Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Hi there Has anyone tried ribose or creatine, if so was either any help. Ribose says it should help with fibro plus heart conditions and oxygenation n > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Thanks for this info. I have ordered D-ribose to try as well, but didn't know those with a Mediterranean background are more likely to be deficient. I am of 100% Greek descent, so this is an interesting lead. My mum is also sick, and my sister has some traits (like anxiety, problems sequencing info) that I've thought were related to what we have. Interesting about FMF. I was just thinking of this yesterday, wondering if any doctor had thought to rule it out in my case. > I started taking D-Ribose (cardiovascular research brand from vitaminshoppe), starting with just 1 gm (1/4 tsp) 3X day right before meals because I'm nervous about the sugar. So far no bad effects. It was absorbed quickly under my tongue. > Just received Dr. Conley newsletter who is recommending ribose as a new breakthrough. He says the body has a hard time making it and many are deficient in one of the necessary enzymes G6PD, especially people of Mediterranean background (includes some Irish ). He says 5 gms twice a day in water or juice with meals. > This reminded me of a co-cure article (May 30 2005) about Familial Mediterranean Fever with FM type symptoms acquired genetically and found in old Appalachian families possibly of European descent. I think they both mentionned defense of malaria. FMF involves lack of pyrin to deactivate inflammatory response. This patient had pain in side, relieved by trial of colchicine. > > >next week as he mentions all the stuff I have with the bad upper back > >and the pain under the ribs ect. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Hi, all. I just want to reiterate that I think the value of D-ribose in CFS will mainly be in helping people to bounce back from a " crash " more rapidly, because it should help to rebuild ATP when it temporarily goes down low. It may also help a little with baseline ATP, but I suspect that in most cases it will not get to the basis of the low-ATP issue. Although your case is still a puzzle to me, , I think that in many CFS cases, the basic pathophysiologic issue is depletion of glutathione, leading to partial blockades in the oxidative metabolism (Krebs cycle and respiratory chain), and also leading to the buildup of toxins and infections, which in turn can block various enzymes involved in ATP production and use. I think glutathione is held down by a vicious circle involving genetic variations higher up in the sulfur metabolism, including the methylation cycle and the cycles linked to it, including the folate cycle, and also transsulfuration in some cases. Until these are identified and dealt with directly, I suspect that it will be difficult in most cases to get the glutathione back up to normal, and until that is done, I don't think the person will be able to overcome the fatigue and the other symptoms of CFS. Rich > > Yes - nothing changed. > > > Has anyone tried D-Ribose?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Rich, Montiff makes a ATP supplement. Would that also be a way to bring the ATP back up after a crash??? Janet rvankonynen <richvank@...> wrote: Hi, all. I just want to reiterate that I think the value of D-ribose in CFS will mainly be in helping people to bounce back from a " crash " more rapidly, because it should help to rebuild ATP when it temporarily goes down low. It may also help a little with baseline ATP, but I suspect that in most cases it will not get to the basis of the low-ATP issue. Although your case is still a puzzle to me, , I think that in many CFS cases, the basic pathophysiologic issue is depletion of glutathione, leading to partial blockades in the oxidative metabolism (Krebs cycle and respiratory chain), and also leading to the buildup of toxins and infections, which in turn can block various enzymes involved in ATP production and use. I think glutathione is held down by a vicious circle involving genetic variations higher up in the sulfur metabolism, including the methylation cycle and the cycles linked to it, including the folate cycle, and also transsulfuration in some cases. Until these are identified and dealt with directly, I suspect that it will be difficult in most cases to get the glutathione back up to normal, and until that is done, I don't think the person will be able to overcome the fatigue and the other symptoms of CFS. Rich > > Yes - nothing changed. > > > Has anyone tried D-Ribose?? > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 In my experience you need to reduce your toxin load of your system before adding things to regenerate your energy levels. My energy levels are returning since I have swictched to a more alkaline diet and I suspect that things will normalise when I add supps to alkalise my system via Cal/ Mg. Regards CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 Where do you have an ATP test done? Lee Re: Re: Ribose Rich, Montiff makes a ATP supplement. Would that also be a way to bring the ATP back up after a crash??? Janet rvankonynen <richvank@...