Re: Re: Thanks and some more questions...oh and celiac

April 24, 2009

I work with a woman whose doc has her on psych meds (depakote I

think). she is sooo hypo looking and bloated--it just amazes me that

her poor doc has no clue about her appearance. I mean it really speaks

to his incompetence. she looks like she would pop if you stuck a pin in

her. last week she said that she was going to try hypnosis for weight

loss! I said I didn't think hypnosis could cure hypothyroidism.

gracia

cindy.seeley wrote:

>

> Hi Callie!

> I suggest you read Dr. Mark Starr's book 'Hypothyroidism Type 2'

> (subtitled--The Epidemic)...you'll understand after reading his book

> why weight is a problem for hypoTs...think 'slow metabolism'...and a

> really big one...Mucin (fluid retention, but not helped much by

> diuretics).

>

April 24, 2009

I have a friend who is doing EFT for weight loss.

And although I believe that once my hormones are

balanced, I will lose weight, I don't hear of

too many folks on here saying that is happening for them.

Anyone?

Ali

On Apr 24, 2009, at 7:08 AM, Gracia Berrocal wrote:

>

> I work with a woman whose doc has her on psych meds (depakote I

> think). she is sooo hypo looking and bloated--it just amazes me that

> her poor doc has no clue about her appearance. I mean it really speaks

> to his incompetence. she looks like she would pop if you stuck a pin

> in

> her. last week she said that she was going to try hypnosis for weight

> loss! I said I didn't think hypnosis could cure hypothyroidism.

> gracia

>

> cindy.seeley wrote:

> >

> > Hi Callie!

> > I suggest you read Dr. Mark Starr's book 'Hypothyroidism Type 2'

> > (subtitled--The Epidemic)...you'll understand after reading his book

> > why weight is a problem for hypoTs...think 'slow metabolism'...and a

> > really big one...Mucin (fluid retention, but not helped much by

> > diuretics).

> >

>

April 24, 2009

I was diagnosed about 4 or 5 years ago with papular mucinosis or scleromyxedema.

The doctors here both private and University of Washington don't know what to do

about this, and I went back several times for biopsies (all the same) but no

treatments. I read up on it and finally just stopped going and did nothing. Have

any of you heard of this?

Roni

<>Just because something

isn't seen doesn't mean it's

not there<>

>

> Hi Callie!

> I suggest you read Dr. Mark Starr's book 'Hypothyroidism Type 2'

> (subtitled--The Epidemic)...you'll understand after reading his book

> why weight is a problem for hypoTs...think 'slow metabolism'...and a

> really big one...Mucin (fluid retention, but not helped much by

> diuretics).

>

------------------------------------

April 24, 2009

http://dermnetnz.org/immune/scleromyxoedema.html

I have the one that looks most like the picture on the bottom right side. They

called it either papular mucinocis or scleromyxedema.

Roni

<>Just because something

isn't seen doesn't mean it's

not there<>

From: venizia1948 <nelsonck@...>

Subject: Re: Thanks and some more questions...oh and celiac

hypothyroidism

Date: Friday, April 24, 2009, 5:57 AM

Does mucin appear under the skin like lumps? I have this on arms and legs.

This is not cellulite.

Venizia

> >

> > Thank you all that have sent feedback regarding bad periods and weight

issues.

> >

> > Today I went to a new thyroid doc...and of course asked him a bevy of

questions.

> >

> > I asked him about the weight issues. He said weight fluxuation (sp?) doesn't

happen with hypo. Naturally I'm thinking " Bulls!@t " in my head. And I also asked

him if the Hashi's/hypo can lead to painful menstruation and he of course said

no...and that I might have P.C.O.S. (I might be getting the name/acronym wrong)

or polycystic ovarian syndrome (something along those lines) and he said that

can lead to weight gain and bad periods. I can get the bad period thing, cause

a girl I work with has it and she can get some gut-wrenchers, but the weight

gain? Maybe cause it affects your hormones somehow? (I don't know I haven't

looked it up yet.

>

------------------------------------

April 24, 2009

I sent a link with pictures.

Roni

<>Just because something

isn't seen doesn't mean it's

not there<>

From: venizia1948 <nelsonck@...>

Subject: Re: Thanks and some more questions...oh and celiac

hypothyroidism

Date: Friday, April 24, 2009, 9:07 AM

Roni,

What are your symptoms with this?

Venizia

> >

> > Hi Callie!

