Date: Mon, 3 Dec 2001 22:51:24 EST>>>Hi K.,>I have always been regular until 4 months ago. I will spot for 4>days..then>BLEED HEAVY for 1 day...then spot for 4 or 5 more days.....>thats how it has been the last 4 months......I am in remission from>Endometreosis now for 13 yrs., but not sure if my current problems are from>the recent DX of AIH...or my Endo..is back!>Doc.'s are trying to figure it out!>I also seem to pass dark/brown blood too, in between periods!>Doc. says that is (old blood)...but he can't tell me why or where it would>be>coming from.....not yet anyways.>>I might have to have a Lapascope to find out the problem!>of course along with the liver biopsy.......and other tests!>I am in the guiena pig stage........LOL! >>are you having unusal pain/bleeding that you didn't experience before?>If you are...you might want to consider talking with our doc. about a>Lapascope.....also when was your last pap-smear?>EVERY WOMAN SHOULD HAVE THIS DONE AT LEAST ONCE A YEAR!>I will say, that I know having irregular periods can be caused from many>things!....it's real hard to say............sorry....... >sorry I couldn't be of more help!>just wanted you to know you're not alone on this one right now!>Best wishes......> **HAPPY**HOLIDAYS**> **AND WARM HUGS**> Bert. _________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 Karishma, A long, long time ago I was so regular I could plan months in advance..but after I had my first miscarriage, my cycles could vary from 24 days to 58... that went on for 15 yrs till I had my hysterectomy. I didnt like the " surprise " factor one bit, and I did not tolerate hormones very well at all. Using natural family planning (NOT the rhythm method) I learned how to watch for signs of ovulation and could then predict when the next cycle would start, no matter how irregular I was. You dont have to depend on a calendar, but you do need to be very aware of your body, and comfortable with it too. I dont have any of the resources I once had, so I cant even give you names of books...only book I do remember was one called " Natural Sex " tho as I recall it dealt with more than just fertility. I am sure there is a lot of info out there. Hope that helps. nne <ksdaryanani@h...> wrote: > thnx so much for yr reply.....well im v v reg with my pap smear...in fact > just had one done 1 mth ago! i do one every yr without fail! as of ever i > can rem when i had high enzymes my period wud do the disappearing > trick....but i thought once i was ok they wud rtn to normal....but i only hv > them like every 2-3 mths! such a bummer cos my enzymes have been normal for > awhile now....so just wondering if i was the only one or was i to live with > this 'surprise' every couple of mths cos i never know when to expect it!! > sheesh!! > K. > > > >From: sunshinedotson@a... > >Reply- @y... > > @y... > >Subject: Re: [ ] quest for the ladies! > >Date: Mon, 3 Dec 2001 22:51:24 EST > > > > > >Hi K., > >I have always been regular until 4 months ago. I will spot for 4 > >days..then > >BLEED HEAVY for 1 day...then spot for 4 or 5 more days..... > >thats how it has been the last 4 months......I am in remission from > >Endometreosis now for 13 yrs., but not sure if my current problems are from > >the recent DX of AIH...or my Endo..is back! > >Doc.'s are trying to figure it out! > >I also seem to pass dark/brown blood too, in between periods! > >Doc. says that is (old blood)...but he can't tell me why or where it would > >be > >coming from.....not yet anyways. > > > >I might have to have a Lapascope to find out the problem! > >of course along with the liver biopsy.......and other tests! > >I am in the guiena pig stage........LOL! > > > >are you having unusal pain/bleeding that you didn't experience before? > >If you are...you might want to consider talking with our doc. about a > >Lapascope.....also when was your last pap-smear? > >EVERY WOMAN SHOULD HAVE THIS DONE AT LEAST ONCE A YEAR! > >I will say, that I know having irregular periods can be caused from many > >things!....it's real hard to say............sorry....... > >sorry I couldn't be of more help! > >just wanted you to know you're not alone on this one right now! > >Best wishes...... > > **HAPPY**HOLIDAYS** > > **AND WARM HUGS** > > Bert. > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 Oh Bert, the story made me cry too. BUT it was not a story about me, it was forwarded to me. My son, Hunt is still kicking, his enzymes levels still seem to be in the 1000s and doesn't seem to be getting much better. So please just keep us in your prayers. Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2001 Report Share Posted December 20, 2001 I was wondering the same......hope she is OK debby [ ] Bert Has anyone heard from Bert today.Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2001 Report Share Posted December 20, 2001 Bert, I am glad to see you are posting today. I'm sorry your not feeling well, but it is nice to hear from you. Thinking of you!! Bethanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Bert, your e-mails are much easier to read now. Thanks. Take care. aumesh ----------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 In a message dated 1/2/02 7:35:26 PM Pacific Standard Time, bamrand@... writes: I just hope it isn't anything too major. Good luck and please keep us updated. Bethanne hi bethanne... hope you are doing good, how are your babies? thanks for the kind words... i hope its nothing major too! (better cross your toes for me too LOL!) take care..(hugs) bert. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Bert. Glad to hear everything went well so far. When they gave you the injection did you feel that warm sensation I finally made an eye doctor's appointment. Not bad, they will see me today. The last time I went they said I probably wouldn't need to adjust my lenses anymore. I think they are wrong. Looking forward to finding out how you make out today with your doctor. Take care. Ann CT [ ] Bert Bert, I just wanted to let you know that I was thinking about you and keeping my fingers crossed. It's one of those situations that you hate for them to find something, but it would give you some answers if they would. I just hope it isn't anything too major. Good luck and please keep us updated. Bethanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 In a message dated 1/3/02 9:43:01 AM Pacific Standard Time, galye@... writes: And you need the support from here. gayle/trans 6-99 galye@... q~q thanks gayle, its always nice to be reminded that i can rely on all of you here. thinking of you... bert. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Thank you for the uplift I just can't take any pain killers with asprin in them as i am allergic to asprin. And I have asthma so if I take any advil there goes the breatheing and I have to be on oxygen at night while I am sleeping as I stopped breatheing 160 times when they did the test with the thing on my finger all night. So now I just hop in bed turn on my machine and try to sleep. Bert, I think you and I have something very much in common, husband problems, you said there was a distance between the two of you well hon you arien't alone he's tired of me being sick all the time he complains that everyday I wake up with a new complaint and out of four grown married kids only one kinda understands, None of them understand NASH or it's complications as I am sure your husband dosen't understand AIH. Pam e-mailed me a good one and after all the the things she said I thought isn't it about time I start thinking about me and not care if they think I am a hypocondriac. Isn't there some day's that you feel so frustrated you just want to scream at the top of your lungs. One of the oldies, I can't remember her name had a letter she mailed to every member of her family it was great, it wasn't sarcastic it just explained a lot of things I wish she would come back on and print the letter again a lot of people could use it. Sorry I rambled on so much. Love your jokes, Bert. Take care, Hug's, Lou Hewitt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2002 Report Share Posted February 3, 2002 Carol....how true your words are! SAHM's are the best. I stayed at home for some time with my kids for 3 years. It was wonderful. Now, that I am older, I WISH I had taken the entire time off.....such a blessing that I missed. Fortunately, being a teacher, the kids were with me most of the day except when they were in their own classes. AND, I did have the priviledge of teaching my daughter in Kindergarten. I had my son in 3rd grade and Kindergarten. It was difficult, but I got to spend time with them both. That was good. Then, after school, they would spend with me in the room. When we moved to california, the kids would go to my Mother's home, then later they stayed home alone. Now, had I to do it over, I would have chosen to work when they were little, and stay at home with them when they were in upper grammar school, JR. High, and High School. So much less heartache could have been avoided had I stayed home...... debby [ ] Re: Bert Bert, you work. Your current job is one of the most difficult there is. And it is for 24 hours a day. I can remember thinking when I was young and first in practice that anyone who stayed at home had it made. I changed my mind when I decided to take a leave after my child was born. I found out that taking care of a child, a house and having very little adult conversation during the day was not the dream world I thought it was. And they grow up so quickly. Just remember, when they drive you nuts, that they will one day be grown and much sooner than you can imagine. Carol sunshinedotson@... wrote: In a message dated 2/1/02 4:14:13 PM Pacific Standard Time, scott_p@... writes: 'oh.. I'm sorry to bother you but.. give me a break! Sorry guys. Patty Hey Patty........don't fret!! You can Bitch anytime!! I do.....LOLOL!!!!!!! Yes, I remember those awful days, where at work it seems that no one can keep it together but you.....It's like you're the glue for the business, and if you're not there, it all comes UN-glued!! I said in an earlier post, that at times, I often thought I should be getting MY BOSSES SALARY!! I really hated those jobs!! I fortunately have