Willem

[Guest guest]

I agree with not taking things to the extreme...we do need to enjoy our

lives. But I am careful not to eat things that are particularly hard on

the liver and I try aromatherapy, meditation, deep breathing, etc.

before I start popping pills for things like headaches, aches, etc. I

have considerable liver damage although I don't have cirhossis and I'd

just as soon as not push my liver to further damage...I do enjoy life

and there are so many things I still want to do...like having Willem

marry me in name only so I can immigrate to Holland <g>

Tatezi <who wants so badly to live in Holland where humyns are treated

with respect and dignity>

> I just said " the hell with it " and eat what I dam well want.

> ..... " forget it all....quality of life over quantity " .

--

" It is in the shelter of each other that the people live. " ~Irish

proverb~

[Guest guest]

Hey, I'm jealous <g>

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of Feb

while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Hey, I'm jealous <g>

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of Feb

while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Hey, I'm waiting for the cat fight. LOL.

Carol

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of Feb

while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Hey, I'm waiting for the cat fight. LOL.

Carol

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of Feb

while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

LOL...no cat fights here.... Willem, you wouldn't dare, would you????? <g> I've

been collecting feathers for my cape....

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of

Feb while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror,

lest you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Hi.Ok like to meet you 2,instead of a electronic person I become a person of

flesh and blood but don.t take that literally.Tat is jealous and Carol thinks

there.s going to be a cat-fight but when I look into the mirror I don.t see a

Knight riding a white stallion but a Hepper in drag,it takes all kinds to make a

world,but Tat wearing a costume made from chicken feathers does.nt look very

attractive either.Instead of marrying her in a barn I would like to get her over

here and Caroll too to get the treatment they deserve.I believe you hve friends

in Holland,give them my phonenumber,020-6680020.Nog een prettige dag

verder,Willem.

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of Feb

while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Hi.Ok like to meet you 2,instead of a electronic person I become a person of

flesh and blood but don.t take that literally.Tat is jealous and Carol thinks

there.s going to be a cat-fight but when I look into the mirror I don.t see a

Knight riding a white stallion but a Hepper in drag,it takes all kinds to make a

world,but Tat wearing a costume made from chicken feathers does.nt look very

attractive either.Instead of marrying her in a barn I would like to get her over

here and Caroll too to get the treatment they deserve.I believe you hve friends

in Holland,give them my phonenumber,020-6680020.Nog een prettige dag

verder,Willem.

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of Feb

while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Willem,

When you look in the mirror behind that hepper in drag is a sensitive, caring

and very special person. I don't have to see you in flesh to know that.

And besides, my cape will not be chicken feathers....Crow has been donating some

feathers and of course my pigeon friends have been donating to the collection.

Sure I know most city people think of pigeon as a rat with wings, but I have a

flock of about 30 that I feed and keep a heated birdbath for on my city back

porch and they are fairly intelligent and I've found them to be nice critters.

They also have lessons to teach us being the survivors that they are. Actually,

I've never met a critter I didn't like. So don't you worry any about how my cape

will look...it willl be a gift from the Creator and will be gorgeous!

And besides....I'm an old hepper too, but it doesn't run my life!

Liefs

Tatezi

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of Feb

while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Willem,

When you look in the mirror behind that hepper in drag is a sensitive, caring

and very special person. I don't have to see you in flesh to know that.

And besides, my cape will not be chicken feathers....Crow has been donating some

feathers and of course my pigeon friends have been donating to the collection.

Sure I know most city people think of pigeon as a rat with wings, but I have a

flock of about 30 that I feed and keep a heated birdbath for on my city back

porch and they are fairly intelligent and I've found them to be nice critters.

They also have lessons to teach us being the survivors that they are. Actually,

I've never met a critter I didn't like. So don't you worry any about how my cape

will look...it willl be a gift from the Creator and will be gorgeous!

And besides....I'm an old hepper too, but it doesn't run my life!

