Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Hey everyone, Don't bother by emailing or yelling at this guy. I know that we get these morons all the time, but this one is exactly trying to get the effect of us - angry LP's in a riff (and knock up his visitor stats). He's just an inmature, disgruntled LP (who actually belonged in LPA). The fact that he doesn't know that we have very successful LP's, he fingerpoints at the.. worst examples and tries to place blame on dwarfism for all of his problems. Just my advice. At 5:25 PM -0700 6/16/00, Loveless Jr. wrote: >http://www.angelfire.com/journal/spank > > > > >Angelfire for your free web-based e-mail. http://www.angelfire.com > >------------------------------------------------------------------------ >Would you like to save big on your phone bill -- and keep on saving >more each month? Join beMANY! Our huge buying group gives you Long Distance >rates which fall monthly, plus an extra $60 in FREE calls! >1/2567/9/_/77518/_/961201545/ >------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2000 Report Share Posted June 19, 2000 What is this site all about???? Is it a joke or what??? Taste the Colors of the Rainbow........... Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Sandi, I think you should look at the www.depression.org site more closely. They recommend psychiatric medication as a way to deal with depression. http://www.depression.org/board.html list the board members. Our group should take note of the names on the Board regarding our future efforts. Jim Harper > Hi Everyone > has anyone seen this site www.depression.org maybe they could help back our > cause. > Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Sandi, I think you should look at the www.depression.org site more closely. They recommend psychiatric medication as a way to deal with depression. http://www.depression.org/board.html list the board members. Our group should take note of the names on the Board regarding our future efforts. Jim Harper > Hi Everyone > has anyone seen this site www.depression.org maybe they could help back our > cause. > Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Beautiful, Carol! The site, the jewelry. Definitely artisan jewelry! Congrats!!!!! BTW, I have DSL and the site loaded very slowly but your pics are clear and crisp. To add a signature in outlook express go to Tools, Options... and you will see signature on one of the tabs. www.BlueMountainBotanicals.com new site Colleen wrote : <<It's been kind of quiet here lately. I hope everyone is doing well!!!>> Ok-I know I haven't posted much lately-been very busy working on my new website. (went to sleep at midnight last night!) I am still making my soaps and shea butter, etc, but have been focusing this summer on my jewelry part of my business. ( I'm committed to a weekly artist market that has been a lot of fun). Anyway, I hope a few of you might peek at my new site and give me some feedback. For example, we switched a few mos ago to Road Runner-cable-and gave up the AOL. So I have no idea how long this site takes to load for people with dial up. My message said my files are too large, and this could be a problem. My dh did a site first, using Godaddy, and then I made mine. He makes a video game racing seat simulator-he's a big kid-and loves his video games!!! So thanks in advance and be kind ;-0, I'm sensitive! :-) ~Carol J GentleSwanStudio.com realsnakepit.com PS-does anyone know how to automatically add your web address to the signature on outgoing messages with Outlook Express? Does eliminate them? I think I have seen them on some posts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Carol- You know I love your jewelry & your site is looking great! I'm on DSL & it popped right up for me, no problems. The pics on the home page are out of place though. The bottom one covered the links at the bottom. Soooo, can I add a link to your site on mine??? Colleen Handcrafted & Decorative Soaps http://www.countrymeadowcreations.com Kat's Coffees & More Consultant #0892 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 CAROL! Fabulous!!!! Absolutely FABULOUS! What an artist you are! Kae Ok-I know I haven't posted much lately-been very busy working on my new website. (went to sleep at midnight last night!) I am still making my soaps and shea butter, etc, but have been focusing this summer on my jewelry part of my business. ( I'm committed to a weekly artist market that has been a lot of fun). Anyway, I hope a few of you might peek at my new site and give me some feedback. For example, we switched a few mos ago to Road Runner-cable-and gave up the AOL. So I have no idea how long this site takes to load for people with dial up. My message said my files are too large, and this could be a problem. My dh did a site first, using Godaddy, and then I made mine. He makes a video game racing seat simulator-he's a big kid-and loves his video games!!! So thanks in advance and be kind ;-0, I'm sensitive! :-) ~Carol J GentleSwanStudio.com realsnakepit.com PS-does anyone know how to automatically add your web address to the signature on outgoing messages with Outlook Express? Does eliminate them? I think I have seen them on some posts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Carol! It's beautiful! It loaded very fast for me (dsl) but I, like Colleen, saw the bottom picture on the first page over the words. I'm sure that's an easy fix. I think the black background really brings the jewelry out and it's gorgeous! Your jewelry is gorgeous too! Will you eventually be adding a shopping cart? I'm thinking Christmas shopping for my girls. They love, love, love jewelry and are very picky. Your stuff would be perfect! Great job! Katy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Just checked your husbands site out too, Carol! Looks great! Can I add both of them to my links page? Katy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Carol Beautiful work!!! The site is sharp and your jewelry is exquisite. Best of luck to you!! M new site Colleen wrote : <<It's been kind of quiet here lately. I hope everyone is doing well!!!