not had to work for 3 yrs. now. But I do feel for those of you, who suffer with this disease and other illnesses associated with it, AND trying to hold down a full-time job!! I commend all of you who work!!!!! BUT, I do have to say, at times, I WISH I had an out-side job...... My kids drive me nuts!!!! LOLOL!!!!!! They are a lot of work too.......so I guess I do work, I just don't get a pay-check!! But I do get my hubby's......LOLOL!!!!! HUGS....to you Patty! Bert. : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2002 Report Share Posted February 4, 2002 Hi Bert.... It was nice to hear from you...I have been lurking and not very affectively lately....when did you join in here....My life sometimes just gets so complicated that this is unfortunately one of the last things I get the time to do...I am trying to change that...mainly because I really need the contact with people who know what I am talking about when I need to talk about Tyler and tests and results and worries and questions and support...you name it...these are the places I find comfort... I am on 2 other support groups here for Liver disease...Ty also has PSC and so I belong to that group and then there is another group that is called 4LIVER...they work the same way as this one does...but I really only stay in touch with AIH and PSC...the 4Liver puts out alot of articles ..so lurk there only... Ya know that I have so many people ask how I deal with all that is going on with my sons.... who is now 23..24 in April...was diagnosed with UC when he was 3 and I was pregnant with Tyler....he was really sick and I found that no one knew what I was talking about and they just kept saying things like...he will outgrow it....which we know is not true...but anyways...because I have 2 boys...well really young men now...that have health issues...I have learned that EACH and EVERYONE of us moms do what we have to do...no matter what it is....we take it one day at a time... I think the toughest thing is as they get older is not to smother them...which we moms can also do very well without even knowing it....but I find myself haveing to shut my mouth with some things....and let them live their lives... is doing well and lives in Atlanta...and is leading a very successful and exciting life....could talk about him forever....if I must say he is a NEAT GUY... Tyler unfortunately has more health issues than he would ever deserve...in several life times....but he is also one NEAT GUY...even though he has really had it very tough since he was young....but he is his own person and enjoys life when he feels good enough to do so... Now I have to tell you that in the recent past in my lurking I have so enjoyed all you posts...you have a great sense of humor...which is really needed....laughter goes a longgggg way....maybe sometime when I have really caught up with this here I will tell you some funny things with my guys... On that note...you and your GAS...too much...but I bet I have you beat on that note...Try going camping in a small car...with 5 people in there...my daughter who is now 27...and the 2 boys...both with IBD..(now there is the rub)....or should I say smell...LOL...and my husband and myself...my daughter would be stuck in the back seat with the 2 of them....LOL...poor thing...then we would camp in a popup....not too bad when it was nice but when it would rain or be cold and we had to keep it closed up at night...Well use your imagination....I think there were times that they would blow us to another camp site....But we did it.... OH well now you know a little bit about me and my family...I hope to learn more about you...kids...where you live...etc...I know you probably have already told this ...but since I am caught up here with everything I would love to hear all.... Take care and hope to hear from you soon Luanne Ty's mom PS...just thought of this....when the boys were young I wasn't really pleased with the word FART...so I asked them to come up with something else that only we would know ....Their favorite books were by Shel Silverstein...I think that was his name...Well one of his books had a monster in it with the same problem....and they were called WIZPOPPERS.....so that is what we have called them for yrs.... Just a house full of wizpopping is what we have...LOL....someone please open the windows... see you... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 Sweetie, I know all too well that life is too short. And I even sent this to joke to my MIL and a couple of Aunts. Laughter is good for all of us, releases endorphins, reduces stress and helps us feel better. And, that was a SUPER, Super Bowl Game. Like you, my husband and I were moved by the memorial tribute to the victims of 9/11. I really didn't care which team won, but the game kept your attention to the final second. Some have been pretty boring. Hope you have a good day! Take care. Carol sunshinedotson@... wrote: In a message dated 2/4/02 9:18:47 PM Pacific Standard Time, pcmcobb@... writes: I cannot believe you forwarded this to all of our friends. You really like playing the devil's advocate, don't you? LOL Now, my