Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi Everyone It's been quite some time now since my last posting but I've not been doing so well. I'm afraid that I just haven't been handling being sick, very well. is my 8 yr old daughter she was diagnosed July/00. She has been on prednisone since July/00 and has tried Imuran with no success and now is on Cellcept with very little success. She is depressed and doesn't understand what going on. Sometimes she is so afraid of how she's feeling that she spends hours crying in her room. She told me that she is too fat to go to school, her weight has doubled since July/00. I can't stop thinking about her illness, and now I'm depressed, my hair is falling out,I can't sleep and I often have chest pain and panic attacks. I'm always strong for her and can't talk to my husband because he is also very worried and has been dealing with his own stress problems throughout all of this. Our son started having seizures last Aug and I thank God that the Drs believe that it is reactive seizures caused by pain or illness. But since Aug I feel like I'm about to go crazy. How can I learn to deal with this? Does anyone know of a support group for parents of children with AIH. I know that most of the people in this group are dealing with this disease and that I am only the mother of a child with AIH but I'm lost and I can't afford to be weak now when needs me so much. Please help Lori('s Mom) Quote Link to comment Share on other sites More sharing options...
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