>> Ok-I know I haven't posted much lately-been very busy working on my new website. (went to sleep at midnight last night!) I am still making my soaps and shea butter, etc, but have been focusing this summer on my jewelry part of my business. ( I'm committed to a weekly artist market that has been a lot of fun). Anyway, I hope a few of you might peek at my new site and give me some feedback. For example, we switched a few mos ago to Road Runner-cable-and gave up the AOL. So I have no idea how long this site takes to load for people with dial up. My message said my files are too large, and this could be a problem. My dh did a site first, using Godaddy, and then I made mine. He makes a video game racing seat simulator-he's a big kid-and loves his video games!!! So thanks in advance and be kind ;-0, I'm sensitive! :-) ~Carol J GentleSwanStudio.com realsnakepit.com PS-does anyone know how to automatically add your web address to the signature on outgoing messages with Outlook Express? Does eliminate them? I think I have seen them on some posts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Carol, I had no idea that you did jewelry! OMG, your site is wonderful ~ and your artwork is incredible!!! I will keep you in mind for gifts in the future. I *love* your moonbeams one! Thanks for sharing with us! And the quote where you said, " Makin' " ... I can *so* identify with that!!! ~nne in Columbia County My blog: http://bathtubjunkie.net/ GentleSwanStudio.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 I don't see the need of the new site, what is wrong with this one? And this one is free. Sandy in So Cal >> Hey everyone - I'm writing here on behalf of and . They > have created a great site for us and for people with A everywhere. > Why - oh why - are they not getting more of our support? There are > only 3 members who have donated to the cause and posted their > stories. is putting this site out there with her own money. I > don't know much about websites but I do know there is a monthly fee. > If everyone just threw in a couple of dollars each, it would be a big > fat pile to keep the site going for a long time.> We also need to have more stories posted so that people that find us > can learn as much as possible from our personal experiences, isn't > that what we are all about??> > On another note, Carolyn has a great idea about coming up with > letters. Maybe open letters from us to all of the big medical and GI > journals? > I also have made a great effort every time I go to the GI (or speak > with the NP, as I did today) to mention our site and to literally BEG > them (please, please please) to tell ALL of their A patients about us > here and I've now emailed Debi's infamous NCCP post to the > practitioner. Hopefully, they'll keep it somewhere and hand out > copies to the newbies.> It may not be much for now, but I feel that it's a start. If we all > did this kind of thing - we'd start getting heard.> > Love to you all!> > Happy Swallowing!> - in Va.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Sandy, While I can understand your concern, the new site was created by and I with future intentions of helping our members. We would in the future like to create a foundation for achalasia patients. A foundation that could possible financially help its members with expenses that concern medical treatment. There are a lot of us that don’t have insurance and can’t afford everything that goes along with the cost of the treatment for this disease. If there is a large pool of us, we could at least help a few people with some of their expenses, even if it is just for fuel, hotel, or doctor visit. These will be voted on per request of each person. We don’t insist on large donations, we are in hopes that in the future we can get some support from companies. This is not a fly by night site to get money!! I don’t use the finances for anything but the site! Heck everything I do is for free!! Look at all the time that me and have put in just in collecting information and site links and creating interactive things for people to use!! If you don’t want to be a member I more then understand. Those of us that do, will have a nice little community of people that feel they are part of something a little larger. and I only created the site to help people and to educate, that’s all. I hope that we have accomplished that to some extent already. Making it easier to find all the information in one place, instead of searching the web endlessly. I hope this helps to explain things. As always I am open to any questions about our site. C Warren Co-Founder www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of toomuchclutter Sent: Thursday, July 13, 2006 3:34 PM achalasia Subject: Re: new site I don't see the need of the new site, what is wrong with this one? And this one is free. Sandy in So Cal > > Hey everyone - I'm writing here on behalf of and . They > have created a great site for us and for people with A everywhere. > Why - oh why - are they not getting more of our support? There are > only 3 members who have donated to the cause and posted their > stories. is putting this site out there with her own money. I > don't know much about websites but I do know there is a monthly fee. > If everyone just threw in a couple of dollars each, it would be a big > fat pile to keep the site going for a long time. > We also need to have more stories posted so that people that find us > can learn as much as possible from our personal experiences, isn't > that what we are all about?? > > On another note, Carolyn has a great idea about coming up with > letters. Maybe open letters from us to all of the big medical and GI > journals? > I also have made a great effort every time I go to the GI (or speak > with the NP, as I did today) to mention our site and to literally BEG > them (please, please please) to tell ALL of their A patients about us > here and I've now emailed Debi's infamous NCCP post to the > practitioner. Hopefully, they'll keep it somewhere and hand out > copies to the newbies. > It may not be much for now, but I feel that it's a start. If we all > did this kind of thing - we'd start getting heard. > > Love to you all! > > Happy Swallowing! > - in Va. