Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Hello, I know just what you mean. I have had a drink from time to time. I don't think that it helps any. I was soooooo depressed last year due to some personal problems I had at the time. I went on a binge of drinking. I did not care at that time. I can only hope that it has not caused any more damage than there already is. It can't hurt to just stay with out the alcohol. I have had one or two occasioally, tho. That would be it. once in a while. I am no alcoholic by any means. But sometimes, may want one margerita while eating mexican or something. Now, I have no desire to have any at all. I want to just clean up my diet totally!! I feel like he_ _!!! LOL O well, that's all I have to say about that. Have a good day and be as well as you can Love, Carla AIH 2001kearneyk4 <kearneyk4@...> wrote: Hello all!I was diagnosed with auto-immune hepatitis two years ago and have been feeling fine ever since they realized what I had and put me on the correct medications. I was wondering what are some things to avoid while having this disease. I have read many websites and have asked quite a few doctors about drinking alcohol with this disease and I always get conflicting answers. I know that it's not the best idea to drink, and I would never go overboard, but I was wondering if anyone out there with auto-immune hepatitis has drank before. I was just wondering what would happen if I were to actually have a few drinks. Anybody's stories will really help me out. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Well , this is my own experience. After I was dx (9/02), I knew I wasn't supposed to drink alcohol. I hadn't had any in awhile either due to other medical problems. Well, I tried an O'Doul's beer because I thought it was alcohol free and wanted the taste of a beer. It didn't go down very well, and a couple of hours later I was visiting the porcelain god. However, I do have some cirrhosis already and that may have made the difference. nne Chandler [ ] What to avoid > Hello all! > > I was diagnosed with auto-immune hepatitis two years ago and have > been feeling fine ever since they realized what I had and put me on > the correct medications. I was wondering what are some things to > avoid while having this disease. I have read many websites and have > asked quite a few doctors about drinking alcohol with this disease > and I always get conflicting answers. I know that it's not the best > idea to drink, and I would never go overboard, but I was wondering > if anyone out there with auto-immune hepatitis has drank before. I > was just wondering what would happen if I were to actually have a > few drinks. Anybody's stories will really help me out. Thank you! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Carla...I just want to point out that alcohol is a depressant itself so using it when one is depressed is to multiply the condition. If you have problems and drink the your problems have puppies. love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 , Carla, and all, I agree with Carole. My GI said I could have an occasional drink, and I have had an occasional drink with no problem. MOST of the time however, I get buzzed immediately (like after two or three sips) and usually get a headache within the hour. It is sort of like having the hangover start before you are done drinking. From my experience it isn't worth it. I have enough cause for bad days already without adding one that I can control!! Have a great week end Peole!! Marty [ ] Re: What to avoid , Carla, and everyone else!I have been told most often - moderation, moderation, moderation. That it is fine to have a margarita with my mexican food - provided I don't eat mexican every day! I used to have an occasional microbrew, or margarita myself. Have only once since dx had a 'few' at a big party with friends, and let me tell you, I paid for it big time. Imagine, you don't bounce back from a hang over the way you did predisease. Now that the liver seems to be going south on a permanent trip, I don't drink at all. Doc said my once ever other month beer was still fine, but now if I have it, I am in a condition physically after just like a full blown hang over. Not too mention I get really buzzing off off that one beer now, and I have never liked the feeling of not being in control. So no more for me I am afraid. But back to my point. Thanks to my docs words, I try to follow the moderation suggestion , in just about every thing. What I eat, drink, physical activity, etc. And for the most part I do feel a difference. So just always have that little birdey on your shoulder to remind you - moderation.Love,CArole K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2009 Report Share Posted December 15, 2009 Dr. Harrington told me not to jump out of airplanes(!) and not to ride jumping horses. Other than that, I remember being told my spine was really stronger than the average spine, with the rod acting as support. My mother always worried there would be an accident and the rod would break and " spear " something. Debra cosby@... Houston, Texas rod and fusion 1967 Deronda Harmon wrote: > > > Jeanne, > Your right I wonder what most of us were told what we could and > couldn't do after surgery. > I recall the doctor telling me to not ride motorcycles and it would be > best to stay slim. He also said if I hurt from doing something then > don't do it. I wonder what the restrictions adolecents have now > coming out of surgery. > > Deronda > > > > > From: Slinker <slinkers5@...