LINDA IN ARK. :)

[Guest guest]

GGEEZZZZZ LINDA, AREN'T WE EVER GONNA GET YOU BACK ON TRACK????? (smile) OF COURSE I THINK OF YOU.......I THINK OF EVERYONE HERE...AND HUNT THOSE DOWN THAT HAVEN'T POSTED IN A WHILE... (still trying to find DEBBY!!)

YES ME TOO, I WAS HAVING SOME CHRONIC ISSUES FOR ALMOST 2 WEEKS, BUT I AM FEELING SO MUCH BETTER NOW, I AM NOT SURE WHICH MEDS. ARE MAKING ME FEEL BETTER?, BUT I AM NOT GIVING ANY OF THEM UP!!! LOL! LOL!

SORRY THAT YOUR DOCS ARE NOT TELLING YOU MUCH. I AM GLAD YOU ARE GETTING MORE OPINIONS!! NEVER JUST LET A DOC SAY, THAT THEY CAN'T DO MORE FOR YOU, THATS A BUNCH OF BULL!!

IT WAS A NEW MEMBER (DAVID) WHO ASKED ABOUT ANA. I WAS EXPLAINING TO HIM THAT MY 1ST ANA WAS POSITIVE 1:320./SO THERE-FORE THEY SAID YES I DEFINATELY HAD AIH/CAH. BUT THEN THE 2ND AND 3RD ANA TESTING SHOWED NEGATIVE RESULTS SO NOW THEY ARE SAYING I HAVE FIBROMYALGIA....HA! THATS MY BODY ALRIGHT....ALWAYS, KEEPS THE DOCS. GUESSING, AND ME STRESSING!!!! LOL!

SO ANYWAYS, THATS WHO ASKED ABOUT THAT. I THINK ITS KATHY HERE THAT HAS NEVER HAD A POSITIVE ANA TEST, BUT WAS DX WITH AIH.... I THINK THERE ARE SEVERAL HERE THAT HAVE SAID THIS!!!

(just don't understand it!!) ALSO, SOME PEOPLE HERE, NEVER HAD A BIOPSY AND ARE BEING TREATED FOR AIH!!! I AM GOING TO BRING ALL THIS UP WITH MY DOC ON JAN.3......I HAVE A FULL BODY CT SCAN OF MY ORGANS ON JAN. 2. SHOULD KNOW MORE THEN!!! HA!(hopefully)

I MIGHT BE REPEATING THINGS YOU HAVE ALREADY READ IN MY POST, IF SO THEN JUST "DELETE ME" LOL!

I HAVE BEEN BACK ON PRED./20MG PER DAY NOW FOR 11 DAYS. AND 3 OTHER NEW MEDS. FOR IBS, POSSIBLE STOMACH ULCERS; AND ANTI-DEPRESSANTS FOR THE FIBROMYALGIA/TO SLEEP!!

SO AGAIN, I SAY, I DON'T KNOW WHICH MEDS. ARE MAKING ME FEEL BETTER????? DOC SAID IF CT SCAN IS NEG. HE IS GONNA WEAN ME BACK OFF THE PRED.(second time in a month) I AM SO SCARED....

THE LAST TIME I WAS WEANED OFF, I HAD WHAT ALL OF YOU CALL, A (flare-up) I DON'T WANT THAT AGAIN......GOOD LORD, I LOVE FEELING NORMAL!!!! BESIDES THE TIREDNESS/DOPEY FEELING OF THE NEW MEDS. OF COURSE THE PRED. ONLY MADE ME HYPER FOR 2 DAYS, NOW I FEEL FINE. MUST BE THE COMBINATION OF ALL THE MEDS.

WHEW!!!!! I AM TIRED NOW, I AM BORING MYSELF.....SO I GOT TO BE BORING YOU.....LOL!

PLEASE TAKE IT EASY, AND I THINK OF YOU ALL THE TIME......

WARM FUZZY HUGS.....YOUR WAY!!

**HAPPY**HOLIDAYS**

**AND WARM HUGS**

Bert.

Hi Bert,

I hope you are doing well today.

Thanks for thinking of me. :-)

I read the posts on here every day. Since I have some

other kind of liver problem, I don't post much.

I think I posted on here that I had surgery on Nov.8th

of this year. I had a very huge liver cyst drained in

my right liver lobe. I had a quart of fluid in it.

Also, while the surgeon was in there he did 3 liver

biopsies.They ruled out cancer, AIH and cirrohisis

(sp)? I had my liver enzymes checked 2 weeks after

surgery and I think the liver specialist was surprised

that the ALT enzyme was still at 82. He thought that

the cyst was compressing on my liver drainage system

causing the elevation. I still have several other

smaller cysts in my liver that was too risky to drain,

they said. I have what they call polycystic liver

disease, which is rare. Usually is connected with

polycystic kidney disease. But when I had my

ultrasound and CAT scan in late May, the kidneys had

no cysts . All he tells me is that I have no on going

or progressive liver disease. He says some things

there just are no answers to. (????)

I talked to a dr by phone at the Mayo clinic. He says

liver cysts can , on rare occasions elevate the

enzymes. I am thinking of sending my test results to

him. He wants to study them.

I sure hope you find out your problem . It sounds as

though you have been really feeling lousy.

Someone asked about the ANA (antineuclear antibodies)

.. Was it you? I had two tests come back postive for

that and I believe the dr. really thought I had AIH.

