Fw: URGENT - Need Your Help! (Please post)

[Guest guest]

Dan is an awesome fellow. He lost his wife after a long battle with

silicone disease. He continues to fight for us women, and to help get the

word out about the dangers of silicone. Write to him below

UBCDan@...)if you want to help.

Patty

----- Original Message -----

From: <UBCDan@...>

Sent: Tuesday, January 23, 2001 8:03 AM

Subject: URGENT - Need Your Help! (Please post)

> For several years now I have been an active member of many SBI support

> groups, and a regular poster on the AOL Plastic Surgery Message Boards.

> Through Ilena and Myrl I have read weekly posts from someone needing a

> referral in their area. On AOL I have read many messages for lists of

Good

> or Bad Surgeons. Well now its time to start our own reference database!

>

> Each of us has a wealth of knowledge, research and referral web sites, but

I

> have yet to see one inclusive reference site for sympathetic/understanding

> Doc's! This need is real and is also urgent! Please help me to get it

> started and put it to together ASAP. I want to begin posting this

valuable

> reference on AOL immediately.

>

> Here is my Plan:

>

> 1. We need a web page or pages for this reference site. (Many of you run

a

> website or know someone who does. WE need a volunteer. Nothing fancy,

just

> headings and text. Specialty/Dr. Name/City/phone. If this is too

expensive,

> I'll try to create one on one of the free sites.....we just need a web

> address, I can't post names directly on AOL.)

>

> 2. We need the names by specialty and location. (Many of you have a

rheumy,

> neurologist, GP, PS, or other care-provider who is silicone educated. If

you

> don't have an address or phone we can add it later. eg. Dr. A. Brawer,

> Rheumy, Long Branch NJ is sufficient to start. Also, don't forget our

> research scientists, Blais, Shanklin, Smalley, Lykissa, etc. Some of you

> have direct contact with these people and can get good references from

them.

> Please do it now.)

>

> 3. We need a volunteer chairperson/focal point/secretary/list compiler to

> send our info to. Some of you spend many hours a day online. If this is

too

> much for anyone, then I will do it. It has to be done!

>

> 4. We need more input. Please forward this message to anyone you may

know

> (who can help) that I have left off my limited mailing list.

>

> Lyndsy, You have a few understanding Doc's in the northwest right?

>

> Sweet, Dr. Shaw and some of his cronies at UCLA know en-bloc and tram

(like

> Kolb, Feng, etc). Also you have 2 good rheumy's, right?

>

> Lynn, how about Lykissa, any referrals from him? Is Baylor a good hosp

for

> referral?

>

> KKJ, your input please. Shanklin, et al. (Are Tulane or U. TN good hosps?)

>

> Barb 1.2, You must know some good Doc's in Fla, right?

>

> Micheline, Blais must know of a good list of Docs, both US and Canada,

right?

>

> Ed, I am so sorry for you loss. We need to do this so PJ's death was not

in

> vain.

>

> Weekly requests like the following demand our attention and action. Today

is

> Monday. Is Friday too soon to post a web address on AOL?

>

> " Subj: I'm frustrated and need your help

> Date: 1/22/2001 8:37:47 PM Pacific Standard Time

> From: helenmw@... (Helen Wattier)

>

> Hi ilena, and group,

> I am so upset today, I feel like quitting!! As most of you

> know, I have had silicone and had 15 surgeries the past four

> years and do not heal. I am in constant pain from, I think

> my tram, continue to not heal so still have some open

> areas.The last ps I saw, did surgery for really nothing and

> then told me; sometimes with people like you we put them in

> body casts. I think he was speaking of my severe itching. I

> refused to go back to him needless to say. Then called the

> first ps I first saw, who is in the same office. He said; " I

> can't help you, go to Iowa City. " The next time I called he

> said " I do not do reconstruction. Needless to say he never

> made the referral and when my doc wrote to my ins. co. she

> was told I would have to go through a case worker, she could

> not refer me. The ps they wanted me to go to, after seeing

> my file said he did not do reconstruction except implants.

> He and his office was very kind. He then referred me to the

> last ps in the city. And he was a jerk!!!! He came in had

> not received my files, and said you have a lot wrong with

> you. I explained the healing, the hernia and the constant

> pain. He only said put cream on the area and come back in 3

> weeks.

> I feel so let down by the medical profession. I have done

> all they said to do, never been mean and I was shit on!

> If I am still here tomorrow I will call this case worker and

> find out what their problem is. And to top this off I called

> the nurse who is with my favorite ps who left the practice

> and cannot work in Des Moines tonight, and she said, " And

> the Helen saga goes on. " I know she cares it just was not

> the day for that remark.

> What do I do? Does anyone know who can help me?

> Thanks,

> Helen

>

> Something I failed to mention is; we are close to

> bankruptcy and have no money to travel.

> Helen "

>

> Thanks for all of your immediate attention.

>

> Dan Buck

> Redondo Beach, CA

> 310-798-1963

>

>