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Maybe I chose the wrong words By saying silly Forgive me for that But It is a little out of the way Still this does not concern me

-- Re: new site> > > > I just want to reiterate that I have no complaint about the 'othersite'.> > I do not want anybody to get the wrong idea, as I believe anythingthat can> assimilate the > poorly laid out information on this site and make it into an easy to use> resource deserves a > medal.> > And a chat room is one of the best ways to build online friendships and> communities.> > So well done to those that have set this new site up, long may it be> recommended from > this site.> > The problem I have is the request for donations. There is no talk of> starting a foundation > to help those in the US with accommodation and treatment (ifshortcomings in> insurance), > the site just asks for donations to help with the upkeep and runningof the> site.> Running a web site like this costs pennies/cents per month, and then you> have users > stating that if they had to pay $10 every few months it would beworth it -> you wonder > then why people start enquiring whos is going to profit from it.> This web site should not ask for donations unless it has some clearplan to> where > donations will go or to what they will be used.> A web site set up by those who care should not have an opening lineasking> for donations.> > This is just my basic view, I am not trying to upset anybody as Ithink you> are ALL lovely > people.> > >

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We actually have gotten a donation from one company already! I

don’t name names due to the privacy rights!

C Warren

Co-Founder

www.achalasia.us

From: achalasia

[mailto:achalasia ] On Behalf Of Bartolino

Sent: Friday, July 14, 2006 7:21 PM

achalasia

Subject: Re: Re: new site

Maybe I

chose the wrong words By saying silly Forgive me for that

But It is a little out of the way Still

this does not concern me

-------Original

Message-------

From: rnbriely@...

Date: 07/14/06 17:37:21

achalasia

Subject: Re:

new site

,

Just a thought, depending on where you want to go with the website,

fundraising, and organization as a whole, doctors specializing in

Achalasia might not be bad people to seek donations from. While I

realize the list of doctors on the site is for OUR benefit, they are

essentially getting " free advertising " . Besides, the website is

also

for the benefit of THEIR patients which I would hope they would see as

a good thing. Raising public awareness also helps when it comes to

getting research funded.

Cheers,

n

>

> and All,

>

>

>

> For those that are curious, the site does not cost pennies/cents per

> month!! There is a monthly fee of $10.00 for web hosting (granting

that I

> don't upgrade the site, which is 30.00, 40.00, or 50.00 per month).

There

> is also the purchase of the domain name of the site, which can cost

around

> $150.00 or more! I am currently " renting " the name, and will

decide

if I

> want to buy it at a later date. Depending upon the amount in the

" kitty " .

> I am keeping the costs to a minimum at this time. I am currently

revising

> the site. If anyone would like more information on web hosting or

domain

> purchasing. I would be more then happy to share.

>

> As always thanks for your suggestions.

>

>

>

> C Warren

>

> Co-Founder

>

> www.achalasia.us

>

> From: achalasia

[mailto:achalasia ]

On Behalf

> Of jason3142

> Sent: Friday, July 14, 2006 4:06 PM

> achalasia

& ! gt; Subj ect: Re: new site

>

>

>

> I just want to reiterate that I have no complaint about the 'other

site'.

>

> I do not want anybody to get the wrong idea, as I believe anything

that can

> assimilate the

> poorly laid out information on this site and make it into an easy to use

> resource deserves a

> medal.

>

> And a chat room is one of the best ways to build online friendships and

> communities.

>

> So well done to those that have set this new site up, long may it be

> recommended from

> this site.

>

> The problem I have is the request for donations. There is no talk of

> starting a foundation

> to help those in the US with accommodation and treatment (if

shortcomings in

> insurance),

> the site just asks for donations to help with the upkeep and running

of the

> site.

> Running a web site like this costs pennies/cents per month, and then you

> have users

> stating that if they had to pay $10 every few months it would be

worth it -

> you wonder

> then why people start enquiring whos is going to profit from it.

> This web site should not ask for donations unless it has some clear

plan to

> where

> donations will go or to what they will be used.

> A web site set up by those who care should not have an opening line

asking

> for donations.

>

> This is just my basic view, I am not trying to upset anybody as I

think you

> are ALL lovely

> people.

>

>

>

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Share on other sites

Guest guest

Fantastic news! I haven't had time to read all the recent posts due

to my bar exam studying but just wanted to reiterate that I think

the new site is great and am glad you already have a corporate donor.

Vicki

> >

> > and All,

> >

> >

> >

> > For those that are curious, the site does not cost pennies/cents

per

> > month!! There is a monthly fee of $10.00 for web hosting

(granting

> that I

> > don't upgrade the site, which is 30.00, 40.00, or 50.00 per

month).