But I found you can have positive ANA for other

autoimmune diseases also. I think I have rheumatoid

arthritis.But have not been tested. I hurt quite a

lot in my joints, but I have a high pain tolerance.I

guess.

I really enjoy your posts. All in here are so

thoughtful and kind, I just keep coming back and

reading.. LOL

Well, Bert, I didnt mean to ramble on so. I wish you

and everyone on here a very Happy and Healthier New

Year.

Warm hugszzz to you, Bert,

Lyn () in Ark.

__________________________________________________

[Guest guest]

In a message dated 12/30/01 3:42:12 PM Pacific Standard Time, sunshinedotson@... writes:

I THINK ITS KATHY HERE THAT HAS NEVER HAD A POSITIVE ANA TEST, BUT WAS DX WITH AIH.... I THINK THERE ARE SEVERAL HERE THAT HAVE SAID THIS!!! (just don't understand it!!) ALSO, SOME PEOPLE HERE, NEVER HAD A BIOPSY AND ARE BEING TREATED FOR AIH!!!

Types II and III AIH do not show ANA presence. Type I does show ANA.

There is no specific test for AIH. A combination of symptoms and test results, along with the elimination of other possible causes, will lead a doctor to a diagnosis of AIH.

Harper

[Guest guest]

Bert, your blood work certainly sounds like AIH. What did they say about Lupus? Just curious. I am forgetful, so if you have already addressed this, don't worry about repeating!

debby

[ ] LINDA IN ARK.

GGEEZZZZZ LINDA, AREN'T WE EVER GONNA GET YOU BACK ON TRACK????? (smile) OF COURSE I THINK OF YOU.......I THINK OF EVERYONE HERE...AND HUNT THOSE DOWN THAT HAVEN'T POSTED IN A WHILE... (still trying to find DEBBY!!) :)YES ME TOO, I WAS HAVING SOME CHRONIC ISSUES FOR ALMOST 2 WEEKS, BUT I AM FEELING SO MUCH BETTER NOW, I AM NOT SURE WHICH MEDS. ARE MAKING ME FEEL BETTER?, BUT I AM NOT GIVING ANY OF THEM UP!!! LOL! LOL!SORRY THAT YOUR DOCS ARE NOT TELLING YOU MUCH. I AM GLAD YOU ARE GETTING MORE OPINIONS!! NEVER JUST LET A DOC SAY, THAT THEY CAN'T DO MORE FOR YOU, THATS A BUNCH OF BULL!! IT WAS A NEW MEMBER (DAVID) WHO ASKED ABOUT ANA. I WAS EXPLAINING TO HIM THAT MY 1ST ANA WAS POSITIVE 1:320./SO THERE-FORE THEY SAID YES I DEFINATELY HAD AIH/CAH. BUT THEN THE 2ND AND 3RD ANA TESTING SHOWED NEGATIVE RESULTS SO NOW THEY ARE SAYING I HAVE FIBROMYALGIA....HA! THATS MY BODY ALRIGHT....ALWAYS, KEEPS THE DOCS. GUESSING, AND ME STRESSING!!!! LOL!SO ANYWAYS, THATS WHO ASKED ABOUT THAT. I THINK ITS KATHY HERE THAT HAS NEVER HAD A POSITIVE ANA TEST, BUT WAS DX WITH AIH.... I THINK THERE ARE SEVERAL HERE THAT HAVE SAID THIS!!!(just don't understand it!!) ALSO, SOME PEOPLE HERE, NEVER HAD A BIOPSY AND ARE BEING TREATED FOR AIH!!! I AM GOING TO BRING ALL THIS UP WITH MY DOC ON JAN.3......I HAVE A FULL BODY CT SCAN OF MY ORGANS ON JAN. 2. SHOULD KNOW MORE THEN!!! HA!(hopefully)I MIGHT BE REPEATING THINGS YOU HAVE ALREADY READ IN MY POST, IF SO THEN JUST "DELETE ME" LOL! I HAVE BEEN BACK ON PRED./20MG PER DAY NOW FOR 11 DAYS. AND 3 OTHER NEW MEDS. FOR IBS, POSSIBLE STOMACH ULCERS; AND ANTI-DEPRESSANTS FOR THE FIBROMYALGIA/TO SLEEP!!SO AGAIN, I SAY, I DON'T KNOW WHICH MEDS. ARE MAKING ME FEEL BETTER????? DOC SAID IF CT SCAN IS NEG. HE IS GONNA WEAN ME BACK OFF THE PRED.(second time in a month) I AM SO SCARED....THE LAST TIME I WAS WEANED OFF, I HAD WHAT ALL OF YOU CALL, A (flare-up) I DON'T WANT THAT AGAIN......GOOD LORD, I LOVE FEELING NORMAL!!!! BESIDES THE TIREDNESS/DOPEY FEELING OF THE NEW MEDS. OF COURSE THE PRED. ONLY MADE ME HYPER FOR 2 DAYS, NOW I FEEL FINE. MUST BE THE COMBINATION OF ALL THE MEDS.WHEW!!!!! I AM TIRED NOW, I AM BORING MYSELF.....SO I GOT TO BE BORING YOU.....LOL!PLEASE TAKE IT EASY, AND I THINK OF YOU ALL THE TIME......WARM FUZZY HUGS.....YOUR WAY!! **HAPPY**HOLIDAYS** **AND WARM HUGS** Bert.