depressed

[Guest guest]

Depressed Lady,

Know the feeling. When I started on it I gained 20 lbs in 2 weeks. Started

weight watchers and lost the 20 lbs. then LFT's went back up and here I am

again. At this point I'm not point to worry about it. When I started the

Prednisone the Olympics were on. Thank God. It ran all night so when I

couldn't sleep I watched that. I told my mother if I saw another person jump

into the pool at 3 am I though I would yack.

As they taper down and the longer you are on it though the side effects to

improve. Keep it up. It's one of the few meds that work for us.

Understand the frustration though.

My way of looking at it is I'm getting fat and happy. Being a female 5 11 I

do have a little room to play with. Have always been slender though and

don't like feeling this way. I weigh more 30 lbs more today than I did when

both of my kids were born. (Was too thin then though.)

It will improve. Hang in there.

[Guest guest]

Debby,

Dear one you have got to get a grip. You are in this for life, please back up a little you need the medicine, you will have many setbacks but take them one by one. If you need antidepressants to help you do if you already do maybe up the dose. Sounds like you are overwhelmed with all of this. But never give up. Promise us you won't go to that extreme. Think of things positive. The best way I get through all the pain and procedures is to take it minute by minute. Don't think to far ahead right now day by day. Hang in there. If nothing else this can be quite the education.

gayle/trans 6-99

galye@... q~q

^

[Guest guest]

In a message dated 12/3/01 7:59:37 PM Pacific Standard Time, tdcc2000@... writes:

I am really sorry that I dumped on you all

Debby......it's alright! DUMP...DUMP...DUMP!

thats why we are here......didn't you tell me that not

too long ago????.........ohhh....about 3 weeks or so ago. :)

we luv.....ya....it's ok!

**HAPPY**HOLIDAYS**

**AND WARM HUGS**

Bert.

[Guest guest]

I don't have any room to gain! I had one GP who just looked at me and thought I was the fattest thing she had ever seen! I was humilated and sought to have the gastric bypass. I wasn't approved though by the counselor, which was good because later on, I started exercising hard and that is how I lost the weight. Please understand that I have at least 75 to go...so I do NOT have room to gain any more. It was an accomplishment to lost that much for me. It was hard, but it was worth it because I felt so much better. NOW, I just gain water weight. It is horrible....I guess I am just having a bad day.....thanks for the encouragement...debby

Re: [ ] Depressed

Depressed Lady,Know the feeling. When I started on it I gained 20 lbs in 2 weeks. Started weight watchers and lost the 20 lbs. then LFT's went back up and here I am again. At this point I'm not point to worry about it. When I started the Prednisone the Olympics were on. Thank God. It ran all night so when I couldn't sleep I watched that. I told my mother if I saw another person jump into the pool at 3 am I though I would yack.As they taper down and the longer you are on it though the side effects to improve. Keep it up. It's one of the few meds that work for us. Understand the frustration though.My way of looking at it is I'm getting fat and happy. Being a female 5 11 I do have a little room to play with. Have always been slender though and don't like feeling this way. I weigh more 30 lbs more today than I did when both of my kids were born. (Was too thin then though.) It will improve. Hang in there.

[Guest guest]

I know it's rough with these meds. I was soooo hungry

when I started the prednisone that I actually looked

at a candle on my counter and thought " I bet that

could be filling " . I knew I was in trouble then. I

wish you were feeling better. ( I had just lost all

my baby weight when I started this-delivered in May)

so I can kind of sympathize. I think I have gained

about 16 pounds since September. I get depressed

about the weight thing and then feel guilty because I

know things could be so much worse. The only thing I

really have to deal with most of the time is side

effects. Fortunately I didn't have a weight problem

before. I really do hope you start to feel better

about yourself. That's a rough place to be in. Good

luck and remember we are all listening.

Bethanne

__________________________________________________

[Guest guest]

Everyone...I am really sorry that I dumped on you all. This is just a very very sensitive topic for me. I gained weight all my life, then would all of a sudden lose it. Come to find out, October of 00, I had Celiac Sprue...AND I was one of the lucky 5% who GAIN weight because I just couldn't get enough nutrition in my to feel full. It is a complicated explaination...however, because of the undx sprue, I developed this AIH. Now, on top of the weight from the Sprue over my lifetime, the prednisone doesn't help at all.

I went to the accupuncturist today, and they want me really really to do the Chinese Medicine with the herbs. I have to think about it all. I know what we have discussed here with the issue of herbs, and I know it is right....BUT since I have not totally responded to the prednisone/Imuran combo, I might consider it. I must talk with my doctor first.