> > I suggest you read Dr. Mark Starr's book 'Hypothyroidism Type 2'

> > (subtitled--The Epidemic)...you'll understand after reading his book

> > why weight is a problem for hypoTs...think 'slow metabolism'...and a

> > really big one...Mucin (fluid retention, but not helped much by

> > diuretics).

> >

>

> ------------------------------------

>

April 24, 2009

, thank you so much for this information, and the fact that you have dealt

with this

thing too. I had no idea that it was related to the hypo, no one said that and I

didn't find it

in the sites I researched. I've had this since about 1995, when I became

sensitzed to tobacco smoke and vehicle exhaust. Coughed my brains out for 8

months, was on all kinds of antihistamines and then came down with fibromyalgia.

Who knows if the drugs didn't cause this in the first place. I copied the post

you sent because I wanted to show it to my doctor, but the printing came out

miniscule. What could I do about that? I've been having much pain this winter

from the fibro, and I have back pain from herniated discs along with sciatica.

I'm going to see a spinal rehabillitation doctor Monday, so I can get a referral

to a physical therapy place. In the meantime, I was also considering an

appointment with the rheumatologist.

Â

I'm so amazed because no one I ever spoke to had heard of this or knew anyone

with this problem. I had a horoscope yesterday (I think) that said I should ask

for help. Wow, was that one on target.

Â

Roni

<>Just because something

isn't seen doesn't mean it's

not there<>

From: cindy.seeley <cindy.seeley@...>

Subject: Re: Thanks and some more questions...oh and celiac

hypothyroidism

Date: Friday, April 24, 2009, 1:32 PM

See my personal comments at the end of the following quoted materials...

The following are from:

http://www.thefreedictionary.com

sclero-

sclero- or scler-

pref.

1. Hard: sclerite.

2. Hardness: sclerometer.

3. Sclera: scleritis.

[Greek sklro-, from sklros, hard.]

myxoedema-

myxÂ·eÂ·deÂ·ma or myxÂ·oeÂ·deÂ·maÂ (mks-dm)

n.

A disease caused by decreased activity of the thyroid gland in adults and

characterized by dry skin, swellings around the lips and nose, mental

deterioration, and a subnormal basal metabolic rate.

myxoedema or US myxedema [mix-id-deem-a]

Noun

a disease caused by an underactive thyroid gland, characterized by puffy eyes,

face, and hands, and mental sluggishness [Greek muxa mucus + oidÄ“ma swelling]

myxedema, myxoedema

a disease resulting from the decreased function of the thyroid, characterized by

a slowing down of mental and physical activity and thickening and drying of the

skin. â€” myxedematous, myxedoematous, adj.

lichen-

n.

1. A fungus, usually of the class Ascomycetes, that grows symbiotically with

algae, resulting in a composite organism that characteristically forms a

crustlike or branching growth on rocks or tree trunks.

2. Pathology Any of various skin diseases characterized by patchy eruptions of

small, firm papules.

tr.v. liÂ·chened, liÂ·chenÂ·ing, liÂ·chens

To cover with lichens.

lichenÂ (lkn)

The mutualistic symbiotic association of a fungus with an alga or a

cyanobacterium, or both. The fungal component of a lichen absorbs water and

nutrients from the surroundings and provides a suitable environment for the alga

or cyanobacterium. These live protected among the dense fungal hyphae and

produce carbohydrates for the fungus by photosynthesis. Owing to this

partnership, lichens can thrive in harsh environments such as mountaintops and

polar regions. The more familiar lichens grow slowly as crusty patches, but

lichens are found in a variety of forms, such as the tall, plantlike reindeer

moss. The association between the different organisms in a lichen is so close

that lichens are routinely referred to as a single organism, and scientists

classify lichens using the name of the fungal component.

papular-

papÂ·uleÂ (ppyl) also papÂ·uÂ·la (-y-l)

n. pl. papÂ·ules also papÂ·uÂ·lae (-y-l)

A small, solid, usually inflammatory elevation of the skin that does not contain

pus.

mucinosis-

mucinosis /muÂ·ciÂ·noÂ·sis/ (muâ€³si-noÂ´sis) a state with abnormal deposits of

mucins in the skin.

follicular mucinosisÂ a disease of the pilosebaceous unit, characterized by

plaques of follicular papules and alopecia.

muÂ·ciÂ·noÂ·sis (mys-nss)

n.