> There

> > is also the purchase of the domain name of the site, which can

cost

> around

> > $150.00 or more! I am currently " renting " the name, and will

decide

> if I

> > want to buy it at a later date. Depending upon the amount in the

> " kitty " .

> > I am keeping the costs to a minimum at this time. I am currently

> revising

> > the site. If anyone would like more information on web hosting or

> domain

> > purchasing. I would be more then happy to share.

> >

> > As always thanks for your suggestions.

> >

> >

> >

> > C Warren

> >

> > Co-Founder

> >

> > www.achalasia.us

> >

> > From: achalasia <mailto:achalasia%

40>

> [mailto:achalasia <mailto:achalasia%

40> ]

> On Behalf

> > Of jason3142

> > Sent: Friday, July 14, 2006 4:06 PM

> > achalasia <mailto:achalasia%

40>

> & ! gt; Subj ect: Re: new site

> >

> >

> >

> > I just want to reiterate that I have no complaint about

the 'other

> site'.

> >

> > I do not want anybody to get the wrong idea, as I believe

anything

> that can

> > assimilate the

> > poorly laid out information on this site and make it into an

easy to use

> > resource deserves a

> > medal.

> >

> > And a chat room is one of the best ways to build online

friendships and

> > communities.

> >

> > So well done to those that have set this new site up, long may

it be

> > recommended from

> > this site.

> >

> > The problem I have is the request for donations. There is no

talk of

> > starting a foundation

> > to help those in the US with accommodation and treatment (if

> shortcomings in

> > insurance),

> > the site just asks for donations to help with the upkeep and

running

> of the

> > site.

> > Running a web site like this costs pennies/cents per month, and

then you

> > have users

> > stating that if they had to pay $10 every few months it would be

> worth it -

> > you wonder

> > then why people start enquiring whos is going to profit from it.

> > This web site should not ask for donations unless it has some

clear

> plan to

> > where

> > donations will go or to what they will be used.

> > A web site set up by those who care should not have an opening

line

> asking

> > for donations.

> >

> > This is just my basic view, I am not trying to upset anybody as I

> think you

> > are ALL lovely

> > people.

> >

> >

> >

>

>

>

>

>

>

> <http://www.incredimail.com/index.asp?id=54475> Add FUN to your

email -

> CLICK HERE!

>

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Share on other sites

Guest guest

Vicki,

OH MY the Bar Exam, Yikes, your braver then me!!!! Good luck on

the exam, when is it?

C Warren

Co-Founder

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of Vicki

Sent: Friday, July 14, 2006 8:26 PM

achalasia

Subject: Re: new site

Fantastic news! I haven't had time to read all

the recent posts due

to my bar exam studying but just wanted to reiterate that I think

the new site is great and am glad you already have a corporate donor.

Vicki

> >

> > and All,

> >

> >

> >

> > For those that are curious, the site does not cost pennies/cents

per

> > month!! There is a monthly fee of $10.00 for web hosting

(granting

> that I

> > don't upgrade the site, which is 30.00, 40.00, or 50.00 per

month).

> There

> > is also the purchase of the domain name of the site, which can

cost

> around

> > $150.00 or more! I am currently " renting " the name, and

will

decide

> if I

> > want to buy it at a later date. Depending upon the amount in the

> " kitty " .

> > I am keeping the costs to a minimum at this time. I am currently

> revising

> > the site. If anyone would like more information on web hosting or

> domain

> > purchasing. I would be more then happy to share.

> >

> > As always thanks for your suggestions.

> >

> >

> >

> > C Warren

> >

> > Co-Founder

> >

> > www.achalasia.us

> >

> > From: achalasia

<mailto:achalasia%

40>

> [mailto:achalasia

<mailto:achalasia%

40> ]

> On Behalf

> > Of jason3142

> > Sent: Friday, July 14, 2006 4:06 PM

> > achalasia

<mailto:achalasia%

40>

> & ! gt; Subj ect: Re: new site

> >

> >

> >

> > I just want to reiterate that I have no complaint about

the 'other

> site'.

> >

> > I do not want anybody to get the wrong idea, as I believe

anything

> that can

> > assimilate the

> > poorly laid out information on this site and make it into an

easy to use

> > resource deserves a

> > medal.

> >

> > And a chat room is one of the best ways to build online

friendships and

> > communities.

> >

> > So well done to those that have set this new site up, long may

it be

> > recommended from

> > this site.

