Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 Hi . It's great that is down to a low dose of the steroids. I imagine that as you continue to reduce it you may see some breakthrough. When you say that she is moody, does she complain of pain as well? I do believe that the day following a change there is pain as the body gets used to the new dose and at levels under 2 mg its really a homeopathic dose. As far as the exercise is concerned, even if you get a P.T. to do some of the stretching - you will get the best results by following a program on a daily basis. You might want to start using the splints for a short amount of time and build up to a full night as she tolerates more. Some other suggestions of exercises which puts in control (as opposed to you passively stretching if you are not comfortable with that yet) is having her stand at the edge of a step and letting her heel drop down she will be able to stretch to the point where she feels it. You just have to encourage her to hold it for 30-60 seconds. After a few days try to see if she is dropping some more. You can also make a game out of this and try to make her walk on her heels like a duck- have races etc. At some point you will feel more comfortable passively stretching her ankles. It is not like the neck where there are all sorts of nerves and it would be quite difficult for you to do any harm. I hope this was helpful. Good luck! Rena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 Hi Janet: I hope Mandy starts feeling better very quickly. That's what I hate about JRA. The evil thing is that you never know when it can creepe up on the poor kids. I feel so bad whenever any of the kids on the list go through a flare. I wish I could take their pains away. They sure all deserve happy and healthy days. I hope one day they can find a cure for this evil disease.... " Janet & Gilbert Moyer " <gjam@...> on 10/05/99 01:09:28 PM Please respond to onelist onelist cc: (bcc: Afsi Goodarzpoor/C/Fairfax/Mobil-Notes) Subject: Re: [ ] Hi, Hi Georgina, Sorry to hear Josh is not feeling too well. Mandy has the same problem as Josh. She started off in one knee, and then the other, and it just pops up, or I should say flares in different joints at different times. She is feeling somewhat better. I think the MTX is finally working. Who knows. These meds cover up the problem, not solve them. Someday, I pray they figure out what causes it. Mnady's doctor said that the senovium in her joints kind of get caught in the joints. Her joints seem to lock when she is going up or down steps. But, I am not sure why her elbows lock up. Take care, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 Hi Georgina, Sorry to hear Josh is not feeling too well. Mandy has the same problem as Josh. She started off in one knee, and then the other, and it just pops up, or I should say flares in different joints at different times. She is feeling somewhat better. I think the MTX is finally working. Who knows. These meds cover up the problem, not solve them. Someday, I pray they figure out what causes it. Mnady's doctor said that the senovium in her joints kind of get caught in the joints. Her joints seem to lock when she is going up or down steps. But, I am not sure why her elbows lock up. Take care, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 Hi Afsi, Thank you. I read all of these emails, and wonder, do these doctors really know what they are doing? So many children on high doses of meds, and still hurting. It just isn't fair for these children to suffer. I just think that, something sets it off.....either stress, or an allergy, or something, and it is going to happen whether you are on prednisone MTX, or whatever. Mandy writes in a journal everyday, so that I can see whether or not there is some kind of pattern. There just isn't. The last time she flared, she had been ice skating, and fell on her knee. Her doctor forbids her to skate anymore.... But her other flares, just seem to come and go as they please. One day her knees hurt, another her elbows, etc. It is so unpredictable. What are your thoughts? Take care, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 Hi Janet: You are so right about unpredictability of this disease. I wish there was a way to tell or there was some guidelines that could help you out in avoiding the flare ups. But I guess we have to take it one day at a time and see what future has in store for us. Sometimes I get really scared of thinking too much into the future.... " Janet & Gilbert Moyer " <gjam@...