A condition in which mucin is present in the skin in excessive amounts, or in

abnormal distribution.

mucinosis

a state with abnormal deposits of mucin in the skin, often associated with

hypothyroidism (myxedema).

From the website you (Roni) posted:

http://dermnetnz.org/immune/scleromyxoedema.html

Lichen myxoedematosus (lichen myxedematosus) is also known as papular mucinosis.

It is a rare skin disorder characterised by deposits of mucin in the skin.

Lichen myxoedematosus has localised and generalised forms. The localised form

has a more favourable course compared to the generalised form, which can involve

other organs and is sometimes fatal.

Although the term scleromyxodema and lichen myxoedematosus have often been used

interchangeably, scleromyxoedema refers to the generalised form.

I thought the following (at this site as well) was of particular interest...

Skin biopsy is the main diagnostic test to assess for suspected lichen

myxoedematosus.

Other tests may include:

Â Â * Serum and urine protein electrophoresis for paraproteins

Â Â * Thyroid function

Â Â * Auto-antibodies including antinuclear factor

Roni, I had forgotten what it was called, but I had this problem for years

(diagnosed over 20 years ago)Â The top two pictures (left and center ones) show

what my skin looked like in darker pigmented areas.Â The bottom right one is

what my skin looked like in all the lighter pigmented areas (breasts, stomach,

etc.).Â I was told at the time that there was no cure, but was able to manage

it.Â Two options (I've used both at different times) that worked for me are:

1) 10% propylene glycol in distilled water (doctor wrote a prescription, but I

was told a prescription wasn't required, however a pharmacist did have to mix it

up).Â Apply daily with cotton ball to all affected areas.

2) Selsun Blue medicated shampoo.Â Smear this on all over and leave on for 10

minutes (all affected areas) prior to bathing.Â Then wash (I showered) off.

Also, I found that lots of sunshine helped keep it in check.Â In fact, the

doctor I went to back then, considered ordering a sunlamp for me to use through

the winter (for both this and SADD).Â I didn't have insurance at the time, so I

didn't really feel it was an option for me.

I had not realized prior to reading this information that this was also

connected to thyroid, but it makes sense given that my 'fungus' is pretty well

gone now...it's wonderful not to itch like I use to all the time.

I also didn't realize it's connected to scleroderma (hardening skin and/or

organs), which is also related to thyroid.Â My paternal grandfather was

diagnosed.Â My dad was the first to tell me that he thought he and I both had

it too, but I never understood why he thought that at the time.Â It's been

since I started avidly researching last year that I finally made the

connection.Â From what I've learned, I don't think this is reversible, but I

think adequate thyroid treatment will stop the progression.

I wonder how many other 'conditions' we have that we fail to make the 'thyroid

connection'?!

>

> http://dermnetnz.org/immune/scleromyxoedema.html

> Â

> I have the one that looks most like the picture on the bottom right side. They

called it either papular mucinocis or scleromyxedema.

>

> Roni

------------------------------------

April 24, 2009

I did lose a lot of weight when I got enough Armour in me, but it was

water weight. right now I eat like a truck driver, I am sure I get

2500 calories a day and everything is good except for a distended

belly. I hope that goes away as I get enough iodine in me.

gracia

Alison Trotta-Marshall wrote:

>

> I have a friend who is doing EFT for weight loss.

> And although I believe that once my hormones are

> balanced, I will lose weight, I don't hear of

> too many folks on here saying that is happening for them.

> Anyone?

> Ali

> On Apr 24, 2009, at 7:08 AM, Gracia Berrocal wrote:

>

> >

> > I work with a woman whose doc has her on psych meds (depakote I

> > think). she is sooo hypo looking and bloated--it just amazes me that

> > her poor doc has no clue about her appearance. I mean it really speaks

> > to his incompetence. she looks like she would pop if you stuck a pin

> > in

> > her. last week she said that she was going to try hypnosis for weight

> > loss! I said I didn't think hypnosis could cure hypothyroidism.

> > gracia

> >

> > cindy.seeley wrote:

> > >

> > > Hi Callie!

> > > I suggest you read Dr. Mark Starr's book 'Hypothyroidism Type 2'

> > > (subtitled--The Epidemic)...you'll understand after reading his book

> > > why weight is a problem for hypoTs...think 'slow metabolism'...and a

> > > really big one...Mucin (fluid retention, but not helped much by

> > > diuretics).