Liefs

Tatezi

Willem

Hey, I'm comin to Holland! I'll be traveling there the first 2 weeks of Feb

while the flight is cheap. Would love to meet you!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Thanks Willem! I'll let you know when I firm up the reservations and all is

set! I've never been out of my country before!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest you

see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Hi.Okido.It is snowing in Texas and we hve a green christmas,it should hve been

the other way around.When yre in Holland you should also visit the ancient

cities of Belgium,Brugge,Luik etc.It.s only shorts drives,unlike Texas the

distances are short here and the highways are safe and sound.Forinstance

Amsterdam-Antwerp is a two hour drive.The Ardennes which are beautifull in

winter also within a couple of Hrs distance.It was here where General Patton won

his epic battle in world war two and said his famous prayer.And don.t worry

about the language EVERYBODY here speaks English which is not the same as

American let alone that Texan brawl of yours.Lol.Welcome in the old country and

discover your roots.Willem.

Re: Willem

Thanks Willem! I'll let you know when I firm up the reservations and all is

set! I've never been out of my country before!

Alley

" If you want to be a hero knight, never look directly into the mirror, lest

you see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

No snow in my area! Some of the countryside got snow blowing in the air, but

nothing sticks here. Our grass is still green and the sun is shining today and

it's quite nice if chilly.

I will have to buy more winter clothes for Holland! Shopping spree!

Thanks Willem

Alley

" If you want to be a hero knight, never look directly into the mirror, lest you

see that tin pot on your head instead of a glorious plumed helmet! "

[Guest guest]

Thanks Willem...yep, you're saved from having to see me....and Francina (my

twinnie in spirit) won't have me puking at her house in Holland either ;-)

I never forgot your offer to get me the meds Willem....that was so super nice of

you. I sure hope in one years time I will be clear.....but even if I'm not,

I'll know I gave it my best shot (no pun intended)....lol.

Huggggs

Carol

Re: Sure is quiet...

Hi Carol.That.s great news and I.am also off the hook,so to speak, since I

suggested to come here and I would get you the Peg.Our Doc. really is a

wonderfull person.In one year.s time you join the club of responders.Willem.

----- Original Message

[Guest guest]

Hi.Pam,I did three treatments and two studies.1.6 months ribavarin with

interferon.2.1 year ribavarine with interferon.3 1 year peg-interferon from

schering plough,after one year still undetectable.They say the roche

peg-interferon,pegasys,is slighter better about 3 % more change of obtaining a

SVR but I don.t know if this is true but where there.s smoke there.s fire.Mabye

claudine,she knows everything and Tat might comment on that.I.am not good into

research sites,archives etc.They are making progress with the protease

inhibitors and maby it will sooner on the market then general

believed.Goodluck,Willem.

Willem

Willem, How many and which treatments did you go through before your virus

became undetectable? (Also, what genotype are you?) My husband, Philip,

has 1a genotypeand has gone through 2 treatments, regular interferon with

riboviron & Schering peg interferon & riboviron. His doctor seems has said

that it is not worth his going on the other peg interferon with riboviron (I

can't remember the brand name right now) because if he didn't respond to the

Schering it's unlikely he'll respond to the other. His viral load was

temporarily reduced by both treatments but it did not become undetectable.

Any feedback is welcome. Thanks,

Love & blessings,

Pamela Venus

Love is all there is

Peace is all there is

Joy is all there is

Om Shanti Shanti Shanti Om

[Guest guest]

Hi.Pam,I did three treatments and two studies.1.6 months ribavarin with

interferon.2.1 year ribavarine with interferon.3 1 year peg-interferon from

schering plough,after one year still undetectable.They say the roche

peg-interferon,pegasys,is slighter better about 3 % more change of obtaining a

SVR but I don.t know if this is true but where there.s smoke there.s fire.Mabye

claudine,she knows everything and Tat might comment on that.I.am not good into

research sites,archives etc.They are making progress with the protease

inhibitors and maby it will sooner on the market then general

believed.Goodluck,Willem.

Willem

Willem, How many and which treatments did you go through before your virus

became undetectable? (Also, what genotype are you?) My husband, Philip,

has 1a genotypeand has gone through 2 treatments, regular interferon with

riboviron & Schering peg interferon & riboviron. His doctor seems has said

that it is not worth his going on the other peg interferon with riboviron (I

can't remember the brand name right now) because if he didn't respond to the

Schering it's unlikely he'll respond to the other. His viral load was

temporarily reduced by both treatments but it did not become undetectable.

