Fw: Thanks for the support ... list of my symptoms

[Guest guest]

From: gorobin (by way of ilena rose) <gorobin@...>

Sent: Thursday, January 11, 2001 1:03 PM

Subject: Thanks for the support ... list of my symptoms

> Ilena

> There are no words to describe the gratitude and love I feel for you and

all

> the other women who have taken the time to email me. Thank you for

putting

> me on your Support email list. This is the best therapy for me right now.

> The waiting (for the surgery) is so difficult. The letters somehow reduce

> the chronic pain that I am in. Incidentally, I have compiled a list of my

> symptoms that may help or enlighten other women. I began suffering w/

them

> for approx 1 and a half years:

>

> 1- significant hair loss

> 2- significant weight loss

> 3-dry eyes and mouth

> 4-sleep disturbances, difficulty falling and and/or staying asleep

> 5-joint pain and stiffness, esp neck, shoulders, elbows

> 6-severe myalgias and weakness

> 7-night sweats lasting all night long

> 8-coldness and tingling of my hands

> 9-throbbing in my chest, throat

> 10-vice-like constrictive sensation in various parts of my body, more

> specifically arms, and throat

> 11-burning and weakness in both arms

> 12-difficulty swallowing

> 13-short term memory loss

> 14-difficulty concentrating

> 15-difficulty understanding directions

> 16-difficulty word finding

> 17-sensitivity to light, esp fluorescent lighting

> 18-ringing in my ears

> 19-chronic fatigue

> 20-red rash over the cheeks and nose, particularly at night

> 21-chest pain & heaviness

> 22-general malaise

>

>