> on 10/05/99 01:48:14 PM Please respond to onelist onelist cc: (bcc: Afsi Goodarzpoor/C/Fairfax/Mobil-Notes) Subject: Re: [ ] Hi, Hi Afsi, Thank you. I read all of these emails, and wonder, do these doctors really know what they are doing? So many children on high doses of meds, and still hurting. It just isn't fair for these children to suffer. I just think that, something sets it off.....either stress, or an allergy, or something, and it is going to happen whether you are on prednisone MTX, or whatever. Mandy writes in a journal everyday, so that I can see whether or not there is some kind of pattern. There just isn't. The last time she flared, she had been ice skating, and fell on her knee. Her doctor forbids her to skate anymore.... But her other flares, just seem to come and go as they please. One day her knees hurt, another her elbows, etc. It is so unpredictable. What are your thoughts? Take care, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 [This message contained attachments] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2000 Report Share Posted February 28, 2000 When I was first diagnosed three years ago the only option I had at that time was to take medication and see how my thyroid reacted to it. I was on PTU and Synthroid at the same time. My thyroid stabilized with the PTU and now the radioactive iodine is my choice to do right now. My doctor said that I should think about doing the iodine treatment now to reduce the swelling in my neck and to reduce the three pills a day I am taking. There are days though that I feel like I can't swallow right even though I can. I was told that that could be thyroiditis. PTU for me helps stop the heart palpatations, nervousness and all the other Grave's symptoms. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2003 Report Share Posted March 23, 2003 Hi Tikva!! Welcome to our support group! We are glad you have joined us. Feel free to post questions, any help or support you can give, or just say hi! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2003 Report Share Posted July 13, 2003 Interesting! Thanks for explaining, . Apparently Remeron is known for its " put ya to sleep " properties. It did that to me the first night I took it, but I was fine after that one day. Until the vertigo.... (which I've never before had in my life). ----- Original Message ----- From: " Weidman " <kokopelli1028@...> > I was surprised to be put on two, also. The Remeron I took at night to facilitate restful sleep. Sometimes we just can't see the forest for the trees! > Good luck to you in your newfound chemical freedom!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Hi , I am sorry that this has to be short I just got back home from the hospital a couple hours ago. I am glad that you found us too. This is a great bunch of people here. All so very caring, supportive and helpful. I have a reverse curve of my neck and the only things that I have found to help have been PT and I use the pillows with the divet in the center. After we did the diagnostic testing for it, my Doc said that the Radio Frequency Lesioning should help me. But we are waiting for the things with my back to calm down first. Welcome to the group I look forward to getting to know you. Take care, Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Hi , I am sorry that this has to be short I just got back home from the hospital a couple hours ago. I am glad that you found us too. This is a great bunch of people here. All so very caring, supportive and helpful. I have a reverse curve of my neck and the only things that I have found to help have been PT and I use the pillows with the divet in the center. After we did the diagnostic testing for it, my Doc said that the Radio Frequency Lesioning should help me. But we are waiting for the things with my back to calm down first. Welcome to the group I look forward to getting to know you. Take care, Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 HI KATRINA I hope that you are well on your way to a quick and total recovery from your last surgery. TAKE IT AS EASY AS YOU CAN AND BE SAFE. MAY YOU HAVE A BETTER DAY TODAY THAN YESTERDAY AND NOT AS GOOD A DAY AS TOMORROWLARRY ,FROM COWTOWN TEXAS Katrina <sweettoobeme@...> wrote: Hi ,I am sorry that this has to be short I just got back home from the hospital a couple hours ago. I am glad that you found us too. This is a great bunch of people here. All so very caring, supportive and helpful.I have a reverse curve of my neck and the only things that I have found to help have been PT and I use the pillows with the divet in the center. After we did the diagnostic testing for it, my Doc said that the Radio Frequency Lesioning should help me. But we are waiting for the things with my back to calm down first.Welcome to the group I look forward to getting to know you.Take care,KatrinaREMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 HI KATRINA I hope that you are well on your way to a quick and total recovery from your last surgery. TAKE IT AS EASY AS YOU CAN AND BE SAFE. MAY YOU HAVE A BETTER DAY TODAY THAN YESTERDAY AND NOT AS GOOD A DAY AS TOMORROWLARRY ,FROM COWTOWN TEXAS Katrina <sweettoobeme@...