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 To be very honest, there is a policy against posting messages for any product or service. Even though you apparently feel your website is exempt, I think it is more understandable to eliminate all postings for any products or services, whether in the tag lines or signatures. Where do you draw the line otherwise? Your website does ask for contributions with the promise of providing services. Almost all of us here work for a company or are self-employed providing products or services. Out of respect that this group not become an advertising medium, more that already has, I do not post my website and others also don't post theirs. As with raising kids, I think it is good to be consistent, or this group could turn into advertisements for clinics, medical procedures, remedies and every good and bad possible cure. To be again very honest, I don't appreciate being asked outright or just through suggestions to contribute to a group in a monetary manner over and over. The fact that not more people have contributed already should be your answer. My husband and I are self-employed and pay very high rates for insurance, we go without a lot of things so we can have insurance. Below is a copy of the message on the home page regarding tag lines and messages. The font and the color are exactly as they appear on this group's home page. This isn't a big thing to me, really, just when I saw the request to be more supportive of the website it hit me wrong. Many years ago I worked at a company that had some fear of being unionized. We were not allowed a company bulletin board, for apartments or cars or whatever, because once a bulletin board went up and there was general access, then union organizers could also post information there. Management of course didn't want union organizers. The solution was just no bulletin boards. obviously doesn't want to lose any hits. I don't want to have a bunch of annoying advertising mixed in with our messages so it just seems easier to stop all advertising for service and products. That is the reason I imagine for the red fonted posting on the home page. Note to All Members:The posting of messages with the intent to promote products and or services is not allowed. Signature lines with the same intent are not permissible. The purpose of this group is to provide support. Personal attacks, "flaming", "trolling", and offensive messages are not permitted in this group. The group moderators will remove offensive messages and members who violate these rules will be permanently removed from the group. > >> > Hey everyone - I'm writing here on behalf of and . They > > have created a great site for us and for people with A everywhere. > > Why - oh why - are they not getting more of our support? There are > > only 3 members who have donated to the cause and posted their > > stories. is putting this site out there with her own money. I > > don't know much about websites but I do know there is a monthly fee. > > If everyone just threw in a couple of dollars each, it would be a big > > fat pile to keep the site going for a long time.> > We also need to have more stories posted so that people that find us > > can learn as much as possible from our personal experiences, isn't > > that what we are all about??> > > > On another note, Carolyn has a great idea about coming up with > > letters. Maybe open letters from us to all of the big medical and GI > > journals? > > I also have made a great effort every time I go to the GI (or speak > > with the NP, as I did today) to mention our site and to literally BEG > > them (please, please please) to tell ALL of their A patients about us > > here and I've now emailed Debi's infamous NCCP post to the > > practitioner. Hopefully, they'll keep it somewhere and hand out > > copies to the newbies.> > It may not be much for now, but I feel that it's a start. If we all > > did this kind of thing - we'd start getting heard.> > > > Love to you all!> > > > Happy Swallowing!> > - in Va.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Sandy, Thank you for your concern. I will no longer “promote” the other site. I don’t feel the need to nit pick this issue. I only hope those who need the information can find it on their own. We were only trying to make it an easier task to find the information needed to control symptoms of this disorder. As always thanks for your input, C Warren From: achalasia [mailto:achalasia ] On Behalf Of toomuchclutter Sent: Thursday, July 13, 2006 6:43 PM achalasia Subject: Re: new site To be very honest, there is a policy against posting messages for any product or service. Even though you apparently feel your website is exempt, I think it is more understandable to eliminate all postings for any products or services, whether in the tag lines or signatures. Where do you draw the line otherwise? Your website does ask for contributions with the promise of providing