> wrote: Hi, all. I just want to reiterate that I think the value of D-ribose in CFS will mainly be in helping people to bounce back from a " crash " more rapidly, because it should help to rebuild ATP when it temporarily goes down low. It may also help a little with baseline ATP, but I suspect that in most cases it will not get to the basis of the low-ATP issue. Although your case is still a puzzle to me, , I think that in many CFS cases, the basic pathophysiologic issue is depletion of glutathione, leading to partial blockades in the oxidative metabolism (Krebs cycle and respiratory chain), and also leading to the buildup of toxins and infections, which in turn can block various enzymes involved in ATP production and use. I think glutathione is held down by a vicious circle involving genetic variations higher up in the sulfur metabolism, including the methylation cycle and the cycles linked to it, including the folate cycle, and also transsulfuration in some cases. Until these are identified and dealt with directly, I suspect that it will be difficult in most cases to get the glutathione back up to normal, and until that is done, I don't think the person will be able to overcome the fatigue and the other symptoms of CFS. Rich > > Yes - nothing changed. > > > Has anyone tried D-Ribose?? > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 Hi Leona, the only place I know of is over here in the UK, a lab called Biolab, if you google you will find info about the lab and the CFS ATP profile test they run. BW, Sheila > > > > Yes - nothing changed. > > > > Has anyone tried D-Ribose?? > > > > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 Hi, Also Acumen in the UK runs these tests. Rosie Hi Leona, the only place I know of is over here in the UK, a lab called Biolab, if you google you will find info about the lab and the CFS ATP profile test they run. BW, Sheila > > > > Yes - nothing changed. > > > > Has anyone tried D-Ribose?? > > > > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Dear Sue, I tried it when I was being treated through the Denver Fibro & Fatigue Clinic in 2006. Didn't do a thing for me. I've read that it's helped some people, but I wasn't one of them. I think this has been discussed in the past, you might want to search the archives on " ribose " and see what turns up. Best wishes, Marcia on in Salem, Massachusetts > > Has anyone tried Ribose? Has it helped you? What did it help? > > Have you found any brand to be better than another? > > Thank you! > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 Has anyone used Ribose (D-Ribose)? I am trying it for muscle energy (ATP) and it really makes me feel REALLY " caffeinated " . I was wondering if that was normal. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 I tried it for about a month and didn't see any difference so I stopped. Roni <>Just because something isn't seen doesn't mean it's not there<> From: amygreen53 <amygreen53@...> Subject: ribose hypothyroidism Date: Tuesday, March 24, 2009, 2:18 PM Has anyone used Ribose (D-Ribose)? I am trying it for muscle energy (ATP) and it really makes me feel REALLY " caffeinated " . I was wondering if that was normal. Amy ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 They say it works even better when combined with Creatine... it should give more energy... Love, Gabby. :0) http://stemcellforautism.blogspot.com/ " I know of nobody who is purely Autistic or purely neurotypical. Even God had some Autistic moments, which is why the planets all spin. " ~ Jerry Newport Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 The planets spin because the chances of the average rotational momentum being zero for a mass of collapsing/congregating rocks in the condition of the pre-planitary debris is virtually zero. AND because they are not tidally locked to another body, such as the Sun. .. .. > > Posted by: " a DeVelbiss " gabrieladevelbiss@... > <mailto:gabrieladevelbiss@...?Subject=%20Re%3A%20Ribose> > gabrieladevelbiss <gabrieladevelbiss> > > > Thu Mar 26, 2009 9:27 pm (PDT) > > [...] > > " I know of nobody who is purely Autistic or purely neurotypical. Even > God had some Autistic moments, which is why the planets all spin. " ~ > Jerry Newport > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.