Guest guest Posted April 18, 2003 Report Share Posted April 18, 2003 Hi Just wading through the posts, so I'm a little late with this.I was diagnosed with AIH in 2000, although I probably had it before that.I was not put on meds straightaway but just monitored until I had a bad flare last summer. I don't know what my levels were, but I was jaundiced.I was started on 30mg pred, and 100mg Imuran (azathioprine) My numbers started coming down straightaway, and one week later pred was reduced to 25mg.After 2 weeks down to 15mg,after 4 weeks down to 7.5mg,after 9 weeks 5mg,after 10 weeks 2.5mg, and stopped completely after 13 weeks.The reductions were done in the light of frequent blood tests.My doctors - a major liver transplant centre - are keen to get people off pred if possible; When I got off the pred I asked " when will I be reducing the Imuran? " - that had stayed unchanged at 100mg - and was told " never, and it might even go up! " Luckily I've been ok with it.I'm still on monthly blood tests,and it surprises me when people on it say they are only tested very infrequently, because I understood frequent blood tests - both lfts and full blood count- for people on Imuran were important because of the known possibility of it causing bone marrow depression.My doctors say on this dose of Imuran I may not get another flare,but if I do I will go back on the pred until it is controlled. Hope you have a very nice Easter Love Pam - Leeds, England Quote Link to comment Share on other sites More sharing options...
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