> wrote: Hi ,I am sorry that this has to be short I just got back home from the hospital a couple hours ago. I am glad that you found us too. This is a great bunch of people here. All so very caring, supportive and helpful.I have a reverse curve of my neck and the only things that I have found to help have been PT and I use the pillows with the divet in the center. After we did the diagnostic testing for it, my Doc said that the Radio Frequency Lesioning should help me. But we are waiting for the things with my back to calm down first.Welcome to the group I look forward to getting to know you.Take care,KatrinaREMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 Hey, Charlynn. Welcome to the Dr. Aceves fan club. You will not be disappointed. I am from Oregon, too - I live just east of Portland in Fairview. If you have any questions or just want to talk, email me at steve_jackie_scott@... - or let me know if you want to talk by phone and I'll get you my number. Have you located a fill doctor in Bend? Jackie S Banded 1/19/05 320/247/160 > > Hi > im not sure if this is going to post right. I have been reading all your post now for several months. i have been wanting to have the lap band now for over 2 years. i am so excited because on 11/10 i finally get to do it. i am very excited to be Dr. A's patient. all of you have made me fell great about my decision to go to mexico and have it done. i am so happy that i finally will be a looser. i am not sure if i will get any emails back before i fly out on wed. but i will check my email when i get home on sat. > > i look forward to being a part of the group > Charlynn Snoke > Bend, Oregon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 HI Charlynn. Wow, this is fantastic! You will finally be banded and the weight loss will begin. I have yet to be banded (possibly on 12/29) and will look forward to hearing about your experience when you return. Have no doubt you are in good hands w/ Dr. Aceves - people seem to praise him quite a bit and he has a great success rate. The care you receive is supposedly fabulous as well. Good luck and best wishes for an uneventful surgery and we will look forward to your posts when you get to the other side! Michele (soon to be banded hopefully!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 Howdy, fellow Oregonian! You won't be sorry that you chose Dr. A!! I get over your way several times a year...mostly to go ride the Ochoco's on my horses...we should get together sometime!BIG HUGS, AND GOD'S BLESSINGSDawnita MayLowpass, Oregon10/05/05 dob "Iraida" 209/190/135 5ft 3inches"before" photos at: http://dawnita1961.myphotoalbum.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Dear all members, I am Rameshwar Fugare, had been working in an NGO which is based at Pune (State-Maharashtra, India) having knowledge of Ayurvedha. I am giving informatin, according to Ayurvedha of Aloe for your reference PLANT NAMEl:- ALOE BARBBADENSIS (= ALOE VERA) USETS USED:- Leaf-juice PROPERTIES AND USES:- the plant is bitter, sweet, cooling anthelmintic, aperient, carminative, deobstruent, diuretic, stomachic, emmenagogue, ophthalmic, and alexeteric. The juice is used in dyspesia, amenorrhoea, burns, colic, hyperadenosis, hepatoahty, splenophathy, skin diseases, constipation, spanomenorrhea, vitiated condition, of Vata and pitta, abnormal tumours, dropsy, carbuncles, sciatica, lmbago and flatulence. The elio is use for helminthiasis in children and is purgative, anthelminic and emmenagogue. It is used for local application, in painful inflammations, chronic ulsers and catarrhal and purulent ophthalmia. thanking you, Rameshwar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2006 Report Share Posted August 10, 2006 Hi pervez, Yes it has more beneficial effect on candida (internal infection only) Regards Rameshwar > > Hi > > > > Would it have any beneficial effect on candida? > > > > Regards > > Pa. > > > > Hi, > > > > Dear all members, > > I am Rameshwar Fugare, had been working in an NGO which is based at > Pune (State-Maharashtra, India) having knowledge of Ayurvedha. I am > giving informatin, according to Ayurvedha of Aloe for your reference > > PLANT NAMEl:- ALOE BARBBADENSIS (= ALOE VERA) > > USETS USED:- Leaf-juice > > PROPERTIES AND USES:- the plant is bitter, sweet, cooling > anthelmintic, aperient, carminative, deobstruent, diuretic, > stomachic, emmenagogue, ophthalmic, and alexeteric. > The juice is used in dyspesia, amenorrhoea, burns, colic, > hyperadenosis, hepatoahty, splenophathy, skin diseases, > constipation, spanomenorrhea, vitiated condition, of Vata and pitta, > abnormal tumours, dropsy, carbuncles, sciatica, lmbago and > flatulence. > > The elio is use for helminthiasis in children and is purgative, > anthelminic and emmenagogue. It is used for local application, in > painful inflammations, chronic ulsers and catarrhal and purulent > ophthalmia. > > thanking you, > Rameshwar > > > > > > Quote Link to comment Share on other sites More sharing options...
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