> > Subject: Re: [ ] Re: New Harrington Rod Outcome Study > > Date: Monday, December 14, 2009, 7:51 PM > > > */ C.,/* > *//* > */I have to agree with you that it is impossible to believe > that thirty plus years ago they didn't know that the spine had > it's three dimensional curves for a reason. As a matter of fact, > my scoliosis surgeon back in 1977 mentioned something about > keeping some lordosis in my back to my mom right after my > surgery. He apparently had some idea about the need for > lordosis. Also, the fact that we were not warned to be careful > (at least I wasn't) also bothers me tremendously as who knows how > much trouble might be avoided if we knew we HAD to be extra > careful with our spines for the rest of our lives. I know there > is no going back in time, but I'm not willing to give all of these > surgeons a pass on not knowing that what they were doing to us > might have consequences down the road./* > *//* > */Jeanne/* > *//* > *//* > > * [ ] Re: New Harrington Rod Outcome Study > > > , > I understand where your coming from but sorry I have to > disagree. Thirty plus years ago, we still had engineers, many > bright enough to know that the harrington rod would cause > issues in the future, namely flatback. The problem is so much > wider than that. The solution of scoli for some was the > harrington rod, many surgeons jumped on that band wagon for a > solution. I can understand not having the technology for a > better solution but not seeking or understanding the > engineering blunder is just too much to buy. All those great > minds not knowing there were " 3 " planes to keep in balance is > just too much to buy in my mind. To me, it is like giving > " electric shock " treatments for every ailment coming down the > line for a while because it was the solution of the time. > Ludicrous... But hey, it is my opinion and mine alone whether > we all agree or disagree on this point is mute but to > deliberately tell a patient that they can not bear children > for 20 plus years is just plain wrong. He either did not care, > was ignorant or just plain stuck in his ways. Either way it > caused me many years of emotional pain trying to follow my > doctor's instruction, all because he choose to say that and > continue to back it up for years to come. Wrong, just wrong. I > respect your opinion but I do not agree. > thanks for the vote of sympathy. I thought i was over it > since I did finally have a child at 40 but no, I am far from > healed. > C > > > > > > > > > > > Hmmmmm..... > > > > > > > > > > Interesting " study " ....but I actually think it is a > self serving document and I see many " red flags " on the field > here. I realize we are only reading the abstract.... but FWIW, > its somewhat surprising to me that the great Twin Cities Spine > Center that trained most of our original surgeons and has had > nary a patient ever check in on this board is now finding > excellent comparable outcomes with those that never had a > fusion. I personally believe they have a vested interest in > finding that. After all....they want to continue to do this > surgery. > > > > > > > > > > If, for instance, someone NOT part of the scoliosis > " industry " really wanted to know how this has turned > out...they would have had zero trouble finding ONLY patients > such as ourselves who are on order of 30 years post-placement. > As the fine surgeons that these " researchers " are, they would > already know that which we, lay patients that have no medical > training already know....most problems do not crop up until > much later on...until there is virtually zero compensation > left in the adjacent joints, knees and hips. And then " it " > happens in a hurry. > > > > > > > > > > Instead...this study surveyed and came up with a MEAN > of 19 years. That means they were even including patients with > far less than 19 years of wear and tear on their backs. They > also included those fused to L2 and L3....talk about skewing > the results on the " front side " ! Pardon my french, but > bullshit to that. > > > > > > > > > > Here is an outline of a legitimate study: Find the > first 500 or 1,000 HR patients fused to L4 and match them with > an age/gender correlated control group. Make sure you survey > an adequate numbers of patients from a variety of > institutes/surgeons and insure that prior to filling out the > questionnaire they have been evaluated and are in synch with > their control in terms of pain perception. > > > > > > > > > > Comparing someone elses " bad back " pain with mine (pre > revision) is like comparing my husbands " man cold " with lung > cancer. He would say he felt as bad as they did....but if you > knew on the front side that his perception of " ill " was > predicated on barely a sick day in his life...well you would > not throw your hands up and say we have to include all > respondents because pain perception is too difficult to quantify. > > > > > > > > > > Alternatively, they could just survey literally > thousands of