The Accupuncturist told me they are looking into their books about AIH. He said that Carp cooked in a double boiler and orange peel and another herb I couldn't understnad (he said it was like a bean), were to be cooked with the fish. Heck, I know that fish is good for you and I like fish a lot. I am really torn in half over this all. It is so confusing to me......I just wish my appointment with the GI was sooner than 3 weeks!

debby

Re: [ ] Depressed

I know it's rough with these meds. I was soooo hungrywhen I started the prednisone that I actually lookedat a candle on my counter and thought "I bet thatcould be filling". I knew I was in trouble then. Iwish you were feeling better. ( I had just lost allmy baby weight when I started this-delivered in May)so I can kind of sympathize. I think I have gainedabout 16 pounds since September. I get depressedabout the weight thing and then feel guilty because Iknow things could be so much worse. The only thing Ireally have to deal with most of the time is sideeffects. Fortunately I didn't have a weight problembefore. I really do hope you start to feel betterabout yourself. That's a rough place to be in. Goodluck and remember we are all listening.Bethanne __________________________________________________

[Guest guest]

hi ,

i'm sorry you're having a rough time of it,i am so thankful for the support

offered with this group,i'm glad that you have an outlet while you'rew

deeling this way,it's not dumping,it's sharing,and thats always a good

thing.

I noticed you mentioned the pred/imuran combo not working so well for

you,the comb had basically no effect on my lfts etc,my specialist is putting

me (when we finally get around to it,he's been doing a lot of research into

it) on cellcept,though it's usually used post transplant,as its an anti

rejection and the body is trying to reject my own liver it's the same

principle,and as you would know,to stand any chnce of getting a

transplant,have to find meds that will control the damage ,otherwise the new

liver would go the same way,my specialist thinks its worth a shot,there

aren't really any other options,but other cases have been successful.have

you and your specialist discused cellcept as a possibility?

Take Care

Amber

>From: " Tex Pueschel " <tdcc2000@...>

>Reply-

>< >

>Subject: Re: [ ] Depressed

>Date: Mon, 3 Dec 2001 20:00:02 -0800

>

>Everyone...I am really sorry that I dumped on you all. This is just a very

>very sensitive topic for me. I gained weight all my life, then would all

>of a sudden lose it. Come to find out, October of 00, I had Celiac

>Sprue...AND I was one of the lucky 5% who GAIN weight because I just

>couldn't get enough nutrition in my to feel full. It is a complicated

>explaination...however, because of the undx sprue, I developed this AIH.

>Now, on top of the weight from the Sprue over my lifetime, the prednisone

>doesn't help at all.

>

>I went to the accupuncturist today, and they want me really really to do

>the Chinese Medicine with the herbs. I have to think about it all. I know

>what we have discussed here with the issue of herbs, and I know it is

>right....BUT since I have not totally responded to the prednisone/Imuran

>combo, I might consider it. I must talk with my doctor first.

>

>The Accupuncturist told me they are looking into their books about AIH. He

>said that Carp cooked in a double boiler and orange peel and another herb I

>couldn't understnad (he said it was like a bean), were to be cooked with

>the fish. Heck, I know that fish is good for you and I like fish a lot. I

>am really torn in half over this all. It is so confusing to me......I just

>wish my appointment with the GI was sooner than 3 weeks!

>debby

> Re: [ ] Depressed

>

>

> I know it's rough with these meds. I was soooo hungry

> when I started the prednisone that I actually looked

> at a candle on my counter and thought " I bet that

> could be filling " . I knew I was in trouble then. I

> wish you were feeling better. ( I had just lost all

> my baby weight when I started this-delivered in May)

> so I can kind of sympathize. I think I have gained

> about 16 pounds since September. I get depressed

> about the weight thing and then feel guilty because I

> know things could be so much worse. The only thing I

> really have to deal with most of the time is side

> effects. Fortunately I didn't have a weight problem

> before. I really do hope you start to feel better

> about yourself. That's a rough place to be in. Good

> luck and remember we are all listening.

>

> Bethanne

>

> __________________________________________________

>

[Guest guest]

Debby. We're here for you. If you need someone to chat with you can e-mail at Seafarer52@.... Keep the faith. I usually get on first thing in the morning and around 10:30 at night. That's when my kids are off and I get my turn. Ann From: Tex Pueschel Sent: Monday, December 03, 2001 7:49 PM Subject: [ ] Depressed Oh gosh! I just got on the scales and since July, I have gained 17 pounds. I am totally crushed. From January to July, I had lost 37 and NOW THIS! I am ready to totally quit this prednisone. I am gaining weight, I can't sleep....this is for the birds! I really am ready to quit this medicine stuff. a depressed debby

[Guest guest]

Bethanne,

I also was on Imuran and had alot of side effects. My hepatologist has

switched me to Cellcept. Much easier for me to take. Not as much nausea.