Any feedback is welcome. Thanks,

Love & blessings,

Pamela Venus

Love is all there is

Peace is all there is

Joy is all there is

Om Shanti Shanti Shanti Om

[Guest guest]

Hi.Pam,I did three treatments and two studies.1.6 months ribavarin with

interferon.2.1 year ribavarine with interferon.3 1 year peg-interferon from

schering plough,after one year still undetectable.They say the roche

peg-interferon,pegasys,is slighter better about 3 % more change of obtaining a

SVR but I don.t know if this is true but where there.s smoke there.s fire.Mabye

claudine,she knows everything and Tat might comment on that.I.am not good into

research sites,archives etc.They are making progress with the protease

inhibitors and maby it will sooner on the market then general

believed.Goodluck,Willem.

Willem

Willem, How many and which treatments did you go through before your virus

became undetectable? (Also, what genotype are you?) My husband, Philip,

has 1a genotypeand has gone through 2 treatments, regular interferon with

riboviron & Schering peg interferon & riboviron. His doctor seems has said

that it is not worth his going on the other peg interferon with riboviron (I

can't remember the brand name right now) because if he didn't respond to the

Schering it's unlikely he'll respond to the other. His viral load was

temporarily reduced by both treatments but it did not become undetectable.

Any feedback is welcome. Thanks,

Love & blessings,

Pamela Venus

Love is all there is

Peace is all there is

Joy is all there is

Om Shanti Shanti Shanti Om

[Guest guest]

Hi.Pam,I did three treatments and two studies.1.6 months ribavarin with

interferon.2.1 year ribavarine with interferon.3 1 year peg-interferon from

schering plough,after one year still undetectable.They say the roche

peg-interferon,pegasys,is slighter better about 3 % more change of obtaining a

SVR but I don.t know if this is true but where there.s smoke there.s fire.Mabye

claudine,she knows everything and Tat might comment on that.I.am not good into

research sites,archives etc.They are making progress with the protease

inhibitors and maby it will sooner on the market then general

believed.Goodluck,Willem.

Willem

Willem, How many and which treatments did you go through before your virus

became undetectable? (Also, what genotype are you?) My husband, Philip,

has 1a genotypeand has gone through 2 treatments, regular interferon with

riboviron & Schering peg interferon & riboviron. His doctor seems has said

that it is not worth his going on the other peg interferon with riboviron (I

can't remember the brand name right now) because if he didn't respond to the

Schering it's unlikely he'll respond to the other. His viral load was

temporarily reduced by both treatments but it did not become undetectable.

Any feedback is welcome. Thanks,

Love & blessings,

Pamela Venus

Love is all there is

Peace is all there is

Joy is all there is

Om Shanti Shanti Shanti Om

[Guest guest]

Pamela, I'm just thinking out loud here...

consider also his liver biopsy. The virus is a fairly slow moving thing. It

probably won't hurt to take some time and let him recoup between treatments too.

I know some people hit it hard and fast and keep on hitting it with treatment

until it's either gone or they've taken all they can take, esp people with

cirrhosis. Some, who have very little liver damage, take a lighter approach,

knowing that they have more time, that better things and hopefully easier

treatments are in the future (tho there's no promise haha). Some with little

damage decide never to treat, the hep not always as harmful as the treatment

might be.

I felt quite honored recently to be referred by my shrink to another of her

patient who has hep c. She has mild to moderate liver damage, geno 1a and is on

her 2nd treatment but is having a much worse time on the peg and her gastro

isn't helping her with sides. We never respond the same way twice and our body

isn't the same as before. So certainly waiting a bit wouldn't be a bad thing I

think for your husband.

I agree with Willem that Roche seems to have better stats for geno 1's, however

they are still around 50% or less in the SVR, regardless of brand. If he never

went undetected on either treatment, then perhaps he never will. It's just

difficult to predict. I went undetectable very fast on regular treatment (I'm

geno 1b) but relapsed quickly. So go figure lol.

I think the B in geno 1b is for Butthead stubborn!

