Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 In a message dated 3/15/02 6:44:53 AM Pacific Standard Time, writes: Now I am wondering what my eventual prognosis will be; Will I get continue to get worse in spite of my quick return to normal enzyme levels? Can I be cured? I don’t mind taking the drugs if that’s the only way to keep this at bay, but just wonder if I will just get worse anyway as this is a chronic condition. She feels that she had arrested it but told me with her head down, “I can’t promise you anything after 20 yearsâ€. She says I have mild disease and I will be fine. What do you all make of this? Thank you so much for your input! It has been so comforting reading all the posts, to know there are others facing this strange illness. in Arlington Heights, Il. , what a strange "diagnosis" you first had! Ecstasy? First, most people who respond to standard therapy have normal life spans. About 20% do not respond to what is now considered conventional therapy. The disease is progressive and, no, it can not be cured. However, the goal of standard therapy is to slow its progress. My doctor told me I had made a splendid recovery from an extreme situation but that I might need a new liver in ten years. Which I figure I'm not likely to get at that age. AIH seems to be an extremely variable disease in terms of severity and progress. I don't think anyone can tell you clearly what the future holds. I've certainly not been able to get much information, iin terms of a prognosis, from my doctor! Incidentally, your starting dose of Prednisone and Imuran wasn't particularly high. So, you've had good results with relatively little medication. You may want to get a standard reference book such as Palmer's Guide to Hepatitis and Liver Disease or a similar book by G. Worman, or both books. They cost well under $20 each. If your local bookstore doesn't have them, Amazon.com will ship them out, or you can get Palmer's book from her website for about $12. Let us know how things go for you. Harper (AIH dx 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Dear Harper, Thank you so much for the uplifting and thoughtful encouragement! I feel so much better about this now! Re: [ ] - future In a message dated 3/15/02 6:44:53 AM Pacific Standard Time, writes: Now I am wondering what my eventual prognosis will be; Will I get continue to get worse in spite of my quick return to normal enzyme levels? Can I be cured? I don’t mind taking the drugs if that’s the only way to keep this at bay, but just wonder if I will just get worse anyway as this is a chronic condition. She feels that she had arrested it but told me with her head down, “I can’t promise you anything after 20 years”. She says I have mild disease and I will be fine. What do you all make of this? Thank you so much for your input! It has been so comforting reading all the posts, to know there are others facing this strange illness. in Arlington Heights, Il. , what a strange " diagnosis " you first had! Ecstasy? First, most people who respond to standard therapy have normal life spans. About 20% do not respond to what is now considered conventional therapy. The disease is progressive and, no, it can not be cured. However, the goal of standard therapy is to slow its progress. My doctor told me I had made a splendid recovery from an extreme situation but that I might need a new liver in ten years. Which I figure I'm not likely to get at that age. AIH seems to be an extremely variable disease in terms of severity and progress. I don't think anyone can tell you clearly what the future holds. I've certainly not been able to get much information, iin terms of a prognosis, from my doctor! Incidentally, your starting dose of Prednisone and Imuran wasn't particularly high. So, you've had good results with relatively little medication. You may want to get a standard reference book such as Palmer's Guide to Hepatitis and Liver Disease or a similar book by G. Worman, or both books. They cost well under $20 each. If your local bookstore doesn't have them, Amazon.com will ship them out, or you can get Palmer's book from her website for about $12. Let us know how things go for you. Harper (AIH dx 5/00) Group Rules 1. Please no religious, political, race or sexual preference discussions. 2. NO slamming of other members, advertising or vulgarity. Thank you! To UNsubscribe send a blank e-mail to -unsubscribeegroups Your use of is subject to the Terms of Service. Quote Link to comment Share on other sites More sharing options...
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