Re: from Lyn

[Guest guest]

Lyn,

Why is it that vacuuming the carpet is so hard on us? I find that is the most difficult house keeping task I have. Try to get an 18 year old male to do it for you. So if you come to my house, I've just gotten over being embarrassed and tell everyone to enter at their own risk.

[Guest guest]

...what you need is a riding vacuum...then even your son will do

it for you.

love jerry

[Guest guest]

Hey Jerrry,

Only if it has a lift kit and 38's on it. Definitely must be a 4 x 4. Yee Yah, look Mom's on the vacuum again. We're going 4 wheeling.

[Guest guest]

,

LOL.. Sounds like a winner to me.. Maybe someone will invent a vacuum cleaner that is NOT so hard to push.. I know they have self-propelled ones, but we still have to pull the thing back towards us.. Now a 4 wheel self propelled vacuum sounds like fun.. LOL..

Have a Great day.

Lyn MKANTZLE@... wrote:

Hey Jerrry,Only if it has a lift kit and 38's on it. Definitely must be a 4 x 4. Yee Yah, look Mom's on the vacuum again. We're going 4 wheeling.

[Guest guest]

Lyn sorry you are going through this. I hope your husband gets some help and I hope you are doing as Jerry suggested to me and going to al anon.

Have a good holiday.

the WV hillbilly

[Guest guest]

Thanks ,

You have a good holiday too..

I am not going to al-anon now, as I have just been too sick to go..

Take care,

Lyn... (Ark)

MITSMEMYERS@... wrote:

Lyn sorry you are going through this. I hope your husband gets some help and I hope you are doing as Jerry suggested to me and going to al anon.Have a good holiday. the WV hillbilly

[Guest guest]

Lyn,

It's really not that I am so brave, it's just that as I said earlier sometimes I have diarrhea of the mouth! I do hope that at least sometimes the things I write are just a bit helpful for others. I am glad you got your disability without a fight. I got my disability retirement from my job with the federal government without a fight at all. It did take 3 months to get the paperwork to the approving office but once it finally got to the approving office, it was approved in just a few days. I received the notice that my Social Security disability was denied around mid June - the day I got out of the hospital the last time I was in. That was after having spent 4 days in the hospital, 36 hours out, and then 7 more days in the hospital. But, hey, I am well educated and my job is just a desk job so I am perfectly capable of working full time! Yeah right! No employer in there right mind would want me as a full time employee! Yes I have a BS in education with a math major and an MS in logistics management. I have a lot of very valuable experience and am well known and respected in my field. However, I can't promise you from day to day or even hour to hour whether I'll even be able to make it out of bed. And, oh, on the days I can make it to the office, there is no guarantee how well my brain will function, because, you see, I have to take 25 different medications daily. Some of them make my brain fuzzy. Some make me really nauseated at times. Some suppress my immune system so I am much more likely to catch whatever may be going around. Things that I used to be able to do very easily are now sometimes impossible. I could go on, but I think you guys get my drift. I truly admire those of you who are able to continue working, but I cannot do it. I will fight for my Social Security disability and I will win!

I think my opening statement to the judge will be something like - I am dealing with systemic lupus, autoimmune liver disease, chronic pancreatitis, diabetes, and a clotting disorder. I take 25 different medications daily to try and slow down and/or better deal with my various illnesses. Any one of the illnesses I am dealing with might be enough to keep me from being able to work full time, but when you have the combination that I am dealing with, working full time is not only no longer in my best interest, it is not in the best interest of any employer! I am dealing with illnesses that are both chronic and progressive. It is imperative that I keep my stress to a minimum and that I get the extra rest that my body requires. Obviously, minimal stress and tons of extra rest are not possible when working on a full time job.

I'm really not worried as I feel sure I will get the SSD approved and I am fortunate that I do have time to fight for it.

W

[Guest guest]

Lyn,

I can't remember if I responded to your post or not! I haven't been on the computer much lately so I am really behind on the posts.

I know the decision to have the liver resection is a tough one. That sounds like a very scary surgery. I have told my husband that I would have to be very near death before I would agree to let someone do surgery on my pancreas. There are so many who have surgery and then end up in worse shape. If they knew for sure what was causing my pancreatitis, then there are some surgeries for specific problems that are pretty successful, but other than that, I won't even consider surgery at this time.

I did have an absolutely awesome Christmas and am sure New Year's Eve and New Year's day will be good, too.

