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Debe

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No I haven't been diagnosed with MS or anything else for that matter,

although my rheumatologist felt I was maybe getting some kind of

fibromyalgia....he never foramlly said thats what it was as my

symptoms were just a bunch of different things...the main thing I

have is a foggy, spacey, distant feeling in my head, this has

improved from the first day but not gone away, at times it is very

bad, at times mildly annoying, my other symptoms are achy feet and

hands....thats about it....nothing else, fatigue sometimes, but not

major fatigue. I just want to be well, I do not beleive it is a

conspiracy , my opinion is that most women don't seem to have these

major problems and that is why we are treated like we are nuts...I

just think they need to find a way of figuring out who is at risk for

these complications before they implant women. That is what I feel,

and also they need to discuss the risks a lot more, and really drive

home the unknown risks of things like what we all seem to have

experienced. Yes I am glad they are gone most of the time, cept when

I look in the mirror, I am honest here, I miss them and it sucks.

Debe if your lopsided why not just get the larger breast made

smaller ????? Oh well, whatever it is your body, maybe you would have

gotten MS anyway.....it is all so hard to say..I wonder if I would

have gotten sick anyway too, but even if that is the case I think

getting the implants out is still the right thing to do because how

can you get well with these foreign objects inside you. I hope things

improve for you and me and everyone else this year...thanks

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  • 4 months later...
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My Dr doesn't believe I got sick from my implants, he does beleive

that they can leak and cause problems but he also told me not to take

them out. However when I told him I took them out he didn't say I was

crazy or anything, but no he is not a silicone disease believer,

however, he believes in treating pain with whatever meds work. When I

told him I found the vicodin to be working he gave me the script and

when I asked for something stronger he gave me lortab, we also tried

oxycontin but that stuff made me feel awful. Anyhow he is affiliated

with Stanford, where I am working(til I move next month) and his name

is Melvin Britton at the Palo Alto Medical Foundation in Palo Alto.

Pretty far for you to drive, but maybe you could call his office and

ask them if he knows a good rheumy in your area. He is a really good

rheum and he is the first Dr that didn't tell me to take anti

depressants.

Sorry I can't be of more help. If you want his number e-mail me and I

will give it to you.

Love, carrie

In @y..., " Debe " <ldebe@y...> wrote:

> Hi

> Thanks for the kind words.. Always appreciated. And Im so happy

> for you also in finding your soul mate. What an Adventure you will

be

> on. :) The Best of Luck to you and your New Life.

> Plese give me your Rheumys name. Does this Rheumy believe in

> Silicone Posioning? Im thinking about going off of Secured Horizons

> HMO Medicare Plan being Im not getting the prescriptions I need.

And

> the Doctor that was up here in Placerville, is now down in San

> Francisco. Good Luck to you , and glad to read that your

> symptoms are improving also since explant. God Bless

> Debe

>

>

> > I wish you were in the bay area girl. I have a great rheumy here

who

> > is so sympathetic to pain issues, in fact he gives me about 200

> > vicodin every two weeks. No I do not even take that many, but I

am

> > stocking them up because I fear when I go to Idaho I will never

find

> > a Dr who will give me these. I take something called klonopin for

> > sleep, I think it is still very addicting, but I have gone off

them

> > before and the withdrawl isn't too terrible, so it might be safer

> > than the soma. It is a bezo though, so they do have some

addictive

> > qualities.

> >

> > I don't understand these Dr's that are so uptight about giveing

pain

> > meds to the people who realy need them when there are people who

> > don't need them that they just hand them out too.

> >

> > My sisters ex husband dies of a drug overdose 2 days ago, he was

on

> > vicodin, soma, and zoloft. He had no pain issues, yet he had all

> > those drugs given to him legally. It just makes no sense does it?

> >

> >

> > Well, good luck to you. I hope you can find a rheumy who cares

and

> is

> > sympathetic to your issues. I know what you mean about the

vicodin,

> > they work so well for me also I try to only take 2 or 3 a day

max,

> > but they help tremendously with my brain fog and pain, so I think

> the

> > brain fog is a by product of the chronic pain in my case, since

when

> > I have no pain, I have little or no brain fog.

> >

> > Thanks, good luck, carrie

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