Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Fortunately, since I knew the long term effects this medication can cause, I did not want to take it. Dear Carolyn, Prednisone is a very nasty drug with lots of nasty side effects. Be thankful you are able to not have to take this drug for now...but many on the list need to. Unfortunately for now, pred. seems to be the one major drug that can hold AIH in check and also stop flare-ups and rejection episodes. I would venture to guess that just about everyone knows the risks of this dasdardly drug, but once you reach a certain point, the risks look better than the alternative. Randy takes 5mg/day and will be on some dose of this drug for the rest of his life or until something new comes on the market. We monitor his calcium levels and such but for now would not dream of discontinuing it. He hasn't had a rejection episode and has done remarkably well since the transplant. We read the contraindications and side effects and then do things to head them off. Knowledge is a powerful tool if you have this disease. Good luck ! Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2002 Report Share Posted October 5, 2002 Hi all, I have been on prednisone 5 mg a day for about 2 years now for joint inflammation due to Lupus (SLE). I was recently diagnosed with AIH, and am now wondering if that's a bad sign that it flared up even though I was already on prednisone (even a low dose). Does this mean I may not respond to medication? I have not seen my gastro yet, I just got the results of my liver biopsy confirming AIH (which is what my doctor suspected). I have an appointment in three weeks. If anybody knows any answers, fill me in. Thanks, Kristi > > Fortunately, since I knew the long term effects this medication > can cause, I did not want to take it. > > > > Dear Carolyn, > > Prednisone is a very nasty drug with lots of nasty side effects. Be > thankful you are able to not have to take this drug for now...but many on the > list need to. Unfortunately for now, pred. seems to be the one major drug > that can hold AIH in check and also stop flare-ups and rejection episodes. > I would venture to guess that just about everyone knows the risks of this > dasdardly drug, but once you reach a certain point, the risks look better > than the alternative. > > Randy takes 5mg/day and will be on some dose of this drug for the rest of his > life or until something new comes on the market. We monitor his calcium > levels and such but for now would not dream of discontinuing it. He hasn't > had a rejection episode and has done remarkably well since the transplant. > We read the contraindications and side effects and then do things to head > them off. Knowledge is a powerful tool if you have this disease. > > Good luck ! > > Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2002 Report Share Posted October 6, 2002 Kristi...remember you are using a small dosage for inflammation .....inflamation on your liver is a result of the auto-antibodies attacking the cells. In order to slow the prossess of the disease we try to slow the immune system from producing such autoantibodies. 5mgs is not enough to do that, so either a larger dose is needed and/or an immunosupressant (such as imuran) I'm sure your biopsy will tell your Dr. what's up and he will act accordingly. Try not to project into the future... it might not happen and you would have been worrying about the wrong thing tsk..tsk .. Everything will be just fine. love jerry Hi all, I have been on prednisone 5 mg a day for about 2 years now for joint inflammation due to Lupus (SLE). I was recently diagnosed with AIH, and am now wondering if that's a bad sign that it flared up even though I was already on prednisone (even a low dose). Does this mean I may not respond to medication? I have not seen my gastro yet, I just got the results of my liver biopsy confirming AIH (which is what my doctor suspected). I have an appointment in three weeks. If anybody knows any answers, fill me in. Thanks, Kristi > > Fortunately, since I knew the long term effects this medication > can cause, I did not want to take it. > > > > Dear Carolyn, > > Prednisone is a very nasty drug with lots of nasty side effects. Be > thankful you are able to not have to take this drug for now...but many on the > list need to. Unfortunately for now, pred. seems to be the one major drug > that can hold AIH in check and also stop flare-ups and rejection episodes. > I would venture to guess that just about everyone knows the risks of this > dasdardly drug, but once you reach a certain point, the risks look better > than the alternative. > > Randy takes 5mg/day and will be on some dose of this drug for the rest of his > life or until something new comes on the market. We monitor his calcium > levels and such but for now would not dream of discontinuing it. He hasn't > had a rejection episode and has done remarkably well since the transplant. > We read the contraindications and side effects and then do things to head > them off. Knowledge is a powerful tool if you have this disease. > > Good luck ! > > Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Jerry, Thanks for reminding me to stay grounded in the present! I'm new to this. Kristi > > > > Fortunately, since I knew the long term effects this medication > > can cause, I did not want to take it. > > > > > > > > Dear Carolyn, > > > > Prednisone is a very nasty drug with lots of nasty side effects. > Be > > thankful you are able to not have to take this drug for now...but > many on the > > list need to. Unfortunately for now, pred. seems to be the one > major drug > > that can hold AIH in check and also stop flare-ups and rejection > episodes. > > I would venture to guess that just about everyone knows the risks > of this > > dasdardly drug, but once you reach a certain point, the risks look > better > > than the alternative. > > > > Randy takes 5mg/day and will be on some dose of this drug for the > rest of his > > life or until something new comes on the market. We monitor his > calcium > > levels and such but for now would not dream of discontinuing it. > He hasn't > > had a rejection episode and has done remarkably well since the > transplant. > > We read the contraindications and side effects and then do things > to head > > them off. Knowledge is a powerful tool if you have this disease. > > > > Good luck ! > > > > Cheryl & Randy > > > > Quote Link to comment Share on other sites More sharing options...
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