services. Almost all of us here work for a company or are self-employed providing products or services. Out of respect that this group not become an advertising medium, more that already has, I do not post my website and others also don't post theirs. As with raising kids, I think it is good to be consistent, or this group could turn into advertisements for clinics, medical procedures, remedies and every good and bad possible cure. To be again very honest, I don't appreciate being asked outright or just through suggestions to contribute to a group in a monetary manner over and over. The fact that not more people have contributed already should be your answer. My husband and I are self-employed and pay very high rates for insurance, we go without a lot of things so we can have insurance. Below is a copy of the message on the home page regarding tag lines and messages. The font and the color are exactly as they appear on this group's home page. This isn't a big thing to me, really, just when I saw the request to be more supportive of the website it hit me wrong. Many years ago I worked at a company that had some fear of being unionized. We were not allowed a company bulletin board, for apartments or cars or whatever, because once a bulletin board went up and there was general access, then union organizers could also post information there. Management of course didn't want union organizers. The solution was just no bulletin boards. obviously doesn't want to lose any hits. I don't want to have a bunch of annoying advertising mixed in with our messages so it just seems easier to stop all advertising for service and products. That is the reason I imagine for the red fonted posting on the home page. Note to All Members:The posting of messages with the intent to promote products and or services is not allowed. Signature lines with the same intent are not permissible. The purpose of this group is to provide support. Personal attacks, " flaming " , " trolling " , and offensive messages are not permitted in this group. The group moderators will remove offensive messages and members who violate these rules will be permanently removed from the group. > > > > Hey everyone - I'm writing here on behalf of and . They > > have created a great site for us and for people with A everywhere. > > Why - oh why - are they not getting more of our support? There are > > only 3 members who have donated to the cause and posted their > > stories. is putting this site out there with her own money. I > > don't know much about websites but I do know there is a monthly fee. > > If everyone just threw in a couple of dollars each, it would be a big > > fat pile to keep the site going for a long time. > > We also need to have more stories posted so that people that find us > > can learn as much as possible from our personal experiences, isn't > > that what we are all about?? > > > > On another note, Carolyn has a great idea about coming up with > > letters. Maybe open letters from us to all of the big medical and GI > > journals? > > I also have made a great effort every time I go to the GI (or speak > > with the NP, as I did today) to mention our site and to literally BEG > > them (please, please please) to tell ALL of their A patients about us > > here and I've now emailed Debi's infamous NCCP post to the > > practitioner. Hopefully, they'll keep it somewhere and hand out > & g t; copies to the newbies. > > It may not be much for now, but I feel that it's a start. If we all > > did this kind of thing - we'd start getting heard. > > > > Love to you all! > > > > Happy Swallowing! > > - in Va. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 I think the idea of a site that brings together all of the main facts and information (as the layout of this site is not as friendly and graphic as it could be) is a good idea. And having a working chat room is also a plus (although we could all use Messenger to see who else is online and chat). The thing that puts me off of the other site is the request for money. " This is a privately owned and operated web site. We welcome any and all donations to keep this site up and running!!!! " As hobby web sites such as this hardly cost anything to run, and any donations can easily create profit - and I did not like the idea that fellow sufferers were looking to profit from our disease. We are now told that the money is towards starting a foundation to assist those with A financially and to promote awareness and encourage research (in the US or world wide?). I cant say that I found this description on the site. So, for my two cents I believe there is a place for the site but any talk about requiring payment should be removed if the site is to be recommended on these boards. If you are indeed requesting donations this should be done from a different site that could be clicked from the main site that takes you to achalasia-foundation.us or achalasia.us/ foundation. And a clear explanation as to where the money is going, who can apply, and the registered charity credentials. Finally, until the achalasia.us web site/foundation is the main recognised location for information, I do not believe any polls should be run there as this could/would lessen the effectiveness of this site. It is a slippery slope, all thats missing from achalasia.us is a forum, and then where is this group? I am sorry if this has come across as a bit of a rant, it was not meant to be as I have the highest respect for the founders of achalasia.us as well as many others on this site. Better get off to work, I am now running late.... love to all ) > I only hope those who need the information can find it on their own. We were > only trying to make it an easier task to find the information needed to > control symptoms