apologies to those of you offended by this. (Bert and I share a sick sense of humor. But,hey, the rest of us is sick, so I guess our humor might as well be) Carol Hi Carol, I wouldn't worry so much about this joke. All of us here have a pretty good sense of humor. And if anyone gets slack for it, it will be me. Bec. I am the one that sent it to the group. So I will apologize if I have insulted anyone.....Carol, you don't have to apologize. And I might add, life is too short to get angry about a little joke. Take care.... HUGS..... Bert. : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Bert, I am sorry to hear that your labs are elevated. We all know the terror of feeling that our liver disease is out of control. I agree that you should take everything a minute at a time. That is really the only way to live with chronic health problems. It is very depressing to learn you have any type of chronic health problem. As I have shared with you previously, I sought counseling to help me accept my multitude of illnesses. A flare or set back of any type is still difficult to deal with even after 20 years of accepting that my life would never be "normal". My greatest "guilt" was feeling as though I was not being a good mother and wife. Believe me, your family will learn to adjust and accept your illness and physical limitations. I think it was easier for my family to accept my limitations than it was for me. I still have to fight "over doing" when I am feeling well. Remember, you can still enjoy life and love your family. I do not mean to sound as though I am preaching. I have been there. I assure you that my son does not resent my illness. I believe he is a more compassionate and caring person because he witnessed my illness, my limitations and my frustrations. He is also extremely protective of me as is my husband. They may not really understand what I go through but they have learned to live with the consequences of my being chronically ill. Often, they will recognize that I am going into a flare before I admit to it. Bert, I wish I could give you a hug and hold your hand to help comfort you. Life is difficult, at best. Even though you are ill, you can still enjoy the good and beautiful things that life offers you. Take it one day at a time. Be good to yourself. When you are down, remember that there are many of us feeling empathetic. We care. Carol sunshinedotson@... wrote: Well, I wish I could say I was happy today. But I am quite the opposite. Been crying and very upset. My LFT's were almost triple for the ALT and double for AST. just from last Jan. 16th. I was very upset, so upset that I couldn't post it here until now. Found out this morning.....I decided to post bec. you all are my friends and want to know whats up with me, as I do you. But it really hit me hard. I am really having a difficult time managing my health. My Gastro is on vac. for 3 wks. Who ever said that Dr.'s can take vac.'s anyway... : ) My PCP is sick! So I couldn't speak to either of them about this, which was more difficult. Gosh, if my LFT's keep going at this rate, I will be a nervous wreck! I have 2 more months of my monitoring, according to PCP. But when Gastro gets back, maybe he will change his mind about the biopsy, who knows. He hasn't seen the results from the scan, and 2 months of blood-work yet. Maybe he'll say ok let's do the biopsy, and maybe he'll just say "again" to lose more weight first...... ly right now, I don't give a damn what the Dr.'s say, they are making me feel like I need a Therapist! (self-pity, i know) So what...... My ALT was 150, up from 83. AST was 83, up from 45. When on the Prednisone, both of these tests were almost back to normal. Now look at them. Are these high? maybe not to you, but they are to me. I have too many issues, and for anything to keep getting worse, even slightly, isn't good. I could go back on Pred. if that's what the Dr. suggests, but now I am terrified of what the Pred. can do to my Diabetes. I wasn't afraid of the med. before, but I am now.... More info. is great, but can often just create more stress. I am afraid of what? .......Being another victim of the health profession that don't take patients seriously. Can I change Dr.'s and fight for my rights as a patient? Sure I can, ...all alone, with no energy! YEP! I'll get far! Like I said, you people are all I have. (i know, more self-pity) Maybe tomorrow, the sun will shine and I will be in a better mood. But for now......I am depressed. I desperately need my health to turn around in the right direction. Some say, take your time, it'll happen...... We'll I look around at my kids and say, I need to care for them now, not later on. I need Dr.'s to take this seriously now, not later....what do I have to do???? scream at the top of my lungs!????? Just bec. my numbers are not so high that I am nearly death, means that, hey, the Dr.'s can take their time with me? OH, let's experiment on her some more, let's really see how sick she will get! Call me paranoid if you wish, but this is where I am at! (today anyway) HA! I can't even get a 2nd opinion without PCP's ok. I can't see a specialists without PCP's ok. Hell, I can't even change PCP's but once a month according to my INS. co.