> >

> > The problem I have is the request for donations. There is no

talk of

> > starting a foundation

> > to help those in the US with accommodation and treatment (if

> shortcomings in

> > insurance),

> > the site just asks for donations to help with the upkeep and

running

> of the

> > site.

> > Running a web site like this costs pennies/cents per month, and

then you

> > have users

> > stating that if they had to pay $10 every few months it would be

> worth it -

> > you wonder

> > then why people start enquiring whos is going to profit from it.

> > This web site should not ask for donations unless it has some

clear

> plan to

> > where

> > donations will go or to what they will be used.

> > A web site set up by those who care should not have an opening

line

> asking

> > for donations.

> >

> > This is just my basic view, I am not trying to upset anybody as I

> think you

> > are ALL lovely

> > people.

> >

> >

> >

>

>

>

>

>

>

> <http://www.incredimail.com/index.asp?id=54475>

Add FUN to your

email -

> CLICK HERE!

>

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Share on other sites

Guest guest

I just can't believe A notable company would give money without some advertisement If so good luck

-- Re: new site

,Just a thought, depending on where you want to go with the website,fundraising, and organization as a whole, doctors specializing inAchalasia might not be bad people to seek donations from. While Irealize the list of doctors on the site is for OUR benefit, they areessentially getting "free advertising". Besides, the website is alsofor the benefit of THEIR patients which I would hope they would see asa good thing. Raising public awareness also helps when it comes togetting research funded. Cheers, n>> and All, > > > > For those that are curious, the site does not cost pennies/cents per> month!! There is a monthly fee of $10.00 for web hosting (grantingthat I> don't upgrade the site, which is 30.00, 40.00, or 50.00 per month).There> is also the purchase of the domain name of the site, which can costaround> $150.00 or more! I am currently "renting" the name, and will decideif I> want to buy it at a later date. Depending upon the amount in the"kitty".> I am keeping the costs to a minimum at this time. I am currentlyrevising> the site. If anyone would like more information on web hosting ordomain> purchasing. I would be more then happy to share. > > As always thanks for your suggestions. > > > > C Warren> > Co-Founder> > www.achalasia.us> > From: achalasia [mailto:achalasia ]On Behalf> Of jason3142> Sent: Friday, July 14, 2006 4:06 PM> achalasia & ! gt; Subj ect: Re: new site> > > > I just want to reiterate that I have no complaint about the 'othersite'.> > I do not want anybody to get the wrong idea, as I believe anythingthat can> assimilate the > poorly laid out information on this site and make it into an easy to use> resource deserves a > medal.> > And a chat room is one of the best ways to build online friendships and> communities.> > So well done to those that have set this new site up, long may it be> recommended from > this site.> > The problem I have is the request for donations. There is no talk of> starting a foundation > to help those in the US with accommodation and treatment (ifshortcomings in> insurance), > the site just asks for donations to help with the upkeep and runningof the> site.> Running a web site like this costs pennies/cents per month, and then you> have users > stating that if they had to pay $10 every few months it would beworth it -> you wonder > then why people start enquiring whos is going to profit from it.> This web site should not ask for donations unless it has some clearplan to> where > donations will go or to what they will be used.> A web site set up by those who care should not have an opening lineasking> for donations.> > This is just my basic view, I am not trying to upset anybody as Ithink you> are ALL lovely > people.> > >

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Guest guest

I guess it never hurts to ask... ;-)

> >

> > and All,

> >

> >

> >

> > For those that are curious, the site does not cost pennies/cents per

> > month!! There is a monthly fee of $10.00 for web hosting (granting

> that I

> > don't upgrade the site, which is 30.00, 40.00, or 50.00 per month).

> There

> > is also the purchase of the domain name of the site, which can cost

> around

> > $150.00 or more! I am currently " renting " the name, and will decide

> if I

> > want to buy it at a later date. Depending upon the amount in the

> " kitty " .

> > I am keeping the costs to a minimum at this time. I am currently

> revising

> > the site. If anyone would like more information on web hosting or

> domain

> > purchasing. I would be more then happy to share.

> >

> > As always thanks for your suggestions.

> >

> >

> >

> > C Warren

> >

> > Co-Founder

> >

> > www.achalasia.us

> >

> > From: achalasia <mailto:achalasia%40>

> [mailto:achalasia <mailto:achalasia%40> ]

> On Behalf

> > Of jason3142

> > Sent: Friday, July 14, 2006 4:06 PM

> > achalasia <mailto:achalasia%40>

> & ! gt; Subj ect: Re: new site

> >

> >

> >

> > I just want to reiterate that I have no complaint about the 'other

> site'.