LFT's are up and down as they were on Imuran. Don't see much difference

there but doing much better with the nausea. Ask about it. I love the

Cellcept vs Imuran. Prednisone has been up and down as LFT's are not stable

yet.

[Guest guest]

In a message dated 1/6/02 7:09:02 PM Pacific Standard Time, tdcc2000@... writes:

I have tried to eat the right stuff...maybe this prednisone is doing a number on me

Debby, of course Prednisone is a big factor in your weight gain! Remember, you're still you, regardless of weight.

Harper

[Guest guest]

Debby don't worry about the weight. They say the prednisone does that to some people. I'm not on it at this time but even with the imuran I can't seem to lose weight. I don't eat that much and with what I eat I should be a rail. 5'6'' - 138lbs. Ann [ ] Depressed Darn it guys....I am really in a frump tonight. I got on the scales and am gaining. I am crushed. I cannot believe it! I didn't even eat all that much at Christmas, but I didn't also exercise as much by walking around, etc as I normally do. I guess going back to work tomorrow will be the best thing for me...at least I will be walking around all day long. Oh darn! I am so down. I feel so terribly fat and ugly...I have tried to eat the right stuff...maybe this prednisone is doing a number on me......thanks for letting me cry. debby

[Guest guest]

Debby,

Hang in there...the prednisone is doing it's thing....remember you are

doing the best you can...eating wisely, excercising when you are able

is the best you can do. It is frustrating, but it the most important

thing is getting some control over the disease...

nne

> Darn it guys....I am really in a frump tonight. I got on the scales

and am gaining. I am crushed. I cannot believe it! I didn't even

eat all that much at Christmas, but I didn't also exercise as much by

walking around, etc as I normally do. I guess going back to work

tomorrow will be the best thing for me...at least I will be walking

around all day long. Oh darn! I am so down. I feel so terribly fat

and ugly...I have tried to eat the right stuff...maybe this prednisone

is doing a number on me......thanks for letting me cry.

> debby

[Guest guest]

I am felling a little depressed. Every time I have family or

friends over I ask before what they " like " (not do to health

reasons), so I end up fixing several things to make everyone happy.

Well, since I started this diet and especially now around the

holidays there hasn't been one person fix ME anything according to

my diet. If I did not eat before I went or took my own food, I

would go several hours without eating anything and no one would even

say I am sorry what can I fix you. I guess I just don't get it. Do

people think this is some sort of a game that it really doesn't

matter? I have even had my sister say " just try a little piece it

won't hurt you " .

I am trying very hard to get well here and I just wish there were

more friends and family that would want the same.

Has anyone else had this experience?

Thanks for listening.

Deb

[Guest guest]

Hi Debbie: Please don't be too hard on your family or friends (or yourself)

Put quite simply, they don't understand and some may be genuinely concerned for

you but just don't know what to do or how to express it. (Some later confided

this) I went through it for a number of years until I got a clearer picture

and was finally able to see that it's my life, my body, and my future. You have

to learn to take care of you, no matter what others think, do, or say.

Gradually the ones who are worth keeping as true friends rally round and support

you, plus you always meet new friends. Some people unfortunately, can be toxic

to us, and as dear as they can be to us, we need to distance ourselves from

them. I eat lots of (steamed, if I can get it) veggies when I go out, and as

you do, frequently take something with me to munch on. Hang in there, girl!

You can do it. Merry Christmas and all the very best for the new year.

__________________________________________________

[Guest guest]

Hi Deb,

I've been on this diet for over two years now, and I've come to the conclusion

that you just

have to go it on your own. There are still have people at work who order

sandwiches for

me that I can't eat when we have a working lunch. Or they give me candy or fruit

as a gift.

I used to take it personally, but I soon found that I was just doing myself

harm. This diet is

so far from the mainstream that people simply don't get it. For me, the trick

has been to

never expect that anyone else is going to take care of my food needs. I eat

before I go

anywhere, and I bring food with me as a backup wherever I go. I have these

wonderful

little handwoven plastic baskets that I carry around with me everywhere. I even

take food

on airplanes. I find that if I depend on others for my dietary needs, I always

end up getting

into trouble.

If you feel the need to be papered once in a while, as we all do, try and get

your food

pampering at appropriate restaurants. I love grilled meat and vegetables and

don't have a

grill at home. When I feel the need to have someone cook for me, I eat out.