Alley

[Guest guest]

Pamela, I'm just thinking out loud here...

consider also his liver biopsy. The virus is a fairly slow moving thing. It

probably won't hurt to take some time and let him recoup between treatments too.

I know some people hit it hard and fast and keep on hitting it with treatment

until it's either gone or they've taken all they can take, esp people with

cirrhosis. Some, who have very little liver damage, take a lighter approach,

knowing that they have more time, that better things and hopefully easier

treatments are in the future (tho there's no promise haha). Some with little

damage decide never to treat, the hep not always as harmful as the treatment

might be.

I felt quite honored recently to be referred by my shrink to another of her

patient who has hep c. She has mild to moderate liver damage, geno 1a and is on

her 2nd treatment but is having a much worse time on the peg and her gastro

isn't helping her with sides. We never respond the same way twice and our body

isn't the same as before. So certainly waiting a bit wouldn't be a bad thing I

think for your husband.

I agree with Willem that Roche seems to have better stats for geno 1's, however

they are still around 50% or less in the SVR, regardless of brand. If he never

went undetected on either treatment, then perhaps he never will. It's just

difficult to predict. I went undetectable very fast on regular treatment (I'm

geno 1b) but relapsed quickly. So go figure lol.

I think the B in geno 1b is for Butthead stubborn!

Alley

[Guest guest]

Good morning everyone. I have reached the point in my " thinking " (having

adjusted somewhat to the diagnosis, knowing that I'm grade 3 / stage 2,

knowing I've probably been carrying this virus for over 27years, feeling

relatively

OK at this point) that I am now considering NOT doing the treatment. I was

(on diagnosis 8 months ago) extremely eager to treat and be rid of this

virus (scared to death actually). I was a candidate for treatment, I was

begun in October 2003, (Pegasys / Copegus by Roche), during the second week

I had what docs called a " rather dramatic drop in wbcs and platelets: (not

low enough for boosters though), I had to come off treatment temporarily to

treat an underlying periodontal disease, I am " all fixed up " as far as my mouth

is concerned (at a HIGH price), I am still considered a candidate for Hep C

treatment (now that my peridontal disease is under control), but I honestly

am at the point that I don't know if I want to ever try Hep C treatment again

(pegylated inteferon / ribavirin by either Schering Plough OR by Roche!)

LOL.

I have ALWAYS (since diagnosis) heard the statement " most people with

Hep C don't die FROM it -- they die WITH it " . I've also read about all the

side effects from treatment. (they can be really bad for some). I've also

read that women with HCV tend to do better with this chronic virus than men

do.

I'm female, I don't drink alcohol; I'm almost 45 yrs old; from what I've

heard -- even if the treatment gets rid of the virus -- it doesn't necessarily

mean I will FEEL any better, so............ LOL. What the HECK does one do.

Decisions decisions. lol. I'm still undecided and can surely sympathize

with any and all who have HCV and with those who are undecided about

treatment.

Best of luck to all.

[Guest guest]

Good morning everyone. I have reached the point in my " thinking " (having

adjusted somewhat to the diagnosis, knowing that I'm grade 3 / stage 2,

knowing I've probably been carrying this virus for over 27years, feeling

relatively

OK at this point) that I am now considering NOT doing the treatment. I was

(on diagnosis 8 months ago) extremely eager to treat and be rid of this

virus (scared to death actually). I was a candidate for treatment, I was

begun in October 2003, (Pegasys / Copegus by Roche), during the second week

I had what docs called a " rather dramatic drop in wbcs and platelets: (not

low enough for boosters though), I had to come off treatment temporarily to

treat an underlying periodontal disease, I am " all fixed up " as far as my mouth

is concerned (at a HIGH price), I am still considered a candidate for Hep C

treatment (now that my peridontal disease is under control), but I honestly

am at the point that I don't know if I want to ever try Hep C treatment again

(pegylated inteferon / ribavirin by either Schering Plough OR by Roche!)

LOL.

I have ALWAYS (since diagnosis) heard the statement " most people with

Hep C don't die FROM it -- they die WITH it " . I've also read about all the

side effects from treatment. (they can be really bad for some). I've also

read that women with HCV tend to do better with this chronic virus than men

do.