> > >

> >

>

April 24, 2009

I'm actually not totally sure about the PT now, and I'm pretty sure the last

time I went (different place) the electrical stimulation they put on my back

precipitated the 2-1/2 years of weekly to bi monthly episodes of afib. I will

still see the spine rehab doctor on Monday, but I'm not sure what I will do

after that. The pain that you described below in your neck, shoulders, hips, low

back, hands and feet are the pains that I've been having. The itchiness too, but

never knew it was not just me. It's so hard to sort out what is coming from

what. I never used to have a problem with cold, but now I do. I also have a pain

in my upper arms that is new too. I usually don't get depressed (too many B

vitamins : ), but I'm getting

really discouraged. Trying to explain all this to someone including a doctor

makes me sound like the perfect hypochondriac. It even sounds that way to me,

but it's all real. I don't take pain pills or anti depressants. I asked for some

muscle relaxers about a month ago, and all I take is one half at a time. I don't

think I've taken a total of more than 5 so far. I hate the feeling of being

fuzzy in the head. It helps some, but I only take it when I'm at the point of

desperation. It's called Soma.

Roni

<>Just because something

isn't seen doesn't mean it's

not there<>

From: cindy.seeley <cindy.seeley@...>

Subject: Re: Thanks and some more questions...oh and celiac

hypothyroidism

Date: Friday, April 24, 2009, 6:19 PM

Hi Roni!

I reformatted my previous post to a larger font and emailed it to you. I had

saved a copy of it as a notepad file in my thyroid research folder.

Regarding the physical therapy. You need to be very cautious! I've been

through physical therapy twice, through 2 different clinics...the second time

under the guidance of a doctor who specialized in physical therapy and had an

entire team that worked with me. The 1st was with a physical therapist who

developed a program specific to my case (he was the only physical therapist who

would even work with me at that clinic 'cause the others were afraid of hurting

me worse). I am not trying to dissuade you; only to caution you to be very

careful. If they have you doing something that hurts you, tell them

immediately! Also, be aware that until you are adequately treated for your hypo

(I don't think you are from the things you've said), you have a very high

probability that many (not all) of the physical therapy exercises will make you

worse. I did learn several things that I was able to take away from both of my

experiences (20 sessions the first

time--2 x weekly and 5 or 6 months the 2nd time--3 x weekly--2nd was both P/T &

O/T). Some of the things that I had already learned from past experience made

me worse, I still had to go along with and allow therapists to see for

themselves that they were bad for me...like for example, I do not respond well

to cold, so ice packs or cold compresses 'freeze' me up and make my pain shoot

through the ceiling, while on the other hand, moist heat does wonders for me! I

learned a couple stretches that I use to this day and have taught others with

sciatica to use as well, that alleviates that for me, and has also helped

everyone that I've taught it to (another lady just last week when I went to a

sewing retreat). Keep in mind, I was not the one who gave up on the physical

therapy; it was the therapists/doctor who made the determination that they were

making me worse, not better.

A rheumatologist was also suggested for me about 6 years ago, but my husband was

laid off at the time and our insurance ran out before we could get that set

up...my arthritis has improved so much since getting on Armour (from

levothyroxine), and even more this winter since getting on an adequate amount of

Armour, that I had the arthritis pain, mildly, during only the worst snow & ice

storms this winter (the ones that moved really really slow, building up lots of

pressure before they finally dumped on us). I actually missed 'predicting'

several storms this winter as a result. We're suppose to get severe

thunderstorms tonight and I am only having the mild itchiness (inside) that I

use to get with horrible aching in my hands, feet, shoulders, hips, low back and

neck. In the past, I would have been pretty much immobilized with the pain.

If you have the opportunity offered to you, when you see the spinal rehab doc

(or you might even ask), I would suggest that you take aqua therapy. The best

orthopedic surgeon I went to (I was sent to 3 different ones) told me that he

thought aqua therapy would be really beneficial to me and it's less stressful on

the joints and tendons. The last physical therapy team wanted to send me to

aqua therapy too, but my insurance required a referral from my primary care doc

(the one I use to have) and he refused to give it because he didn't think it

would do me any good...wasn't willing to allow me the opportunity to try it even

though the 'specialists' I'd been to because of his referral thought it would

help me...go figure! Before I got really bad, I always found swimming to be

good exercise for me compared to many other forms of exercise, so I do believe

it would have helped.

hth,

>

> , thank you so much for this information, and the fact that you have

dealt with this

> thing too. I had no idea that it was related to the hypo, no one said that and

I didn't find it

> in the sites I researched. I've had this since about 1995, when I became