Hope this helps,

Jeanne OTS

[Guest guest]

--- fats_malone2002 <signposts8@...> wrote:

> I know they're not doing it on purpose, they

> sincerely seem to think

> that surely " one cheat " or a little loosening on

> Christmas won't kill

> me. They don't seem to understand how serious it

> really is and

> almost feel obliged that part of Christmas is giving

Hi ,

I can relate because I deal with this all the time. I

do have people at work give me gifts of food, and I

have no problems re-gifting it. But worse than that I

have people like my MIL who are pushy and insist I

just have one bite.

I have all sorts of work functions with pizza and all

other sorts of goodies, and you are right it is hard.

What I do that seems to work for me is I just say " No

thank you, I do not eat XXXX " . If it's someone I

don't know that's usually all I have to say. If they

persist, I tell them I'm am prediabetic (I was, not

any more thanks to this diet) and my doctor has

advised me not to eat XXXX.

With pushy people who know me like my MIL I get pushy

right back. I just keep repeating no until they get

it. I also had a time where my MIL wanted us all to

go out to eat, and that didn't sound much fun for me.

So I went with them but I sat outside with my son and

hung out while they ate. I'll do what ever I need to

do to support myself because noone else will do it for

me.

Lastly, with the gift thing it is hard, I so

understand. You want to show them appreciation for

the thought, and you can do that and be thankful for

the thought. You also don't want to waste the food,

but nor do you want to eat it or have it around

tempting you. It sucks especially if money is tight

because you are thinking Gee I could save so much

money using this gift.

Well the other thing you can do that will solve all of

this and make you feel good is donate the food gift

item to a homeless shelter. Then it won't go to waste

and you can feel good about someone in more need than

you getting the gift. Just get rid of it fast!

Hope that helps!

Luv,

Debby

San , CA

-------------

Become a mentor. Nothing will reveal your weaknesses faster. Nothing will better

motivate you to overcome your weaknesses.

My son Hunter Hudson (10/11/04) http://debbypadilla.0catch.com/hunter/

[Guest guest]

--- deb3857wick <deborah.harper@...> wrote:

> people think this is some sort of a game that it

> really doesn't

> matter? I have even had my sister say " just try a

> little piece it

> won't hurt you " .

>

> I am trying very hard to get well here and I just

> wish there were

> more friends and family that would want the same.

I can relate a lot to what you are saying. Many

people around me are overweight and unhealthy,

including my mother, brother, MIL, husband and most of

my friends. I'm close to more overweight/unhealthy

people than I am so-called normal people. I

personally know 4 people who have had weight loss

surgery, and I don't know that many people!

My MIL has also done that " just one little piece won't

hurt you " crap and it's VERY annoying. Or harped on

how much FAT I eat. In my MIL's case, I'm pretty sure

she is trying to sabatoge me, that's the type of

person she is. But whether it's sabatoge or not,

here's how you can deal with it.

Just say " If I have one bite I might not be able to

stop with just one bite and that will be a problem for

me, so I'm not willing to risk it, but thank you

anyway. In the future can you please support me and

not offer me any foods as my food plan is pretty

complicated and it's not likely anything you are

offering is on it and I'd like to stick to it. It is

hard to eat this way and I can use all the help I can

get to avoid temptations so I'd really appreciate your

support with this. This is very important to me to do

for my health. "

Then after this, if she continues offering you food

you can't eat, then you know that her motives are

devious. Then you'd probably want to limit contact or

what ever else to deal with that. Ultimately eating

this way can be pretty isolating, and you will find

that there are a lot of people around you who

consciously or unconsciously tempt you, thwart you or

otherwise try to bring you down.

This is because your good efforts call to light their

poor efforts and they don't want to be reminded of

their bad decisions. Misery loves company so if they

can take you down with them they will. A few things

help me with the isolation:

One is that I talk on the phone and email a lot of

other people who are fighting the fight. They may

struggle here and there but they are always in the

game. One good friend has lost over 200 pounds.

Another good friend has lost close to 100 pounds but

it has taken her 4 years! She inches her way along

and never gives up. I may not have a lot of local

friends to lean on but I have plenty of phone/email

buddies to inspire me.

Second, I try to mentor others because as my signature

line says, nothing else will display your weaknesses

and encourage you to correct them like being a mentor.

How can I teach others if I don't practice what I

preach? Also mentoring others helps me because I also

learn as much from others as I teach them.

Last but not least I keep thinking in my head about

where I want to go, about the rewards, about what it

was like to be heavier and so unhealthy, and I'd

rather be very isolated than go back to that.

Luv,

Debby

San , CA

-------------

Become a mentor. Nothing will reveal your weaknesses faster. Nothing will better

motivate you to overcome your weaknesses.

My son Hunter Hudson (10/11/04) http://debbypadilla.0catch.com/hunter/