Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 My name is June. I will be taking my first doses of medication (pills and injection) Friday afternoon. I already have been living with severe flu like symptoms for the past 3 or 4 months. I can no longer work. I have filed for disability & SSI but I'm told it can take 5 months to get help. I have fibromyalgia which is quite bad right now. I don't know what to expect from the Peg and Ribovirin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 I really appreciate your help...not many people are up this hour of the night...actually I should probably be going to sleep...I have to take naps during the day because I am so tired...then I end up awake half of the night! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 June..... I can't help you much on the Peg procedure. The people of this group are all very kind but most of us suffer from a liver disease that is autoimmune either autoimmune hepatitis or primary biliary cirrhosis. There may be some of us here with fibro. Cryoglobulinemia sounds nasty... I know there is a support group for that at groups. I happen to have quite a few friends with Hep. C who have been or are on peg and ribivarin and they all seem to get along fine. Those that I know who have been able to go into remission are back to thier lively peppy selves. The treatment now is much better than say even 4 yrs. ago. I guess each reacts to the treatment a little differently but from what I've been told it is not all that bad and the results are more than worth it. Medicine gets better and better each day. Hep C is probably the most researched (next to HIV-AIDS) disease in the world today. Techniques keep getting refined as more and more is known. I know you are probably frightened.....we all are of the unknown but it's been my experience that nothing is as bad as we perceive it will be. In fact worrying about future events is always worse than the actual event. You have no control over outcome. Do you know the serenity prayer? Cheer up you are going to be just fine. Every thing will turn out to be just the way it supposed to be. God is a close buddy of mine and he has assured me this is true. Live in the moment. my love and prayers Jerry p.s. sorry it took so long to respond but I'm still a one fingered typist and sometimes i can't make up my mind which finger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Not many ...Harper lives in Calif. so sometimes I log on to see if she has posted other times I'm just researching. I really appreciate your help...not many people are up this hour of the night...actually I should probably be going to sleep...I have to take naps during the day because I am so tired...then I end up awake half of the night! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 June.....where do you live? Don't be too proud to seek welfare.....that's what its there for . Being on SSI has enabled me to get medicaid from human services and what a blessing.....all my medical bills are paid including drugs. Go to your local human services board ..you may also qualify for food stamps. Now and after if you get SSI or SSDI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hi June! There's a website called: www.hepatitisneighborhood.com You can click that link and it will take you right there. You can find much information on Hepatitis C there and it's a great website. There are chat rooms and if you go into "Encouragement Chat" everyone in that room has either taken or is taking the Peg/Intron combo. You'll get tons of information and a great amount of support there. If you don't want a chat room you can also post a message. Good luck with your treatment. Terri ========Original Message======== Subj: Re: [ ] Re: need a friend Date: 11/15/2002 12:35:14 AM Central Standard Time From: rnmom2424@... Reply-to: Sent from the Internet (Details) My name is June. I will be taking my first doses of medication (pills and injection) Friday afternoon. I already have been living with severe flu like symptoms for the past 3 or 4 months. I can no longer work. I have filed for disability & SSI but I'm told it can take 5 months to get help. I have fibromyalgia which is quite bad right now. I don't know what to expect from the Peg and Ribovirin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 June, I am also fairly new to the group (2 wks), My mom has a different disease than you, however, my best friend has fibromyalgia and CFIDS. Has your doc suggested Neurontin? I know even with all her multiple medical issues, just adding that one med worked wonders in just a couple weeks. She now can work a regular day again and has enough energy to go out after on occasion. So far the only side effects she noted were feeling slightly sluggish the first week, and some mild weight gain. She did start at the lowest dose (300mg) once daily, and is maintaining at 300 BID. Hope this helps, I know it helped her. :-) Kat Re: [ ] Re: need a friend My name is June. I will be taking my first doses of medication (pills and injection) Friday afternoon. I already have been living with severe flu like symptoms for the past 3 or 4 months. I can no longer work. I have filed for disability & SSI but I'm told it can take 5 months to get help. I have fibromyalgia which is quite bad right now. I don't know what to expect from the Peg and Ribovirin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Did the neurontin help eleviate some of her pain? Quote Link to comment Share on other sites More sharing options...
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