> >

> > I do not want anybody to get the wrong idea, as I believe anything

> that can

> > assimilate the

> > poorly laid out information on this site and make it into an easy

to use

> > resource deserves a

> > medal.

> >

> > And a chat room is one of the best ways to build online

friendships and

> > communities.

> >

> > So well done to those that have set this new site up, long may it be

> > recommended from

> > this site.

> >

> > The problem I have is the request for donations. There is no talk of

> > starting a foundation

> > to help those in the US with accommodation and treatment (if

> shortcomings in

> > insurance),

> > the site just asks for donations to help with the upkeep and running

> of the

> > site.

> > Running a web site like this costs pennies/cents per month, and

then you

> > have users

> > stating that if they had to pay $10 every few months it would be

> worth it -

> > you wonder

> > then why people start enquiring whos is going to profit from it.

> > This web site should not ask for donations unless it has some clear

> plan to

> > where

> > donations will go or to what they will be used.

> > A web site set up by those who care should not have an opening line

> asking

> > for donations.

> >

> > This is just my basic view, I am not trying to upset anybody as I

> think you

> > are ALL lovely

> > people.

> >

> >

> >

>

>

>

>

>

>

> <http://www.incredimail.com/index.asp?id=54475> Add FUN to your email -

> CLICK HERE!

>

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Share on other sites

Guest guest

I agree that their should not be any donations from achalasia doctors

since we want all doctors discussed on the site to be for our

benefit, not advertising benefits for that doctor....

The thought of accepting donations with advertising of any sort from

achalasia doctors might demean the credibility of the site.

If that has already been made clear, ignore this as I am still

several days behind on reading postings....just wanted to put my two

cents in....

Thanks,

in Illinois

P.S. By the way, I am looking for a new doctor after moving and

having my new GI recommend Botox for my 2nd post-myotomy barium

swallow last week. UGH Do we know anyone that has had Botox AFTER

their myotomy????

> >

> > and All,

> >

> >

> >

> > For those that are curious, the site does not cost pennies/cents

per

> > month!! There is a monthly fee of $10.00 for web hosting (granting

> that I

> > don't upgrade the site, which is 30.00, 40.00, or 50.00 per

month).

> There

> > is also the purchase of the domain name of the site, which can

cost

> around

> > $150.00 or more! I am currently " renting " the name, and will

decide

> if I

> > want to buy it at a later date. Depending upon the amount in the

> " kitty " .

> > I am keeping the costs to a minimum at this time. I am currently

> revising

> > the site. If anyone would like more information on web hosting or

> domain

> > purchasing. I would be more then happy to share.

> >

> > As always thanks for your suggestions.

> >

> >

> >

> > C Warren

> >

> > Co-Founder

> >

> > www.achalasia.us

> >

> > From: achalasia [mailto:achalasia ]

> On Behalf

> > Of jason3142

> > Sent: Friday, July 14, 2006 4:06 PM

> > achalasia

> > Subject: Re: new site

> >

> >

> >

> > I just want to reiterate that I have no complaint about the 'other

> site'.

> >

> > I do not want anybody to get the wrong idea, as I believe anything

> that can

> > assimilate the

> > poorly laid out information on this site and make it into an easy

to use

> > resource deserves a

> > medal.

> >

> > And a chat room is one of the best ways to build online

friendships and

> > communities.

> >

> > So well done to those that have set this new site up, long may it

be

> > recommended from

> > this site.

> >

> > The problem I have is the request for donations. There is no talk

of

> > starting a foundation

> > to help those in the US with accommodation and treatment (if

> shortcomings in

> > insurance),

> > the site just asks for donations to help with the upkeep and

running

> of the

> > site.

> > Running a web site like this costs pennies/cents per month, and

then you

> > have users

> > stating that if they had to pay $10 every few months it would be

> worth it -

> > you wonder

> > then why people start enquiring whos is going to profit from it.

> > This web site should not ask for donations unless it has some

clear

> plan to

> > where

> > donations will go or to what they will be used.

> > A web site set up by those who care should not have an opening

line

> asking

> > for donations.

> >

> > This is just my basic view, I am not trying to upset anybody as I

> think you

> > are ALL lovely

> > people.

> >

> >

> >

>

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  • 5 months later...

Hi Bee,

I just wanted to let you know that it's so much easier for me to do a search on

your new site compared to the site.

I must say I now look forward to going and search for information I need. I'm

tickle pink, can you see me?

I have a question for you: Can electrolysis interfere/make candida worse? The

reason I ask is a lady I work with asked me this question and I didn't have an

answer but told her I would find out.

Have a great weekend,

Maddalena

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  • 3 weeks later...

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