Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 , You must be so relieved! Congrats on a day gone smoothly... HRH Good news!!!!! > > > Hello all! > The appt. with the pulmon. specialist went very well today...praise > God! Her atrial septal defect is all but gone, her patent ductus > opening was still closed tight, and she had within the realm > of " normal " backflow at her mitro-valve. There appears to be NO > compromise of the heart yet.....WWWOOOOOOHHHHOOOOOOOOOOO!!!!!! > Sorry, lol, I'm just so thrilled that it looks like we will have > time to get her seen by dr D'Astous, if they will see her. Wouldnt > you know it, the 15 min I stepped out today to go pick up my kids > from school, the applications dept from the SLC Shriners called!! > They left a message on my machine, and when I tried to call back, it > was 3:15, and the recording said the office closed at 3:00!!!Aggghhh! > Oh well, I'll call first thing in the morning. I'm a little worried > cause she said she wanted to go over all the details of my app > before presenting it to the chief of staff, and that included > getting a copy of her denied app from St. Louis Shriners hospital. > My question is why do they need a copy of the denied one from that > hospital? I hope it doesnt mean that she'll automatically be denied > again! At the St. Louis Shriners hospital, they said they would not > take her because she needed a higher level of life support and > surgery then they were able to offer. I pray that since it is not > surgery were requesting from SLC, its casting therapy, that they > will reconsider her. They said in St. Louis that she was to young > and to severe, but it sounds like SLC had seen kids younger then > Eliana. I dont know what I'll do if they just flat deny her, I'll > be back to square one. Hopefully the phone call with them tomarrow > will go as well as the dr's appt. today. She was such a trooper, > she laid there and let them hold her down, hold her hands still, and > stick electrodes all over her while they did a 50 minute sonogram > and EKG tape on her without hardly even fussing! She just laid > there and watched a Baby Einstien tape, blowing rasberries at > the tech. As much as all our kiddos are going through, its a wonder > they dont start screaming at the mere sight of a stethescope...they > are just so amazingly resilient!! Anyway, thats the latest, thanks > for all the prayers and thoughts for us today....I was so afraid > they were going to tell me to go home and pack my bags for St. Louis > for halo surgery. The doc said to keep an eye on her O2 sats, and > that when they fall below 90 on a consistent basis, that would mean > compromise, and they hover around 95-98 now, so we still have a > little time...I posted some new pics of Eliana from right after she > was born, if anyone was curious. They are a little scary with all > the tubes and stuff, but it's just amazing what the dr.s were able > to do for her. Maybe thats why I was so shocked to find there are > so little options for kiddos with scoli. Well, better go for now.. > God bless you all, and thanks again for the support! > > , mom of Eliana > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 I just wanted to let you know that although I don't know Eliana's whole story.....( am slowly catching up ) on everyone.....I am so glad her appt went great and you got wonderful news!! I looked at her pics you posted and she is a true angel baby!! To look at her from birth until now...what great progress she has made. She is a beautiful little angel. To see any child overcome a true fight, like Eliana being so little at birth and all these children in their daily battles with their multiple health issues......and see them take it on head first and keep smiles on their faces....that is my proof that our God is out there, and he hand picked each one of us to take care of his special angels during their journies. Anyway....before I get too mushy, I'll sign this post off. You and your family, as everyone here are in my families prayers. Tracey > > Hello all! > The appt. with the pulmon. specialist went very well today...praise > God! Her atrial septal defect is all but gone, her patent ductus > opening was still closed tight, and she had within the realm > of " normal " backflow at her mitro-valve. There appears to be NO > compromise of the heart yet.....WWWOOOOOOHHHHOOOOOOOOOOO!!!!!! > Sorry, lol, I'm just so thrilled that it looks like we will have > time to get her seen by dr D'Astous, if they will see her. Wouldnt > you know it, the 15 min I stepped out today to go pick up my kids > from school, the applications dept from the SLC Shriners called!! > They left a message on my machine, and when I tried to call back, it > was 3:15, and the recording said the office closed at 3:00!!! Aggghhh! > Oh well, I'll call first thing in the morning. I'm a little worried > cause she said she wanted to go over all the details of my app > before presenting it to the chief of staff, and that included > getting a copy of her denied app from St. Louis Shriners hospital. > My question is why do they need a copy of the denied one from that > hospital? I hope it doesnt mean that she'll automatically be denied > again! At the St. Louis Shriners hospital, they said they would not > take her because she needed a higher level of life support and > surgery then they were able to offer. I pray that since it is not > surgery were requesting from SLC, its casting therapy, that they > will reconsider her. They said in St. Louis that she was to young > and to severe, but it sounds like SLC had seen kids younger then > Eliana. I dont know what I'll do if they just flat deny her, I'll > be back to square one. Hopefully the phone call with them tomarrow > will go as well as the dr's appt. today. She was such a trooper, > she laid there and let them hold her down, hold her hands still, and > stick electrodes all over her while they did a 50 minute sonogram > and EKG tape on her without hardly even fussing! She just laid > there and watched a Baby Einstien tape, blowing rasberries at > the tech. As much as all our kiddos are going through, its a wonder > they dont start screaming at the mere sight of a stethescope...they > are just so amazingly resilient!! Anyway, thats the latest, thanks > for all the prayers and thoughts for us today....I was so afraid > they were going to tell me to go home and pack my bags for St. Louis > for halo surgery. The doc said to keep an eye on her O2 sats, and > that when they fall below 90 on a consistent basis, that would mean > compromise, and they hover around 95-98 now, so we still have a > little time...I posted some new pics of Eliana from right after she > was born, if anyone was curious. They are a little scary with all > the tubes and stuff, but it's just amazing what the dr.s were able > to do for her. Maybe thats why I was so shocked to find there are > so little options for kiddos with scoli. Well, better go for now.. > God bless you all, and thanks again for the support! > > , mom of Eliana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 All the big food chains are going to have a medical clinic in there stores. You can see a doctor or a Nurse there. They can give out medications for very little cost. Oh Happy Days! D999 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Hi! WalMart also has a big section of alternative meds and also a health food section of all organic foods. D999 Gracia <circe@...> wrote: well that is good news for big pharma! Gracia All the big food chains are going to have a medical clinic in there stores. You can see a doctor or a Nurse there. They can give out medications for very little cost. Oh Happy Days! D999 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Wow! Congratulations . Hugs, VickieG Good news!!!!! Hey evreyone I have great news! Are yu ready? Better sit down. Okay here it is. My 4 week viral load test came back today and it went from 4 million down to less than 615. Almost undetctable. My nurse said by 12 weeks I should be totally undetcable. I think most drs do concider this undetcable. My nurse said that he does not see people who do as well as I am doing. For all those on treatment or about to start it is worth it. Hang in there. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.