I'm female, I don't drink alcohol; I'm almost 45 yrs old; from what I've

heard -- even if the treatment gets rid of the virus -- it doesn't necessarily

mean I will FEEL any better, so............ LOL. What the HECK does one do.

Decisions decisions. lol. I'm still undecided and can surely sympathize

with any and all who have HCV and with those who are undecided about

treatment.

Best of luck to all.

[Guest guest]

Good morning everyone. I have reached the point in my " thinking " (having

adjusted somewhat to the diagnosis, knowing that I'm grade 3 / stage 2,

knowing I've probably been carrying this virus for over 27years, feeling

relatively

OK at this point) that I am now considering NOT doing the treatment. I was

(on diagnosis 8 months ago) extremely eager to treat and be rid of this

virus (scared to death actually). I was a candidate for treatment, I was

begun in October 2003, (Pegasys / Copegus by Roche), during the second week

I had what docs called a " rather dramatic drop in wbcs and platelets: (not

low enough for boosters though), I had to come off treatment temporarily to

treat an underlying periodontal disease, I am " all fixed up " as far as my mouth

is concerned (at a HIGH price), I am still considered a candidate for Hep C

treatment (now that my peridontal disease is under control), but I honestly

am at the point that I don't know if I want to ever try Hep C treatment again

(pegylated inteferon / ribavirin by either Schering Plough OR by Roche!)

LOL.

I have ALWAYS (since diagnosis) heard the statement " most people with

Hep C don't die FROM it -- they die WITH it " . I've also read about all the

side effects from treatment. (they can be really bad for some). I've also

read that women with HCV tend to do better with this chronic virus than men

do.

I'm female, I don't drink alcohol; I'm almost 45 yrs old; from what I've

heard -- even if the treatment gets rid of the virus -- it doesn't necessarily

mean I will FEEL any better, so............ LOL. What the HECK does one do.

Decisions decisions. lol. I'm still undecided and can surely sympathize

with any and all who have HCV and with those who are undecided about

treatment.

Best of luck to all.

[Guest guest]

Good morning everyone. I have reached the point in my " thinking " (having

adjusted somewhat to the diagnosis, knowing that I'm grade 3 / stage 2,

knowing I've probably been carrying this virus for over 27years, feeling

relatively

OK at this point) that I am now considering NOT doing the treatment. I was

(on diagnosis 8 months ago) extremely eager to treat and be rid of this

virus (scared to death actually). I was a candidate for treatment, I was

begun in October 2003, (Pegasys / Copegus by Roche), during the second week

I had what docs called a " rather dramatic drop in wbcs and platelets: (not

low enough for boosters though), I had to come off treatment temporarily to

treat an underlying periodontal disease, I am " all fixed up " as far as my mouth

is concerned (at a HIGH price), I am still considered a candidate for Hep C

treatment (now that my peridontal disease is under control), but I honestly

am at the point that I don't know if I want to ever try Hep C treatment again

(pegylated inteferon / ribavirin by either Schering Plough OR by Roche!)

LOL.

I have ALWAYS (since diagnosis) heard the statement " most people with

Hep C don't die FROM it -- they die WITH it " . I've also read about all the

side effects from treatment. (they can be really bad for some). I've also

read that women with HCV tend to do better with this chronic virus than men

do.

I'm female, I don't drink alcohol; I'm almost 45 yrs old; from what I've

heard -- even if the treatment gets rid of the virus -- it doesn't necessarily

mean I will FEEL any better, so............ LOL. What the HECK does one do.

Decisions decisions. lol. I'm still undecided and can surely sympathize

with any and all who have HCV and with those who are undecided about

treatment.

Best of luck to all.

[Guest guest]

Hi Willem

I think M. would try to auction it off to raise money for his " defense " .

Let's hope he doesn't succeed. I think he's as guilty as sin....but that's just

my judgement.

Hugggs to you and the hail and rain in Holland

Carol

Re: Re: side effects---

Sally, you really had a rought time with treatment...which one did you

do?

Did you respond after going through all that? What genotype are you>