of this disorder. > > As always thanks for your input, > > > > C Warren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 To all Members of the Group, I’m sorry that some are appalled about the other site. I think the idea of a site that brings together all of the main facts and information (as the layout of this site is not as friendly and graphic as it could be) is a good idea. And having a working chat room is also a plus (although we could all use Messenger to see who else is online and chat). *Yes I thought a chat room would be good since we don’t have one on here any longer. The thing that puts me off of the other site is the request for money. " This is a privately owned and operated web site. We welcome any and all donations to keep this site up and running!!!! " *No it doesn’t cost A LOT, but there is still a cost to it! I personally am not making anything off of it, and privately owned means no one can tell us how to run the site or what we can put on there!!! As hobby web sites such as this hardly cost anything to run, and any donations can easily create profit - and I did not like the idea that fellow sufferers were looking to profit from our disease. We are now told that the money is towards starting a foundation to assist those with A financially and to promote awareness and encourage research (in the US or world wide?). I cant say that I found this description on the site. *No we haven’t put this description on the site because there is much research and time that goes into creating a foundation! The site is in its baby stage. So, for my two cents I believe there is a place for the site but any talk about requiring payment should be removed if the site is to be recommended on these boards. If you are indeed requesting donations this should be done from a different site that could be clicked from the main site that takes you to achalasia-foundation.us or achalasia.us/ foundation. And a clear explanation as to where the money is going, who can apply, and the registered charity credentials. Finally, until the achalasia.us web site/foundation is the main recognised location for information, I do not believe any polls should be run there as this could/would lessen the effectiveness of this site. It is a slippery slope, all thats missing from achalasia.us is a forum, and then where is this group? I am sorry if this has come across as a bit of a rant, it was not meant to be as I have the highest respect for the founders of achalasia.us as well as many others on this site. Better get off to work, I am now running late.... love to all ) *I’m sorry that this has caused such a controversy, we were not trying to replace the group! Anyone who has donated to the site can request a refund at anytime. If there are no funds, the website will be terminated, as I can’t afford to run it out of my own pocket. *As I said I’m sorry this issue has come to light, on something that was done out of just wanting to help people! If the owner or moderators of this group wish they can remove the link to that site. I will also remove myself from the group if requested, I don’t really need to be bashed for something that was done out of pure concern for others! Sincerely Warren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Why is it that people always assume that everyone is out to make a quick buck? Yes I may be a bit biased about this topic because my wife is the co-founder of this " other site " in question. Sue me! But as has been said, this " other site " was created to HELP people not to create a profit. and are making NOTHING off of this site. Was the promotion of this " other site " wrong in the group, I guess thats a matter of opinion. But I don't feel that it was pushed on anyone to make a donation as much as it was just to get visitors and " members " of the site to post their own personal stories for fellow " Achalasians " to read. I have learned a lot from this group AND the " other site " and I find it very discerning that these two can't live together without all this controversy. I won't promote, advertise, mention the " other site " in this group after this email. Those of you who care know how to find it. (at least while its still up) The rest of you, good luck with your search for knowledge and information on this dreaded desease for which you or your loved one suffer. - Husband of Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Are part of the OTHER group???? -- Re: new site Why is it that people always assume that everyone is out to make a quick buck? Yes I may be a bit biased about this topic because my wife is the co-founder of this "other site" in question. Sue me! But as has been said, this "other site" was created to HELP people not to create a profit. and are making NOTHING off of this site. Was the promotion of this "other site" wrong in the group, I guess thats a matter of opinion. But I don't feel that it was pushed on anyone to make a donation as much as it was just to get visitors and "members" of the site to post their own personal stories for fellow "Achalasians" to read. I have learned a lot from this group AND the "other site" and I find it very discerning that these two can't live together without all this controversy. I won't promote, advertise, mention the "other site" in this group after this email. Those of you who care know how to find it. (at least while its still up) The rest of you, good luck with your search for knowledge and information on this dreaded desease for which you or your loved one suffer. - Husband of Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 , I'm not sure what your asking? Am I a member of the OTHER group? Are you referring to the site that and put together? I am not 'officially' a member, no...however, I did fund the inital rollout of the site and I am the 'technical advisor' to the site. So in a sense I am highly involved with the site yes. - Husband of On 7/14/06, Bartolino <jfbartolino@...