(that I pay for!) But a Dr. will say, take better care of yourself, if you had, you wouldn't be in this predicament. Or, you shouldn't have joined a group of AIH'ers, that was too pre-mature! So who is in charge of my life again? ME? to a small degree yes. The way I see it, I am being controlled. When I have tests, how often, when to take meds., when to stop meds., go here, do this, do that! Just for them to say, well......just wait, you'll be ok. No REAL DAMAGE can occur in just 3 months. Meanwhile, I feel like crap everyday! Gosh, I think I need a therapists now..... Also for some reason, my anti-depressants aren't working to help me sleep anymore, this past week. Just so tired of it all. I want to be a veteran of all this NOW! Let's move on with it already! I think I need to write a book! Pondered this for a while now. I have had a very abnormal, and dysfunctional life, all the way back to when I was a little-bitty kid. Learned many hard lessons in my life for only being 34. Experienced way too many horrible things, that most people would never experience in their entire life time. Am I really experiencing self-pity right now, or one hell of a good dose of reality?? I don't know... Really feel like I just hit the concrete at 50mph, face down! I'll put make-up on tomorrow, so the bruises won't show...... : ) Thanks for listening..... Just delete me please, as I will pick myself up tomorrow and will be fine........as usual.... Have a good night, I am going to spend some money..... : ) HUGS..... Bert. : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Dear Ann It was so good to hear from you and that you are close to Bert. I am really finding all this hard to believe that something that was possible said innocently could so simply be taken so out of context and upset so many people and end in such a tragic way. We will all have to think before we do anything in future. I hope and pray that Bert gets over this quickly she has enough in her life to deal with, without all of this nonsence. Give her all my Love and Hugs tell her I am missing her already. I will be posting her soon I am batting for her side. Thanks so much. Jeanette UK Ann Rita <seafarer52@...> wrote: Jeanette I've been talking to Bert also and I don't know what has happened except that she's really upset and I know that's not good for her. We are suppose to try and stay stress free and I'm sure this isn't helping her. You are right we are a support group and sometimes things are said out of context and no one should take it personally. You can e-mail directly as I am in contact with Bert daily at Seafarer52@.... Thanks. Ann CT [ ] Bert To Everyone I am really upset today about all this regarding Bert. She messaged me today and asked that I tell everyone that she un subscribed to the group and that she did it voluntary. I don't know what has happened I really don't want to know what has happened all I do no without doubt is that someone is very upset about everything. She has openly apologised to everyone in the group but for some reason, some felt that was not good enough and I know how badly she feels about this she hasn't stopped crying. I thought this was a liver support group we all have the same disease some worse than others so don't you feel that life is far to short to let things like this get in the way and to denigh someone who needs the support the chance to have it. Can't we please get back to what we were and live our lifes and make it as good as we can not only for ourselves but others too. I am sorry if I have offended anyone but I feel these things should not be ignored.Hugs Jeanette UK AIH dx 1998 Cirrhosis dx 2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Hi Bert... Hope everything goes well on friday....and you labs #'s are behaving themselves.... This is a very short week for me....so trying to keep up with the mail and get all the other work done also...Wed is always a day that I am gone all day because that is the day I spend with my mom in the Rehab center...then do the grocery shopping after...so by the time I get home...I am out of energy.... and this friday...Ty goes for his GI appointment and Remicade infusion...so we leave at 5:30 am and get back about 6pm...if we are lucky....so that night I am ready for nothing...LOL...just barely make it...Luckily no one here expects much on that night....PB and J is all you might get...or send out for pizza.... Ty gets a butt load of labs done on that day also...so will thinking of you while they are working on him.... have a good week... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 , I would like to second what your daughter said. I have people always saying to me that their problems are minor compared to mine. Problems don't compare. Stresses in life are disruptive, can be scary, painful, and are almost always difficult. It's all relative. Sometimes it qualifies as hugely overwhelming also which is what Burt has. I've never seen any one stronger. Hang in there Re: [ ] Bert Bert, I am brand new here. Just wanted to let you know that you and your family are in my prayers. don't beat yourself up for not asking questions. Make a list of all the questions so you can ask them on the next visit. Sometimes I send my doctors an e-mail or a fax with my questions. It is so easy to get in the doctor's office and forget all the things you wanted to know. When I got my diagnosis of AIH on January 6th, I was in so much shock that I didn't ask a single question. It is so much harder when it is your child that is sick or has health problems. It doesn't matter at all that someone else's child may have things worse. As my wonderful, almost 21 year old daughter, Nikki, told me just the other day as I was saying that I felt tremendous guilt for being upset about my latest diagnosis and the fact that I had to take prednisone when so many were so much worse than me. My very dear neighbor is battling lung cancer that spread to the brain. She has been undergoing radiation and chemo for the past 18 months, yet she is so upbeat about everything. Nikki said, " Mom, just because someone else has things worse than you, does not mean that what you have to deal with is not hard and does not suck. " What you are going through right now is really tough and scary. I have been so thankful that it has been me and not my daughter going through health problems. During one twelve month period, my daughter had 4 surgeries and I had 3. My daughter handled it all pretty non-chalantly. It was me who just about didn't survive it. There's really nothing anyone can say to make this easier for you. It does really suck and it is really hard. You will get through it because you have no other choice. I could tell from your e-mail that you are a wonderful mother. I have no doubt that you will do whatever it is you must do to make it through these difficult and scary times. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 Hey Bert..... Sorry that it has taken me soooo long in getting to write to you....being away with Ty to the NIH and coming home on the 11th of Jan to 1000 emails has put me back alittle...hehe...and my inbox shuts down at 1000 so who knows how many emails I will just never get...... So here so in an honest attempt to catch up with you...... your email of the 13th says something about you being in "shock" over the health issues of your boys... I must have missed alot here....cause this is the first I have read anything about this....Zac having surgery for a growth...liver counts off.... and 's has a lump that has to be removed....and then with high cholesterol....and being sick and needing his tonsils out.... Geezzz why do things with the kids always come at once....just hit after hit.... It is not easy to keep your sanity.... When I was pregnant with Tyler is when was diagnosed....he was 3 and bleeding like crazy...everytime he was in the bathroom....and he was sooooo small...born at almost 10 lbs this was really something....this specialist we were sent to ....who was soooo rich that his office was at his house which was on the Jersey coast...beautiful view of the ocean....well this jerk sent for tests and then told me that he had colon cancer and because he was sooo young he probably only had 6 months to live....the same time the baby was due.... I went NUMB...completely....drove home....somehow...1 hr ride....called my husband at work and said....You need to come home NOW....couldn't talk....Just COME HOME....NOW...which he did...but the 2 hours it took him to get home were the longest in my life....thought I was going to completely loose it.... Luckily for us we decided to take him to Childrens Hosp in Philly and they told me out straight that there was no way he had colon cancer....it took them about 6 months to diagnose him with UC...I was 9 months pregnant...and that was all I could handle....luckily there were able to get him feeling pretty good in a short time....back that many yrs ago...82 ...there were no cases of UC with someone soooo young....not in Philly anyways....so they were very careful with all that they did...now you see that many more are being diagnosed at a young age.... Then there were the yrs...that I had them both taking turns in the hosp....I used to say....Couldn't you just cut me a little break and be sick at the same time...and share a room.....lol...so far they have never cooperated....just like guys..... Then there were the yrs that I had Ty and my mom (who lived with us) in the hosp at the same but in different states.... and one time they were both in the hosp and I had to cancel surgery that was scheduled for ME....remember me....lol....got them both home and feeling better and I went in to have my surgery right before Christmas...not the best of timing....oh well... all I can say is that we look back at these times and laugh now.....but let me tell you at the time it wasn't so funny....I think I was so tired and emotionally spent that I was just going thru the steps to get thru the day..... and my poor husband was left to keep things at home as normal as possible.....and work...and take care of all the animals which is a major chore since I am always the one who does it.....but he got thru it too...... But boy was he glad when we finally got thru all of that...... But you know I think men really do put things on the back burner...it is their way of handling things....not the way we would like them too...but after all they are from Mars...lol.... I too have gone thru all the guilt feelings of being punished for something since I have 2 boys that are ill....felt it was all my fault....and I like you did everything right when I was pregnant.....ate everything right...made their baby food...never fed them crap....soooooo WHY? Sometimes being a mom is not easy...but wouldn't give it up for the world..... you take care and talk soon... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Bert, Lupus is both a tricky and interesting illness. One of my doctors told me that the doctor he did his residency under said, "If you can understand lupus, then you have a true understanding of medicine." To be honest, though, it is not the lupus that has been the hardest to deal with. If I only had to deal with lupus, I feel pretty sure I'd be able to continue working full time. I'm not trying to make light of having lupus. For some people, it is deadly! For others it is nothing more than a minor annoyance. However, for most it lies somewhere in between. As for the Iraq/war stuff, I don't know if you offended anyone else, but you sure didn't me. I, also, certainly didn't mean to offend anyone. War and politics are touchy subjects. However, if I remember your original post, you were mostly just asking for prayers for your nephew! There can never be anything wrong with that. It was me who carried it to the next step. I will say one last thing and be done. Please remember to pray and show support for all the members of our armed forces. Also, please pray for the various leaders to have the wisdom to do what is right. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2003 Report Share Posted May 14, 2003 Hi Bert, it never occurred to me that people would come into our little group with hidden agendas of selling herbs/therapies/etc. I guess that sort of things happen some times, especially with the anonymity of the web. Cathie _________________________________________________________________ Add photos to your e-mail with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Hi Bert....I havent noted your personal email address, can you let me know? Post me privately as sometimes (a lot) Im having to delete non personal messages. Love Jan [ ] Mine & Zac's results.... > > Liver BX results from Dr. today: > > Fatty liver with mild Fibrosis. Seeing a Hep. Dr. soon, per PCP! He says I > am not fat, and even when I have lost some weight, my numbers go up, so it > can't be just Fatty liver disease. I weigh 150 and I am 5ft 6in. No AIH at > this point. Another liver biopsy is possible with a Hep. Dr. and labs have > been reduced to once a month. Increased meds. for my Fibromyalgia. > > Going back to see a Rhemy Dr. because I am having too many flares again. > Also having more tests, what I don't know yet, but it's for losing my hair > on my entire body and it's not growing back. The hair on my head falls out > faster than it can grow back. Having my small intestine's examined because > my belly is getting bigger and hard, it's not blubber, (for lack of a better > word). > > Zac's results were benign.~~~great news, and he's fine. > > > > Thank you all for being my wonderful friends!! > > Love & Hugs & Prayers as always to you all, now and forever!! > Bert. > > To my friends, please e-mail me directly from now on, thanks. My comedy > group will no longer be linked to this liver group. Neither will the Milk > and Cookies comedy club for kids. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hope all goes well with you and he will be in my prayers, he has a strong mother to lean on. I just got back on after quite awhile, I did get a definite diagnosis of fibro from the rhummy (spelled wrong) right after I got it Child Protection brought me a brand new baby boy he was 9lbs 1oz and he has stoled our hearts this one is really going to hurt to give back, but he is really kicking my butt when I go to bed at night I go to sleep because I am exhausted. I am truly sorry Bert about you and your husband many times over the years I have been there but never had the courage to do it. If they can't see it, then it's all in your head I have heard that so much I want to scream. the Fibro really bothers my aright side, hip, knee and ankle joint actually you can't touch me anywhere that it dosen't hurt but the worst pain is from the joints. You take care Bert and let me know how you make out. Love & Hug's, H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 Bert you are really something. Thankyou for taking time for my problems when I know you have to many of your own, I am also praying for all of you. I need to get more candles because I burn them so much I am always running out. the WV hillbilly Quote Link to comment Share on other sites More sharing options...
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