I am doing better. I actually ate just a little bit of chicken on Sunday afternoon. I'm still being very careful with my diet. I've now progressed to having diarrhea, which always happens about 3 days after a bad pancreatitis attack. It is normally a good sign that things are improving, but still annoying. I don't want to take anything for the diarrhea though because constipation is so often a very serious problem for me. I had the celiac plexus block yesterday. It is a block that is supposed to block the nerves around the pancreas and help with the pain. I'm not really sure if it worked or not, but my pain did seem to be somewhat less today. However, earlier today I felt so incredibly weak. I ended up calling my mom and asking her to come over for a bit. I was so weak that I was afraid to take a shower without having someone in the house. I have NEVER felt that way in my life! I feel much better this evening. My mom was so worried that shewanted to spend the night over here but I really was much better by the time I sent her home. My hubby is still off work from his knee surgery but he went to the Atlanta area with his sister to visit the other sister. I knew he was getting stir crazy. He had knee surgery on Dec 17th and he has never been off work this long. He also rarely gets to visit his sisters becausehe only gets 10 vacation days a year. I knew the time away would be good for him and my mom and stepdad are only 10 minutes away from me.Anyway, I think maybe I am on the mend. Just gonna mostly chill til tomorrow evening. I'm hoping I'll be up to going to a movie and dinner with hubby and friends tomorrow evening.Hope everyone else is doing well. W

[Guest guest]

Hi ,

I am glad to hear you are doing better.. It seems you do get this problem so much, and to land in the hospital cannot be any fun at all. Here in Ark. the hospitals are full of people with flu or complications from the flu.. I don't like to get out in crowds right now.

I hope you can start eating again soon and its good you could keep down a bit of chicken.

Maybe all will settle down in there soon.

-- I am just truly frightened to have the liver surgery done. Even though this dr. is well known for doing the surgery -he has done over 100- for this disease only., it stills scares me.

I met a young woman, 35 yrs. old while at Mayo. She has the same disease as me. In fact she was much larger in her waist area than me. She opted to have the surgery before Thanksgiving. She almost died.. The large vein from her heart to her liver got nicked and for about 30 minutes they didnt know.. it was touch and go.. She did recover after several weeks at Mayo .. I got an e-mail from her that she had returned home to Pa. Then hadn't heard from her in a good while.. Just got an e-mail that she had been back in the hospital for fatique and depression.. Going in and cutting on the liver is just one BiG surgery.

Its good your hubby is doing so well and was able to go visit his sisters.. I bet he was going stir crazy..

I had my hubby home for 5 days during Christmas and I sure missed him yesterday when he returned to work.

, I am happy you had a nice Christmas, and I want to wish you a happy, and healthier New 2004!

Take good care and keep improving.

Blessings,

Lyn

Ark Weston <karenw@...> wrote:

Lyn,

I can't remember if I responded to your post or not! I haven't been on the computer much lately so I am really behind on the posts.

I know the decision to have the liver resection is a tough one. That sounds like a very scary surgery. I have told my husband that I would have to be very near death before I would agree to let someone do surgery on my pancreas. There are so many who have surgery and then end up in worse shape. If they knew for sure what was causing my pancreatitis, then there are some surgeries for specific problems that are pretty successful, but other than that, I won't even consider surgery at this time.

I did have an absolutely awesome Christmas and am sure New Year's Eve and New Year's day will be good, too.

I am doing better. I actually ate just a little bit of chicken on Sunday afternoon. I'm still being very careful with my diet. I've now progressed to having diarrhea, which always happens about 3 days after a bad pancreatitis attack. It is normally a good sign that things are improving, but still annoying. I don't want to take anything for the diarrhea though because constipation is so often a very serious problem for me. I had the celiac plexus block yesterday. It is a block that is supposed to block the nerves around the pancreas and help with the pain. I'm not really sure if it worked or not, but my pain did seem to be somewhat less today. However, earlier today I felt so incredibly weak. I ended up calling my mom and asking her to come over for a bit. I was so weak that I was afraid to take a shower without having someone in the house. I have NEVER felt that way in my life! I feel much better this

evening. My mom was so worried that shewanted to spend the night over here but I really was much better by the time I sent her home. My hubby is still off work from his knee surgery but he went to the Atlanta area with his sister to visit the other sister. I knew he was getting stir crazy. He had knee surgery on Dec 17th and he has never been off work this long. He also rarely gets to visit his sisters becausehe only gets 10 vacation days a year. I knew the time away would be good for him and my mom and stepdad are only 10 minutes away from me.Anyway, I think maybe I am on the mend. Just gonna mostly chill til tomorrow evening. I'm hoping I'll be up to going to a movie and dinner with hubby and friends tomorrow evening.Hope everyone else is doing well. W

[Guest guest]

Hi ,

I hope you can get your thoughts quieted down and can have some peace. Perhaps the Paxil will help. I get the racing thoughts all the time.

Of course, I am living with a liver disease which is pretty rare and not many drs. know anything at all about it. Its very frustrating and frightening, not to know how much larger my liver will get before I need part of it removed , or transplant list.

I just take one day at a time.

Its hard!!

Take care of yourself,

Blessings,

Lyn /PLD (polycystic liver disease)Travling03@... wrote:

Well I am usually a pretty quiet kid but I need to say that my brain is working overtime lately and I don't like the thoughts. I just started on Paxil Monday so i hope it kicks in soon to help me but I am definitely overthinking and not hanging onto life like I should. I hope that you all are well just sayin I am not doin so good at the moment and wonder why I'm doin all this fightin to stay ahead.

Bless you all,

travis