> wrote: Are part of the OTHER group???? -- Re: new site Why is it that people always assume that everyone is out to make a quick buck? Yes I may be a bit biased about this topic because my wife is the co-founder of this " other site " in question. Sue me! But as has been said, this " other site " was created to HELP people not to create a profit. and are making NOTHING off of this site. Was the promotion of this " other site " wrong in the group, I guess thats a matter of opinion. But I don't feel that it was pushed on anyone to make a donation as much as it was just to get visitors and " members " of the site to post their own personal stories for fellow " Achalasians " to read. I have learned a lot from this group AND the " other site " and I find it very discerning that these two can't live together without all this controversy. I won't promote, advertise, mention the " other site " in this group after this email. Those of you who care know how to find it. (at least while its still up) The rest of you, good luck with your search for knowledge and information on this dreaded desease for which you or your loved one suffer. - Husband of Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 I can't understand what all the quarreling is over another "A" site... I personally feel any site that can help those who suffer is valuable. As for promoting the chat on the new website here on this group, I don't see why this is a problem. The chats are no longer available.. Do you realize how valuable it can be to a person to be able to sign onto a support chat and actually talk to others in a chat room who understand and have been where they are? I could understand all the bickering if someone was on here promoting products for sale or snake oil cures but I don't see that happening here.. I"m relatively new to the group and I feel any site that is genuinely out there to help is of importance and and 's site seem to be one that is there to help others. It does not take away from the group in any manner. It saddens me and seem such a shame that there are people who try and help others and a select few think it shouldn't be.. What a shame -- Re: new site Why is it that people always assume that everyone is out to make a quick buck? Yes I may be a bit biased about this topic because my wife is the co-founder of this "other site" in question. Sue me! But as has been said, this "other site" was created to HELP people not to create a profit. and are making NOTHING off of this site. Was the promotion of this "other site" wrong in the group, I guess thats a matter of opinion. But I don't feel that it was pushed on anyone to make a donation as much as it was just to get visitors and "members" of the site to post their own personal stories for fellow "Achalasians" to read. I have learned a lot from this group AND the "other site" and I find it very discerning that these two can't live together without all this controversy. I won't promote, advertise, mention the "other site" in this group after this email. Those of you who care know how to find it. (at least while its still up) The rest of you, good luck with your search for knowledge and information on this dreaded desease for which you or your loved one suffer. - Husband of Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Sorry, at those costs I think you should shop around. Web hosting plus domain name should cost nowhere near that price. ($2to3 a month tops) I am not going to speak again on this matter as I do not want to cause strife or upset anybody. Night x > > and All, > > > > For those that are curious, the site does not cost pennies/cents per > month!! There is a monthly fee of $10.00 for web hosting (granting that I > don't upgrade the site, which is 30.00, 40.00, or 50.00 per month). There > is also the purchase of the domain name of the site, which can cost around > $150.00 or more! I am currently " renting " the name, and will decide if I > want to buy it at a later date. Depending upon the amount in the " kitty " . > I am keeping the costs to a minimum at this time. I am currently revising > the site. If anyone would like more information on web hosting or domain > purchasing. I would be more then happy to share. > > As always thanks for your suggestions. > > > > C Warren > > Co-Founder > > www.achalasia.us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 , Thanks for the suggestion! We were waiting for to get back on US soil to start a lot of the calling on “companies” and “doctors”!! But yes we had already thought of this idea. We just haven’t taken action on it yet. is kind of over that part of it, that’s why we are partners, he is good at things that I’m not so good at and I’m better at other things! Working together! C Warren Co-Founder www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of rnbriely@... Sent: Friday, July 14, 2006 5:36 PM achalasia Subject: Re: new site , Just a thought, depending on where you want to go with the website, fundraising, and organization as a whole, doctors specializing in Achalasia might not be bad people to seek donations from. While I realize the list of doctors on the site is for OUR benefit, they are essentially getting " free advertising " . Besides, the website is also for the benefit of THEIR patients which I would hope they would see as a good thing. Raising public awareness also helps when it comes to getting research funded. Cheers, n > > and All, > > > > For those that are curious, the site does not cost pennies/cents per > month!! There is a monthly fee of $10.00 for web hosting (granting that I > don't upgrade the site, which is 30.00, 40.00, or 50.00 per month). There > is also the purchase of the domain name of the site, which can cost around > $150.00 or more! I am currently " renting " the name, and will decide if I > want to buy it at a later date. Depending upon the amount in the " kitty " . > I am keeping the costs to a minimum at this time. I am currently revising > the site. If anyone would like more information on web hosting or domain > purchasing. I would be more then happy to share. > > As always thanks for your suggestions. > > > > C Warren > > Co-Founder > > www.achalasia.us > > From: achalasia [mailto:achalasia ] On Behalf > Of jason3142 > Sent: Friday, July 14, 2006 4:06 PM > achalasia > Subject: Re: new site > > > > I just want to reiterate that I have no complaint about the 'other site'. > > I do not want anybody to get the wrong idea, as I believe anything that can > assimilate the > poorly laid out information on this site and make it into an easy to use > resource deserves a > medal. > > And a chat room is one of the best ways to build online friendships and > communities. > > So well done to those that have set this new site up, long may it be > recommended from > this site. > > The problem I have is the request for donations. There is no talk of > starting a foundation > to help those in the US with accommodation and treatment (if shortcomings in > insurance), > the site just asks for donations to help with the upkeep and running of the > site. > Running a web site like this costs pennies/cents per month, and then you > have users > stating that if they had to pay $10 every few months it would be worth it - > you wonder > then why people start enquiring whos is going to profit from it. > This web site should not ask for donations unless it has some clear plan to > where > donations will go or to what they will be used. > A web site set up by those who care should not have an opening line asking > for donations. > > This is just my basic view, I am not trying to upset anybody as I think you > are ALL lovely > people. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 , I use Small Business (http://smallbusiness.sbc./domains). If you can find web hosting, a domain name and 24 hour tech support and a web developing program (that doesn’t involve knowing JAVA Script, HTML, Cascading Style Sheets, PERL, and other misc. programming languages) for 2-3 dollars per month I would be happy to switch!!! Please let me know if you fine something for less then 10.00 per month. Anyone can do a search, and unless you know all of the languages, which neither I nor do, you have to have a web builder that is user friendly. For anyone who has future concerns, please don’t involve the group anymore! Please email off list to juliecwarren@.... C Warren Co-Founder www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of jason3142 Sent: Friday, July 14, 2006 5:22 PM achalasia Subject: Re: new site Sorry, at those costs I think you should shop around. Web hosting plus domain name should cost nowhere near that price. ($2to3 a month tops) I am not going to speak again on this matter as I do not want to cause strife or upset anybody. Night x > > and All, > > > > For those that are curious, the site does not cost pennies/cents per > month!! There is a monthly fee of $10.00 for web hosting (granting that I > don't upgrade the site, which is 30.00, 40.00, or 50.00 per month). There > is also the purchase of the domain name of the site, which can cost around > $150.00 or more! I am currently " renting " the name, and will decide if I > want to buy it at a later date. Depending upon the amount in the " kitty " . > I am keeping the costs to a minimum at this time. I am currently revising > the site. If anyone would like more information on web hosting or domain > purchasing. I would be more then happy to share. > > As always thanks for your suggestions. > > > > C Warren > > Co-Founder > > www.achalasia.us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2006 Report Share Posted July 14, 2006 Now that is a silly idea !!!! What makes you think A Dr will donate???? For research ??/ For advertisement ???? Never I come from a family of DR S Never Never What companies??? Drug companies??? I should keep quiet Cause this does not effect me But come on CArrie -- Re: new site> > > > I just want to reiterate that I have no complaint about the 'othersite'.> > I do not want anybody to get the wrong idea, as I believe anythingthat can> assimilate the > poorly laid out information on this site and make it into an easy to use> resource deserves a > medal.> > And a chat room is one of the best ways to build online friendships and> communities.> > So well done to those that have set this new site up, long may it be> recommended from > this site.> > The problem I have is the request for donations. There is no talk of> starting a foundation > to help those in the US with accommodation and treatment (ifshortcomings in> insurance), > the site just asks for donations to help with the upkeep and runningof the> site.> Running a web site like this costs pennies/cents per month, and then you> have users > stating that if they had to pay $10 every few months it would beworth it -> you wonder > then why people start enquiring whos is going to profit from it.> This web site should not ask for donations unless it has some clearplan to> where > donations will go or to what they will be used.> A web site set up by those who care should not have an opening lineasking> for donations.> > This is just my basic view, I am not trying to upset anybody as Ithink you> are ALL lovely > people.> > > Quote Link to comment Share on other sites More sharing options...
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