Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 , Yes, they are clearly 2 different things. Drug induced hepatitis is not the same as drug induced AIH. I'm sure Jerry has info on both somewhere in his big bag of tricks and will respond after reading your post. I too was under the impression some people here thought that after stopping the offending drug the AIH would go away. I wish it were that simple. Thanks for stating it so eloquently. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 Hi your theory about the 'trigger effect' is basically the same as common thought on the subject at the moment. whatever the trigger aih progressing as it would..etc etc though of course drug use does its own damage and so overall liver health is worse. unfortunately,with long term drug use taking the drug away does not mean the damage will repair itself,sometimes the damage is just too great. the liver pancreas and kidneys are all too often majorly damaged by certain drugs,though usually the amounts for this to happen are excessive( drug abuse) blessings amber >From: " " <rthornton@...> >Reply- > >Subject: [ ] " drug induced " AIH >Date: Wed, 13 Nov 2002 20:28:13 -0000 > >I am not sure about all the drug induced AIH, but these are my >thoughts...for whatever it is worth. > >A person can have drug induced hepatitis. This IS NOT AIH and will >resolve as soon as the offending drug is withdrawn, in time. > >The triggers for AIH are not well understood or known. There are >some suspects (mostly what I have seen are viral theories), and I'm >sure certain drugs may be on the list of suspects. If a drug does >trigger AIH in a person, then the AIH will behave the same as if >anything else triggered it. Once that switch is flipped it is a done >deal...you have it. Removing the offending drug does not cause the >hepatitis to resolve in this case because now the problem is the >autoimmune reaction that has been triggered, not really the drug. > >So, to me there are two different possibilities: > >1. Drug induced hepatitis, remove the drug and the liver gets better. >2. AIH that was triggered by a drug. This may be possible, but the >AIH behaves the same no matter what the trigger...it does no resolve >on its own and you have joined our AIH club! > >It could be that number 1. is misdiagnosed as number 2., I imagine. >That may be the real question for some people. > >Any other thoughts? > > > Amber Leonard _________________________________________________________________ The new MSN 8: smart spam protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 Yes, I agree. I was under the impression that some people think that if the AIH was triggered by a drug that once the drug was stopped so would the AIH. I think this is possible in the case of drug induced hepatitis, but NOT drug induced Autoimmune Hepatitis. Certainly long term drug use takes its toll, but I would expect a purely drug induced hepatitis would be caught before that. I guess it depends on the frequency of blood tests, etc. I didn't mean to imply the trigger theory was my own! I was just making a distinction between hepatitis caused by a drug and autoimmune hepatitis triggered by a drug...as I think they are really two different things. > > Hi > your theory about the 'trigger effect' is basically the same as common > thought on the subject at the moment. > whatever the trigger aih progressing as it would..etc etc > though of course drug use does its own damage and so overall liver health is > worse. > unfortunately,with long term drug use taking the drug away does not mean the > damage will repair itself,sometimes the damage is just too great. > the liver pancreas and kidneys are all too often majorly damaged by certain > drugs,though usually the amounts for this to happen are excessive( drug > abuse) > blessings > amber > > >From: " " <rthornton@u...> > >Reply- @y... > > @y... > >Subject: [ ] " drug induced " AIH > >Date: Wed, 13 Nov 2002 20:28:13 -0000 > > > >I am not sure about all the drug induced AIH, but these are my > >thoughts...for whatever it is worth. > > > >A person can have drug induced hepatitis. This IS NOT AIH and will > >resolve as soon as the offending drug is withdrawn, in time. > > > >The triggers for AIH are not well understood or known. There are > >some suspects (mostly what I have seen are viral theories), and I'm > >sure certain drugs may be on the list of suspects. If a drug does > >trigger AIH in a person, then the AIH will behave the same as if > >anything else triggered it. Once that switch is flipped it is a done > >deal...you have it. Removing the offending drug does not cause the > >hepatitis to resolve in this case because now the problem is the > >autoimmune reaction that has been triggered, not really the drug. > > > >So, to me there are two different possibilities: > > > >1. Drug induced hepatitis, remove the drug and the liver gets better. > >2. AIH that was triggered by a drug. This may be possible, but the > >AIH behaves the same no matter what the trigger...it does no resolve > >on its own and you have joined our AIH club! > > > >It could be that number 1. is misdiagnosed as number 2., I imagine. > >That may be the real question for some people. > > > >Any other thoughts? > > > > > > > > > Amber Leonard > > _________________________________________________________________ > The new MSN 8: smart spam protection and 2 months FREE* > http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 ...I'm sorry I posted on this before I read your post...... I agree wholeheartedly with your evaluation as you can see by my ramblings. Thanks for much better explanation.. love jerry I am not sure about all the drug induced AIH, but these are my thoughts...for whatever it is worth. A person can have drug induced hepatitis. This IS NOT AIH and will resolve as soon as the offending drug is withdrawn, in time. The triggers for AIH are not well understood or known. There are some suspects (mostly what I have seen are viral theories), and I'm sure certain drugs may be on the list of suspects. If a drug does trigger AIH in a person, then the AIH will behave the same as if anything else triggered it. Once that switch is flipped it is a done deal...you have it. Removing the offending drug does not cause the hepatitis to resolve in this case because now the problem is the autoimmune reaction that has been triggered, not really the drug. So, to me there are two different possibilities: 1. Drug induced hepatitis, remove the drug and the liver gets better. 2. AIH that was triggered by a drug. This may be possible, but the AIH behaves the same no matter what the trigger...it does no resolve on its own and you have joined our AIH club! It could be that number 1. is misdiagnosed as number 2., I imagine. That may be the real question for some people. Any other thoughts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 I just tell people hepatitis C and let them react as they will. HCV has a stigma of being the IV drug user's disease and I've always felt that needs to be changed. I don't care how they react. I understand the other side of the coin though. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Re the term hepatitis: when I found out I had AIH and told my sometime boyfriend, his first questions were " Does this affect me? " " Is this something I should be worried about? " Never asked anything about me. Needless to say, he is no longer my boyfriend. KayK TX, AIH/PBC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 You're exactly correct -- developed rather than contracted is the right way to say it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 I NEVER tell anyone that I have AIH. The general public is not receptive to the word Hepatitis, because they don't know that it simply means 'inflamed liver', right away they assume that you are contagious, or even a drug user. Most of the time I just say that I have 4 auto-immune diseases, two of which affect the liver. Patsy El Mirage, AZ DX 2005 Stage 1 PBC AIH/SLE/RA/COPD Just a woman of letters.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 That is the truth! I have learned to say I have a liver disease and if they ask further, I will explain, but often they just don't " get " it. Debby [ ] Re: drug induced AIH I NEVER tell anyone that I have AIH. The general public is not receptive to the word Hepatitis, because they don't know that it simply means 'inflamed liver', right away they assume that you are contagious, or even a drug user. Most of the time I just say that I have 4 auto-immune diseases, two of which affect the liver. Patsy El Mirage, AZ DX 2005 Stage 1 PBC AIH/SLE/RA/COPD Just a woman of letters.... Quote Link to comment Share on other sites More sharing options...
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