us and find out how many patients fused to L4 or > greater, at least 25 years post op, are either receiving > disability or are either under- or un- employed because of > their back, or are on daily pain medications. I think that > would be a clearer picture of their post-HR lives than using > their " 8 daily living " metrics. > > > > > > > > > > I really believe this study is an attempt to put the > proverbial lipstick on the pig....there just isnt enough > evidence that they were trying to survey anyone other than > those with average timeframes and average amounts of fusion in > the hopes that it would skew the results to the norm....which > it did. Statistics can do that easily enough. > > > > > > > > > > Alternatively, we have to believe that we all just got > to be incredibly unlucky....and but for our personal bad luck, > or low pain threshold(?) , are just as bad off as great Aunt > Ida. Tell me another one. Its a fairy tale, but a tale that > they want to keep on telling. Cat's watching the hen house, > dont you think? > > > > > > > > > > Thats my $.02....and my guess is that the I am not alone. > > > > > > > > > > Rant out, Cam > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2009 Report Share Posted December 15, 2009 My only restriction was no babies, no doing anything that put my head lower than my body so no cartwheels for me. C > > > > > > > > > > > > Hmmmmm..... > > > > > > > > > > > > Interesting " study " ....but I actually think it is a > > self serving document and I see many " red flags " on the field > > here. I realize we are only reading the abstract.... but FWIW, > > its somewhat surprising to me that the great Twin Cities Spine > > Center that trained most of our original surgeons and has had > > nary a patient ever check in on this board is now finding > > excellent comparable outcomes with those that never had a > > fusion. I personally believe they have a vested interest in > > finding that. After all....they want to continue to do this > > surgery. > > > > > > > > > > > > If, for instance, someone NOT part of the scoliosis > > " industry " really wanted to know how this has turned > > out...they would have had zero trouble finding ONLY patients > > such as ourselves who are on order of 30 years post-placement. > > As the fine surgeons that these " researchers " are, they would > > already know that which we, lay patients that have no medical > > training already know....most problems do not crop up until > > much later on...until there is virtually zero compensation > > left in the adjacent joints, knees and hips. And then " it " > > happens in a hurry. > > > > > > > > > > > > Instead...this study surveyed and came up with a MEAN > > of 19 years. That means they were even including patients with > > far less than 19 years of wear and tear on their backs. They > > also included those fused to L2 and L3....talk about skewing > > the results on the " front side " ! Pardon my french, but > > bullshit to that. > > > > > > > > > > > > Here is an outline of a legitimate study: Find the > > first 500 or 1,000 HR patients fused to L4 and match them with > > an age/gender correlated control group. Make sure you survey > > an adequate numbers of patients from a variety of > > institutes/surgeons and insure that prior to filling out the > > questionnaire they have been evaluated and are in synch with > > their control in terms of pain perception. > > > > > > > > > > > > Comparing someone elses " bad back " pain with mine (pre > > revision) is like comparing my husbands " man cold " with lung > > cancer. He would say he felt as bad as they did....but if you > > knew on the front side that his perception of " ill " was > > predicated on barely a sick day in his life...well you would > > not throw your hands up and say we have to include all > > respondents because pain perception is too difficult to quantify. > > > > > > > > > > > > Alternatively, they could just survey literally > > thousands of us and find out how many patients fused to L4 or > > greater, at least 25 years post op, are either receiving > > disability or are either under- or un- employed because of > > their back, or are on daily pain medications. I think that > > would be a clearer picture of their post-HR lives than using > > their " 8 daily living " metrics. > > > > > > > > > > > > I really believe this study is an attempt to put the > > proverbial lipstick on the pig....there just isnt enough > > evidence that they were trying to survey anyone other than > > those with average timeframes and average amounts of fusion in > > the hopes that it would skew the results to the norm....which > > it did. Statistics can do that easily enough. > > > > > > > > > > > > Alternatively, we have to believe that we all just got > > to be incredibly unlucky....and but for our personal bad luck, > > or low pain threshold(?) , are just as bad off as great Aunt > > Ida. Tell me another one. Its a fairy tale, but a tale that > > they want to keep on telling. Cat's watching the hen house, > > dont you think? > > > > > > > > > > > > Thats my $.02....and my guess is that the I am not alone. > > > > > > > > > > > > Rant out, Cam > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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